Race Differences in Advance Directive Completion: The Narrowing Gap between White and African American Older Adults

Journal of Aging and Health

Volumn 29, Issue 2, 2017, Pages 324-342

  Koss, Catheryn S ^a   Baker, Tamara A ^a  

^a UNIVERSITY OF KANSAS   (United States)

Author keywords

advance care planning; advance directives; African Americans; end of life; health disparities

Indexed keywords

ADULT; ADVANCE CARE PLANNING; AFRICAN AMERICAN; CAUCASIAN; CONFIDENCE INTERVAL; DEATH; HEALTH DISPARITY; HUMAN; LIVING WILL; LOGISTIC REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MODEL; ODDS RATIO; RACE DIFFERENCE; RETIREMENT; AGED; COMPARATIVE STUDY; FEMALE; INTERVIEW; MALE; QUALITATIVE RESEARCH; STATISTICAL MODEL; STATISTICS AND NUMERICAL DATA; VERY ELDERLY;

ADVANCE DIRECTIVES; AFRICAN AMERICANS; AGED; AGED, 80 AND OVER; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; HUMANS; INTERVIEWS AS TOPIC; LOGISTIC MODELS; MALE; QUALITATIVE RESEARCH;

EID: 85011672607     PISSN: 08982643     EISSN: 15526887     Source Type: Journal    
DOI: 10.1177/0898264316635568     Document Type: Article

References (58)

1. Bischoff K. E., Sudore R., Miao Y., Boscardin W. J., Smith A. K., (2013). Advance care planning and the quality of end-of-life care in older adults. Journal of the American Geriatrics Society, 61, 209-214. doi: 10.1093/acprof:oso/9780199561636.003.0004
2. Blackhall L. J., Frank G., Murphy S. T., Michel V., Palmer J. M., Azen S. P., (1999). Ethnicity and attitudes towards life sustaining technology. Social Science & Medicine, 48, 1779-1789. doi: 10.1016/s0277-9536(99)00077-5
3. Brinkman-Stoppelenburg A., Rietjens J. A. C., van der Heide A., (2014). The effects of advance care planning on end-of-life care: A systemic review. Palliative Medicine, 28, 1000-1025. doi: 10.1177/0269216314526272
4. Bullock K., (2006). Promoting advance directives among African Americans: A faith-based model. Journal of Palliative Medicine, 9, 183-195. doi: 10.1089/jpm.2006.9.183
5. Campbell M. J., Edwards M. J., Ward K. S., Weatherby N., (2007). Developing a parsimonious model for predicting completion of advance directives. Journal of Nursing Scholarship, 39, 165-171. doi: 10.1111/j.1547-5069.2007.00162.x
6. Carr D., (2012a). Racial and ethnic differences in advance care planning. Journal of Aging and Health, 24, 923-947. doi: 10.1177/0898264312449185
7. Carr D., (2012b). The social stratification of older adults' preparations for end-of-life health care. Journal of Health and Social Behavior, 53, 297-312. doi: 10.1177/0022146512455427
8. Centers for Disease Control. (2015,). Social determinants of health: What affects health. Retrieved from http://www.cdc.gov/socialdeterminants/cdcprograms/index.htm
9. Degenholtz H. B., Arnold R. A., Meisel A., Lave J. R., (2002). Persistence of racial disparities in advance care plan documents among nursing home residents. Journal of the American Geriatrics Society, 50, 378-381. doi: 10.1046/j.1532-5415.2002.50073.x
10. Detering K. M., Hancock A. D., Reade M. C., Silvester W., (2010). The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial. British Medical Journal, 340, c1345. doi: 10.1136/bmj.c1345
11. Ditto P. H., Hawkins N. A., (2005). Advance directives and cancer decision making near the end of life. Health Psychology, 24, S63-S70. doi: 10.1037/0278-6133.24.4.s63
12. Eichner J., Vladeck B. C., (2005). Medicare as a catalyst for reducing health disparities. Health Affairs, 24, 365-375. doi: 10.1377/hlthaff.24.2.365
13. Emanuel L. L., (1995). Advance directives: Do they work? Journal of the American College of Cardiology, 25, 35-38. doi: 10.1016/0735-1097(94)00339-r
14. Fagerlin A., Schneider C. E., (2004). Enough: The failure of the living will. The Hastings Center Report, 34, 30-42. doi: 10.2307/3527683
15. Field A., (2013). Discovering statistics using IBM SPSS statistics (4th ed.). London, England: SAGE.
16. Frahm K. A., Brown L. M., Hyer K., (2012). Racial disparities in end-of-life planning and services for deceased nursing home residents. Journal of the American Medical Directors Association, 13, 819.e7-819.e11. doi: 10.1016/j.jamda.2012.07.021
17. Garrido M. M., Balboni T. A., Maciejewski P. K., Bao Y., Prigerson H. G., (2015). Quality of life and cost of care at the end of life: The role of advance directives. Journal of Pain and Symptom Management, 49, 828-835. doi: 10.1016/j.jpainsymman.2014.09.015
18. Gerst K., Burr J. A., (2008). Planning for end-of-life care: Black-White differences in the completion of advance directives. Research on Aging, 30, 428-449. doi: 10.1177/0164027508316618
19. Health and Retirement Study. (2002-2012). Exit interview data files and code books. Retrieved from http://hrsonline.isr.umich.edu/
20. Hlubocky F. J., (2014). Are patient preferences for end-of-life care socially influenced? Examining racial disparities in advance care planning. Cancer, 120, 3866-3869. doi: 10.1002/cncr.28969
21. Hopp F. P., Duffy S. A., (2000). Racial variations in end-of-life care. Journal of the American Geriatrics Society, 48, 658-663. doi: 10.1111/j.1532-5415.2000.tb04724.x
22. Institute of Medicine. (2015). Dying in America: Improving quality and honoring individual preferences near the end of life. Washington, DC: Author.
23. Johnson K. S., Kuchibhatla M., Tulsky J. A., (2008). What explains racial differences in the use of advance directives and attitudes toward hospice care? Journal of the American Geriatrics Society, 56, 1953-1958. doi: 10.1111/j.1532-5415.2008.01919.x
24. Kahana B., Dan A., Kahana E., Kercher K., (2004). The personal and social context of planning for end-of-life care. Journal of the American Geriatrics Society, 52, 1163-1167. doi: 10.1111/j.1532-5415.2004.52316.x
25. Kessler D. P., McClellan M. B., (2004). Advance directives and medical treatment at the end of life. Journal of Health Economics, 23, 111-127. doi: 10.3386/w9955
26. Kiely D. K., Mitchell S. L., Marlow A., Murphy K. M., Morris J. N., (2001). Racial and state differences in the designation of advance directives in nursing home residents. Journal of the American Geriatrics Society, 49, 1346-1352. doi: 10.1046/j.1532-5415.2001.49263.x
27. Kwak J., Haley W. E., (2005). Current research findings on end-of-life decision making among racially or ethnically diverse groups. The Gerontologist, 45, 634-641. doi: 10.1093/geront/45.5.634
28. Ladd S., (2014). Systematic review of research literature on African Americans' end-of-life healthcare preferences. Journal of African American Studies, 18, 373-397. doi: 10.1007/s12111-013-9276-z
29. Lo B., Steinbrook R., (2004). Resuscitating advance directives. Archives of Internal Medicine, 164, 1501-1506. doi: 10.1001/archinte.164.14.1501
30. McCleary-Jones V., Scheideman-Miller C., Dorn J., Johnson B., Overall M., Dwyer K., (2013). Health information technology use and health literacy among community-dwelling African Americans. Association of Black Nursing Faculty, 24, 10-16. Retrieved from http://search.proquest.com/docview/1518646397?accountid=14556
31. Mechanic D., (2002). Disadvantage, inequality, and social policy. Health Affairs, 21, 48-59. doi: 10.1377/hlthaff.21.2.48
32. Menard S., (2002). Applied logistic regression analysis (2nd ed.). Thousand Oaks, CA: SAGE.
33. Murphy S. T., Palmer J. M., Azen S., Frank G., Michel V., Blackhall L. J., (1996). Ethnicity and advance care directives. Journal of Law, Medicine & Ethics, 24, 108-117. doi: 10.1111/j.1748-720X.1996.tb01843.x
34. Perkins H. S., (2007). Controlling death: The false promise of advance directives. Annals of Internal Medicine, 147, 51-57. doi: 10.7326/0003-4819-147-1-200707030-00008
35. Perkins H. S., Geppert C., Gonzales A., Cortez J., Hazuda H., (2002). Cross-cultural similarities and differences in attitudes about advance care planning. Journal of General Internal Medicine, 17, 48-57. doi: 10.1046/j.1525-1497.2002.01032.x
36. Pew Research Center. (2009,). End-of-life decisions: How Americans cope. Retrieved from http://www.pewsocialtrends.org/2009/08/20/end-of-life-decisions-how-americans-cope/
37. Pew Research Center. (2015,). American's Internet access: 2000-2015. Retrieved from http://www.pewinternet.org/2015/06/26/americans-internet-access-2000-2015/
38. Phelan J. C., Link B. G., Tehranifar P., (2010). Social conditions as fundamental causes of health inequalities: Theory, evidence, and policy implications. Journal of Health and Social Behavior, 51, S28-S40. doi: 10.1177/0022146510383498
39. Rao J. K., Anderson L. A., Lin F.-C., Laux J. P., (2014). Completion of advance directives among U.S. consumers. American Journal of Preventive Medicine, 46, 65-70. doi: 10.1016/j.amepre.2013.09.008
40. Rich S. E., Gruber-Baldini A. L., Quinn C. C., Zimmerman S. I., (2009). Discussion as a factor in racial disparity in advance directive completion at nursing home admission. Journal of the American Geriatrics Society, 57, 146-152. doi: 10.1111/j.1532-5415.2008.02090.x
41. Sabatino C. P., (2015). Summary of Center for Medicare and Medicaid Services (CMS) rule for covering cost of advance care planning services. Bifocal, 37. Retrieved from http://www.americanbar.org/publications/bifocal/vol-37/issue-1-october2015/cms-rule-acp-services.html
42. Schmidt W. C., (2015). Proxy decision-making: A legal perspective. In Foster C., Herring J., Doron I., (Eds.), The law and ethics of dementia (pp. 311-326). Oxford, UK: Hart Publishing.
43. Silveira M. J., Kim S. Y. H., Langa K. M., (2010). Advance directives and outcomes of surrogate decision making before death. The New England Journal of Medicine, 362, 1211-1218. doi: 10.1097/sa.0b013e3181f21fb0
44. Silveira M. J., Wiitala W., Piette J., (2014). Advance directive completion by elderly Americans: A decade of change. Journal of the American Geriatrics Society, 62, 706-710. doi: 10.1111/jgs.12736
45. Smith A. K., Davis R., Krakauer E., (2007). Differences in the quality of the patient-physician relationship among terminally ill African-American and White patients: Impact on advance care planning and treatment preferences. Journal of General Internal Medicine, 22, 1579-1582. doi: 10.1007/s11606-007-0370-6
46. Smith A. K., McCarthy E. P., Paulk E., Balboni T. A., Maciejewski P. K., Block S. D., Prigerson H. G., (2008). Racial and ethnic differences in advance care planning among patients with cancer: Impact of terminal illness acknowledgment, religiousness, and treatment preferences. Journal of Clinical Oncology, 26, 4131-4137. doi: 10.1200/jco.2007.14.8452
47. Solar O., Irwin A., (2010). A conceptual framework for action on the social determinants of health: Social determinants of health discussion paper 2. Retrieved from http://www.who.int/sdhconference/resources/ConceptualframeworkforactiononSDH-eng.pdf
48. Sonnega A., Faul J., Ofstedal M., Langa K., Phillips J., Weir D., (2014). Cohort profile: The Health and Retirement Study (HRS). International Journal of Epidemiology, 43, 576-585. doi: 10.1093/ije/dyu067
49. Sudore R. L., Fried T. R., (2010). Redefining the "planning" in advance care planning: Preparing for end-of-life decision making. Annals of Internal Medicine, 153, 256-274. doi: 10.7326/0003-4819-153-4-201008170-00008
50. Teno J. M., Gruneir A., Schwartz Z., Nanda A., Wetle T., (2007). Association between advance directives and quality of end-of-life care: A national study. Journal of the American Geriatrics Society, 55, 189-194. doi: 10.1111/j.1532-5415.2007.01045.x
51. Tilden V. P., Tolle S. W., Nelson C. A., Fields J., (2001). Family decision-making to withdraw life-sustaining treatments from hospitalized patients. Nursing Research, 50, 105-115. doi: 10.1097/00006199-200103000-00006
52. Tschirhart E. C., Du Q., Kelley A. S., (2014). Factors influencing the use of intensive procedures at the end of life. Journal of the American Geriatrics Society, 62, 2088-2094. doi: 10.1111/jgs.13104
53. U.S. Department of Health and Human Services. (2008). Advance directives and advance care planning: Report to Congress. Retrieved from http://aspe.hhs.gov/basic-report/advance-directives-and-advance-care-planning-report-congress
54. U.S. Government Accountability Office. (2015). Advance directives: Information on federal oversight, provider implementation, and prevalence (GAO Publication No. 15-416). Retrieved from http://www.gao.gov/assets/670/669906.pdf
55. Varney S., (2015, 25). A racial divide on hospice care. The New York Times, p. D1.
56. Waters C. M., (2001). Understanding and supporting African Americans' perspectives of end-of-life care planning and decision making. Qualitative Health Research, 11, 385-398. doi: 10.1177/104973201129119172
57. Welch L. C., Teno J. M., Mor V., (2005). End-of-life care in Black and White: Race matters for medical care of dying patients and their families. Journal of the American Geriatrics Society, 53, 1145-1153. doi: 10.1111/j.1532-5415.2005.53357.x
58. Williams D. R., Jackson P. B., (2005). Social sources of racial disparities in health. Health Affairs, 24, 325-334. doi: 10.1377/hlthaff.24.2.325