Transition to adult care for children with chronic neurological disorders

Annals of Neurology

Volumn 69, Issue 3, 2011, Pages 437-444

  Camfield, Peter ^a   Camfield, Carol ^a  

^a DALHOUSIE UNIVERSITY   (Canada)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; ATTENTION DEFICIT DISORDER; BRAIN TUMOR; CEREBRAL PALSY; DUCHENNE MUSCULAR DYSTROPHY; EPILEPSY; HUMAN; MEDICAL SPECIALIST; MENTAL DEFICIENCY; MIGRAINE; NEUROFIBROMATOSIS; NEUROLOGIC DISEASE; PATIENT REFERRAL; PATIENT TRANSPORT; PRIORITY JOURNAL; REHABILITATION CARE; TUBEROUS SCLEROSIS;

ADOLESCENT; ADULT; CHILD; CHRONIC DISEASE; CONTINUITY OF PATIENT CARE; HUMANS; NERVOUS SYSTEM DISEASES;

EID: 79953284705     PISSN: 03645134     EISSN: 15318249     Source Type: Journal    
DOI: 10.1002/ana.22393     Document Type: Article

References (39)

1. Betz CL,. Approaches to transition in other chronic illnesses and conditions. Pediatr Clin North Am 2010; 57: 983-996.
2. Christie D, Viner R,. Chronic illness and transition: time for action. Adolesc Med State Art Rev 2009; 20: 981-987.
3. Rapley P, Davidson PM,. Enough of the problem: a review of time for health care transition solutions for young adults with a chronic illness. J Clin Nurs 2010; 19: 313-323.
4. Tuffrey C, Pearce A,. Transition from paediatric to adult medical services for young people with chronic neurological problems. J Neurol Neurosurg Psychiatry 2003; 74: 1011-1013.
5. Kaufmann R, Goldberg-Stern H, Shuper A,. Attention-deficit disorders and epilepsy in childhood: incidence, causative relations and treatment possibilities. J Child Neurol 2009; 24: 727-733.
6. Schlander M, Schwarz O, Rothenberger A, Roessner V,. Tic disorders: administrative prevalence and co-occurrence with attention-deficit/hyperactivity disorder in a German community sample. Eur Psychiatry (in press).
7. Armstrong GT, Liu Q, Yasui Y, et al. Long-term outcomes among adult survivors of childhood central nervous system malignancies in the Childhood Cancer Survivor Study. J Natl Cancer Inst 2009; 101: 946-958.
8. Barkley RA, Fischer M, Smallish L, Fletcher K,. Young adult outcome of hyperactive children: adaptive functioning in major life activities. J Am Acad Child Adolesc Psychiatry 2006; 45: 192-202. (Pubitemid 43151524)
9. Fischer M, Barkley RA, Smallish L, Fletcher K,. Hyperactive children as young adults: driving abilities, safe driving behavior, and adverse driving outcomes. Accid Anal Prev 2007; 39: 94-105. (Pubitemid 44633822)
10. Weafer J, Camarillo D, Fillmore MT, et al. Simulated driving performance of adults with ADHD: comparisons with alcohol intoxication. Exp Clin Psychopharmacol 2008; 16: 251-263. (Pubitemid 351822569)
11. Barkley RA, Murphy KR, O'Connell T, et al. Effects of two doses of alcohol on simulator driving performance in adults with attention-deficit/ hyperactivity disorder. Neuropsychology 2006; 20: 77-87.
12. Barkley RA, Cox D,. A review of driving risks and impairments associated with attention-deficit/hyperactivity disorder and the effects of stimulant medication on driving performance. J Safety Res 2007; 38: 113-128. (Pubitemid 46321543)
13. Kohler M, Clarenbach CF, Bahler C, et al. Disability and survival in Duchenne muscular dystrophy. J Neurol Neurosurg Psychiatry 2009; 80: 320-325.
14. Fayssoil A, Nardi O, Orlikowski D, Annane D,. Cardiomyopathy in Duchenne muscular dystrophy: pathogenesis and therapeutics. Heart Fail Rev 2010; 15: 103-107.
15. Opheim A, Jahnsen R, Olsson E, Stanghelle JK,. Walking function, pain, and fatigue in adults with cerebral palsy: a 7-year follow-up study. Dev Med Child Neurol 2009; 5: 381-388.
16. Murphy KP,. Cerebral palsy lifetime care-four musculoskeletal conditions. Dev Med Child Neurol 2009; 51 (suppl 4): 30-37.
17. Langerak NG, Lamberts RP, Fieggen AG, et al. Functional status of patients with cerebral palsy according to the International Classification of Functioning, Disability and Health model: a 20-year follow-up study after selective dorsal rhizotomy. Arch Phys Med Rehabil 2009; 90: 994-1003.
18. Rasmussen SA, Yang Q, Friedman JM,. Mortality in neurofibromatosis 1: an analysis using U.S. death certificates. Am J Hum Genet 2001; 68: 1110-1118. (Pubitemid 32424410)
19. Ferner RE, Huson SM, Thomas N, et al. Guidelines for the diagnosis and management of individuals with neurofibromatosis 1. J Med Genet 2007; 44: 81-88.
20. American Academy of Pediatrics Committee on Genetics. Health supervision for children with neurofibromatosis. Pediatrics 1995; 96 (2 pt 1): 368-372.
21. Macedoni-Luksic M, Jereb B, Todorovski L,. Long-term sequelae in children treated for brain tumors: impairments, disability, and handicap. Pediatr Hematol Oncol 2003; 20: 89-101. (Pubitemid 36230901)
22. Camfield CS, Camfield PR,. Long-term social outcomes for children with epilepsy. Epilepsia 2007; 48 (suppl 9): 3-5. (Pubitemid 350198217)
23. Wirrell EC, Camfield CS, Camfield PR, et al. Long-term psychosocial outcome in typical absence epilepsy. Sometimes a wolf in sheeps' clothing. Arch Pediatr Adolesc Med 1997; 151: 152-158. (Pubitemid 27080066)
24. Camfield CS, Camfield PR,. Juvenile myoclonic epilepsy 25 years after seizure onset: a population-based study. Neurology 2009; 73: 1041-1045.
25. Camfield P, Camfield C,. Idiopathic generalized epilepsy with generalized tonic-clonic seizures (IGE-GTC): a population-based cohort with >20 year follow up for medical and social outcome. Epilepsy Behav 2010; 18: 61-63.
26. Jalava M, Sillanpää M, Camfield C, Camfield P,. Social adjustment and competence 35 years after onset of childhood epilepsy: a prospective controlled study. Epilepsia 1997; 38: 708-715. (Pubitemid 27251216)
27. Wakamoto H, Nagao H, Masatoshi H, Takehiko M,. Long-term medical, educational, and social prognoses of childhood-onset epilepsy: a population-based study in a rural district of Japan. Brain Dev 2000; 22: 246-255. (Pubitemid 30323839)
28. Camfield C, Camfield P,. Twenty years after childhood-onset symptomatic generalized epilepsy the social outcome is usually dependency or death: a population-based study. Dev Med Child Neurol 2008; 50: 859-863.
29. Brna P, Dooley J, Gordon K, Dewan T,. The prognosis of childhood headache: a 20-year follow-up. Arch Pediatr Adolesc Med 2005; 159: 1157-1160. (Pubitemid 41758636)
30. Hämäläinen ML,. Migraine in children and adolescents: a guide to drug treatment. CNS Drugs 2006; 20: 813-820. (Pubitemid 44484245)
31. Bigby C,. Known well by no-one: trends in the informal social networks of middle-aged and older people with intellectual disability five years after moving to the community. J Intellect Dev Disabil 2008; 33: 148-157. (Pubitemid 351882293)
32. Lee PJ, Amos A, Robertson L, et al. Adults with late diagnosed PKU and severe challenging behaviour: a randomised placebo-controlled trial of a phenylalanine-restricted diet. J Neurol Neurosurg Psychiatry 2009; 80: 631-635.
33. Schappert S,. Office visits to neurologists, United States 1900-1992. Vital and Health Statistics of the National Centre for Health Statistics. Adv Data 1995; 267; 1-20.
34. Gilliam F, Penovich PE, Eagan CA, et al. Conversations between community-based neurologists and patients with epilepsy: results of an observational linguistic study. Epilepsy Behav 2009; 16: 315-320.
35. Jurasek L, Ray L, Quigley D,. Development and implementation of an adolescent epilepsy transition clinic. J Neurosci Nurs 2010; 42: 181-189.
36. Kim H, Murphy N, Kim CT, et al. Pediatric rehabilitation: 5. Transitioning teens with disabilities into adulthood. PM R 2010; 2: S31-S37.
37. Zabel TA, Linroth R, Fairman AD,. The Life Course Model Web site: an online transition-focused resource for the spina bifida community. Pediatr Clin North Am 2010; 57: 911-917.
38. Appleton RE, Chadwick D, Sweeney A,. Managing the teenager with epilepsy: paediatric to adult care. Seizure 1997; 6: 27-30. (Pubitemid 27102054)
39. Smith PE, Myson V, Gibbon F,. A teenager epilepsy clinic: observational study. Eur J Neurol 2002; 9: 373-376. (Pubitemid 35013892)