Qualitative Evaluation of Advanced Care Planning in Early Dementia (ACP-ED)

PLoS ONE

Volumn 8, Issue 4, 2013, Pages

  Poppe, Michaela ^a   Burleigh, Sarah ^b   Banerjee, Sube ^c  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b SOUTH LONDON AND MAUDSLEY NHS FOUNDATION TRUST   (United Kingdom)

^c UNIVERSITY OF SUSSEX   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CLINICAL ARTICLE; DEMENTIA; DISEASE SEVERITY; HEALTH CARE PERSONNEL; HEALTH CARE PLANNING; HUMAN; INFORMATION DISSEMINATION; INTERVIEW; MEDICAL DOCUMENTATION; MEDICAL EDUCATION; MENTAL HEALTH SERVICE; PROFESSIONAL COMPETENCE; QUALITATIVE RESEARCH; COMMUNICATION DISORDER; DISEASE COURSE; EVALUATION STUDY; MOTIVATION; PATIENT ATTITUDE; PATIENT CARE; TERMINAL CARE; TIME;

ADVANCE CARE PLANNING; COMMUNICATION BARRIERS; DEMENTIA; DISEASE PROGRESSION; HUMANS; MOTIVATION; PATIENT ACCEPTANCE OF HEALTH CARE; PROFESSIONAL COMPETENCE; TERMINAL CARE; TIME FACTORS;

EID: 84876049398     PISSN: None     EISSN: 19326203     Source Type: Journal    
DOI: 10.1371/journal.pone.0060412     Document Type: Article

References (23)

1. Prince M, Jackson J (200) World Alzheimer Report 2009. London: Alzheimer's Disease International.
2. Sampson EL, Gould V, Lee D, Blanchard ML, (2006) Differences in care received by patients with and without dementia who died during acute hospital admission: a retrospective case note study. Age Ageing 35: 187-9.
3. Department of Health (2008) End of Life Care Strategy - Promoting High Quality Care for All Adults at the End of Life. London: Department of Health.
4. Royal College of Physicians, National Council for Palliative Care, British Society of Rehabilitation Medicine, British Geriatrics Society,et al (2009) Advance care planning. Concise Guidance to Good Practice series, No 12. London: RCP.
5. Wolfson C, Wolfson DB, Asgharian M, M'Lan CE, Østbye T, et al. (2001) A reevaluation of the duration of survival after the onset of dementia. N Engl J Med 344: 1111-6.
6. National Institute for Health and Clinical Excellence and Social Care Institute for Excellence (2006) Dementia: Supporting people with dementia and their carers in health and social care. NICE clinical guideline 42. London: NICE/SCIE.
7. Bisson JI, Hampton V, Rosser A, Holm S, (2009) Developing a care pathway for advance decisions and powers of attorney: qualitative study. Br J Psychiatry 194: 55-61.
8. Singer PA, Martin DK, Lavery JV, Thiel EC, Kelner M, et al. (1998) Reconceptualizing advance care planning from the patient's perspective. Arch Intern Med 158: 879-84.
9. Tierney WM, Dexter PR, Gramelspacher GP, Perkins AJ, Zhou XH, et al. (2001) The effect of discussions about advance directives on patients' satisfaction with primary care. J Gen Intern Med 16: 32-40.
10. Detering KM, Hancock AD, Reade MC, Silvester W, (2010) The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ 340: 1345.
11. Shalowitz DI, Garrett-Mayer E, Wendler D, (2006) The accuracy of surrogate decision makers: a systematic review. Arch Intern Med 166: 493-7.
12. Livingston G, Leavey G, Manela M, Livingston D, Rait G, (2010) Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK. BMJ 341: c4184.
13. Exley C, Bamford C, Hughes J, Robinson L, (2009) Advance care planning: an opportunity for person-centred care for people living with dementia. Dementia 8: 419-424.
14. National Gold Standards Framework Centre. GSF Advance Care Planning Discussion Paper. Thinking ahead - Advance Care Planning Discussion. Available: http://www.goldstandardsframework.org.uk/Resources/Gold%20Standards%20Framework/PDF%20Documents/ACP%20General%20version%20Feb10%20v20.pdf. Accessed 2011 Aug 18.
15. Lancashire and South Cumbria Cancer Network and National Preferred Priorities for Care Review Team. Preferred Priorities for Care. Available: http://www.endoflifecareforadults.nhs.uk/assets/downloads/PPC_document_v22_rev_20111.pdf (accessed 29 May 2012).
16. Glaser BG, Strauss AL (1967) The discovery of Grounded Theory: strategies for qualitative research. Chicago: Aldine Publishing Company.
17. Mays N, Pope C (2000) Qualitative research in health care: assessing quality in qualitative research. BMJ 320, 50-2.
18. QSR International (2008) Nvivo 8. Victoria, Australia: QSR International Pty Ltd.
19. Sampson E, Jones L, Thuné-Boyle ICV, Kukkastenvehmas R, King M, et al. (2011) Palliative assessment and advance care planning in severe dementia: An exploratory randomized controlled trial of a complex intervention. Palliat Med 25, 197-209.
20. Seymour J, Gott M, Bellamy G, Ahmedzai SH, Clark D (2004) Planning for the end of life: the views of older people about advance care statements. Soc Sci Med 59, 57-68.
21. Evans G (2009). Improving end of life care for the person with dementia: A practical approach from general practice. Dementia 8, 363-76.
22. Kolarik RC, Arnold RM, Fischer GS, Hanusa BH (2002) Advance Care Planning: A Comparison of Values Statements and Treatment Preferences. J Gen Intern Med 17, 618-24.
23. Lawrence V, Sampsi K, Murray J, Harari D, Banerjee S, (2011) Dying well with dementia: a qualitative examination of good end of life care for people with dementia. British Journal of Psychiatry 199: 417-22.