Association between incongruence about survivor function and outcomes among stroke survivors and family caregivers

Topics in Stroke Rehabilitation

Volumn 25, Issue 8, 2018, Pages 569-575

  McCarthy, Michael J ^a   Bakas, Tamilyn ^a   Schellinger, Jeffrey ^a   Stapleton, Katie ^a   Kissela, Brett M ^b  

^a UNIVERSITY OF CINCINNATI   (United States)

^b UNIVERSITY OF CINCINNATI COLLEGE OF MEDICINE   (United States)

Author keywords

caregiver; couples; depression; function; mental health; outcomes; Survivor

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CAREGIVER BURDEN; CEREBROVASCULAR ACCIDENT; CLINICAL ARTICLE; CLINICAL OUTCOME; DEPRESSION; FEMALE; FOLLOW UP; HUMAN; INTERPERSONAL COMMUNICATION; LONGITUDINAL STUDY; MALE; MEMORY; SOCIAL PARTICIPATION; STROKE SURVIVOR; THINKING; COGNITIVE DEFECT; COMPLICATION; MIDDLE AGED; MORTALITY; PSYCHOLOGY; SELF EVALUATION; STROKE REHABILITATION; SURVIVOR; TREATMENT OUTCOME; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; COGNITION DISORDERS; DEPRESSION; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MIDDLE AGED; SELF-ASSESSMENT; STROKE; STROKE REHABILITATION; SURVIVORS; TREATMENT OUTCOME;

EID: 85053456203     PISSN: 10749357     EISSN: 19455119     Source Type: Journal    
DOI: 10.1080/10749357.2018.1503458     Document Type: Article

References (30)

1. Quinn K, Murray C, Malone C., Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research. Disabil Rehabil. 2014;36:185–198. doi:10.3109/09638288.2013.783630
2. Ayerbe L, Ayis S, Wolfe C, Rudd A. Natural history, predictors and outcomes of depression after stroke: systematic review and meta-analysis. BR J Psychiatry. 2012;202:14–21. doi:10.1192/bjp.bp.111.107664
3. Loh A, Tan J, Zhang M, Ho R. The global prevalence of anxiety and depressive symptoms among caregivers of stroke survivors. JAMDA. 2017;18:111–116. doi:10.1016/j.jamda.2016.08.014
4. National Institute of Mental Health. Major depression.: https://www.nimh.nih.gov. Accessed January18, 2018
5. Berg C, Upchurch R. A developmental-contextual model of couples coping with chronic illness across the adult life span. Psychol Bull. 2007;133:920–954. doi:10.1037/0033-2909.133.6.920
6. McCarthy M, Lyons K, Powers L. Expanding poststroke depression research: movement toward a dyadic perspective. Top Stroke Rehabil. 2011;18:450–460. doi:10.1310/tsr1805-450
7. Lai S, Studenski S, Duncan P, Perera S. Persisting consequences of stroke measured by the stroke impact scale. Stroke. 2002;33:1840–1844
8. Anderson S, Keating N, Wilson D. Reconciling marriage and care after stroke. Can J Aging. 2017;36:386–401. doi:10.1017/S0714980817000241
9. King R, Ainsworth C, Ronen M, Hartke R. Stroke caregivers: pressing problems reported during the first months of caregiving. J Neurosci Nurs. 2010;42:302–311
10. Witty C, Heffernan T, Riby L. Stroke patients and their partner’s perceptions of survivor functioning. Acta Neuropsychol. 2017;15:161–180. doi:10.5604/01.3001.0010.2407
11. McCarthy M, Bauer E. In sickness and in health: couples coping with stroke across the life span: table 1. Health Soc Work. 2015;40:92–100. doi:10.1093/hsw/hlv043
12. Twiddy M, House A, Jones F. The association between discrepancy in illness representations on distress in stroke patients and carers. J Psychosom Res. 2012;72:220–225. doi:10.1016/j.jpsychores.2011.12.004
13. Goldberg D, Williams A. Measuring Health: A Guide to Rating Scales and Questionnaires. Oxford: Oxford University Press; 1972
14. Badr H, Acitelli L. Re-thinking dyadic coping in the context of chronic illness. Curr Opin Psychol. 2016;13:44–48. doi:10.1016/j.copsyc.2016.03.001
15. McCarthy M, Lyons K. Incongruence between stroke survivor and spouse perceptions of survivor functioning and effects on spouse mental health: a mixed-methods pilot study. Aging Ment Health. 2015;19:46–54. doi:10.1080/13607863.2014.913551
16. Callahan C, Unverzagt F, Hui S, Perkins A, Hendrie H. Six-item screener to identify cognitive impairment among potential subjects for clinical research. Med Care. 2002;40:771–781. doi:10.1097/01.MLR.0000024610.33213.C8
17. Van Swieten J, Koudstaal P, Visser M, Schouten H, Van Gijn J. Interobserver agreement for the assessment of handicap in stroke patients. Stroke. 1988;19:604–607
18. Golicki D, Niewada M, Buczek J, et al. Validity of EQ-5D-5L in stroke. Qual Life Res. 2015;24:845–850. doi:10.1007/s11136-014-0834-1
19. Wolpe J. The Practice of Behavior Therapy. New York: Pergamon Press; 1969
20. Cohen S, Williamson G. Perceived Stress in a Probability Sample of the United States. Newbury Park, CA: Sage; 1988
21. Rush A, Trivedi M, Ibrahim H, et al. The 16-item Quick Inventory of Depressive Symptomatology (QIDS), Clinician Rating (QIDS-C), and Self Report (QIDS-SR): A psychometric evaluation in patients with chronic major depression. Biol Psychiatry. 2003;54:573–583
22. American Psychiatric Association. Diagnostic and Statistical Manual of Mental Disorders. 5th. Arlington, VA: American Psychiatric Publishing; 2013
23. Durlak JA. How to select, calculate, and interpret effect sizes. J Peds Psych. 2009;39:917–928. doi:10.1093/jpepsy/jsp004
24. Gosman-Hedström G, Dahlin-Ivanoff S. ‘Mastering an unpredictable everyday life after stroke’- older women’s experiences of caring and living with their partners. Scand J Caring Sci. 2012;26:587–597. doi:10.1111/j.1471-6712.2012.00975.x
25. Grant J, Glandon G, Elliot T, Giger J, Weaver M. Caregiving problems and feelings experienced by family caregivers of stroke survivors the first month after discharge. Int J Rehabil Res. 2004;27:105–111
26. Graven C, Sansonetti D, Moloczij N, Cadilhac D, Joubert L. Stroke survivor and carer perspectives of the concept of recovery: a qualitative study. Disabil Rehabil. 2013;35:578–585. doi:10.3109/09638288.2012.703755
27. Jones L, Morris R. Experiences of adult stroke survivors and their parent carers: a qualitative study. Clin Rehabil. 2012;27:272–280. doi:10.1177/0269215512455532
28. Cecil R, Parahoo K, Thompson K, McCaughan E, Power M, Campbell Y. ‘The hard work starts now’: a glimpse into the lives of carers of community-dwelling stroke survivors. J Clin Nurs. 2009;20:1723–1730. doi:10.1111/j.1365-2702.2010.03400.x
29. Dietz A, Thiessen A, Griffith J, Peterson A, Sawyer E, McKelvey M. The renegotiation of social roles in chronic aphasia: finding a voice through AAC. Aphasiology. 2013;27:309–325. doi:10.1080/02687038.2012.725241
30. E.Benjamin, M.Blaha, S.Chiuve. Heart disease and stroke statistics- 2017 update. Circ. 2017;10:135