Can a home-based cardiac physical activity program improve and sustain quality of life and exercise capacity in children with Fontan circulation?

Progress in Pediatric Cardiology

Volumn 50, Issue , 2018, Pages 12-16

  Jacobsen, Roni ^a,d,e   Danduran, Michael ^b,c   Mussatto, Kathleen ^b   Hill, Garick D ^a,f   Ginde, Salil ^a  

^a MEDICAL COLLEGE OF WISCONSIN   (United States)

^b Children's Hospital of Wisconsin ^*  (United States)

^c MARQUETTE UNIVERSITY   (United States)

^d Children's Hospital Colorado   (United States)

^e UNIVERSITY OF COLORADO SCHOOL OF MEDICINE   (United States)

^f CINCINNATI CHILDREN'S HOSPITAL MEDICAL CENTER   (United States)

Author keywords

Congenital Heart Disease, CHD; Exercise; Fontan; Physical activity; Quality of life; Rehabilitation

Indexed keywords

ARTICLE; CHILD; CLINICAL ARTICLE; EXERCISE; EXERCISE INTENSITY; EXERCISE TEST; EXERCISE TOLERANCE; FEMALE; FOLLOW UP; FONTAN PROCEDURE; FUNCTIONAL STATUS; HOME PHYSIOTHERAPY; HUMAN; MALE; PHYSICAL ACTIVITY; PRIORITY JOURNAL; QUALITY OF LIFE; QUALITY OF LIFE ASSESSMENT; QUESTIONNAIRE; SCHOOL CHILD; SOCIAL PSYCHOLOGY; SURVIVOR; TREATMENT DURATION; TWENTY METER SHUTTLE RUN;

EID: 85050866534     PISSN: 10589813     EISSN: 15581519     Source Type: Journal    
DOI: 10.1016/j.ppedcard.2018.06.003     Document Type: Article

References (21)

1. Longmuir, P.E., Brothers, J.A., de Ferranti, S.D. et al., Promotion of physical activity for children and adults with congenital heart disease: a scientific statement from the American Heart Association. Circulation, 127, 2013 (000-000).
2. Pescatello, L., American College of Sports Medicine. 9th edition, 2014, Wolters Kluwer/Lippincott Williams & Wilkins Health, Philadelphia.
3. Daniels, S.R., Hassink, S.G., COMMITTEE ON NUTRITION, The role of the pediatrician in primary prevention of obesity. Pediatrics 136:1 (Jul 2015), e275–e292.
4. Rhodes, Curran, J., Camil, T.J. et al., Impact of cardiac rehabilitation on the exercise function of children with serious congenital heart disease. Pediatrics 116:6 (2005), 1339–1345.
5. Rhodes, J., Curran, T.J., Camil, L. et al., Sustained effects of cardiac rehabilitation in children with serious congenital heart disease. Pediatrics 118:3 (2006), e586–e593.
6. Longmuir, P.E., Tyrrell, P.N., Corey, M., Faulkner, G., Russell, J.L., McCrindle, B.W., Home-based rehabilitation enhances daily physical activity and motor skill in children who have undergone the Fontan procedure. Pediatr Cardiol 34:5 (2013), 1130–1151.
7. Jacobsen, R.M., Ginde, S., Mussatto et al., Can a home-based cardiac physical activity program improve the physical function quality of life in children with Fontan circulation?. Congenit Heart Dis 11 (2016), 175–182.
8. Varni, J.W., Seid, M., Kurtin, P.S., PedsQL 4.0: reliability and validity of the pediatric quality of life inventory version 4.0 generic core scales in healthy and patient populations. Med Care 39:8 (2001), 800–812.
9. Varni, J.W., Seid, M., Rode, C.A., The PedsQL: measurement model for the pediatric quality of life inventory. Med Care 37:2 (1999), 126–139.
10. Varni, J.W., Burwinkle, T.M., Seid, M., Skarr, D., The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 3:6 (2003), 329–341.
11. Marino, B.S., Shera, D., Wernosvsky, G. et al., The development of the pediatric cardiac quality of life inventory: a quality of life measure for children and adolescents with heart disease. Qual Life Res 17:4 (May 2008), 613–626.
12. Marino, B.S., Wernovsky, G., Drotar, D. et al., Validation of the pediatric cardiac quality of life inventory. Pediatrics 126:3 (Sep 2010), 498–508.
13. Personal Fitness Tests, The Bleep Test Training Program. 2011 [Poole, United Kingdom].
14. Mahar, M.T., Guerieri, A.M., Hanna, M.S., Kembles, C.D., Estimation of aerobic fitness from 20-m multistage shuttle run test performance. Am J Prev Med 41:4s2 (2011), S111–S123.
15. Leger, L.A., Mercier, D., Gadoury, C., Lambert, J., The multistage 20 metre shuttle run test for aerobic fıtness. J Sports Sci 6:2 (1988), 93–101.
16. Barnett, A., Chan, L.Y.S., Bruce, I.C., A preliminary study of the 20-m multistage shuttle run as a predictor of a peak VO2 in Hong Kong Chinese students. Pediatr Exerc Sci 5 (1993), 42–50.
17. Matsuzaka, A., Takahashi, Y., Yamazoe, M. et al., Validity of the multistage 20-m shuttle-run test for Japanese children, adolescents, and adults. Pediatr Exerc Sci 16 (2004), 113–125.
18. Varni, J.W., Eiser, C., Health-related quality of life and symptom reporting: similarities and differences between children and their parents. Eur J Pediatr 172 (2013), 1299–1304.
19. Uzark, K., Zak, V., Shrader, P. et al., Assessment of quality of life in young patients with single ventricle after the Fontan operation. J Pediatr 170 (2016), 166–172.
20. Uzark, K., Jones, K., Slusher, J., Limbers, C.A., Burwinkle, T.M., Varni, J.W., Quality of life in children with heart disease as perceived by children and parents. Pediatrics 121:5 (2008), e1060–e1067.
21. Paridon, S.M., Mitchell, P.D., Colan, S.D. et al., A cross-sectional study of exercise performance during the first 2 decades of life after the Fontan operation. J Am Coll Cardiol 52:2 (2008), 99–107.