Engaging patients and caregivers managing rare diseases to improve the methods of clinical guideline development: A research protocol

JMIR Research Protocols

Volumn 6, Issue 4, 2017, Pages

  Khodyakov, Dmitry ^a   Kinnett, Kathi ^b   Grant, Sean ^a   Lucas, Ann ^b   Martin, Ann ^b   Denger, Brian ^b   Peay, Holly ^c   Coulter, Ian ^a   Fink, Arlene ^d  

^a RAND CORPORATION   (United States)

^b Parent Project Muscular Dystrophy   (United States)

^c RTI INTERNATIONAL   (United States)

^d UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

Delphi method; Duchenne muscular dystrophy; ExpertLens; Guideline development; Online stakeholder engagement panels; Patient engagement

Indexed keywords

EID: 85039069808     PISSN: None     EISSN: 19290748     Source Type: Journal    
DOI: 10.2196/resprot.6902     Document Type: Article

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