Effect of the goals of care intervention for advanced dementia: A randomized clinical trial

JAMA Internal Medicine

Volumn 177, Issue 1, 2017, Pages 24-31

  Hanson, Laura C ^a   Zimmerman, Sheryl ^b   Song, Mi Kyung ^c   Lin, Feng Chang ^d   Rosemond, Cherie ^b   Carey, Timothy S ^a   Mitchell, Susan L ^e  

^a UNIVERSITY OF NORTH CAROLINA SCHOOL OF MEDICINE   (United States)

^b UNIVERSITY OF NORTH CAROLINA   (United States)

^c EMORY UNIVERSITY   (United States)

^d IL   (United States)

^e BETH ISRAEL DEACONESS MEDICAL CENTER   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADVANCE CARE PLANNING PROBLEM SCORE; AFRICAN AMERICAN; AGED; ARTICLE; CLINICAL OUTCOME; CONTROLLED STUDY; DEMENTIA; FAMILY; FEMALE; HUMAN; INTENTION TO TREAT ANALYSIS; INTERPERSONAL COMMUNICATION; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MOTIVATION; MULTICENTER STUDY; NURSE PRACTITIONER; NURSING HOME PATIENT; PALLIATIVE THERAPY; PATIENT CARE; PATIENT TRANSPORT; PRIORITY JOURNAL; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; SCORING SYSTEM; SINGLE BLIND PROCEDURE; SURVIVAL; SYMPTOM; TERMINAL CARE; TREATMENT PLANNING; VERY ELDERLY; COMPARATIVE STUDY; DECISION MAKING; DECISION SUPPORT SYSTEM; HOSPITALIZATION; NURSING HOME; PATIENT CARE PLANNING; STATISTICS AND NUMERICAL DATA; TOTAL QUALITY MANAGEMENT; VIDEORECORDING;

AGED, 80 AND OVER; COMMUNICATION; DECISION MAKING; DECISION SUPPORT TECHNIQUES; DEMENTIA; FEMALE; GOALS; HOSPITALIZATION; HUMANS; MALE; NURSING HOMES; PALLIATIVE CARE; PATIENT CARE PLANNING; QUALITY IMPROVEMENT; SINGLE-BLIND METHOD; SURVEYS AND QUESTIONNAIRES; VIDEO RECORDING;

EID: 85011283221     PISSN: 21686106     EISSN: None     Source Type: Journal    
DOI: 10.1001/jamainternmed.2016.7031     Document Type: Article

References (31)

1. Hebert LE, Scherr PA, Bienias JL, Bennett DA, Evans DA. Alzheimer disease in the US population: prevalence estimates using the 2000 census. Arch Neurol. 2003;60(8):1119-1122.
2. Mitchell SL, Teno JM, Kiely DK, et al. The clinical course of advanced dementia. N Engl J Med. 2009; 361(16):1529-1538.
3. Givens JL, Kiely DK, Carey K, Mitchell SL. Healthcare proxies of nursing home residents with advanced dementia: decisions they confront and their satisfaction with decision-making. J Am Geriatr Soc. 2009;57(7):1149-1155.
4. Mitchell SL, Teno JM, Miller SC, Mor V. A national study of the location of death for older persons with dementia. J AmGeriatr Soc. 2005;53(2):299-305.
5. Biola H, Sloane PD, Williams CS, Daaleman TP, Williams SW, Zimmerman S. Physician communication with family caregivers of long-term care residents at the end of life. J AmGeriatr Soc. 2007;55(6):846-856.
6. Engel SE, Kiely DK, Mitchell SL. Satisfaction with end-of-life care for nursing home residents with advanced dementia. J AmGeriatr Soc. 2006;54 (10):1567-1572.
7. Cassell EJ. The Nature of Suffering and the Goals of Medicine. Oxford: Oxford University Press; 1991.
8. Kaldjian LC, Curtis AE, Shinkunas LA, Cannon KT. Goals of care toward the end of life: a structured literature review. Am J Hosp Palliat Care. 2008; 25: 501-511. doi: 10.1177/1049909108328256
9. Stacey D, Legare F, Col NF, Bennett CL, BarryMJ, Eden KB, Golmes-Rovner M, Llewellyn-Thomas H, Lyddiatt A, Thomson R, Trevena L, Wu JH. Decision aids for people facing health treatment or screening decisions. Chochrane Database Syst Rev. 2014;Jan (1):CD001431. DOI: 10.1002/14651858.CD001431 .pub4
10. Austin CA, Mohottige D, Sudore RL, Smith AK, Hanson LC. Tools to promote shared decision-making in serious illness: a systematic review. JAMA Intern Med. 2015;175(7):1213-1221.
11. Volandes AE, Brandeis GH, Davis AD, et al. A randomized controlled trial of a goals-of-care video for elderly patients admitted to skilled nursing facilities. J Palliat Med. 2012;15(7):805-811.
12. Hanson LC, Carey TS, Caprio AJ, et al. Improving decision-making for feeding options in advanced dementia: a randomized, controlled trial. J Am Geriatr Soc. 2011;59(11):2009-2016.
13. Reisberg B, Ferris SH, de Leon MJ, Crook T. The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatry. 1982;139(9):1136-1139.
14. Elwyn G, O'Connor A, Stacey D, et al; International Patient Decision Aids Standards (IPDAS) Collaboration. Developing a quality criteria framework for patient decision aids: online international Delphi consensus process. BMJ. 2006;333(7565):417.
15. Einterz SF, Gilliam R, Lin FC, McBride JM, Hanson LC. Development and testing of a decision aid on goals of care for advanced dementia. J Am Med Dir Assoc. 2014;15(4):251-255.
16. McDonagh JR, Elliott TB, Engelberg RA, et al. Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Crit Care Med. 2004;32(7): 1484-1488.
17. Hanson LC, Song MK, Zimmerman S, et al. Fidelity to a behavioral intervention to improve goals of care decisions for nursing home residents with advanced dementia. Clin Trials. 2016; 1740774516650863. Epub ahead of print.
18. Mitchell SL, Miller SC, Teno JM, Davis RB, Shaffer ML. The advanced dementia prognostic tool: a risk score to estimate survival in nursing home residents with advanced dementia. J Pain SymptomManage. 2010;40(5):639-651.
19. Engelberg R, Downey L, Curtis JR. Psychometric characteristics of a quality of communication questionnaire assessing communication about end-of-life care. J Palliat Med. 2006;9(5):1086-1098.
20. Teno JM, Clarridge B, Casey V, Edgman-Levitan S, Fowler J. Validation of Toolkit after-death bereaved family member interview. J Pain Symptom Manage. 2001;22(3):752-758.
21. Connor SR, Teno J, Spence C, Smith N. Family evaluation of hospice care: results from voluntary submission of data via website. J Pain Symptom Manage. 2005;30(1):9-17.
22. Kiely DK, Shaffer ML, Mitchell SL. Scales for the evaluation of end-of-life care in advanced dementia: sensitivity to change. Alzheimer Dis Assoc Disord. 2012;26(4):358-363.
23. Dy SM, Kiley KB, Ast K, et al. Measuring what matters: top-ranked quality indicators for hospice and palliative care from the American Academy of Hospice and Palliative Medicine and Hospice and Palliative Nurses Association. J Pain Symptom Manage. 2015;49(4):773-781.
24. Hickman SE, Keevern E, Hammes BJ. Use of the physician orders for life-sustaining treatment program in the clinical setting: a systematic review of the literature. J AmGeriatr Soc. 2015;63(2): 341-350.
25. Callahan CM, Arling G, TuW, et al. Transitions in care for older adults with and without dementia. J AmGeriatr Soc. 2012;60(5):813-820.
26. Phelan EA, Debnam KJ, Anderson LA, Owens SB. A systematic review of intervention studies to prevent hospitalizations of community-dwelling older adults with dementia. Med Care. 2015;53(2): 207-213.
27. Curtis JR, Back AL, Ford DW, et al. Effect of communication skills training for residents and nurse practitioners on quality of communication with patients with serious illness: a randomized trial. JAMA. 2013;310(21):2271-2281.
28. Thorpe KE, Zwarenstein M, Oxman AD, et al. A pragmatic-explanatory continuum indicator summary (PRECIS): a tool to help trial designers. J Clin Epidemiol. 2009;62(5):464-475.
29. Colón-Emeric CS, Lekan-Rutledge D, Utley-Smith Q, et al. Connection, regulation, and care plan innovation: a case study of four nursing homes. Health Care Manage Rev. 2006;31(4): 337-346.
30. Kaldjian LC, Shinkunas LA, Bern-Klug M, Schultz SK. Dementia, goals of care, and personhood: a study of surrogate decision makers' beliefs and values. Am J Hosp Palliat Care. 2010; 27(6):387-397.
31. Bercovitch R, Gillick M. Can goal-based advance planning guide medical care in the nursing home? J AmMed Dir Assoc. 2002;3(5):287-290.