Stress, stress-related symptoms and social support among Taiwanese primary family caregivers in intensive care units

Intensive and Critical Care Nursing

Volumn 49, Issue , 2018, Pages 37-43

  Chang, Pei Yu ^a   Wang, Hsiang Ping ^b   Chang, Tsai Hsiu ^b   Yu, Jung Min ^a   Lee, Shih Yu ^c  

^a Buddhist Compassion Relief Tzu Chi Foundation   (Taiwan)

^b HUNGKUANG UNIVERSITY   (Taiwan)

^c UNIVERSITY OF TEXAS AT TYLER   (United States)

Author keywords

Fatigue; Intensive care units; Primary family caregivers; Sleep disturbances; Social support; Stress

Indexed keywords

AGED; CAREGIVER; COPING BEHAVIOR; CRITICAL ILLNESS; CROSS-SECTIONAL STUDY; FEMALE; HUMAN; INTENSIVE CARE NURSING; INTENSIVE CARE UNIT; MALE; MENTAL STRESS; MIDDLE AGED; PSYCHOLOGY; SOCIAL SUPPORT; TAIWAN;

ADAPTATION, PSYCHOLOGICAL; AGED; CAREGIVERS; CRITICAL CARE NURSING; CRITICAL ILLNESS; CROSS-SECTIONAL STUDIES; FEMALE; HUMANS; INTENSIVE CARE UNITS; MALE; MIDDLE AGED; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL; TAIWAN;

EID: 85048744375     PISSN: 09643397     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.iccn.2018.05.002     Document Type: Article

References (48)

1. Anderson, W.G., Cimino, J.W., Ernecoff, N.C., Ungar, A., Shotsberger, K.J., Pollice, L.A., Buddadhumaruk, P., Carson, S.S., Curtis, R.J., Hough, C.L., Lo, B., Matthay, M.A., Peterson, M.W., Steingrub, J.S., White, D.B., A multicenter study of key stakeholders’ perspectives on communicating with surrogates about prognosis in intensive care units. Ann. Am. Thorac. Soc. 12:2 (2015), 142–152.
2. Andresen, M., Guic, E., Orellana, A., Diaz, M.J., Castro, R., Posttraumatic stress disorder symptoms in close relatives of intensive care unit patients: Prevalence data resemble that of earthquake survivors in Chile. J. Crit. Care 30:5 (2015), 1152.e7–1152.e11.
3. Awdish, R.L., Buick, D., Kokas, M., Berlin, H., Jackman, C., Williamson, C., Mendez, M.P., Chasteen, K., A communications bundle to improve satisfaction for critically ill patients and their families: a prospective, cohort pilot study. J. Pain Symptom Manage. 53:3 (2017), 644–649.
4. Carlson, E.B., Spain, D.A., Muhtadie, L., McDade-Montez, L., Macia, K.S., Care and caring in the intensive care unit: Family members' distress and perceptions about staff skills, communication, and emotional support. J. Crit. Care 30:3 (2015), 557–561.
5. Carpenter, G.S.J., Carpenter, T.P., Kimbrel, N.A., Flynn, E.J., Pennington, M.L., Cammarata, C., Zimering, R.T., Kamholz, B.W., Gulliver, S.B., Social support, stress, and suicidal ideation in professional firefighters. Am. J. Health Behav. 39:2 (2015), 191–196.
6. Cappellini, E., Bambi, S., Lucchini, A., Milanesio, E., Open intensive care units: a global challenge for patients, relatives, and critical care teams. Dimens. Crit Care Nurs. 33:4 (2014), 181–193.
7. Çelik, S., Genç, G., Kinetli, Y., Aşılıoğlı, M., Sarı, M., Madenoğlu Kıvanç, M., Sleep problems, anxiety, depression and fatigue on family members of adult intensive care unit patients. Int. J. Nurs. Pract. 22:5 (2016), 512–522.
8. Chapman, D.K., Collingridge, D.S., Mitchell, L.A., Wright, E.S., Hopkins, R.O., Butler, J.M., Brown, S.M., Satisfaction with elimination of all visitation restrictions in a mixed-profile intensive care unit. Am. J. Crit. Care 25:1 (2016), 46–50.
9. Chiu, C.Y., Huang, G.S., Huang, C.H., Huang, S.Y., Hsu, N.L., Wang, M.H., Investigation of ICU family needs. J. Health Archit. 1:3 (2014), 60–67.
10. Choi, J., Tate, J.A., Donahoe, M.P., Ren, D., Hoffman, L.A., Chasens, E.R., Sleep in family caregivers of ICU survivors for two months post-ICU discharge. Intensive Crit. Care Nurs. 37 (2016), 11–18.
11. Choi, J., Tate, J.A., Hoffman, L.A., Schulz, R., Ren, D., Donahoe, M.P., Given, B.A., Sherwood, P.R., Fatigue in family caregivers of adult intensive care unit survivors. J. Pain Symptom Manage. 48:3 (2014), 353–363.
12. Cohen, S., Psychosocial models of the role of social support in the etiology of physical disease. Health Psychol. 7:3 (1988), 269–297.
13. Creamer, M., Bell, R., Failla, S., Psychometric properties of the impact of event scale—revised. Behav. Res. Ther. 41:12 (2003), 1489–1496.
14. Day, A., Haj-Bakri, S., Lubchansky, S., Mehta, S., Sleep, anxiety and fatigue in family members of patients admitted to the intensive care unit: a questionnaire study. Crit. Care 17:3 (2013), R91–8.
15. de Beer, J., Brysiewicz, P., The experiences of family members during critical illness of a loved one admitted to an intensive care unit. Afr. J. Nurs. Midwifery 19:1 (2017), 56–68.
16. Fumis, R.R., Ranzani, O.T., Faria, P.P., Schettino, G., Anxiety, depression, and satisfaction in close relatives of patients in an open visiting policy intensive care unit in Brazil. J. Crit. Care 30:2 (2015), 440.e1–440.e6.
17. Gaeeni, M., Farahani, M.A., Seyedfatemi, N., Mohammadi, N., Informational support to family members of intensive care unit patients: the perspectives of families and nurses. Glob. J. Health Sci. 7:2 (2015), 8–19.
18. Gigliotti, E., Samuels, W.E., Use of averaged Norbeck social support questionnaire scores. ISRN Nurs. 2011 (2011), 1–6.
19. Hickman, R.L. Jr, Douglas, S.L., Impact of chronic critical illness on the psychological outcomes of family members. AACN Adv. Crit. Care 21:1 (2010), 80–91.
20. Horowitz, M., Wilner, N., Alvarez, W., Impact of event scale: a measure of subjective stress. Psychosom. Med. 41:3 (1979), 209–218.
21. Iverson, E., Celious, A., Kennedy, C.R., Shehane, E., Eastman, A., Warren, V., Freeman, B.D., Factors affecting stress experienced by surrogate decision makers for critically ill patients: implications for nursing practice. Intensive Crit. Care Nurs. 30:2 (2014), 77–85.
22. Kao, Y.Y., Huang, C.Y., Huang, S., Lee, W.C., Chen, W.K., Exploration of factors related to anxiety and sleep disorders in primary family decision makers of critical ill patients. J. Nurs. Health. Res. 9:1 (2013), 53–64.
23. Kim, H.S., Sherman, D.K., Taylor, S.E., Culture and social support. Am. Psychol. 63:6 (2008), 518–526.
24. Komachi, M., Kamibeppu, K., Acute stress symptoms in families of patients admitted to the intensive care unit during the first 24 h following admission in Japan. Open J. Nurs. 5:4 (2015), 325–335.
25. Lazarus, R.S., Folkman, S., Stress, Appraisal, and Coping. 1984, Springer Publishing Company, New York.
26. Lee, K.A., Self-reported sleep disturbances in employed women. Sleep 15:6 (1992), 493–498.
27. Lee, K.A., Hicks, G., Nino-Murcia, G., Validity and reliability of a scale to assess fatigue. Psychiatry Res. 36:3 (1991), 291–298.
28. Lee, S.Y., Validating the general sleep disturbance scale among Chinese American parents with hospitalized infants. J. Transcult. Nurs. 18:2 (2007), 111–117.
29. Lee, S.Y., Lee, K.A., Rankin, S.H., Weiss, S.J., Alkon, A., Sleep disturbance, fatigue, and stress among Chinese-American parents with ICU hospitalized infants. Issues Ment. Health Nurs. 28:6 (2007), 593–605.
30. McAdam, J.L., Fontaine, D.K., White, D.B., Dracup, K.A., Puntillo, K.A., Psychological symptoms of family members of high-risk intensive care unit patients. Am. J. Crit. Care 21:6 (2012), 386–394.
31. Moraes, W., Piovezan, R., Poyares, D., Bittencourt, L.R., Santos-Silva, R., Tufik, S., Effects of aging on sleep structure throughout adulthood: a population-based study. Sleep Med. 15:4 (2014), 401–409.
32. McPeake, J., Devine, H., MacTavish, P., Fleming, L., Crawford, R., Psychol, D.C., Struthers, R., Kinsella, J., Daniel, M., Shaw, M., Quasim, T., Caregiver strain following critical care discharge: an exploratory evaluation. J. Crit. Care 35 (2016), 180–184.
33. Nadig, N., Huff, N.G., Cox, C.E., Ford, D.W., Coping as a multifaceted construct: associations with psychological outcomes among family members of mechanical ventilation survivors. Crit. Care Med. 44:9 (2016), 1710–1717.
34. Norbeck, J.S., Lindsey, A.M., Carrieri, V.L., The development of an instrument to measure social support. Nurs. Res. 30:5 (1981), 264–269.
35. Norbeck, J.S., Lindsey, A.M., Carrieri, V.L., Further development of the norbeck social support questionnaire: normative data and validity testing. Nurs. Res. 32:1 (1983), 4–9.
36. Padilla, C.F., Most important needs of family members of critical patients in light of the critical care family needs inventory. Invest. Educ. Enferm. 32:2 (2014), 306–316.
37. Petrinec, A.B., Mazanec, P.M., Burant, C.J., Hoffer, A., Daly, B.J., Coping strategies and posttraumatic stress symptoms in post-ICU family decision makers. Crit. Care Med. 43:6 (2015), 1205–1212.
38. Riley, B.H., White, J., Graham, S., Alexandrov, A., Traditional/restrictive vs patient-centered intensive care unit visitation: perceptions of patients’ family members, physicians, and nurses. Am. J. Crit. Care 23:4 (2014), 316–324.
39. Rusinova, K., Kukal, J., Simek, J., Cerny, V., Limited family members/staff communication in intensive care units in the Czech and Slovak Republics considerably increases anxiety in patients ́ relatives–the DEPRESS study. BMC Psychiatry, 14(1), 2014, 21.
40. Schenker, Y., Crowley-Matoka, M., Dohan, D., Tiver, G.A., Arnold, R.M., White, D.B., I don't want to be the one saying ‘we should just let him die’: Intrapersonal tensions experienced by surrogate decision makers in the ICU. J. Gen. Intern. Med. 27:12 (2012), 1657–1665.
41. Trevick, S.A., Lord, A.S., Post-traumatic stress disorder and complicated grief are common in caregivers of neuro-ICU patients. Neurocrit. Care 26 (2017), 436–443.
42. Tsai, S.Y., Shun, S.C., Lai, Y.H., Lee, Y.L., Lee, S.Y., Psychometric evaluation of a Chinese version of the Lee fatigue scale-short form in women during pregnancy and postpartum. Int. J. Nurs. Stud. 51:7 (2014), 1027–1035.
43. Verceles, A.C., Corwin, D.S., Afshar, M., Friedman, E.B., McCurdy, M.T., Shanholtz, C., Oakjones, K., Zubrow, M.T., Titus, J., Netzer, G., Half of the family members of critically ill patients experience excessive daytime sleepiness. Intensive Care Med. 40:8 (2014), 1124–1131.
44. VonDras, D.D., Pouliot, G.S., Malcore, S.A., Iwahashi, S., Effects of culture and age on the perceived exchange of social support resources. Int. J. Aging Hum. Dev. 67:1 (2008), 63–100.
45. Weiss, D.S., Marmar, C.R., The impact of event scale-revised. Wilson, J.P., Keane, T.M., (eds.) Assessing Psychological Trauma and PTSD: A Practitioner's Handbook, 1997, Guilford Press, New York.
46. Woodhead, E.L., Cronkite, R.C., Moos, R.H., Timko, C., Coping strategies predictive of adverse outcomes among community adults. J. Clin. Psychol. 70:12 (2014), 1183–1195.
47. Wu, K.K., Chan, K., The development of the Chinese version of impact of event Scale-Revised (CIES-R). Soc. Psychiatry Psychiatr. Epidemiol. 38:2 (2003), 94–98.
48. Zhang, W., Chen, M., Psychological distress of older Chinese: exploring the roles of activities, social support, and subjective social status. J. Cross Cult. Gerontol. 29:1 (2014), 37–51.