Patterns of self-care and clinical events in a cohort of adults with heart failure: 1 year follow-up

Heart and Lung: Journal of Acute and Critical Care

Volumn 47, Issue 1, 2018, Pages 40-46

  Lee, Christopher S ^a   Bidwell, Julie T ^b   Paturzo, Marco ^c   Alvaro, Rosaria ^c   Cocchieri, Antonello ^d   Jaarsma, Tiny ^e   Strömberg, Anna ^e   Riegel, Barbara ^f   Vellone, Ercole ^c  

^a OREGON HEALTH AND SCIENCE UNIVERSITY   (United States)

^b EMORY UNIVERSITY   (United States)

^c UNIVERSITY OF ROME TOR VERGATA   (Italy)

^d CATHOLIC UNIVERSITY   (Italy)

^e LINKÖPING UNIVERSITY   (Sweden)

^f UNIVERSITY OF PENNSYLVANIA   (United States)

Author keywords

Heart failure; Mortality; Prospective study; Self care; Survival

Indexed keywords

ADULT; AGED; ARTICLE; COHORT ANALYSIS; EVENT FREE SURVIVAL; FEMALE; FOLLOW UP; HEART FAILURE; HUMAN; ITALY; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; SAMPLE SIZE; SELF CARE; CAUSE OF DEATH; CLINICAL TRIAL; DISEASE FREE SURVIVAL; EPIDEMIOLOGY; HEALTH BEHAVIOR; HOSPITALIZATION; MORTALITY; MULTICENTER STUDY; PROCEDURES; PROGNOSIS; PROSPECTIVE STUDY; PSYCHOLOGY; SEX DIFFERENCE; SURVIVAL RATE; TIME FACTOR; TRENDS;

AGED; CAUSE OF DEATH; DISEASE-FREE SURVIVAL; FEMALE; FOLLOW-UP STUDIES; HEALTH BEHAVIOR; HEART FAILURE; HOSPITALIZATION; HUMANS; ITALY; MALE; PROGNOSIS; PROSPECTIVE STUDIES; SELF CARE; SEX FACTORS; SURVIVAL RATE; TIME FACTORS;

EID: 85031685309     PISSN: 01479563     EISSN: 15273288     Source Type: Journal    
DOI: 10.1016/j.hrtlng.2017.09.004     Document Type: Article

References (42)

1. Ponikowski, P., Voors, A.A., Anker, S.D., et al. 2016 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure: the Task Force for the diagnosis and treatment of acute and chronic heart failure of the European Society of Cardiology (ESC)Developed with the special contribution of the Heart Failure Association (HFA) of the ESC. Eur Heart J 37:27 (Jul 14 2016), 2129–2200.
2. Lesman-Leegte, I., Jaarsma, T., Coyne, J.C., Hillege, H.L., Van Veldhuisen, D.J., Sanderman, R., Quality of life and depressive symptoms in the elderly: a comparison between patients with heart failure and age- and gender-matched community controls. J Card Fail 15:1 (Feb 2009), 17–23.
3. Benjamin, E.J., Blaha, M.J., Chiuve, S.E., et al. Heart disease and stroke statistics-2017 update: a report from the American heart association. Circulation 135:10 (Mar 07 2017), e146–e603.
4. Jencks, S.F., Williams, M.V., Coleman, E.A., Rehospitalizations among patients in the medicare fee-for-service program. N Engl J Med 360:14 (Apr 2 2009), 1418–1428.
5. Liu, L., Changes in cardiovascular hospitalization and comorbidity of heart failure in the United States: findings from the national hospital discharge surveys 1980–2006. Int J Cardiol 149:1 (May 19 2011), 39–45.
6. Heidenreich, P.A., Albert, N.M., Allen, L.A., et al. Forecasting the impact of heart failure in the United States: a policy statement from the American Heart Association. Circ Heart Fail 6:3 (May 2013), 606–619.
7. Alter, D.A., Ko, D.T., Tu, J.V., et al. The average lifespan of patients discharged from hospital with heart failure. J Gen Intern Med 27:9 (Sep 2012), 1171–1179.
8. Yancy, C.W., Jessup, M., Bozkurt, B., et al. 2013 ACCF/AHA guideline for the management of heart failure: a report of the American college of cardiology foundation/American heart association task force on practice guidelines. Circulation 128:16 (Oct 15 2013), e240–327.
9. Riegel, B., Dickson, V.V., Faulkner, K.M., The situation-specific theory of heart failure self-care: revised and updated. J Cardiovasc Nurs 31:3 (May–Jun 2016), 226–235.
10. Jaarsma, T., Arestedt, K.F., Martensson, J., Dracup, K., Stromberg, A., The European heart failure self-care behaviour scale revised into a nine-item scale (EHFScB-9): a reliable and valid international instrument. Eur J Heart Fail 11:1 (Jan 2009), 99–105.
11. Lee, C.S., Moser, D.K., Lennie, T.A., Tkacs, N.C., Margulies, K.B., Riegel, B., Biomarkers of myocardial stress and systemic inflammation in patients who engage in heart failure self-care management. J Cardiovasc Nurs 26:4 (Jul-Aug 2011), 321–328.
12. Lee, C.S., Mudd, J.O., Hiatt, S.O., Gelow, J.M., Chien, C., Riegel, B., Trajectories of heart failure self-care management and changes in quality of life. Eur J Cardiovasc Nurs 14:6 (Dec 2015), 486–494.
13. Ausili, D., Rebora, P., Di Mauro, S., et al. Clinical and socio-demographic determinants of self-care behaviours in patients with heart failure and diabetes mellitus: a multicentre cross-sectional study. Int J Nurs Stud 63 (Nov 2016), 18–27.
14. Lee, C.S., Moser, D.K., Lennie, T.A., Riegel, B., Event-free survival in adults with heart failure who engage in self-care management. Heart Lung 40:1 (Jan–Feb 2011), 12–20.
15. Clark, A.M., Thompson, D.R., Heart failure disease management programmes: a new paradigm for research. Heart 98:20 (Oct 2012), 1476–1477.
16. Savard, L.A., Thompson, D.R., Clark, A.M., A meta-review of evidence on heart failure disease management programs: the challenges of describing and synthesizing evidence on complex interventions. Trials, 12, Aug 16 2011, 194.
17. Riegel, B., Lee, C.S., Dickson, V.V., Medscape, Self care in patients with chronic heart failure. Nat Rev Cardiol 8:11 (Nov 2011), 644–654.
18. Cocchieri, A., Riegel, B., D'Agostino, F., et al. Describing self-care in Italian adults with heart failure and identifying determinants of poor self-care. Eur J Cardiovasc Nurs 14:2 (Jan 9 2015), 126–136.
19. Jaarsma, T., Stromberg, A., Ben Gal, T., et al. Comparison of self-care behaviors of heart failure patients in 15 countries worldwide. Patient Educ Couns 92:1 (Jul 2013), 114–120.
20. Dolansky, M.A., Hawkins, M.A., Schaefer, J.T., et al. Cognitive function predicts risk for clinically significant weight gain in adults with heart failure. J Cardiovasc Nurs 32:6 (Nov/Dec 2017), 568–575.
21. Riegel, B., Lee, C.S., Albert, N., et al. From novice to expert: confidence and activity status determine heart failure self-care performance. Nurs Res 60:2 (Mar–Apr 2011), 132–138.
22. Vellone, E., Fida, R., Ghezzi, V., et al. Patterns of self-care in adults with heart failure and their associations with sociodemographic and clinical characteristics, quality of life, and hospitalizations: a cluster analysis. J Cardiovasc Nurs 32:2 (Mar 2 2017), 180–189.
23. Vellone, E., Chung, M.L., Cocchieri, A., Rocco, G., Alvaro, R., Riegel, B., Effects of self-care on quality of life in adults with heart failure and their spousal caregivers: testing dyadic dynamics using the actor-partner interdependence model. J Fam Nurs 20:1 (Feb 2014), 120–141.
24. McMurray, J.J., Adamopoulos, S., Anker, S.D., et al. ESC guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: the task force for the diagnosis and treatment of acute and chronic heart failure 2012 of the European society of cardiology. Developed in collaboration with the Heart Failure Association (HFA) of the ESC. Eur J Heart Fail 14:8 (Aug 2012), 803–869.
25. Riegel, B., Lee, C.S., Dickson, V.V., Carlson, B., An update on the self-care of heart failure index. J Cardiovasc Nurs 24:6 (Nov-Dec 2009), 485–497.
26. Vellone, E., Riegel, B., Cocchieri, A., et al. Psychometric testing of the self-care of heart failure index version 6.2. Res Nurs Health 36:5 (Oct 2013), 500–511.
27. Barbaranelli, C., Lee, C.S., Vellone, E., Riegel, B., Dimensionality and reliability of the self-care of heart failure index scales: further evidence from confirmatory factor analysis. Res Nurs Health 37:6 (Dec 2014), 524–537.
28. Vellone, E., Jaarsma, T., Stromberg, A., et al. The European heart failure self-care behaviour scale: new insights into factorial structure, reliability, precision and scoring procedure. Patient Educ Couns 94:1 (Sep 25 2014), 97–102.
29. Lee, C.S., Gelow, J.M., Mudd, J.O., et al. Profiles of self-care management versus consulting behaviors in adults with heart failure. Eur J Cardiovasc Nurs 14:1 (Feb 2015), 63–72.
30. Charlson, M., Pompei, P., Ales, K., MacKenzie, C., A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. J Chronic Dis 40 (1987), 373–383.
31. Folstein, M.F., Folstein, S.E., McHugh, P.R., “Mini-mental state”. A practical method for grading the cognitive state of patients for the clinician. J Psychiatric Res 12:3 (Nov 1975), 189–198.
32. Rector, T., Assessment of patient outcomes with the Minnesota living with heart failure questionnaire: reliability and validity during a randomized double-blid, placebo-controlled trial of pimobendan. Am Heart J 124 (1992), 1017–1025.
33. Mogle, J., Buck, H., Zambroski, C., Alvaro, R., Vellone, E., Cross-validation of the Minnesota living with heart failure questionnaire. J Nurs Scholarsh 49:5 (Sep 2017), 513–520.
34. Jung, T., Wickrama, K.A.S., An introduction to latent class growth analysis and growth mixture modeling. Soc Personality Psychol Compass 2:1 (2008), 302–317.
35. Lo, Y., Mendell, N.R., Rubin, D.B., Testing the number of components in a normal mixture. Biometrika 88:3 (2001), 767–778.
36. Nylund, K.L., Asparouhov, T., Muthen, B.O., Deciding on the number of classes in latent class analysis and growth mixture modeling: a Monte Carlo simulation study. Struct Equ Model 14:4 (2007), 535–569.
37. Ram, N., Grimm, K.J., Methods and measures: growth mixture modeling: a method for identifying differences in longitudinal change among unobserved groups. Int J Behav Dev 33:6 (2009), 565–576.
38. Dziak, J.J., Lanza, S.T., Tan, X., Effect size, statistical power and sample size requirements for the bootstrap likelihood ratio test in latent class analysis. Struct Equ Model 21:4 (Jan 01 2014), 534–552.
39. Kato, N., Kinugawa, K., Nakayama, E., et al. Insufficient self-care is an independent risk factor for adverse clinical outcomes in Japanese patients with heart failure. Int Heart J 54:6 (2013), 382–389.
40. Jovicic, A., Holroyd-Leduc, J.M., Straus, S.E., Effects of self-management intervention on health outcomes of patients with heart failure: a systematic review of randomized controlled trials. BMC Cardiovasc Disord, 6, 2006, 43.
41. Gravely-Witte, S., Jurgens, C.Y., Tamim, H., Grace, S.L., Length of delay in seeking medical care by patients with heart failure symptoms and the role of symptom-related factors: a narrative review. Eur J Heart Fail 12:10 (Oct 2010), 1122–1129.
42. Dickson, V.V., Buck, H., Riegel, B., Multiple comorbid conditions challenge heart failure self-care by decreasing self-efficacy. Nurs Res 62:1 (Jan–Feb 2013), 2–9.