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Volumn 57, Issue 3, 2018, Pages 441-450

Functional disability and its predictors in systemic sclerosis: A study from the DeSScipher project within the EUSTAR group

(40)  Jaeger, Veronika K a   Distler, Oliver b   Maurer, Britta b   Czirják, Laszlo c   Lóránd, Veronika c   Valentini, Gabriele d   Vettori, Serena d   Del Galdo, Francesco e   Abignano, Giuseppina e   Denton, Christopher f   Nihtyanova, Svetlana f   Allanore, Yannick g   Avouac, Jerome g   Riemekasten, Gabriele h   Siegert, Elise i   Huscher, Dörte j   Matucci Cerinic, Marco k   Guiducci, Serena k   Frerix, Marc l   Tarner, Ingo H l   more..


Author keywords

Functional disability; Predictors of disability; Scleroderma health assessment questionnaire; Systemic sclerosis

Indexed keywords

CARBON MONOXIDE;

EID: 85043311396     PISSN: 14620324     EISSN: 14620332     Source Type: Journal    
DOI: 10.1093/rheumatology/kex182     Document Type: Article
Times cited : (58)

References (39)
  • 1
    • 68149178473 scopus 로고    scopus 로고
    • Health-related quality of life in systemic sclerosis: a systematic review
    • Hudson M, Thombs BD, Steele R et al. Health-related quality of life in systemic sclerosis: a systematic review. Arthritis Rheum 2009;61:1112-20.
    • (2009) Arthritis Rheum , vol.61 , pp. 1112-1120
    • Hudson, M.1    Thombs, B.D.2    Steele, R.3
  • 2
    • 33744737591 scopus 로고    scopus 로고
    • Quality of life and functional status in systemic sclerosis compared to other rheumatic diseases
    • Johnson SR, Glaman DD, Schentag CT, Lee P. Quality of life and functional status in systemic sclerosis compared to other rheumatic diseases. J Rheumatol 2006;33:1117-22.
    • (2006) J Rheumatol , vol.33 , pp. 1117-1122
    • Johnson, S.R.1    Glaman, D.D.2    Schentag, C.T.3    Lee, P.4
  • 3
    • 73449127246 scopus 로고    scopus 로고
    • Impact of digital ulcers on disability and health-related quality of life in systemic sclerosis
    • Mouthon L, Mestre-Stanislas C, Berezne A et al. Impact of digital ulcers on disability and health-related quality of life in systemic sclerosis. Ann Rheum Dis 2010;69:214-7.
    • (2010) Ann Rheum Dis , vol.69 , pp. 214-217
    • Mouthon, L.1    Mestre-Stanislas, C.2    Berezne, A.3
  • 4
    • 84885358550 scopus 로고    scopus 로고
    • The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context
    • Kwakkenbos L, Jewett LR, Baron M et al. The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context. BMJ Open 2013;3:e003563.
    • (2013) BMJ Open , vol.3
    • Kwakkenbos, L.1    Jewett, L.R.2    Baron, M.3
  • 5
    • 34547954776 scopus 로고    scopus 로고
    • Disease and symptom burden in systemic sclerosis: a patient perspective
    • Suarez-Almazor ME, Kallen MA, Roundtree AK, Mayes M. Disease and symptom burden in systemic sclerosis: a patient perspective. J Rheumatol 2007;34:1718-26.
    • (2007) J Rheumatol , vol.34 , pp. 1718-1726
    • Suarez-Almazor, M.E.1    Kallen, M.A.2    Roundtree, A.K.3    Mayes, M.4
  • 6
    • 0030829260 scopus 로고    scopus 로고
    • The value of the Health Assessment Questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time
    • Steen VD, Medsger TA. The value of the Health Assessment Questionnaire and special patient-generated scales to demonstrate change in systemic sclerosis patients over time. Arthritis Rheum 1997;40:1984-91.
    • (1997) Arthritis Rheum , vol.40 , pp. 1984-1991
    • Steen, V.D.1    Medsger, T.A.2
  • 7
    • 17244368213 scopus 로고    scopus 로고
    • The health assessment questionnaire disability index and scleroderma health assessment questionnaire in scleroderma trials: an evaluation of their measurement properties
    • Johnson SR, Hawker GA, Davis AM. The health assessment questionnaire disability index and scleroderma health assessment questionnaire in scleroderma trials: an evaluation of their measurement properties. Arthritis Rheum 2005;53:256-62.
    • (2005) Arthritis Rheum , vol.53 , pp. 256-262
    • Johnson, S.R.1    Hawker, G.A.2    Davis, A.M.3
  • 8
    • 80855165394 scopus 로고    scopus 로고
    • Measures of systemic sclerosis (scleroderma):Health Assessment Questionnaire (HAQ) and Scleroderma HAQ (SHAQ), Physician- and Patient-Rated Global Assessments, Symptom Burden Index (SBI), University of California, Los Angeles, Scleroderma Clinical Trials Consortium Gastrointestinal Scale (UCLA SCTC GIT) 2.0, Baseline Dyspnea Index (BDI) and Transition Dyspnea Index (TDI) (Mahler's Index)
    • Pope J. Measures of systemic sclerosis (scleroderma):Health Assessment Questionnaire (HAQ) and Scleroderma HAQ (SHAQ), Physician- and Patient-Rated Global Assessments, Symptom Burden Index (SBI), University of California, Los Angeles, Scleroderma Clinical Trials Consortium Gastrointestinal Scale (UCLA SCTC GIT) 2.0, Baseline Dyspnea Index (BDI) and Transition Dyspnea Index (TDI) (Mahler's Index), Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR), and Raynaud's Condition Score (RCS). Arthritis Care Res 2011;63(Suppl 1):S98-S111.
    • (2011) Arthritis Care Res , vol.63 Suppl 1 , pp. S98-S111
    • Pope, J.1
  • 9
    • 33644794107 scopus 로고    scopus 로고
    • The Health Assessment Questionnaire (HAQ)
    • Bruce B, Fries JF. The Health Assessment Questionnaire (HAQ). Clin Exp Rheumatol 2005;23(5 Suppl 39):S14-8.
    • (2005) Clin Exp Rheumatol , vol.23 , pp. S14-S18
    • Bruce, B.1    Fries, J.F.2
  • 10
    • 0037229712 scopus 로고    scopus 로고
    • The Stanford Health Assessment Questionnaire: a review of its history, issues, progress, and documentation
    • Bruce B, Fries JF. The Stanford Health Assessment Questionnaire: a review of its history, issues, progress, and documentation. J Rheumatol 2003;30:167-78.
    • (2003) J Rheumatol , vol.30 , pp. 167-178
    • Bruce, B.1    Fries, J.F.2
  • 11
    • 0348019017 scopus 로고    scopus 로고
    • The Stanford Health Assessment Questionnaire: dimensions and practical applications
    • Bruce B, Fries JF. The Stanford Health Assessment Questionnaire: dimensions and practical applications. Health Qual Life Outcomes 2003;1:20.
    • (2003) Health Qual Life Outcomes , vol.1 , pp. 20
    • Bruce, B.1    Fries, J.F.2
  • 12
    • 0036746069 scopus 로고    scopus 로고
    • Measuring disease activity and functional status in patients with scleroderma and Raynaud's phenomenon
    • Merkel PA, Herlyn K, Martin RW et al. Measuring disease activity and functional status in patients with scleroderma and Raynaud's phenomenon. Arthritis Rheum 2002;46:2410-20.
    • (2002) Arthritis Rheum , vol.46 , pp. 2410-2420
    • Merkel, P.A.1    Herlyn, K.2    Martin, R.W.3
  • 13
    • 0038264246 scopus 로고    scopus 로고
    • A crosssectional comparison of three self-reported functional indices in scleroderma
    • Smyth AE, MacGregor AJ, Mukerjee D et al. A crosssectional comparison of three self-reported functional indices in scleroderma. Rheumatology 2003;42:732-8.
    • (2003) Rheumatology , vol.42 , pp. 732-738
    • Smyth, A.E.1    MacGregor, A.J.2    Mukerjee, D.3
  • 14
    • 84960890626 scopus 로고    scopus 로고
    • The impact of pain and itch on functioning and health-related quality of life in systemic sclerosis: an exploratory study
    • Racine M, Hudson M, Baron M, Nielson WR. The impact of pain and itch on functioning and health-related quality of life in systemic sclerosis: an exploratory study. J Pain Symptom Manage 2016;52:43-53.
    • (2016) J Pain Symptom Manage , vol.52 , pp. 43-53
    • Racine, M.1    Hudson, M.2    Baron, M.3    Nielson, W.R.4
  • 15
    • 59149097442 scopus 로고    scopus 로고
    • Lower gastrointestinal symptoms and quality of life in patients with systemic sclerosis: a population-based study
    • Franck-Larsson K, Graf W, Rönnblom A. Lower gastrointestinal symptoms and quality of life in patients with systemic sclerosis: a population-based study. Eur J Gastroenterol Hepatol 2009;21:176-82.
    • (2009) Eur J Gastroenterol Hepatol , vol.21 , pp. 176-182
    • Franck-Larsson, K.1    Graf, W.2    Rönnblom, A.3
  • 16
    • 84860714257 scopus 로고    scopus 로고
    • Effect of gastrointestinal manifestations on quality of life in 87 consecutive patients with systemic sclerosis
    • Omair MA, Lee P. Effect of gastrointestinal manifestations on quality of life in 87 consecutive patients with systemic sclerosis. J Rheumatol 2012;39:992-6.
    • (2012) J Rheumatol , vol.39 , pp. 992-996
    • Omair, M.A.1    Lee, P.2
  • 17
    • 84939487359 scopus 로고    scopus 로고
    • Prediction and impact of attacks of Raynaud's phenomenon, as judged by patient perception
    • Hughes M, Snapir A, Wilkinson J et al. Prediction and impact of attacks of Raynaud's phenomenon, as judged by patient perception. Rheumatology 2015;54:1443-7.
    • (2015) Rheumatology , vol.54 , pp. 1443-1447
    • Hughes, M.1    Snapir, A.2    Wilkinson, J.3
  • 18
    • 84865989652 scopus 로고    scopus 로고
    • Predictors of health-related quality of life and fatigue in systemic sclerosis:evaluation of the EuroQol-5D and FACIT-F assessment tools
    • Strickland G, Pauling J, Cavill C, McHugh N. Predictors of health-related quality of life and fatigue in systemic sclerosis:evaluation of the EuroQol-5D and FACIT-F assessment tools. Clin Rheumatol 2012;31:1215-22.
    • (2012) Clin Rheumatol , vol.31 , pp. 1215-1222
    • Strickland, G.1    Pauling, J.2    Cavill, C.3    McHugh, N.4
  • 19
    • 59149100819 scopus 로고    scopus 로고
    • Lack of correlation of the health assessment questionnaire disability index with lung parameters in systemic sclerosis associated pulmonary arterial hypertension
    • Chow S, Pope JE, Mehta S. Lack of correlation of the health assessment questionnaire disability index with lung parameters in systemic sclerosis associated pulmonary arterial hypertension. Clin Exp Rheumatol 2008;26:1012-7.
    • (2008) Clin Exp Rheumatol , vol.26 , pp. 1012-1017
    • Chow, S.1    Pope, J.E.2    Mehta, S.3
  • 20
    • 84942249727 scopus 로고    scopus 로고
    • Quality of life and functional disability in patients with interstitial lung disease related to Systemic Sclerosis
    • Lumetti F, Barone L, Alfieri C et al. Quality of life and functional disability in patients with interstitial lung disease related to Systemic Sclerosis. Acta Biomed 2015;86:142-8.
    • (2015) Acta Biomed , vol.86 , pp. 142-148
    • Lumetti, F.1    Barone, L.2    Alfieri, C.3
  • 21
    • 84883760726 scopus 로고    scopus 로고
    • Functional impairment of systemic scleroderma patients with digital ulcerations:results from the DUO Registry
    • Guillevin L, Hunsche E, Denton CP et al. Functional impairment of systemic scleroderma patients with digital ulcerations:results from the DUO Registry. Clin Exp Rheumatol 2013;31(2 Suppl 76):71-80.
    • (2013) Clin Exp Rheumatol , vol.31 , pp. 71-80
    • Guillevin, L.1    Hunsche, E.2    Denton, C.P.3
  • 22
    • 84964570098 scopus 로고    scopus 로고
    • Impaired quality of life in systemic sclerosis and patient perception of the disease:a large international survey
    • Frantz C, Avouac J, Distler O et al. Impaired quality of life in systemic sclerosis and patient perception of the disease:a large international survey. Semin Arthritis Rheum 2016;46:115-23.
    • (2016) Semin Arthritis Rheum , vol.46 , pp. 115-123
    • Frantz, C.1    Avouac, J.2    Distler, O.3
  • 23
    • 85043332055 scopus 로고    scopus 로고
    • SAT0467 The Five Prospective Observational Trials of the International Systemic Sclerosis FP7-Health Research Project Desscipher: A Interim Report
    • Frerix M, Abignano G, Allanore Y et al. SAT0467 The Five Prospective Observational Trials of the International Systemic Sclerosis FP7-Health Research Project Desscipher: A Interim Report. Ann Rheum Dis 2015;74(Suppl 2):829.3-30.
    • (2015) Ann Rheum Dis , vol.74 , pp. 3-30
    • Frerix, M.1    Abignano, G.2    Allanore, Y.3
  • 24
    • 85043313951 scopus 로고    scopus 로고
    • (9 November, date last accessed)
    • The DeSScipher Project. https://www.uni-giessen.de/fbz/ fb11/institute/klinik/rheumatologie/desscipher-en (9 November 2015, date last accessed).
    • (2015)
  • 25
    • 34248379222 scopus 로고    scopus 로고
    • Clinical risk assessment of organ manifestations in systemic sclerosis: a report from the EULAR Scleroderma Trials And Research group database
    • Walker UA, Tyndall A, Czirják L et al. Clinical risk assessment of organ manifestations in systemic sclerosis: a report from the EULAR Scleroderma Trials And Research group database. Ann Rheum Dis 2007;66:754-63.
    • (2007) Ann Rheum Dis , vol.66 , pp. 754-763
    • Walker, U.A.1    Tyndall, A.2    Czirják, L.3
  • 26
    • 84863857123 scopus 로고    scopus 로고
    • Update on the profile of the EUSTAR cohort: an analysis of the EULAR Scleroderma Trials and Research group database
    • Meier FMP, Frommer KW, Dinser R et al. Update on the profile of the EUSTAR cohort: an analysis of the EULAR Scleroderma Trials and Research group database. Ann Rheum Dis 2012;71:1355-60.
    • (2012) Ann Rheum Dis , vol.71 , pp. 1355-1360
    • Meier, F.M.P.1    Frommer, K.W.2    Dinser, R.3
  • 27
    • 84886777196 scopus 로고    scopus 로고
    • 2013 classification criteria for systemic sclerosis: an American College of Rheumatology/European League against Rheumatism collaborative initiative
    • van den Hoogen F, Khanna D, Fransen J et al. 2013 classification criteria for systemic sclerosis: an American College of Rheumatology/European League against Rheumatism collaborative initiative. Arthritis Rheum 2013;65:2737-47.
    • (2013) Arthritis Rheum , vol.65 , pp. 2737-2747
    • van den Hoogen, F.1    Khanna, D.2    Fransen, J.3
  • 28
    • 0018887574 scopus 로고
    • Preliminary criteria for the classification of systemic sclerosis (scleroderma). Subcommittee for scleroderma criteria of the American Rheumatism Association Diagnostic and Therapeutic Criteria Committee.
    • Masi AT, Rodnan GP, Medsger TA Jr et al. Preliminary criteria for the classification of systemic sclerosis (scleroderma). Subcommittee for scleroderma criteria of the American Rheumatism Association Diagnostic and Therapeutic Criteria Committee. Arthritis Rheum 1980;23:581-90.
    • (1980) Arthritis Rheum , vol.23 , pp. 581-590
    • Masi, A.T.1    Rodnan, G.P.2    Medsger, T.A.3
  • 29
    • 20844454516 scopus 로고    scopus 로고
    • Validation of French version of the Scleroderma Health Assessment Questionnaire (SSc HAQ)
    • Georges C, Chassany O, Mouthon L et al. Validation of French version of the Scleroderma Health Assessment Questionnaire (SSc HAQ). Clin Rheumatol 2005;24:3-10.
    • (2005) Clin Rheumatol , vol.24 , pp. 3-10
    • Georges, C.1    Chassany, O.2    Mouthon, L.3
  • 30
    • 68249114452 scopus 로고    scopus 로고
    • Multiple imputation for missing data in epidemiological and clinical research:potential and pitfalls
    • Sterne J, White IR, Carlin JB et al. Multiple imputation for missing data in epidemiological and clinical research:potential and pitfalls. BMJ 2009;338:b2393.
    • (2009) BMJ , vol.338
    • Sterne, J.1    White, I.R.2    Carlin, J.B.3
  • 32
    • 0027412974 scopus 로고
    • Minimum important difference between patients with rheumatoid arthritis: the patient's perspective
    • Wells GA, Tugwell P, Kraag GR et al. Minimum important difference between patients with rheumatoid arthritis: the patient's perspective. J Rheumatol 1993;20:557-60.
    • (1993) J Rheumatol , vol.20 , pp. 557-560
    • Wells, G.A.1    Tugwell, P.2    Kraag, G.R.3
  • 33
    • 38549181857 scopus 로고    scopus 로고
    • Interpreting the clinical importance of treatment outcomes in chronic pain clinical trials: IMMPACT recommendations
    • Dworkin RH, Turk DC, Wyrwich KW et al. Interpreting the clinical importance of treatment outcomes in chronic pain clinical trials: IMMPACT recommendations. J Pain 2008;9:105-21.
    • (2008) J Pain , vol.9 , pp. 105-121
    • Dworkin, R.H.1    Turk, D.C.2    Wyrwich, K.W.3
  • 34
    • 79955810283 scopus 로고    scopus 로고
    • Certolizumab pegol plus methotrexate provides broad relief from the burden of rheumatoid arthritis: analysis of patient-reported outcomes from the RAPID 2 trial
    • Strand V, Smolen JS, van Vollenhoven RF et al. Certolizumab pegol plus methotrexate provides broad relief from the burden of rheumatoid arthritis: analysis of patient-reported outcomes from the RAPID 2 trial. Ann Rheum Dis 2011;70:996-1002.
    • (2011) Ann Rheum Dis , vol.70 , pp. 996-1002
    • Strand, V.1    Smolen, J.S.2    van Vollenhoven, R.F.3
  • 35
    • 84946214806 scopus 로고    scopus 로고
    • An observational cohort study of patients with newly diagnosed digital ulcer disease secondary to systemic sclerosis registered in the EUSTAR database
    • Brand M, Hollaender R, Rosenberg D et al. An observational cohort study of patients with newly diagnosed digital ulcer disease secondary to systemic sclerosis registered in the EUSTAR database. Clin Exp Rheumatol 2015;33(4 Suppl 91):S47-54.
    • (2015) Clin Exp Rheumatol , vol.33 , pp. S47-54
    • Brand, M.1    Hollaender, R.2    Rosenberg, D.3
  • 36
    • 84908418704 scopus 로고    scopus 로고
    • Musculoskeletal involvement in systemic sclerosis
    • Lóránd V, Czirják L, Minier T. Musculoskeletal involvement in systemic sclerosis. Presse Med 2014;43:e315-28.
    • (2014) Presse Med , vol.43 , pp. e315-e328
    • Lóránd, V.1    Czirják, L.2    Minier, T.3
  • 37
    • 79952786895 scopus 로고    scopus 로고
    • Frequency and impact of symptoms experienced by patients with systemic sclerosis: results from a Canadian National Survey
    • Bassel M, Hudson M, Taillefer SS et al. Frequency and impact of symptoms experienced by patients with systemic sclerosis: results from a Canadian National Survey. Rheumatology 2011;50:762-7.
    • (2011) Rheumatology , vol.50 , pp. 762-767
    • Bassel, M.1    Hudson, M.2    Taillefer, S.S.3
  • 38
    • 37349107132 scopus 로고    scopus 로고
    • Functional disability in France and its relationship with health-related quality of life _ a population-based prevalence study
    • Loos-Ayav C, Chau N, Riani C, Guillemin F. Functional disability in France and its relationship with health-related quality of life _ a population-based prevalence study. Clin Exp Rheumatol 2007;25:701-8.
    • (2007) Clin Exp Rheumatol , vol.25 , pp. 701-708
    • Loos-Ayav, C.1    Chau, N.2    Riani, C.3    Guillemin, F.4
  • 39
    • 84999958005 scopus 로고    scopus 로고
    • Linking physical function outcomes in rheumatology:Performance of a Crosswalk for Converting Health Assessment Questionnaire Scores to Short Form 36 Physical Functioning Scale Scores
    • Oude Voshaar MAH, ten Klooster PM, Taal E et al. Linking physical function outcomes in rheumatology:Performance of a Crosswalk for Converting Health Assessment Questionnaire Scores to Short Form 36 Physical Functioning Scale Scores. Arthritis Care Res 2014;66:1754-8.
    • (2014) Arthritis Care Res , vol.66 , pp. 1754-1758
    • Oude Voshaar, M.A.H.1    Ten Klooster, P.M.2    Taal, E.3


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