Implementing patient-reported outcome surveys as part of routine care: Lessons from an academic radiation oncology department

Journal of the American Medical Informatics Association

Volumn 24, Issue 5, 2017, Pages 964-968

  Rotenstein, Lisa S ^a,b   Agarwal, Ankit ^c   O'Neil, Kelly ^b   Kelly, Andrea ^b   Keaty, Maureen ^b   Whitehouse, Colleen ^b   Kalinowski, Barbara ^b   Orio, Peter F ^a,b   Wagle, Neil ^a,d   Martin, Neil E ^a,b  

^a HARVARD MEDICAL SCHOOL   (United States)

^b BRIGHAM AND WOMEN S HOSPITAL   (United States)

^c BOSTON UNIVERSITY SCHOOL OF MEDICINE   (United States)

^d PARTNERS HEALTHCARE   (United States)

Author keywords

Digital tools; Electronic health records; Patient engagement; Patient outcome assessment

Indexed keywords

ADULT; CASE REPORT; ELECTRONIC HEALTH RECORD; FEMALE; HUMAN; MALE; OUTCOME ASSESSMENT; PATIENT-REPORTED OUTCOME; QUESTIONNAIRE; RADIATION ONCOLOGY; UNIVERSITY HOSPITAL; WORKFLOW; COMPUTER INTERFACE; HEALTH SERVICES RESEARCH; SOFTWARE;

ACADEMIC MEDICAL CENTERS; HUMANS; ORGANIZATIONAL CASE STUDIES; PATIENT OUTCOME ASSESSMENT; PATIENT REPORTED OUTCOME MEASURES; RADIATION ONCOLOGY; SOFTWARE; USER-COMPUTER INTERFACE;

EID: 85030756166     PISSN: 10675027     EISSN: 1527974X     Source Type: Journal    
DOI: 10.1093/jamia/ocx009     Document Type: Article

References (18)

1. Basch E, Jia X, Heller G, et al. Adverse symptom event reporting by patients vs clinicians: relationships with clinical outcomes. J Natl Cancer Inst. 2009;101(23):1624-32.
2. Basch E, Deal AM, Kris MG, et al. Symptom monitoring with patientreported outcomes during routine cancer treatment: a randomized controlled trial. J Clin Oncol. 2015;33:1-10.
3. Chen J, Ou L, Hollis SJ. A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting. BMC Health Serv Res. 2013;26(9):1846-58.
4. Luckett T, Butow PN, King MT. Improving patient outcomes through the routine use of patient-reported data in cancer clinics: future directions. Psycho-Oncology. 2009;18(11):1129-38.
5. Chapman E, Whale J, Landy A, Hughes D, Saunders M. Clinical evaluation of the Mood and Symptom Questionnaire (MSQ) in a day therapy unit in a palliative support centre in the United Kingdom. Palliat Support Care. 2008;6(1):51-59.
6. Snyder CF, Blackford AL, WolffAC, Carducci MA, Herman JM, Wu AW. Feasibility and value of PatientViewpoint: a web system for patientreported outcomes assessment in clinical practice. Psycho-Oncology. 2013;22(4):895-901.
7. Vodicka E, Kim K, Devine EB, Gnanasakthy A, Scoggins JF, Patrick DL. Inclusion of patient-reported outcome measures in registered clinical trials: evidence from ClinicalTrials.gov (2007-2013). Contemp Clin Trials. 2015;43:1-9.
8. Conway J, Olivotto I, Miller S, et al. Patient-reported outcomes on the impact of single versus multiple fraction palliative radiation therapy for uncomplicated bone metastases on pain, function, and degree of symptom distress. Int J Radiat Oncol Biol Phys. 2014;90(1):S80.
9. Gray PJ, Paly JJ, Yeap BY, et al. Patient-reported outcomes after 3-dimensional conformal, intensity-modulated, or proton beam radiotherapy for localized prostate cancer. Cancer. 2013;119(9):1729-35.
10. Fromme EK, Holliday EB, Nail LM, Lyons KS, Hribar MR, Thomas CR Jr. Computerized patient-reported symptom assessment in radiotherapy: a pilot randomized, controlled trial. Support Care Cancer. 2016;24(4): 1897-906.
11. Hoppe BS, Michalski JM, Mendenhall NP, et al. Comparative effectiveness study of patient-reported outcomes after proton therapy or intensity-modulated radiotherapy for prostate cancer. Cancer. 2014;120(7):1076-82.
12. Hamstra DA, Conlon ASC, Daignault S, et al. Multi-institutional prospective evaluation of bowel quality of life after prostate external beam radiation therapy identifies patient and treatment factors associated with patient-reported outcomes: the PROSTQA experience. Int J Radiat Oncol Biol Phys. 2013;86(3):546-53.
13. Read PW, Blackhall LJ, Stukenborg GJ, et al. Outcomes of a re-engineered palliative care and radiation therapy care model. Int J Radiat Oncol Biol Phys 2016;94(1):2-3.
14. Howell D, Molloy S, Wilkinson K, et al. Patient-reported outcomes in routine cancer clinical practice: a scoping review of use, impact on health outcomes, and implementation factors. Ann Oncol. 2015;26(9):1846-58.
15. Basch E, Reeve BB, Mitchell SA, et al. Development of the National Cancer Institute's Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE). J Natl Cancer Inst. 2014;106(9):pii.
16. Wagner LI, Schink J, Bass M, et al. Bringing PROMIS to practice: brief and precise symptom screening in ambulatory cancer care. Cancer. 2015;121(6):927-34.
17. Falchook AD, Tracton G, Stravers L, et al. Use of mobile device technology to collect patient-reported symptoms during radiotherapy for head and neck cancer: a prospective feasibility study. In: ASCO Annual Meeting Proceedings. 2016;1(2):115-21.
18. Sundberg K, Eklöf AL, Blomberg K, Isaksson A-K, Wengström Y. Feasibility of an interactive ICT-platform for early assessment and management of patient-reported symptoms during radiotherapy for prostate cancer. Eur J Oncol Nurs. 2015;19(5):523-28.