Fake news, influencers and health-related professional participation on the Web: A pilot study on a social-network of people with Multiple Sclerosis

Multiple Sclerosis and Related Disorders

Volumn 25, Issue , 2018, Pages 175-178

  Lavorgna, L ^a   De Stefano, M ^a   Sparaco, M ^a   Moccia, M ^b   Abbadessa, G ^a   Montella, P ^a   Buonanno, D ^a   Esposito, S ^a   Clerico, M ^c   Cenci, C ^d   Trojsi, F ^a   Lanzillo, R ^b   Rosa, L ^b   Morra, V Brescia ^b   Ippolito, D ^a   Maniscalco, G ^e   Bisecco, A ^a   Tedeschi, G ^a   Bonavita, S ^a  

^a SECOND UNIVERSITY OF NAPLES   (Italy)

^b UNIVERSITY OF NAPLES FEDERICO II   (Italy)

^c UNIVERSITY OF TURIN   (Italy)

^d Center for Digital Health Humanities   (Italy)

^e CARDARELLI HOSPITAL   (Italy)

Author keywords

Digital health; E health; Fake news; Influencers; Multiple Sclerosis

Indexed keywords

ANONYMISED DATA; ARTICLE; CLINICAL PRACTICE; CROSS-SECTIONAL STUDY; DOCTOR PATIENT RELATION; FAKE NEWS; FEMALE; HEALTH PRACTITIONER; HUMAN; INFORMATION DISSEMINATION; INFORMATION PROCESSING; INFORMATION SEEKING; MALE; MASS COMMUNICATION; MEDICAL INFORMATION; MULTIPLE SCLEROSIS; PROFESSIONAL SECRECY; QUESTIONNAIRE; SOCIAL INTERACTION; SOCIAL MEDIA; SOCIAL NETWORK; SOCIAL PARTICIPATION; HEALTH CARE PERSONNEL; HUMAN RELATION; INTERNET; ITALY; PILOT STUDY; PSYCHOLOGY;

FEMALE; HEALTH PERSONNEL; HUMANS; INTERNET; INTERPERSONAL RELATIONS; ITALY; MALE; MULTIPLE SCLEROSIS; PHYSICIAN-PATIENT RELATIONS; PILOT PROJECTS; SOCIAL NETWORKING;

EID: 85051037754     PISSN: 22110348     EISSN: 22110356     Source Type: Journal    
DOI: 10.1016/j.msard.2018.07.046     Document Type: Article

References (29)

1. Bartlett, C., Simpson, K., Turner, R., Patient access to complex chronic disease records on the Internet. BMC Med. Inform. Decis. Mak., 12, 2012, 87.
2. Bjornsdottir, Gyda., Online social support for individuals concerned with heart disease: observing gender differences. Proc. AMIA Symp., 1999, 681–685.
3. Bodendorf, F., Kaiser, C., Detecting opinion leaders and trends in online communities. In: Fourth International Conference on Digital Society, 2010.
4. Boyd, D., Ellison, N., Social network sites: definition, history, and scholarship. J. Comput.-Med. Commun. 13:1 (2008), 210–230.
5. Chomutare, T., Arsand, E., Fernandez-Luque, L., Lauritzen, J., Hartvigsen, G., Inferring community structure in healthcare forums: an empirical study. Methods Inf. Med. 52:2 (2013), 160–167.
6. Cosmas, S.C., Shet, J., Identification of opinion leaders across cultures: an assessment for use in the diffusion of innovations and ideas. J. Int. Bus. Stud. 1:11 (1980), 66–73.
7. Dong, Y., Peng, C.Y.J., Principled missing data methods for researchers. Springerplus, 2, 2013, 222.
8. Dowerah Baruah, T., Effectiveness of Social Media as a tool of communication and its potential for technology enabled connections: A micro-level study. Int. J. Sci. Res. Publ. 2:5 (2012), 2250–3153 1.
9. Esquivel, A., Meric-Bernstam, F., Bernstam, E.V., Accuracy and self correction of information received from an internet breast cancer list: content analysis. BMJ 332:7547 (2006), 939–942.
10. Hansen, M.R., Okuda, D.T., Multiple Sclerosis in the contemporary age: understanding the millennial patient with multiple sclerosis to create next-generation care. Neurol. Clin. 36:1 (2018), 219–230.
11. Hart, D., Joing, S., The Millennial Generation and “The Lecture”. Acad. Emerg. Med. 18:11 (2011), 1186–1187.
12. Hesse, B.W., Nelson, D.E., Kreps, G.L., Croyle, R.T., Arora, N.K., Rimer, B.K., Viswanath, K., The impact of the internet and its implications for health care providers: findings from the first health information national trends survey. Arch. Intern. Med. 165:22 (2005), 2618–2624.
13. Kalichman, S., Benotsch, E., Weinhardt, AustinJ., Luke, W., Cherry, C., Health-related Internet use, coping, social support, and health indicators in people living with HIV/AIDS: preliminary results from a community survey. Health Psychol. 22:1 (2003), 111–116.
14. Lavorgna, L., RussoA, DeStefanoM., Lanzillo, R., Esposito, S., Moshtari, F., Rullani, F., Piscono, K., Buonanno, D., Brescia Morra, V., Gallo, A., Tedeschi, G., Bonavita, S., Health-related coping and social interaction in people with multiple sclerosis supported by a social network: pilot study with a new methodological approach. Interact. J. Med. Res., 6(2), 2017.
15. Lejbkowicz, I., Caspi, O., Miller, A., Participatory medicine and patient empowerment towards personalized healthcare in Multiple Sclerosis Expert Rev. Neurother 12:3 (2012), 343–352.
16. MacLean, R., Russel, A., Innovative ways of responding to the information needs of people with MS. Br. J. Nurs. 14:14 (2005), 754–757.
17. Mathieu, E., Ke McGeechan, K., Barratt, A., Herbert, R., Internet-based randomized controlled trials: a systematic review. J. Am. Med. Inform. Assoc. 20:3 (2013), 568–576.
18. McMullan, M., Patients using the Internet to obtain health information: How this affects the patient–health professional relationship. Patient Educ. Couns. 63:1-2 (2006), 24–28.
19. Moorhead, S.A., Moorhead, A.S., Hazlett, D.E., Carrol, J.K., Irwin, A., Hoving, C., A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. J. Med. Internet. Res., 4(15), 2013.
20. Morone, F., Min, B., Bo, L., Makse, H., Collective Influence Algorithm to find Influencers via optimal percolation in massively large social media. Sci. Rep., 6, 2016, 30062.
21. Nogueira, M., Baltazar, C., Braga, C., Communication of organization and digital Influencers. Eur. J. Res. Reflect. Arts.Humanities, 5(2), 2017.
22. Potts, H.W., Jeremy, C.V., Survey of doctors’ experience of patients using the Internet. J. Med. Int. Res., 4(1), 2002.
23. Prakash, P.P., First Published Science and the “fake news” conundrum. Perfusion, 2017 Editorial.
24. Rogers, E.M., Cartano, G., Methods of measuring opinion leadership. Public Opin. Q. 26:3 (1962), 435–441.
25. Shen, K.N., Khalifa, M., A research framework on social networking sites usage: critical review and theoretical extension from book software services for e-World: 10th IFIP WG 6.11. Conference on e-Business, e-Services, and e-Society, I3E 2010, Buenos Aires, Argentina, November 3-5, Proceedings, 2010, 173–181.
26. Van de Belt, H.T., Engelen, L.J., Berben, S.A.A., Teerenstra, S., Samsom, M., Schoonhoven, L., Internet and social media for health-related information and communication in health care: preferences of the dutch general population. J. Med. Internet. Res., 15(10), 2013, e220.
27. Venkatesh, V., Morris, M.G., Davis, G.B., Davis FD user acceptance of technology: toward a unified view. MIS Q. 27:3 (2002), 425–478.
28. White, M., Dorman, S.M., Receiving social support online: implications for health education. Health Educ. Res., 16(6), 2001, 69370.
29. Zeng, Q.T., Tse, T., Exploring and developing consumer health vocabularies. J. Am. Med. Inf. Assoc. 13:1 (2006), 24–29.