Do self- and proxy reports of cognitive problems reflect intellectual functioning in children and adolescents with congenital heart defects?

Frontiers in Pediatrics

Volumn 4, Issue NOV, 2016, Pages

  Buratti, Sandra ^a,b   Ryberg, Carmen ^a,b   Broberg, Malin ^b   Sunnegårdh, Jan ^a  

^a QUEEN SILVIA CHILDREN'S HOSPITAL   (Sweden)

^b UNIVERSITY OF GOTHENBURG   (Sweden)

Author keywords

Cardiac treatment by surgery or by catheter interventions; Congenital heart defects; Intellectual functioning; Neurodevelopment; Proxy reports; Quality of life; Self report

Indexed keywords

EID: 85032684220     PISSN: None     EISSN: 22962360     Source Type: Journal    
DOI: 10.3389/fped.2016.00127     Document Type: Article

References (25)

1. Amianto F, Bergui G, Abbate-Daga G, Bellicanta A, Munno D, Fassino S. Growing up with a congenital heart disease: neuro-cognitive, psychopathological and quality of life outcomes. Panminerva Med (2011) 53(2):109-27. doi: 10.1708/1379.15336
2. Karsdorp PA, Everaerd W, Kindt M, Mulder BJM. Psychological and cognitive functioning in children and adolescents with congenital heart disease: a meta-analysis. J Pediatr Psychol (2007) 32(5):527-41. doi:10.1093/jpepsy/jsl047
3. Limbers CA, Emery K, Uzark K. Factors associated with perceived cognitive problems in children and adolescents with congenital heart disease. J Clin Psychol Med Settings (2013) 20(2):192-8. doi:10.1007/s10880-012-9326-z
4. Deary IJ. Intelligence. Annu Rev Psychol (2012) 63:453-82. doi:10.1146/annurev-psych-120710-100353
5. McClure KS, Halpern J, Wolper PA, Donahue JJ. Emotion regulation and intellectual disability. J Dev Disabil (2009) 15(2):38-44
6. Brosig CL, Mussatto KA, Kuhn EM, Tweddell JS. Neurodevelopmental outcome in preschool survivors of complex congenital heart disease: implications for clinical practice. J Pediatr Health Care (2007) 21(1):3-12. doi:10.1016/j.pedhc.2006.03.008
7. Forbess JM, Visconti KJ, Bellinger DC, Howe RJ, Jonas RA. Neurodevelopmental outcomes after biventricular repair of congenital heart defects. J Thorac Cardiovasc Surg (2002) 123(4):631-9. doi:10.1067/mtc.2002.119342
8. Wright M, Nolan T. Impact of cyanotic heart disease on school performance. Arch Dis Child (1994) 71(1):64-70. doi:10.1136/adc.71.1.64
9. Ryberg C, Sunnegårdh J, Thorson M, Broberg M. Intellectual functioning in children with congenital heart defects treated with surgery or by catheter interventions. Front Pediatr (2016) 4:113. doi:10.3389/fped.2016.00113
10. Wray J. Intellectual development of infants, children and adolescents with congenital heart disease. Dev Sci (2006) 9(4):368-78. doi:10.1111/j.1467-7687.2006.00502.x
11. Cassidy AR, White MT, DeMaso DR, Newburger JW, Bellinger DC. Executive function in children and adolescents with critical cyanotic congenital heart disease. J Int Neuropsychol Soc (2015) 21(1):34-49. doi:10.1017/S1355617714001027
12. Vega-Fernandez P, Zelko FA, Klein-Gitelman M, Lee J, Hummel J, Nelson S, et al. Value of questionnaire-based screening as a proxy for neurocognitive testing in childhood-onset systemic lupus erythematosus. Arthritis Care Res (Hoboken) (2014) 66(6):943-8. doi:10.1002/acr.22247
13. Miatton M, De Wolf D, Francois K, Thiery E, Vingerhoets G. Do parental ratings on cognition reflect neuropsychological outcome in congenital heart disease? Acta Paediatr (2008) 97(1):41-5. doi:10.1111/j.1651-2227.2007.00530.x
14. Wechsler D. Wechsler Preschool and Primary Scale of Intelligence. 3rd ed. Stockholm: NSC Pearson, Inc. (2005)
15. Wechsler D. Wechsler Intelligence Scale for Children. 4th ed. Stockholm: Harcourt Assessment, Inc. (2007)
16. Uzark K, Jones K, Burwinkle TM, Varni JW. The pediatric quality of life inventory in children with heart disease. Progr Pediatr Cardiol (2003) 18(2):141-9. doi:10.1016/S1058-9813(03)00087-0
17. Sand P, Kljajic M, Sunnegårdh J. The reliability of the Pediatric Quality of Life Inventory 3.0 Cardiac ModuleTM for Swedish children with congenital heart defects. Nord Psychol (2013) 65(3):210-23. doi:10.1080/19012276.2013.824204
18. Adams J, Weakliem DL. August B. Hollingshead's "Four Factor Index of Social Status": from unpublished paper to citation classic. Yale J Sociol (2011) 8:11-20
19. Hollingshead AB. Four Factor Index of Social Status. New Haven, CT: Department of Sociology, Yale University (1975)
20. Olsson MB, Hwang PC. Influence of macrostructure of society on the life situation of families with a child with intellectual disability: Sweden as an example. J Intellect Disabil Res (2003) 47(t 4-5):328-41. doi:10.1046/j.1365-2788.2003.00494.x
21. Cohen J. Statistical Power Analysis for the Behavioral Sciences. 2nd ed. Hillsdale, NJ: Lawrence Erlbaum Associates (1988)
22. Lai ER. Metacognition: A Literature Review. Pearson Research Report (2011). Available from: www.pearsonassessments.com/research
23. Flavell JH. Metacognition and cognitive monitoring: a new area of cognitive-developmental inquiry. Am Psychol (1979) 34(10):906-11. doi:10.1037/0003-066X.34.10.906
24. Schraw G, Moshman D. Metacognitive theories. Educ Psychol Rev (1995) 7(4):351-71. doi:10.1007/BF02212307
25. Deary IJ, Pattie A, Starr JM. The stability of intelligence from age 11 to age 90 years: the Lothian birth cohort of 1921. Psychol Sci (2013) 24(12):2361-8. doi:10.1177/0956797613486487