Advance Care Planning in Community-Dwelling Patients With Dementia

Journal of Pain and Symptom Management

Volumn 55, Issue 4, 2018, Pages 1105-1112

  Givens, Jane L ^a,b   Sudore, Rebecca L ^c,d   Marshall, Gad A ^e   Dufour, Alyssa B ^a,b   Kopits, Ilona ^f   Mitchell, Susan L ^a,b  

^a Hebrew SeniorLife Institute for Aging Research   (United States)

^b BETH ISRAEL DEACONESS MEDICAL CENTER   (United States)

^c UNIVERSITY OF CALIFORNIA   (United States)

^d SAN FRANCISCO VETERANS AFFAIRS MEDICAL CENTER   (United States)

^e MASSACHUSETTS GENERAL HOSPITAL   (United States)

^f BOSTON MEDICAL CENTER   (United States)

Author keywords

advance care planning; Dementia; health care proxy

Indexed keywords

ADVANCE CARE PLANNING; AGED; ARTICLE; CROSS-SECTIONAL STUDY; DEMENTIA; DISEASE SEVERITY; DOCTOR PATIENT RELATION; FEMALE; HEALTH CARE DELIVERY; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; OBSERVATIONAL STUDY; PATIENT ATTITUDE; PATIENT PREFERENCE; PEACE, EQUANIMITY, AND ACCEPTANCE IN THE CANCER EXPERIENCE SCALE; PROXY; RATING SCALE; RESPONSIBILITY; SHARED DECISION MAKING; AMBULATORY CARE; BEHAVIOR; INDEPENDENT LIVING; MEDICAL INFORMATION; MIDDLE AGED; PSYCHOLOGY; VERY ELDERLY;

ADVANCE CARE PLANNING; AGED; AGED, 80 AND OVER; AMBULATORY CARE; BEHAVIOR; CROSS-SECTIONAL STUDIES; DEMENTIA; FEMALE; HEALTH COMMUNICATION; HUMANS; INDEPENDENT LIVING; MALE; MIDDLE AGED; PATIENT PREFERENCE; PROXY;

EID: 85042106052     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2017.12.473     Document Type: Article

References (23)

1. Hebert, L.E., Scherr, P.A., Bienias, J.L., Bennett, D.A., Evans, D.A., Alzheimer disease in the US population: prevalence estimates using the 2000 census. Arch Neurol 60 (2003), 1119–1122.
2. Bynum, J.P., Rabins, P.V., Weller, W., Niefeld, M., Anderson, G.F., Wu, A.W., The relationship between a dementia diagnosis, chronic illness, medicare expenditures, and hospital use. J Am Geriatr Soc 52 (2004), 187–194.
3. Mitchell, S.L., Teno, J.M., Kiely, D.K., et al. The clinical course of advanced dementia. N Engl J Med 361 (2009), 1529–1538.
4. Sudore, R.L., Fried, T.R., Redefining the “planning” in advance care planning: preparing for end-of-life decision making. Ann Intern Med 153 (2010), 256–261.
5. Gill, T.M., Gahbauer, E.A., Han, L., Allore, H.G., Trajectories of disability in the last year of life. N Engl J Med 362 (2010), 1173–1180.
6. Gozalo, P., Teno, J.M., Mitchell, S.L., et al. End-of-life transitions among nursing home residents with cognitive issues. N Engl J Med 365 (2011), 1212–1221.
7. Engel, S.E., Kiely, D.K., Mitchell, S.L., Satisfaction with end-of-life care for nursing home residents with advanced dementia. J Am Geriatr Soc 54 (2006), 1567–1572.
8. Mitchell, S.L., Kiely, D.K., Lipsitz, L.A., The risk factors and impact on survival of feeding tube placement in nursing home residents with severe cognitive impairment. Arch Intern Med 157 (1997), 327–332.
9. Mitchell, S.L., Teno, J.M., Intrator, O., Feng, Z., Mor, V., Decisions to forgo hospitalization in advanced dementia: a nationwide study. J Am Geriatr Soc 55 (2007), 432–438.
10. Goldfeld, K.S., Stevenson, D.G., Hamel, M.B., Mitchell, S.L., Medicare expenditures among nursing home residents with advanced dementia. Arch Intern Med 171 (2011), 824–830.
11. Kiely, K.D., Givens, L.J., Shaffer, L.M., Teno, M.J., Mitchell, L.S., Hospice use and outcomes in nursing home residents with advanced dementia. J Am Geriatr Soc 58 (2010), 2284–2291.
12. Detering, K.M., Hancock, A.D., Reade, M.C., Silvester, W., The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ, 340, 2010, c1345.
13. Hirschman, K.B., Abbott, K.M., Hanlon, A.L., Prvu Bettger, J., Naylor, M.D., What factors are associated with having an advance directive among older adults who are new to long term care services?. J Am Med Dir Assoc 13 (2012), 82.e7–82.e11.
14. Van Der Steen, J.T., Van Soest-Poortvliet, M.C., Onwuteaka-Philipsen, B.D., et al. Factors associated with initiation of advance care planning in dementia: a systematic review. J Alzheimers Dis 40 (2014), 743–757.
15. Forbes, S., Bern-Klug, M., Gessert, C., End-of-life decision making for nursing home residents with dementia. J Nurs Scholarsh 32 (2000), 251–258.
16. Gessert, C.E., Forbes, S., Bern-Klug, M., Planning end-of-life care for patients with dementia: roles of families and health professionals. Omega (Westport) 42 (2000), 273–291.
17. Dening, K.H., King, M., Jones, L., Vickestaff, V., Sampson, E.L., Advance care planning in dementia: do family carers know the treatment preferences of people with early dementia. PLoS One, 11, 2016, e0161142.
18. Carpenter, B.D., Balsis, S., Otilingam, P.G., Hanson, P.K., Gatz, M., The Alzheimer's Disease Knowledge Scale: development and psychometric properties. Gerontologist 49 (2009), 236–247.
19. Mack, J.W., Nilsson, M., Balboni, T., et al. Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness. Cancer 112 (2008), 2509–2517.
20. Bedard, M., Molloy, D.W., Squire, L., Dubois, S., Lever, J.A., O'Donnell, M., The Zarit Burden Interview: a new short version and screening version. Gerontologist 41 (2001), 652–657.
21. Lingler, J.H., Hirschman, K.B., Garand, L., et al. Frequency and correlates of advance planning among cognitively impaired older adults. Am J Geriatr Psychiatry 16 (2008), 643–649.
22. Wright, A.A., Zhang, B., Ray, A., et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 300 (2008), 1665–1673.
23. Poppe, M., Burleigh, S., Banerjee, S., Qualitative evaluation of advanced care planning in early dementia (ACP-ED). PLoS One, 8, 2013, e60412.