Stroke survivor and carer perspectives of the concept of recovery: A qualitative study

Disability and Rehabilitation

Volumn 35, Issue 7, 2013, Pages 578-585

  Graven, Christine ^a,b   Sansonetti, Danielle ^a   Moloczij, Natasha ^c   Cadilhac, Dominique ^c   Joubert, Lynette ^b  

^a ST VINCENT S HOSPITAL   (Australia)

^b UNIVERSITY OF MELBOURNE   (Australia)

^c FLOREY INSTITUTE OF NEUROSCIENCE AND MENTAL HEALTH   (Australia)

Author keywords

Carers; Community; Recovery; Stroke

Indexed keywords

AGED; ARTICLE; CAREGIVER; CEREBROVASCULAR ACCIDENT; CONVALESCENCE; FEMALE; HUMAN; INFORMATION PROCESSING; INTERVIEW; MALE; MIDDLE AGED; PERCEPTION; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; QUESTIONNAIRE; SOCIAL SUPPORT; SURVIVOR;

AGED; CAREGIVERS; FEMALE; FOCUS GROUPS; HUMANS; INTERVIEWS AS TOPIC; MALE; MIDDLE AGED; PERCEPTION; QUALITATIVE RESEARCH; QUESTIONNAIRES; RECOVERY OF FUNCTION; SOCIAL SUPPORT; STROKE; SURVIVORS;

EID: 84874625339     PISSN: 09638288     EISSN: 14645165     Source Type: Journal    
DOI: 10.3109/09638288.2012.703755     Document Type: Article

References (26)

1. Australian Institute of Health and Welfare. Australia's health 2010. Canberra: AIHW; 2010.
2. Trif AG, Dewey HM, Macdonell RA, McNeil JJ, Donnan GA. Stroke incidence on the east coast of Australia: the North East Melbourne Stroke Incidence Study (NEMESIS). Stroke 2000;31:2087-2092.
3. Mayo NE, Wood-Dauphinee S, Côté R, Durcan L, Carlton J. Activity, participation, and quality of life 6 months poststroke. Arch Phys Med Rehabil 2002;83:1035-1042.
4. Outpatient Service Trialists. Terapy-based rehabilitation services for stroke patients at home. Cochrane Database Syst Rev 2003;CD002925.
5. Graven C, Brock K, Hill K, Joubert L. Are rehabilitation and/or care coordination interventions delivered in the community efective in reducing depression, facilitating participation and improving quality of life afer stroke? Disabil Rehabil 2011;33:1501-1520.
6. Simon C, Kumar S, Kendrick T. Cohort study of informal carers of frst-time stroke survivors: profle of health and social changes in the frst year of caregiving. Soc Sci Med 2009;69:404-410.
7. World Health Organisation. international classifcation of functioning, disability and health-ICF. Geneva: WHO; 2001.
8. Zwygart-Staufacher M, Lindquist R, Savik K. Development of health care delivery systems that are sensitive to the needs of stroke survivors and their caregivers. Nurs Adm Q 2000;24:33-42.
9. McKevitt C, Redfern J, Mold F, Wolfe C. Qualitative studies of stroke: a systematic review. Stroke 2004;35:1499-1505.
10. Cott CA. Client-centred rehabilitation: client perspectives. Disabil Rehabil 2004;26:1411-1422.
11. Siegert RJ, Taylor WJ. Teoretical aspects of goal-setting and motivation in rehabilitation. Disabil Rehabil 2004;26:1-8.
12. Robison J, Wiles R, Ellis-Hill C, McPherson K, Hyndman D, Ashburn A. Resuming previously valued activities post-stroke: who or what helps? Disabil Rehabil 2009;31:1555-1566.
13. Murray J, Ashworth R, Forster A, Young J. Developing a primary care-based stroke service: a review of the qualitative literature. Br J Gen Pract 2003;53:137-142.
14. Cumming T, Cadilhac D, Rubin G, Crafi N, Pearce D. Psychological distress and social support in informal caregivers of stroke survivors. Brain Impairment 2008;9:152-160.
15. Greenwood N, Mackenzie A, Cloud GC, Wilson N. Informal carers of stroke survivors-factors infuencing carers: a systematic review of quantitative studies. Disabil Rehabil 2008;30:1329-1349.
16. Graven C, Brock K, Hill K, Ames D, Cotton S, Joubert L. From rehabilitation to recovery: protocol for a randomised controlled trial evaluating a goal-based intervention to reduce depression and facilitate participation post-stroke. BMC Neurol 2011;11:73.
17. Mays N, Pope C. Quality in qualitative health research. In: Mays N, Pope C, editors. Qualitative Research in Health Care. 2nd ed. London: BMJ Books; 2000. pp 89-102.
18. Torne S, Kirkham S, O'Flynn-Magee K. Te analytic challenge in interpretive description. Int J Qual Met 2004;3:1-21.
19. Barker RN, Brauer SG. Upper limb recovery afer stroke: the stroke survivors' perspective. Disabil Rehabil 2005;27:1213-1223.
20. Wiles R, Ashburn A, Payne S, Murphy C. Patients' expectations of recovery following stroke: a qualitative study. Disabil Rehabil 2002;24:841-850.
21. Dowswell G, Lawler J, Dowswell T, Young J, Forster A, Hearn J. Investigating recovery from stroke: a qualitative study. J Clin Nurs 2000;9:507-515.
22. Jones F, Mandy A, Partridge C. Reasons for recovery afer stroke: a perspective based on personal experience. Disabil Rehabil 2008;30:507-516.
23. Kiresuk T, Sherman R. Goal attainment scaling: a general method for evaluating comprehensive community mental health programs. Community Mental Health J 1968;4:443-453.
24. Law M, Baptiste S, McColl M, Opzoomer A, Polatajko H, Pollock N. Te Canadian occupational performance measure: an outcome measure for occupational therapy. Can J Occup Ter 1990;57:82-87.
25. Greenwood N, Mackenzie A, Cloud G, Wilson N. Loss of autonomy, control and independence when caring: a qualitative study of informal carers of stroke survivors in the frst three months afer discharge. Disabil Rehabil 2010;32:125-133.
26. National Stroke Foundation. Clinical guidelines for stroke management. Melbourne: NSF; 2010.