Genetic data and the research exemption: Is the GDPR going too far?

International Data Privacy Law

Volumn 7, Issue 2, 2017, Pages 137-146

  Pormeister, Kärt ^a  

^a UNIVERSITY OF TARTU   (Estonia)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 85031813204     PISSN: 20443994     EISSN: 20444001     Source Type: Journal    
DOI: 10.1093/idpl/ipx006     Document Type: Article

References (12)

1. See, eg AJ Pakstis and others, 'SNPs for a Universal Individual Identification Panel' (2010) 127 Human Genetics 315-24.
2. See also R Wang and others,. 'Learning Your Identity and Disease from Research Papers: Information Leaks in Genome Wide Association Study' 16th ACM Conference on Computer and Communications Security, ACM 2009, 534-44.
3. See also N Holmer and others, 'Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping Microarrays' (2008) 4(8) PLOS Genetics.
4. M Taylor, Genetic Data and the Law: A Critical Perspective on Privacy Protection (Cambridge University Press, 2012).
5. D Hallinan and M Friedewald, 'Open Consent, Biobanking and Data Protection Law: Can Open Consent be “informed” under the Forthcoming Data Protection Regulation?' (2015) 11 Life Sciences, Society and Policy 1.
6. RT I 2007, 24, 127. Accessible online in English at < https://www.riigiteataja.ee/en/eli/507032016001/consolide> accessed 20 October 2016.
7. RT I 2000, 104, 685. Accessible online in English at < https://www.riigiteataja.ee/en/eli/518062014005/consolide> accessed 21 October 2016.
8. Isikuandmete kaitse seaduse eelnõu seletuskiri (Explanatory Memorandum of the draft of the Personal Data Protection Act), Ministry of Justice of the Republic of Estonia. Accessible only in Estonian online via the official website of the Estonian Data Protection Inspectorate at < http://www.aki.ee/et/eraelu-kaitse/oigusaktid> accessed 21 October 2016.
9. RT I 1997, 30, 471. Accessible in English online at < https://www.riigiteataja.ee/en/eli/513042015012/consolide> accessed 22 October 2016.
10. S 38 of the Constitution of the Republic of Estonia stipulates that universities and research institutions are autonomous within the limits prescribed by the law. RT 1992, 26, 349. Accessible in English online at < https://www.riigiteataja.ee/en/eli/521052015001/consolide> accessed 21 October 2016.
11. The Full Privacy Statement of 23andMe for the EU market is accessible online at < https://www.23andme.com/en-eu/about/privacy/?version=1. 1#Full> accessed 23 January 2017.
12. See the Research Consent Document of 23andMe on their official website at < https://www. 23andme.com/en-ca/about/consent/> accessed 21 October 2016.