Effects of a family-support programme for pregnant women with foetal abnormalities requiring pregnancy termination: A randomized controlled trial in China

International Journal of Nursing Practice

Volumn 24, Issue 1, 2018, Pages

  Sun, Shiwen ^a   Li, Junqin ^b   Ma, Yuanying ^b   Bu, Huilian ^b   Luo, Qiong ^b   Yu, Xiaoyan ^b  

^a ZHEJIANG UNIVERSITY SCHOOL OF MEDICINE   (China)

^b Zhejiang University School of Medicine   (China)

Author keywords

depression; family support; foetal abnormality; nursing; post traumatic stress; pregnant women

Indexed keywords

ADULT; CHINA; CONGENITAL DISORDER; CONTROLLED STUDY; FAMILY THERAPY; FEMALE; HUMAN; INDUCED ABORTION; MALE; POSTNATAL DEPRESSION; PREGNANCY; PREGNANT WOMAN; PSYCHOLOGY; PSYCHOSOCIAL CARE; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL;

ABORTION, INDUCED; ADULT; CHINA; CONGENITAL ABNORMALITIES; DEPRESSION, POSTPARTUM; FAMILY THERAPY; FEMALE; HUMANS; MALE; PREGNANCY; PREGNANT WOMEN; PSYCHOSOCIAL SUPPORT SYSTEMS; SURVEYS AND QUESTIONNAIRES;

EID: 85041621995     PISSN: 13227114     EISSN: 1440172X     Source Type: Journal    
DOI: 10.1111/ijn.12614     Document Type: Article

References (43)

1. Allahdadian, M., Irajpour, A., Kazemi, A., & Kheirabadi, G. (2015). Social support: An approach to maintaining the health of women who have experienced stillbirth. Iranian Journal of Nursing and Midwifery Research, 20, 465–470. https://doi.org/10.4103/1735-9066.160998.
2. Alvarado, R., Jadresic, E., Guajardo, V., & Rojas, G. (2015). First validation of a Spanish-translated version of the Edinburgh postnatal depression scale (EPDS) for use in pregnant women. A Chilean study. Archives of Women's Mental Health, 18, 607–612. https://doi.org/10.1007/s00737-014-0466-z.
3. Badenhorst, W., & Hughes, P. (2007). Psychological aspects of perinatal loss. Best Practice & Research. Clinical Obstetrics & Gynaecology, 21, 249–259. https://doi.org/10.1016/j.bpobgyn.2006.11.004.
4. Badenhorst, W., Riches, S., Turton, P., & Hughes, P. (2006). The psychological effects of stillbirth and neonatal death on fathers: Systematic review. Journal of Psychosomatic Obstetrics and Gynaecology, 27, 245–256. https://doi.org/10.1080/01674820600870327.
5. Barrera, M., D'Agostino, N. M., Schneiderman, G., Tallett, S., Spencer, L., & Jovcevska, V. (2007). Patterns of parental bereavement following the loss of a child and related factors. Omega-Journal of Death dying, 55, 145–167. https://doi.org/10.2190/OM.55.2.d.
6. Bath, D. M. (2009). Predicting social support for grieving persons: A theory of planned behavior perspective. Death Studies, 33, 869–889. https://doi.org/10.1080/07481180903251547.
7. Brier, N. (2008). Grief following miscarriage: A comprehensive review of the literature. Journal of Women's Health, 17, 451–464. https://doi.org/10.1089/jwh.2007.0505.
8. Büchi, S., Mörgeli, H., Schnyder, U., Jenewein, J., Glaser, A., Fauchère, J. C., … Sensky, T. (2009). Shared or discordant grief in couples 2-6 years after the death of their premature baby: Effects on suffering and posttraumatic growth. Psychosomatics, 50, 123–130. https://doi.org/10.1176/appi.psy.50.2.123.
9. Cacciatore, J. (2010). The unique experiences of women and their families after the death of a baby. Social Work in Health Care, 49, 134–148. https://doi.org/10.1080/00981380903158078.
10. Cacciatore, J., Schnebly, S., & Froen, J. F. (2009). The effects of social support on maternal anxiety and depression after stillbirth. Health & Social Care in the Community, 17, 167–176. https://doi.org/10.1111/j.1365-2524.2008.00814.x.
11. Chen, C. M., Kuo, S. F., Chu, Y. H., & Chen, H. C. (2007). Postpartum Taiwanese women: Their postpartum depression, social support and health-promoting lifestyle profiles. Journal of Clinical Nursing, 16, 1550–1560. https://doi.org/10.1111/j.1365-2702.2006.01837.x.
12. Chen, Y. L., Qian, X. F., Liu, G. H., Lin, Y., & Lin, D. (2015). The recent advances in parents' mental health with termination of pregnancy for fetal abnormality. Medicine and philosophy (B), 36, 80–83.
13. Cox, J. L., Hoiden, J. M., & Sagovsky, R. (1987). Detection of postnatal depression: Development of the 10-item Edinburgh postnatal depression scale. The British Journal of Psychiatry, l50, 782–786. https://doi.org/10.1192/bjp.150.6.782.
14. Ellis, A., Chebsey, C., Storey, C., Bradley, S., Jackson, S., Flenady, V., … Siassakos, D. (2016). Systematic review to understand and improve care after stillbirth: A review of parents' and healthcare professionals' experiences. BMC Pregnancy and Childbirth, 16, 16. https://doi.org/10.1186/s12884-016-0806-2.
15. Endo, K., Yonemoto, N., & Yamada, M. (2015). Interventions for bereaved parents following a child's death: A systematic review. Palliative Medicine, 29, 590–604. https://doi.org/10.1177/0269216315576674.
16. Fisher, J. (2008). Termination of pregnancy for fetal abnormality: The perspective of a parent support organisation. Reproductive Health Matters, 16, 57–65. https://doi.org/10.1016/S0968-8080(08)31382-2.
17. Flenady, V., Boyle, F., Koopmans, L., Wilson, T., Stones, W., & Cacciatore, J. (2014). Meeting the needs of parents after a stillbirth or neonatal death. British Journal of Obstetrics & Gynecology and Reproductive Biology, 121, 137–140. https://doi.org/10.1111/1471-0528.13009.
18. Flenady, V., & Wilson, T. (2008). Support for mothers, fathers and families after perinatal death (review). Cochrane Database of Systematic Reviews, 1, CD000452. doi: https://doi.org/10.1002/14651858.
19. Gold, K. J., Leon, I., Boggs, M. E., & Sen, A. (2016). Depression and posttraumatic stress symptoms after perinatal loss in a population-based sample. Journal of Womens Health, 25, 263–269. https://doi.org/10.1089/jwh.2015.5284.
20. Heazell, A. E., Leisher, S., Cregan, M., Flenady, V., Frøen, J. F., Gravensteen, I. K., … Erwich, J. J. (2013). Sharing experiences to improve bereavement support and clinical care after stillbirth: Report of the 7th annual meeting of the International Stillbirth Alliance. Acta Obstetricia et Gynecologica Scandinavica, 92, 352–361. https://doi.org/10.1111/aogs.12042.
21. Heazell, A. E., Siassakos, D., Blencowe, H., Burden, C., Bhutta, Z. A., Cacciatore, J., … Dang, N. (2016). Stillbirths: Economic and psychosocial consequences. Lancet, 387, 604–616. https://doi.org/10.1016/S0140-6736(15)00836-3.
22. House, J. S. (1981). Work, stress and social support. NY: Addison-Wesley, Reading, New York. MA.
23. Hsiao, C. Y., & Tsai, Y. F. (2015). Factors of caregiver burden and family functioning among Taiwanese family caregivers living with schizophrenia. Journal of Clinical Nursing, 24, 1546–1556. https://doi.org/10.1111/jocn.12745.
24. Hutti, M. H. (2005). Social and professional support needs of families after perinatal loss. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 34, 630–638. https://doi.org/10.1177/0884217505279998.
25. Jiang, R. J. (2005). Medical psychology (The fourth ed.). (pp. 86). Beijing: People's Health Press.
26. Kelley, M. C., & Trinidad, S. B. (2012). Silent loss and the clinical encounter: Parents' and physicians' experiences of stillbirth-a qualitative analysis. BMC Pregnancy and Childbirth, 12, 137. https://doi.org/10.1186/1471-2393-12-137.
27. Kersting, A., Kroker, K., Steinhard, J., Lüdorff, K., Wesselmann, U., Ohrmann, P., … Suslow, T. (2007). Complicated grief after traumatic loss: A 14-month follow up study. European Archives of Psychiatry and Clinical Neuroscience, 257, 437–443. https://doi.org/10.1007/s00406-007-0743-1.
28. Koopmans, L., Wilson, T., Cacciatore, J., & Flenady, V. (2013). Support for mothers, fathers and families after perinatal death (review). Cochrane Database of Systematic Reviews, 6, CD000452. https://doi.org/10.1002/14651858.CD000452.
29. Laakso, H., & Paunonen-llmonen, M. (2001). Mother's grief following the death of a child. Journal of Advanced Nursing, 36, 69–77. https://doi.org/10.1046/j.1365-2648.2001.01944.x.
30. Lawn, J. E., Blencowe, H., Waiswa, P., Amouzou, A., Mathers, C., Hogan, D., … Cousens, S. (2016). Stillbirths: Rates, risk factors, and acceleration towards 2030. Lancet, 387, 587–603. https://doi.org/10.1016/S0140-6736(15)00837-5.
31. Roose, R. E., & Blanford, C. R. (2011). Perinatal grief and support spans the generations parents and grandparents evaluations of an intergenerational perinatal bereavement program. The Journal of Perinatal & Neonatal Nursing, 25, 77–85. https://doi.org/10.1097/JPN.0b013e318208cb74.
32. Smilkstein, G. (1978). The family APGAR: A proposal for a family function test and its use by physicians. The Journal of Family Practice, 6, 1231–1239.
33. Stiffler, D., Birch, N., Campbell, H., & Cullen, D. (2017). Synthesis of coping experiences after infant death. Holistic Nursing Practice, 2017, 31,118–125. https://doi.org/10.1097/HNP.0000000000000199.
34. Surkan, P. J., Rådestad, I., Cnattingius, S., Steineck, G., & Dickman, P. W. (2009). Social support after stillbirth for prevention of maternal depression. Acta Obstetricia et Gynecologica Scandinavica, 88, 1358–1364. https://doi.org/10.3109/00016340903317974.
35. Tarricone, R. (2006). Cost-of-illness analysis. What room in health economics? Health Policy, 77, 51–63. https://doi.org/10.1016/j.healthpol.2005.07.016.
36. Turton, P., Hughes, P., Evans, C. D., & Fainman, D. (2001). Incidence, correlates and predictors of post-traumatic stress disorder in the pregnancy after stillbirth. British Journal of Psychiatry, 178, 556–560. https://doi.org/10.1192/bjp.178.6.556.
37. Weiss, D. S., & Marmar, C. R. (1997). The impact of event scale-revised. In J. P. Wilson, & T. M. Keane (Eds.), Assessing psychological trauma and PSTD (pp. 399–411). New York: Guilford Press.
38. Wender, E., & Committee on Psychosocial Aspects Of Child And Family Health (2012). Supporting the family after the death of a child. Pediatrics, 130, 1164–1169. https://doi.org/10.1542/peds.2012-2772.
39. World Health Organization. Congenital anomalies. (2016). retrieved from http://www.who.int/mediacentre/factsheets/fs370/en/ (Accessed July7, 2016)
40. Wu, K. K., & Chan, K. S. (2003). The development of the Chinese version of Impact of Event Scale-Revised (CIES-R). Social Psychiatry and Psychiatric Epidemiology, 38, 94–98. https://doi.org/10.1007/s00127-003-0611-x.
41. Xu, B. B., Cheng, Y., & Qian, M. H. (2014). The emotional experience of pregnant women with fetal anomaly. Journal of Nursing Administration, 14, 549–551. https://doi.org/10.3969/j.issn.1671-315X.2014.08.007.
42. Yu, X. Y., Hu, Y., Li, Y. C., & Feng, S. W. (2015). Application of the triage assessment system for psychological assessment for pregnant women with a deadly fetal abnormality. International Journal of Nursing Practice, 21, 102–106. https://doi.org/10.1111/ijn.12293.
43. Yu, X. Y., Shao, W. H., Xu, L. Y., & Hu, Y. (2011). Evaluation and intervention countermeasures on psychological health status of pregnancy women facing abnormal fetus. Nursing and Rehabilitation Journal, 10, 246–247. https://doi.org/10.3969/j.issn.1671-9875.2011.03.033.