Experiences of partners of prostate cancer survivors: A qualitative study

Journal of Psychosocial Oncology

Volumn 36, Issue 1, 2018, Pages 49-63

  Pinks, Darren ^a   Davis, Cindy ^a   Pinks, Clair ^a  

^a UNIVERSITY OF THE SUNSHINE COAST   (Australia)

Author keywords

partner; prostate cancer; qualitative; quality of life; survivorship

Indexed keywords

ADULT; AGED; ANXIETY; ARTICLE; CANCER HORMONE THERAPY; CANCER RADIOTHERAPY; CANCER SURGERY; CANCER SURVIVOR; CAREGIVER BURDEN; CLINICAL ARTICLE; DEPRESSION; EMOTIONAL STRESS; ERECTILE DYSFUNCTION; EXPERIENCE; FEMALE; FUTUROLOGY; GRIEF; HEALTH CARE PERSONNEL; HEALTH SERVICE; HELPLESSNESS; HUMAN; INCONTINENCE; INTIMACY; ISOLATION; KNOWLEDGE; MALE; PROSTATE CANCER; PROSTATECTOMY; QUALITATIVE RESEARCH; QUALITY OF LIFE; RESPONSIBILITY; SEXUAL BEHAVIOR; SEXUAL DYSFUNCTION; SEXUALITY; SURVIVORSHIP; THEMATIC ANALYSIS; AUSTRALIA; COPING BEHAVIOR; INFORMATION PROCESSING; MIDDLE AGED; PROSTATE TUMOR; PSYCHOLOGY; STATISTICS AND NUMERICAL DATA; VERY ELDERLY;

ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; AUSTRALIA; CANCER SURVIVORS; FEMALE; FOCUS GROUPS; HUMANS; MALE; MIDDLE AGED; PROSTATIC NEOPLASMS; QUALITATIVE RESEARCH; QUALITY OF LIFE; SEXUAL PARTNERS;

EID: 85041186877     PISSN: 07347332     EISSN: 15407586     Source Type: Journal    
DOI: 10.1080/07347332.2017.1329769     Document Type: Article

References (40)

1. Appleton, L., Wyatt, D., Perkins, E., Parker, C., Crane, J., Jones, A., Moorhead, L., Brown, V., Wall, C., & Pagett, M., (2015). The impact of prostate cancer on men's everyday life. European Journal of Cancer Care, 24(1), 71–84. doi:10.1111/ecc.12233.
2. Australian Institute of Health and Welfare (AIHW). (2012). Cancer incidence projections: Australia, 2011 to 2020 (Cancer series no. 66. Cat. no. CAN 62). Canberra, ACT: Author. Retrieved from http://www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id=10737421440.
3. Australian Institute of Health and Welfare (AIHW). (2014). Cancer in Australia: An overview 2014 (Cancer series no. 90. Cat. no. CAN 88). Canberra, ACT: Author. Retrieved from http://www.aihw.gov.au/WorkArea/DownloadAsset.aspx?id=60129550202.
4. Braun, V., & Clarke, V., (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3 (2), 77–101. doi:10.1191/1478088706qp063oa.
5. Braun, V., & Clarke, V., (2013). Successful qualitative research: A practical guide for beginners. London, UK: Sage.
6. Cancer Australia. (2014). Cancer research in Australia: An overview of funding to cancer research projects and research programs in Australia 2006 to 2011. Retrieved from https://canceraustralia.gov.au/sites/default/files/publications/cancer-research-australia-overview-funding-cancer-research-projects-and-research-programs-australia/pdf/cancer-research-in-australia-full-report.pdf.
7. Carter, N., Bryant-Lukosius, D., DiCenso, A., Blythe, J., & Neville, A. J., (2014). The use of triangulation in qualitative research. Oncology Nursing Forum, 41 (5), 545–547. doi:10.1188/14.ONF.545-547.
8. Chambers, S. K., Schover, L., Nielsen, L., Halford, K., Clutton, S., Gardiner, R. A., Dunn, J., & Occhipinti, S., (2013). Couple distress after localised prostate cancer. Supportive Care in Cancer, 21 (11), 2967–2976. doi:10.1038/pcan.2012.52.
9. Charmaz, K., (2014). Constructing grounded theory (2nd ed.). Thousand Oaks, CA: Sage.
10. Cohen, S., & Wills, T. A., (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98 (2), 310.
11. Couper, J., Bloch, S., Love, A., Duchesne, G., MacVean, M., & Kissane, D., (2009). Coping patterns and psychosocial distress in female partners of prostate cancer patients. Psychosomatics: Journal of Consultation and Liaison Psychiatry, 50 (4), 375–382. doi:10.1176/appi.psy.50.4.375.
12. Crisp, R. J., & Turner, R. N., (2014). Essential social psychology (3rd ed.). London, UK: Sage.
13. Dieperink, K. B., Mark, K., & Mikkelsen, T. B., (2016). Marital rehabilitation after prostate cancer: A matter of intimacy. International Journal of Urological Nursing, 10 (1), 21–29. doi:10.1111/ijun.12091.
14. Dunn, M. W., & Kazer, M. W., (2011). Prostate cancer overview. Seminars in Oncology Nursing, 27 (4), 241–250. https://doi.org/10.1016/j.soncn.2011.07.002.
15. Ervik, B., & Asplund, K., (2012). Dealing with a troublesome body: A qualitative interview study of men's experiences living with prostate cancer treated with endocrine therapy. European Journal of Oncology Nursing, 16 (2), 103–108. doi:10.1016/j.ejon.2011.04.005.
16. Ferlay, J., Soerjomataram, I., Dikshit, R., Eser, S., Mathers, C., Rebelo, M., Parkin, D. M., Forman, D., & Bray, F., (2015). Cancer incidence and mortality worldwide: Sources, methods and major patterns in GLOBOCAN 2012. International Journal of Cancer, 136 (5), 359–386. doi:10.1002/ijc.29210.
17. Galbraith, M. E., Fink, R., & Wilkins, G. G., (2011). Couples surviving prostate cancer: Challenges in their lives and relationships. Seminars in Oncology Nursing, 27 (4), 300–308. https://doi.org/10.1016/j.soncn.2011.07.008.
18. Harden, J., Sanda, M. G., Wei, J. T., Yarandi, H., Hembroff, L., Hardy, J., & Northouse, L. L., (2013). Partners' long-term appraisal of their caregiving experience, marital satisfaction, sexual satisfaction, and quality of life 2 years after prostate cancer treatment. Cancer Nursing, 36 (2), 104–113. doi:10.1097/NCC.0b013e3182567c03.
19. Harden, J., Schafenacker, A., Northouse, L., Mood, D., Smith, D., Pienta, K., Hussain, M., & Baranowski, K., (2002). Couples' experiences with prostate cancer: Focus group research. Oncology Nursing Forum, 29 (4), 701–709.
20. Hawkins, Y., Ussher, J., Gilbert, E., Perz, J., Sandoval, M., & Sundquist, K., (2009). Changes in sexuality and intimacy after the diagnosis and treatment of cancer: The experience of partners in a sexual relationship with a person with cancer. Cancer Nursing, 32 (4), 271–280.
21. Hill, C. E., (2012). Consensual qualitative research: A practical resource for investigating social science phenomena (1st ed.). Washington, D. C.: American Psychological Association.
22. Hyde, M. K., Zajdlewicz, L., Wootten, A. C., Nelson, C. J., Lowe, A., Dunn, J., & Chambers, S. K., (2016). Medical help-seeking for sexual concerns in prostate cancer survivors. Sexual Medicine, 4 (1), 7–17. https://doi.org/10.1016/j.esxm.2015.12.004.
23. Manne, S., Badr, H., Zaider, T., Nelson, C., & Kissane, D., (2010). Cancer-related communication, relationship intimacy, and psychological distress among couples coping with localized prostate cancer. Journal of Cancer Survivorship, 4 (1), 74–85.
24. Marshall, C., & Rossman, G. B., (2011). Designing qualitative research (5th ed.). Thousand Oaks, CA: Sage.
25. Namiki, S., & Arai, Y., (2010). Health related quality of life in men with localized prostate cancer. International Journal of Urology, 17 (2), 125–138.
26. Ni Lochlainn, M., & Kenny, R. A., (2013). Sexual activity and aging. Journal of the American Medical Directors Association, 14 (8), 565–572. https://doi.org/10.1016/j.jamda.2013.01.022.
27. O'Connor, E. J., McCabe, M. P., Conaglen, H. M., & Conaglen, J. P., (2012). Attitudes and experiences: Qualitative perspectives on erectile dysfunction from the female partner. Journal of Health Psychology, 17 (1), 3–13. doi:10.1177/1359105311404723.
28. O'Shaughnessy, P. K., Ireland, C., Pelentsov, L., Thomas, L. A., & Esterman, A. J., (2013). Impaired sexual function and prostate cancer: A mixed method investigation into the experiences of men and their partners. Journal of Clinical Nursing, 22 (23–24), 3492–3502. doi:10.1111/jocn.12190.
29. Porter, S., (2007). Validity, trustworthiness and rigor: Reasserting realism in qualitative research. Journal of Advanced Nursing, 60 (1), 79–86. doi:10.1111/j.1365-2648.2007.04360.x.
30. Rosser, S. B., Merengwa, E., Capistrant, B. D., Iantaffi, A., Kilian, G., Kohli, N., Konety, B. R., Mitteldorf, D., & West, W., (2016). Prostate cancer in gay, bisexual, and other men who have sex with men: A review. LGBT Health, 3 (1), 32–41. doi:10.1089/lgbt.2015.0092.
31. Schover, L. R., Fouladi, R. T., Warneke, C. L., Neese, L., Klein, E. A., Zippe, C., & Kupelian, P. A., (2002). Defining sexual outcomes after treatment for localized prostate carcinoma. Cancer, 95 (8), 1773–1785.
32. Song, L., Northouse, L. L., Zhang, L., Braun, T. M., Cimprich, B., Ronis, D. L., & Mood, D. W., (2012). Study of dyadic communication in couples managing prostate cancer: A longitudinal perspective. Psycho Oncology, 21 (1), 72–81.
33. Ussher, J. M., & Perz, J., (2010). Gender differences in self-silencing and psychological distress in informal cancer carers. Psychology of Women Quarterly, 34 (2), 228–242.
34. Ussher, J. M., & Sandoval, M., (2008). Gender differences in the construction and experience of cancer care: The consequences of the gendered positioning of carers. Psychology & Health, 23 (8), 945–963. doi:10.1080/08870440701596585.
35. Wenger, L. M., (2013). Moving through illness with strong backs and soft fronts: A substantive theory of men's help-seeking during cancer. Men and Masculinities, 16 (5), 517–539. doi:10.1177/1097184×13501177.
36. Wenger, L. M., & Oliffe, J. L., (2014). Men managing cancer: A gender analysis. Sociology of Health and Illness, 36 (1), 108–122. doi:10.1111/1467-9566.12045.
37. Wittmann, D., Carolan, M., Given, B., Skolarus, T. A., Crossley, H., An, L., Palapattu, G., Clark, P., & Montie, J. E., (2015). What couples say about their recovery of sexual intimacy after prostatectomy: Toward the development of a conceptual model of couples' sexual recovery after surgery for prostate cancer. Journal of Sexual Medicine, 12 (2), 494–504. doi:10.1111/jsm.12732.
38. Wittmann, D., Northouse, L., Foley, S., Gilbert, S., Wood, D. P., Jr., Balon, R., & Montie, J. E., (2009). The psychosocial aspects of sexual recovery after prostate cancer treatment. Journal of Sexual Medicine, 21 (2), 99–106.
39. Wootten, A. C., Abbott, J. M., Osborne, D., Austin, D. W., Klein, B., Costello, A. J., & Murphy, D. G., (2014). The impact of prostate cancer on partners: A qualitative exploration. Psycho-Oncology, 23 (11), 1252–1258. doi:10.1002/pon.3552.
40. Zaider, T., Manne, S., Nelson, C., Mulhall, J., & Kissane, D., (2012). Loss of masculine identity, marital affection, and sexual bother in men with localized prostate cancer. Journal of Sexual Medicine, 9 (10), 2724–2732. doi:10.1111/j.1743-6109.2012.02897.x.