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Volumn 25, Issue 5, 2018, Pages 344-349

Transition from pediatric to adult care in adolescents with hereditary metabolic diseases: Specific guidelines from the French network for rare inherited metabolic diseases (G2M)

Author keywords

Hereditary metabolic diseases; Pediatric care; Transition

Indexed keywords

ADOLESCENT; ARTICLE; CAREGIVER SUPPORT; CHILD; DIET THERAPY; FOLLOW UP; HEALTH CARE ACCESS; HEALTH CARE NEED; HEALTH CARE QUALITY; HEALTH CARE SYSTEM; HEALTH EDUCATION; HUMAN; INBORN ERROR OF METABOLISM; PATIENT AUTONOMY; PEDIATRICS; PRACTICE GUIDELINE; PREVALENCE; PSYCHOSOCIAL CARE; SELF CARE; SOCIAL SUPPORT; TRANSITIONAL CARE;

EID: 85048542722     PISSN: 0929693X     EISSN: 1769664X     Source Type: Journal    
DOI: 10.1016/j.arcped.2018.05.009     Document Type: Article
Times cited : (20)

References (21)
  • 1
    • 33750614450 scopus 로고    scopus 로고
    • The incidence of inherited metabolic disorders in the West Midlands, UK
    • Sanderson, S., Green, A., Preece, M.A., et al. The incidence of inherited metabolic disorders in the West Midlands, UK. Arch Dis Child 91 (2006), 896–899.
    • (2006) Arch Dis Child , vol.91 , pp. 896-899
    • Sanderson, S.1    Green, A.2    Preece, M.A.3
  • 2
    • 0029101536 scopus 로고
    • Transition to adult health care: setting the stage
    • Blum, R.W., Transition to adult health care: setting the stage. J Adolesc Health 17 (1995), 3–5.
    • (1995) J Adolesc Health , vol.17 , pp. 3-5
    • Blum, R.W.1
  • 3
    • 35148895020 scopus 로고    scopus 로고
    • Transition of care from paediatric to adult services in cardiology
    • Hudsmith, L.E., Thorne, S.A., Transition of care from paediatric to adult services in cardiology. Arch Dis Child 92 (2007), 927–930.
    • (2007) Arch Dis Child , vol.92 , pp. 927-930
    • Hudsmith, L.E.1    Thorne, S.A.2
  • 4
    • 33947523434 scopus 로고    scopus 로고
    • Healthy and ready to work – Kentucky: incorporating transition into a state program for children with special health care needs
    • Blomquist, K.B., Healthy and ready to work – Kentucky: incorporating transition into a state program for children with special health care needs. Pediatr Nurs 32 (2006), 515–528.
    • (2006) Pediatr Nurs , vol.32 , pp. 515-528
    • Blomquist, K.B.1
  • 5
    • 0036042921 scopus 로고    scopus 로고
    • Interventions for helping patients to follow prescriptions for medications
    • Haynes, R.B., McDonald, H., Garg, A.X., et al. Interventions for helping patients to follow prescriptions for medications. Cochrane Database Syst Rev, 5, 2002, CD000011.
    • (2002) Cochrane Database Syst Rev , vol.5 , pp. CD000011
    • Haynes, R.B.1    McDonald, H.2    Garg, A.X.3
  • 6
    • 0142017677 scopus 로고    scopus 로고
    • Adherence to long-term therapies
    • WHO report, Adherence to long-term therapies. Evidence for action, 2003 http://wwww.hqlibdoc.who.int/publications/2003/9241545992.pdf.
    • (2003) Evidence for action
    • WHO report1
  • 7
    • 38349095490 scopus 로고    scopus 로고
    • Difficultés d'observance dans les maladies chroniques à l'adolescence : comprendre pour agir
    • Jacquin, P., Levine, M., Difficultés d'observance dans les maladies chroniques à l'adolescence : comprendre pour agir. Arch Pediatr 15 (2008), 89–94.
    • (2008) Arch Pediatr , vol.15 , pp. 89-94
    • Jacquin, P.1    Levine, M.2
  • 8
    • 16544383663 scopus 로고    scopus 로고
    • The transition from paediatric to adult health care services for young adults with a disability: an ethical perspective
    • Bailey, S., O'Connell, B., Pearce, J., The transition from paediatric to adult health care services for young adults with a disability: an ethical perspective. Aust Health Rev 26 (2003), 64–69.
    • (2003) Aust Health Rev , vol.26 , pp. 64-69
    • Bailey, S.1    O'Connell, B.2    Pearce, J.3
  • 9
    • 14944358377 scopus 로고    scopus 로고
    • Exploring a black hole: transition from paediatric to adult care services for youth with diabetes
    • Pacaud, D., Yale, J.F., Exploring a black hole: transition from paediatric to adult care services for youth with diabetes. Paediatr Child Health 10 (2005), 31–34.
    • (2005) Paediatr Child Health , vol.10 , pp. 31-34
    • Pacaud, D.1    Yale, J.F.2
  • 10
    • 20444455823 scopus 로고    scopus 로고
    • Dimensions of the transition service coordinator role
    • Betz, C.L., Redcay, G., Dimensions of the transition service coordinator role. J Spec Pediatr Nurs 10 (2005), 49–59.
    • (2005) J Spec Pediatr Nurs , vol.10 , pp. 49-59
    • Betz, C.L.1    Redcay, G.2
  • 11
    • 77949535239 scopus 로고    scopus 로고
    • Transition from pediatric to adult health care for adolescents with congenital heart disease: a review of the literature and clinical implications
    • Jalkut, M.K., Allen, P.J., Transition from pediatric to adult health care for adolescents with congenital heart disease: a review of the literature and clinical implications. Pediatr Nurs 35 (2009), 381–387.
    • (2009) Pediatr Nurs , vol.35 , pp. 381-387
    • Jalkut, M.K.1    Allen, P.J.2
  • 12
    • 0036717592 scopus 로고    scopus 로고
    • The transition of adolescents with diabetes from the children's health care service into the adult health care service: a review of the literature
    • Fleming, E., Carter, B., Gillibrand, W., The transition of adolescents with diabetes from the children's health care service into the adult health care service: a review of the literature. J Clin Nurs, 11, 2002, 56.
    • (2002) J Clin Nurs , vol.11 , pp. 56
    • Fleming, E.1    Carter, B.2    Gillibrand, W.3
  • 14
    • 0029130845 scopus 로고
    • Between two worlds: bridging the cultures of child health and adult medicine
    • Rosen, D., Between two worlds: bridging the cultures of child health and adult medicine. J Adolesc Health 17 (1995), 10–16.
    • (1995) J Adolesc Health , vol.17 , pp. 10-16
    • Rosen, D.1
  • 15
    • 79953284705 scopus 로고    scopus 로고
    • Transition to adult care for children with chronic neurological disorders
    • Camfield, P., Camfield, C., Transition to adult care for children with chronic neurological disorders. Ann Neurol 69 (2011), 437–444.
    • (2011) Ann Neurol , vol.69 , pp. 437-444
    • Camfield, P.1    Camfield, C.2
  • 16
    • 57749187629 scopus 로고    scopus 로고
    • Transition of the chronically ill youth with hemoglobinopathy to adult health care: an integrative review of the literature
    • Bryant, R., Walsh, T., Transition of the chronically ill youth with hemoglobinopathy to adult health care: an integrative review of the literature. J Pediatr Health Care 23 (2009), 37–48.
    • (2009) J Pediatr Health Care , vol.23 , pp. 37-48
    • Bryant, R.1    Walsh, T.2
  • 18
    • 80054771716 scopus 로고    scopus 로고
    • Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers
    • van Staa, A.L., Jedeloo, S., van Meeteren, J., et al. Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. Child Care Health Dev 37 (2011), 821–832.
    • (2011) Child Care Health Dev , vol.37 , pp. 821-832
    • van Staa, A.L.1    Jedeloo, S.2    van Meeteren, J.3
  • 19
    • 77953569693 scopus 로고    scopus 로고
    • Transition of youth from pediatric to adult care: physician's perspective and recommendations
    • Ried, S., Transition of youth from pediatric to adult care: physician's perspective and recommendations. Top Spinal Cord Inj Rehabil 16 (2010), 38–47.
    • (2010) Top Spinal Cord Inj Rehabil , vol.16 , pp. 38-47
    • Ried, S.1
  • 20
    • 47049116912 scopus 로고    scopus 로고
    • La transition des soins pédiatriques aux soins adultes des adolescents souffrant d'affections chroniques
    • Suris, J.C., Dominé F., Akré C., La transition des soins pédiatriques aux soins adultes des adolescents souffrant d'affections chroniques. Med Suisse 4 (2008), 1441–1444.
    • (2008) Med Suisse , vol.4 , pp. 1441-1444
    • Suris, J.C.1    Dominé, F.2    Akré, C.3
  • 21
    • 85049445999 scopus 로고    scopus 로고
    • Handicaps moteurs et associés : le passage de l'enfant à l'adulte. Enjeux médicaux et médico-sociaux dans la période 15–25 ans : « Recommandations pour la Pratique Clinique avec débat public ». Available online: URL: [Retrieved on 03.09.2015].
    • Société française de médecine physique et de réadaptation (SOFMER). Handicaps moteurs et associés : le passage de l'enfant à l'adulte. Enjeux médicaux et médico-sociaux dans la période 15–25 ans : « Recommandations pour la Pratique Clinique avec débat public ». Available online: URL: www.sofmer.com/download/sofmer_reco_RPC.pdf; [Retrieved on 03.09.2015].


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.