Where There’s a Will: The Link Between Estate Planning and Disparities in Advance Care Planning by White and Black Older Adults

Research on Aging

Volumn 40, Issue 3, 2018, Pages 281-302

  Koss, Catheryn S ^a   Baker, Tamara A ^a  

^a UNIVERSITY OF KANSAS   (United States)

Author keywords

advance care planning; advance directives; estate planning; medical decision making; race disparities

Indexed keywords

ADVANCE CARE PLANNING; AGED; ARTICLE; CAUCASIAN; FEMALE; HUMAN; LIVING WILL; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; RETIREMENT; TRUST; AFRICAN AMERICAN; ETHNOLOGY; HEALTH CARE DISPARITY; JURISPRUDENCE; LONGITUDINAL STUDY; QUESTIONNAIRE; STATISTICS AND NUMERICAL DATA;

ADVANCE CARE PLANNING; AFRICAN AMERICANS; AGED; ECONOMIC STATUS; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; HEALTHCARE DISPARITIES; HUMANS; LONGITUDINAL STUDIES; MALE; SURVEYS AND QUESTIONNAIRES; WILLS;

EID: 85041716428     PISSN: 01640275     EISSN: 15527573     Source Type: Journal    
DOI: 10.1177/0164027517697116     Document Type: Article

References (44)

1. Abbott K. H., Sago J. G., Breen C. M., Abernethy A. P., Tulsky J. A., (2001). Families looking back: One year after discussion of withdrawal or withholding of life-sustaining support. Critical Care Medicine, 29, 197–201. doi:10.1097/00003246-200101000-00040
2. Administration on Aging. (2014). A profile of older Americans: 2014. Retrieved from http://www.aoa.gov/Aging_Statistics/Profile/index.aspx
3. Banks-Wallace J., (2002). Talk that talk: Storytelling and analysis rooted in African American oral tradition. Qualitative Health Research, 12, 410–426. doi:10.1177/104973202129119892
4. Bischoff K. E., Sudore R., Miao Y., Boscardin W. J., Smith A. K., (2013). Advance care planning and the quality of end-of-life care in older adults. Journal of the American Geriatrics Society, 61, 209–214. doi:10.1111/jgs.12105
5. Brinkman-Stoppelenburg A., Rietjens J. A. C., van der Heide A., (2014). The effects of advance care planning on end-of-life care: A systemic review. Palliative Medicine, 28, 1000–1025. doi:10.1177/0269216314526272
6. Bullock K., McGraw S. A., Blank K., Bradley E. H., (2005). What matters to older African Americans facing end-of-life decisions? A focus group study. Journal of Social Work in End-of-Life & Palliative Care, 1, 3–19. doi:10.1300/j457v01n03_02
7. Carr D., (2011). Racial differences in end-of-life planning: Why don’t Blacks and Latinos prepare for the inevitable? OMEGA-Journal of Death and Dying, 63, 1–20. doi:10.2190/om.63.1.a
8. Carr D., (2012). The social stratification of older adults’ preparations for end-of-life health care. Journal of Health and Social Behavior, 53, 297–312. doi:10.1177/0022146512455427
9. Chien S., Campbell N., Hayden O., Hurd M., Main R., Mallett J., …St.Clair P., (2014). RAND HRS data documentation: Version N. RAND Center for the Study of Aging. Retrieved from http://www.rand.org/labor/aging/dataprod/hrs-data.html
10. Crawley L., Payne R., Bolden J., Payne T., Washington P., Williams S., (2000). Palliative and end-of-life care in the African American community. JAMA, 284, 2518–2521. Retrieved from http://doi.org/10.1001/jama.284.19.2518
11. Enders C. K., (2010). Applied missing data analysis. New York, NY: Guildford Press.
12. Gerst K., Burr J. A., (2008). Planning for end-of-life care: Black-White differences in the completion of advance directives. Research on Aging, 30, 428–449. doi:10.1177/0164027508316618
13. Goetting M., Martin P., (2001). Characteristics of older adults with written wills. Journal of Family and Economic Issues, 22, 243–264. doi:10.1023/A:1016699822855
14. Greiner K. A., Perera S., Ahluwalia J. S., (2003). Hospice usage by minorities in the last year of life: Results from the National Mortality Followback Survey. Journal of the American Geriatrics Society, 51, 970–978. doi:10.1046/j.1365-2389.2003.51310.x
15. Huang I. A., Neuhaus J. M., Chiong W., (2016). Racial and ethnic differences in advance directive possession: Role of demographic factors, religious affiliation, and personal health values in a national survey of older adults. Journal of Palliative Medicine, 19, 149–156. doi:10.1089/jpm.2015.0326
16. Institute of Medicine. (2015). Dying in America: Improving quality and honoring individual preferences near the end of life. Washington, DC: Author.
17. Johnson K. S., Kuchibhatla M., Tulsky J. A., (2008). What explains racial differences in the use of advance directives and attitudes toward hospice care? Journal of the American Geriatrics Society, 56, 1953–1958. doi:10.1111/j.1532-5415.2008.01919.x
18. Kelly C., Masters J., Deviney S., (2013). End-of-life planning activities: An integrated process. Death Studies, 37, 529–551. doi:10.1080/07481187.2011.653081
19. Kessler D. P., McClellan M. B., (2004). Advance directives and medical treatment at the end of life. Journal of Health Economics, 23, 111–127. doi:10.1016/j.jhealeco.2003.08.006
20. Khandelwal N., Kross E. K., Engelberg R. A., Coe N. B., Long A. C., Curtis J. R., (2015). Estimating the effect of palliative care interventions and advance care planning on ICU utilization: A systematic review. Critical Care Medicine, 43, 1102–1111. doi:10.1097/CCM.0000000000000852
21. Koss C. S., Baker T. A., (2016). Race differences in advance directive completion: The narrowing gap between White and African American older adults. Journal of Aging and Health, 1–19. doi:10.1177/0898264316635568
22. Krivo L. J., Kaufman R. L., (2004). Housing and wealth inequality: Racial-ethnic differences in home equity in the United States. Demography, 41, 585–605. doi:10.1353/dem.2004.0023
23. Kwak J., Haley W. E., (2005). Current research findings on end-of-life decision making among racially or ethnically diverse groups. The Gerontologist, 45, 634–641. doi:10.1093/geront/45.5.634
24. Ladd C. S., (2014). Systematic review of research literature on African Americans’ end-of-life healthcare preferences. Journal of African American Studies, 18, 373–397. doi:10.1007/s12111-013-9276-z
25. O’Rand A. M., (1996). The precious and the precocious: Understanding cumulative disadvantage and cumulative advantage over the life course. The Gerontologist, 36, 230–238.
26. Patient Self-Determination Act of 1990. 1990. 554206, 4751 of the Omnibus Reconciliation Act of 1990. Pubs. No. 101–508.
27. Pearlman R. A., Cole W. G., Patrick D. L., Starks H. E., Cain K. C., (1995). Advance care planning: Eliciting patient preferences for life-sustaining treatment. Patient Education and Counseling, 26, 353–361. doi:10.1016/0738-3991(95)00739-m
28. Pew Research Center. (2013). Black incomes are up, But wealth isn’t. Washington, DC. Retrieved from http://www.pewresearch.org/fact-tank/2013/08/30/black-incomes-are-up-but-wealth-isnt/
29. Pew Research Center. (2009). End-of-life decisions: How Americans cope. Washington, DC. Retrieved from http://www.pewsocialtrends.org/2009/08/20/end-of-life-decisions-how-americans-cope/
30. Phelan J. C., Link B. G., Tehranifar P., (2010). Social conditions as fundamental causes of health inequalities: Theory, evidence, and policy implications. Journal of Health and Social Behavior, 51, S28–S40. doi:10.1177/0022146510383498
31. Pollack K. M., Williams M. A., (2010). The public’s perspectives on advance directives: Implications for state legislative and regulatory policy. Health Policy, 96, 57–63. doi:10.1016/j.healthpol.2010.01.004
32. Rao J. K., Anderson L. A., Lin F.-C., Laux J. P., (2014). Completion of advance directives among U.S. consumers. American Journal of Preventive Medicine, 46, 65–70. doi:10.1016/j.amepre.2013.09.008
33. Sabatino C. P., (2015). Summary of center for Medicare and Medicaid services (CMS) rule for covering cost of advance care planning services. Bifocal, 37, 19–21. Retrieved from http://www.americanbar.org/publications/bifocal/vol_37.html
34. Sanders J. J., Robinson M. T., Block S. D., (2016). Factors impacting advance care planning among African Americans: Results of a systematic integrated review. Journal of Palliative Medicine, 19, 202–227. doi:10.1089/jpm.2015.0325
35. Silveira M. J., Kim S. Y. H., Langa K. M., (2010). Advance directives and outcomes of surrogate decision making before death. The New England Journal of Medicine, 362, 1211–1218. doi:10.1056/NEJMsa0907901
36. Sonnega A., Faul J., Ofstedal M., Langa K., Phillips J., Weir D., (2014). Cohort profile: The Health and Retirement Study (HRS). International Journal of Epidemiology, 43, 576–585. doi: 10.1093/ije/dyu067
37. Su Y.-T., (2008). Looking beyond retirement: Patterns and predictors of formal end-of-life planning among retirement age individuals. Journal of Family and Economic Issues, 29, 654–673. doi:10.1007/s10834-008-9130-y
38. Sudore R. L., Schickedanz A. D., Landefeld C. S., Williams B. A., Lindquist K., Pantilat S. Z., Schillinger D., (2008). Engagement in multiple steps of the advance care planning process: A descriptive study of diverse older adults. Journal of the American Geriatrics Society, 56, 1006–1013. doi:10.1111/j.1532-5415.2008.01701.x
39. Teno J. M., Gruneir A., Schwartz Z., Nanda A., Wetle T., (2007). Association between advance directives and quality of end-of-life care: A national study. Journal of the American Geriatrics Society, 55, 189–194. doi:10.1111/j.1532-5415.2007.01045.x
40. Tilden V. P., Tolle S. W., Nelson C. A., Fields J., (2001). Family decision-making to withdraw life-sustaining treatments from hospitalized patients. Nursing Research, 50, 105–115. doi:10.1097/00006199-200103000-00006
41. Tschirhart E. C., Du Q., Kelley A. S., (2014). Factors influencing the use of intensive procedures at the end of life. Journal of the American Geriatrics Society, 62(11), 2088–2094. doi: 10.1111/jgs.13104
42. U.S. Government Accountability Office. (2015). Advance directives: Information on federal oversight, provider implementation, and prevalence (No. GAO-15-416) (pp. 1–28). United States Government Accountability Office. Retrieved from http://gao.gov/products/GAO-15-416
43. Wendler D., Rid A., (2011). Systematic review: The effect on surrogates of making treatment decisions for others. Annals of Internal Medicine, 154, 336–346. doi:10.7326/0003-4819-154-5-201103010-00008
44. Wright A. A., Zhang B., Ray A., Mack J. W., Trice E., Balboni T., …Prigerson H. G. (2008). Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA, 300, 1665–1673. doi:10.1001/jama.300.14.1665