Empowerment, self and engagement in day center occupations: A longitudinal study among people with long-term mental illness

Scandinavian Journal of Occupational Therapy

Volumn 26, Issue 1, 2019, Pages 69-78

  Sutton, Daniel ^a   Bejerholm, Ulrika ^b   Eklund, Mona ^b  

^a AUCKLAND UNIVERSITY OF TECHNOLOGY   (New Zealand)

^b LUND UNIVERSITY   (Sweden)

Author keywords

Day services; recovery; self esteem

Indexed keywords

ADULT; BEHAVIOR; COMMUNITY MENTAL HEALTH CENTER; FEMALE; HUMAN; LONGITUDINAL STUDY; MALE; MENTAL DISEASE; MIDDLE AGED; OCCUPATIONAL THERAPY; PSYCHOLOGY; QUALITY OF LIFE; SELF CONCEPT; SWEDEN;

ADULT; COMMUNITY MENTAL HEALTH CENTERS; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; MENTAL DISORDERS; MIDDLE AGED; OCCUPATIONAL THERAPY; POWER (PSYCHOLOGY); QUALITY OF LIFE; SELF CONCEPT; SWEDEN;

EID: 85033500146     PISSN: 11038128     EISSN: 16512014     Source Type: Journal    
DOI: 10.1080/11038128.2017.1397742     Document Type: Article

References (70)

1. Slade M., Personal Recovery and Mental Illness: A Guide for Mental Health Professionals. Cambridge, England: Cambridge University Press; 2009.
2. Leamy M, Bird V, Le Boutillier C, et al. Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry. 2011;199:445–452.
3. Whalley-Hammell KR., Empowerment and occupation: a new perspective. Can J Occup Ther. 2016;83:281–287.
4. Finfgeld DL., Empowerment of individuals with enduring mental health problems: results from concept analyses and qualitative investigations. Adv Nurs Sci. 2004;27:44–52.
5. Bejerholm U, Björkman T., Empowerment in supported employment research and practice: is it relevant?. Int J Soc Psychiatry. 2011;57:588–595.
6. Barrett B, Young MS, Teague GB, et al. Recovery orientation of treatment, consumer empowerment, and satisfaction with services: a mediational model. Psychiatr Rehabil J. 2010;34:153–156.
7. Catty J, Burns T, Comas A, et al. Day centres for severe mental illness. Cochrane Database Systematic Review 2007;1:CD001710.
8. Eklund M, Leufstadius C., Adding quality to day centre activities for people with psychiatric disabilities: staff perceptions of an intervention. Scand J Occup Ther. 2016;23:13–22.
9. Clark C., editor. Adult Day Services and Social Inclusion: better Days. London, England: Jessica Kingsley; 2001.
10. Lingwood L., Redesigning Mental Health Day Services. A Modernisation Toolkit for London. London, England: Care Services Improvement Partnership; 2005.
11. Bryant W, Tibbs A, Clark J., Visualising a safe space: the perspective of people using mental health day services. Disabil Soc. 2011;26:611–628.
12. Catty J, Burns T., Mental health day centres: their clients and role. Psychiatr Bull. 2001;25:61–66.
13. Tjörnstrand C, Bejerholm U, Eklund M., Participation in day centres for people with psychiatric disabilities: characteristics of the occupations. Scand J Occup Ther. 2011;18:243–253.
14. Sibitz I, Amering M, Unger A, et al. The impact of the social network, stigma and empowerment on the quality of life in patients with schizophrenia. Eur Psychiatry. 2011;26:28–33.
15. Eklund M, Sandlund M., Predictors of valued everyday occupations, empowerment and satisfaction in day centres: implications for services for persons with psychiatric disabilities. Scand J Caring Sci. 2014;28:582–590.
16. Hultqvist J, Eklund M, Leufstadius C., Empowerment and occupational engagement among people with psychiatric disabilities. Scand J Occup Ther. 2015;22:54–61.
17. Kosciulek JF., Structural equation model of the consumer-directed theory of empowerment. Rehabil Couns Bull. 2005;49:40–49.
18. Tjörnstrand C, Bejerholm U, Eklund M., Factors influencing occupational engagement in day centers for people with psychiatric disabilities. Community Ment Health J. 2015;51:48–53.
19. Tjörnstrand C, Bejerholm U, Eklund M., Psychometric testing of a self-report measure of engagement in productive occupations. Can J Occup Ther. 2013;80:101–110.
20. Rogers ES, Chamberlin J, Ellison ML, et al. A consumer-constructed scale to measure empowerment among users of mental health services. Psychiatr Serv. 1997;48:1042–1047.
21. Vauth R, Kleim B, Wirtz M, et al. Self-efficacy and empowerment as outcomes of self-stigmatizing and coping in schizophrenia. Psychiatry Res. 2007;150:71–80.
22. Strack KM, Deal WP, Schulenberg SE., Coercion and empowerment in the treatment of individuals with serious mental illness: a preliminary investigation. Psychol Serv. 2007;4:96–106.
23. Corrigan PW, Faber D, Rashid F, et al. The construct validity of empowerment among consumers of mental health services. Schizophr Res. 1999;38:77–84.
24. Rogers ES, Ralph RO, Salzer MS., Validating the empowerment scale with a multisite sample of consumers of mental health services. Ps. 2010;61:933–936.
25. Bejerholm U, Areberg C., Factors related to the return to work potential in persons with severe mental illness. Scand J Occup Ther. 2014;21:277–286.
26. Wowra SA, McCarter R., Validation of the Empowerment Scale with an outpatient mental health population. Psychiatr Serv. 1999;50:959–961.
27. Ljungqvist I, Topor A, Forssell H, et al. Money and mental illness: a study of the relationship between poverty and serious psychological problems. Community Ment Health J. 2016;52:842–850.
28. Tambuyzer E, Van Audenhove C., Is perceived patient involvement in mental health care associated with satisfaction and empowerment? Health Expect. 2013;18:516–526.
29. Morris SB, Huang J, Zhao L, et al. Measurement equivalence of the empowerment scale for white and black persons with severe mental illness. Psychiatr Rehabil J. 2014;37:277–283.
30. Yamada S, Suzuki K., Application of Empowerment Scale to patients with schizophrenia: Japanese experience. Psychiatr Clin Neurosci. 2007;61:594–601.
31. Eklund M, Gunnarsson AB, Sandlund M, et al. Effectiveness of an intervention to improve day centre services for people with psychiatric disabilities. Aust Occup Ther J. 2014;61:268–275.
32. Eklund M, Markström U., Outcomes of a freedom of choice reform in community mental health day center services. Adm Policy Ment Health. 2015;42:664–671.
33. Ruggeri M, Leese M, Thornicroft G, et al. Definition and prevalence of severe and persistent mental illness. Br J Psychiatry. 2000;177:149–155.
34. WHO. The ICD-10 Classification of Mental and Behavioural Disorders. Geneva: World Health Organization; 1993.
35. Eklund M, Sandlund M., The life situation of people with persistent mental illness visiting day centers: a comparative study. Community Ment Health J. 2012;48:592–597.
36. WHO. Process of Translation and Adaption of Instruments. Geneva: World Health Organization; 2016.
37. Hansson L, Bjorkman T., Empowerment in people with a mental illness: reliability and validity of the Swedish version of an empowerment scale. Scand J Caring Sci. 2005;19:32–38.
38. Rosenberg M., Society and the Adolescent Self Image. Princeton, NJ: Princeton University Press; 1965.
39. Sinclair SJ, Blais MA, Gansler DA, et al. Psychometric properties of the Rosenberg Self-Esteem Scale: overall and across demographic groups living within the United States. Eval Health Prof. 2010;33:56–80.
40. Eklund M, Bäckström M, Hansson L., Psychometric evaluation of the Swedish version of Rosenberg’s Self-esteem Scale. Submitted manuscript. 2017.
41. Priebe S, Huxley P, Knight S, et al. Application and results of the Manchester Short Assessment of Quality of Life (MANSA). Int J Soc Psychiatry. 1999;45:7–12.
42. Bjorkman T, Svensson B., Quality of life in people with severe mental illness. Reliability and validity of the Manchester Short Assessment of Quality of Life (MANSA). Nord J Psychiatry. 2005;59:302–306.
43. Endicott J, Spitzer RL, Fleiss JL, et al. The global assessment scale. A procedure for measuring overall severity of psychiatric disturbance. Arch Gen Psychiatry. 1976;33:766–771.
44. Startup M, Jackson MC, Bendix S., The concurrent validity of the Global Assessment of Functioning (GAF). Br J Clin Psychol. 2002;41:417–422.
45. Tungström S, Söderberg P, Armelius BÅ., Relationships between the global assessment of functioning and other DSM axes in routine clinical work. Ps. 2005;56:439–443.
46. Croy CD, Novins DK., Methods for addressing missing data in psychiatric and developmental research. J Am Acad Child Adolesc Psychiatry. 2005;44:1230–1240.
47. Fox-Wasylyshyn SM, El-Masri MM., Handling missing data in self-report measures. Res Nurs Health. 2005;28:488–495.
48. Sperandei S., Understanding logistic regression analysis. Biochem Med (Zagreb). 2014;24:12–18.
49. Hosmer DW, Lemeshow S, Sturdivant RX., Applied Logistic Regression, 3rd ed. Hoboken, NJ: John Wiley and Sons; 2013.
50. Nagelkerke NJD., A note on a general definition of the coefficient of determination. Biometrika 1991;78:691–692.
51. Whitley R, Harris M, Anglin J., Refuge or rehabilitation? Assessing the development of a women's empowerment center for people with severe mental illness. Community Ment Health J. 2008;44:253–260.
52. Bryant W, Craik C, McKay EA., Perspectives of day and accommodation services for people with enduring mental illness. J Ment Health. 2005;14:109–120.
53. Fitzsimons S, Fuller R., Empowerment and its implications for clinical practice in mental health: a review. J Ment Health. 2002;11:481–499.
54. Walker JS, Thorne EK, Powers LE, et al. Development of a scale to measure the empowerment of youth consumers of mental health services. J Emot Behav Disord. 2010; 18:51–59.
55. Pelletier JF, Corbière M, Lecomte T, et al. Citizenship and recovery: two intertwined concepts for civic-recovery. BMC Psychiatry. 2015;15:7.
56. Corrigan PW, Watson AC, Barr L., The self-stigma of mental illness: implications for self-esteem and self-efficacy. J Soc Clin Psychol. 2006;25:875–884.
57. Lundberg B, Hansson L, Wentz E, et al. Are stigma experiences among persons with mental illness, related to perceptions of self-esteem, empowerment and sense of coherence? J Psychiatr Ment Health Nurs. 2009;16:516–522.
58. Livingston JD, Boyd JE., Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis. Soc Sci Med. 2010;71:2150–2161.
59. Gunnarsson AB, Eklund M., Young people with psychiatric disabilities and their views of day centres. Scand J Occup Ther. 2017;24:167–177.
60. Crane-Ross D, Lutz W, Roth D., Consumer and case manager perspectives of service empowerment: relationship to mental health recovery. J Behav Health Serv Res. 2006;33:142–155.
61. Areberg C, Bejerholm U., The effects of IPS on participants’ engagement, quality of life, empowerment and motivation: a randomized controlled trial. Scand J Occup Ther. 2013;20:420–428.
62. Eklund M, Tjörnstrand C. Psychiatric rehabilitation in community-based day centres: motivation and satisfaction. Scand J Occup Ther. 2013;20:438–445.
63. Frain MP, Bishop M, Tschopp MK., Empowerment variables as predictors of outcomes in rehabilitation. J Rehabil 2009;75:27–35.
64. Hillborg H, Svensson T, Danermark B., Expectations, visions and sense of empowerment: in the face of a vocational rehabilitation process for people with psychiatric disabilities. Scand J Disabil Res. 2010;12:109–124.
65. Clark C, Krupa T., Reflections on empowerment in community mental health: giving shape to an elusive idea. Psychiatr Rehabil J. 2002;25:341–349.
66. Schmitt P, Mandel J, Guedj M., A comparison of six methods for missing data imputation. J Biomet & Biostat 2015;6:1–6.
67. Masterson S, Owen S., Mental health service user's social and individual empowerment: using theories of power to elucidate far-reaching strategies. J Ment Health. 2006;15:19–34.
68. Castelein S, Van Der Gaag M, Bruggeman R, et al. Measuring empowerment among people with psychotic disorders: a comparison of three instruments. Ps. 2008; 59:1338–1344.
69. Rogers ES, Teague GB, Lichenstein C, et al. Effects of participation in consumer-operated service programs on both personal and organizationally mediated empowerment: results of multisite study. Jrrd. 2007;44:785–800.
70. Watson DP., The evolving understanding of recovery: what the sociology of mental health has to offer. Humanit Soc. 2012;36:290–308.