The use of Facebook in recruiting participants for health research purposes: A systematic review

Journal of Medical Internet Research

Volumn 19, Issue 8, 2017, Pages

  Whitaker, Christopher ^a   Stevelink, Sharon ^a   Fear, Nicola ^a  

^a KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Epidemiology; Research; Review; Social media

Indexed keywords

ADOLESCENT; ADULT; HUMAN; INTERNET; MIDDLE AGED; PATIENT SELECTION; PROCEDURES; RESEARCH; SMOKING CESSATION; SOCIAL MEDIA; STATISTICS AND NUMERICAL DATA; UTILIZATION; YOUNG ADULT;

ADOLESCENT; ADULT; HUMANS; INTERNET; MIDDLE AGED; PATIENT SELECTION; RESEARCH; SMOKING CESSATION; SOCIAL MEDIA; YOUNG ADULT;

EID: 85029365797     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.7071     Document Type: Review

References (58)

1. Ofcom. 2015. Adults' media use and attitudes: report 2015 URL: https://www.ofcom.org.uk/-data/assets/pdf-file/0014/82112/2015-adults-media-use-and-attitudes-report.pdf [accessed 2017-07-29] [WebCite Cache ID 6sJrJ59f0]
2. Fb. 2015. Company info URL: http://newsroom.fb.com/company-info [accessed 2016-10-24] [WebCite Cache ID 6lVO6l8iw]
3. Johnson K, Mueller N, Gutmann D. Abstract 4847: efficacy of different recruitment methods for a neurofibromatosis type 1 online registry. Cancer Res 2014 Nov. 18;73(8 Supplement):4847-4847. [doi: 10.1158/1538-7445. AM2013-4847]
4. Ofcom. 2015. Adults media use and attitudes 2014 URL: http://stakeholders.ofcom.org.uk/market-data-research/other/research-publications/adults/adults-media-lit-14/[accessed 2016-10-24] [WebCite Cache ID 6lVOBN6rc]
5. Tate DF, LaRose JG, Griffin LP, Erickson KE, Robichaud EF, Perdue L, et al. Recruitment of young adults into a randomized controlled trial of weight gain prevention: message development, methods, and cost. Trials 2014;15:326 [FREE Full text] [doi: 10.1186/1745-6215-15-326] [Medline: 25128185]
6. Frandsen M, Walters J, Ferguson SG. Exploring the viability of using online social media advertising as a recruitment method for smoking cessation clinical trials. Nicotine Tob Res 2014 Feb; 16(2):247-251. [doi: 10.1093/ntr/ntt157] [Medline: 24127266]
7. Refworks. 2015. Want to learn how to get the most out of RefWorks? URL: https://www.refworks.com/refworks2/default. aspx?r=authentication::init [accessed 2016-10-24] [WebCite Cache ID 6lVODCQmY]
8. Wix. 2017. 12 questions to help you make sense of cohort study URL: http://media.wix.com/ugd/dded87-5ad0ece77a3f4fc9bcd3665a7d1fa91f.pdf [accessed 2017-07-29] [WebCite Cache ID 6sJorPhFK]
9. Bradshaw RA, Walsh KA, Neurath H. Amino acid sequence of bovine carboxypeptidase A. Isolation and characterization of selected peptic and nagarse peptides and the complete sequence of fragment F-I. Biochemistry 1971 Mar. 16;10(6):961-972. [Medline: 4927805]
10. Dausset J. [The law of choice of an organ donor for transplantation]. Arch Mal Coeur Vaiss 1969 Jun; 62(6):841-847. [Medline: 4997003]
11. Heilmann E, Müller KM, Westerloh K, Manz B. [Clinical picture of acute intermittent porphyria with reference to morphological findings]. Med Welt 1974 Sep. 27;25(39):1538-1539. [Medline: 4427547]
12. Collins TF. Ambulatory treatment of active pulmonary tuberculosis without interruption of normal employment. S Afr Med J 1969 Jan 18;43(3):58-60. [Medline: 4975794]
13. Staffileno BA, Zschunke J, Weber M, Gross LE, Fogg L, Tangney CC. The feasibility of using facebook, craigslist, and other online strategies to recruit young African American women for a web-based healthy lifestyle behavior change intervention. J Cardiovasc Nurs 2017;32(4):365-371. [doi: 10.1097/JCN.0000000000000360] [Medline: 27428356]
14. Moreno MA, Waite A, Pumper M, Colburn T, Holm M, Mendoza J. Recruiting adolescent research participants: in-person compared to social media approaches. Cyberpsychol Behav Soc Netw 2017 Jan; 20(1):64-67. [doi: 10.1089/cyber.2016.0319] [Medline: 27976951]
15. Adam LM, Manca DP, Bell RC. Can facebook be used for research? experiences using facebook to recruit pregnant women for a randomized controlled trial. J Med Internet Res 2016 Sep. 21;18(9):e250 [FREE Full text] [doi: 10.2196/jmir.6404] [Medline: 27655184]
16. Morgan AJ, Jorm AF, Mackinnon AJ. Internet-based recruitment to a depression prevention intervention: lessons from the Mood Memos study. J Med Internet Res 2013;15(2):e31 [FREE Full text] [doi: 10.2196/jmir.2262] [Medline: 23403043]
17. Akard TF, Wray S, Gilmer MJ. Facebook advertisements recruit parents of children with cancer for an online survey of web-based research preferences. Cancer Nurs 2015;38(2):155-161 [FREE Full text] [doi: 10.1097/NCC.0000000000000146] [Medline: 24945264]
18. Arcia A. Facebook advertisements for inexpensive participant recruitment among women in early pregnancy. Health Educ Behav 2013 Sep. 30;41(3):237-241 [FREE Full text] [doi: 10.1177/1090198113504414] [Medline: 24082026]
19. Carlini BH, Safioti L, Rue TC, Miles L. Using Internet to recruit immigrants with language and culture barriers for tobacco and alcohol use screening: a study among Brazilians. J Immigr Minor Health 2015 Apr; 17(2):553-560. [doi: 10.1007/s10903-013-9934-1] [Medline: 24563138]
20. Child R J H, Mentes JC, Pavlish C, Phillips LR. Using Facebook and participant information clips to recruit emergency nurses for research. Nurse Res 2014 Jul; 21(6):16-21. [doi: 10.7748/nr.21.6.16.e1246] [Medline: 25059083]
21. Chu JL, Snider CE. Use of a social networking web site for recruiting Canadian youth for medical research. J Adolesc Health 2013 Jun; 52(6):792-794. [doi: 10.1016/j.jadohealth.2012.12.002] [Medline: 23352727]
22. Close S, Smaldone A, Fennoy I, Reame N, Grey M. Using information technology and social networking for recruitment of research participants: experience from an exploratory study of pediatric Klinefelter syndrome. J Med Internet Res 2013;15(3):e48 [FREE Full text] [doi: 10.2196/jmir.2286] [Medline: 23512442]
23. Jones R, Lacroix LJ, Nolte K. "Is Your Man Stepping Out?" an online pilot study to evaluate acceptability of a guide-enhanced HIV prevention soap opera video series and feasibility of recruitment by facebook advertising. J Assoc Nurses AIDS Care 2015;26(4):368-386 [FREE Full text] [doi: 10.1016/j.jana.2015.01.004] [Medline: 26066692]
24. Nelson EJ, Hughes J, Oakes JM, Pankow JS, Kulasingam SL. Estimation of geographic variation in human papillomavirus vaccine uptake in men and women: an online survey using facebook recruitment. J Med Internet Res 2014;16(9):e198 [FREE Full text] [doi: 10.2196/jmir.3506] [Medline: 25231937]
25. Pedersen ER, Helmuth ED, Marshall GN, Schell TL, PunKay M, Kurz J. Using facebook to recruit young adult veterans: online mental health research. JMIR Res Protoc 2015;4(2):e63 [FREE Full text] [doi: 10.2196/resprot.3996] [Medline: 26033209]
26. Schumacher KR, Stringer KA, Donohue JE, Yu S, Shaver A, Caruthers RL, et al. Social media methods for studying rare diseases. Pediatrics 2014 May; 133(5):e1345-e1353 [FREE Full text] [doi: 10.1542/peds.2013-2966] [Medline: 24733869]
27. Yuan P, Bare MG, Johnson MO, Saberi P. Using online social media for recruitment of human immunodeficiency virus-positive participants: a cross-sectional survey. J Med Internet Res 2014;16(5):e117 [FREE Full text] [doi: 10.2196/jmir.3229] [Medline: 24784982]
28. Batterham PJ. Recruitment of mental health survey participants using internet advertising: content, characteristics and cost effectiveness. Int J Methods Psychiatr Res 2014 Jun; 23(2):184-191. [doi: 10.1002/mpr.1421] [Medline: 24615785]
29. Lusterman EA. The dental profession and the dental laboratory industry. N Y State Dent J 1965 Dec; 31(10):457-458. [Medline: 5215244]
30. Bauermeister JA, Zimmerman MA, Johns MM, Glowacki P, Stoddard S, Volz E. Innovative recruitment using online networks: lessons learned from an online study of alcohol and other drug use utilizing a web-based, respondent-driven sampling (webRDS) strategy. J Stud Alcohol Drugs 2012 Sep; 73(5):834-838 [FREE Full text] [Medline: 22846248]
31. Bull S, Levine D, Schmiege S, Santelli J. Recruitment and retention of youth for research using social media: experiences from the Just/Us study. Vulnerable Child Youth Stud 2013 Jun; 8(2):171-181. [doi: 10.1080/17450128.2012.748238]
32. Siegfried J. [Contribution of functional neurosurgery in the treatment of cerebral palsy patients]. Rev Otoneuroophtalmol 1970 Nov; 42(7):412-415. [Medline: 4925933]
33. Fenner Y, Garland SM, Moore EE, Jayasinghe Y, Fletcher A, Tabrizi SN, et al. Web-based recruiting for health research using a social networking site: an exploratory study. J Med Internet Res 2012;14(1):e20 [FREE Full text] [doi: 10.2196/jmir.1978] [Medline: 22297093]
34. Harris ML, Loxton D, Wigginton B, Lucke JC. Recruiting online: lessons from a longitudinal survey of contraception and pregnancy intentions of young australian women. Am J Epidemiol 2015 Apr. 15;181(10):737-746. [doi: 10.1093/aje/kwv006]
35. Jones L, Saksvig BI, Grieser M, Young DR. Recruiting adolescent girls into a follow-up study: benefits of using a social networking website. Contemp Clin Trials 2012 Mar; 33(2):268-272 [FREE Full text] [doi: 10.1016/j.cct.2011.10.011] [Medline: 22101207]
36. Kapp JM, Peters C, Oliver DP. Research recruitment using Facebook advertising: big potential, big challenges. J Cancer Educ 2013 Mar; 28(1):134-137. [doi: 10.1007/s13187-012-0443-z] [Medline: 23292877]
37. Miyagi E, Motoki Y, Asai-Sato M, Taguri M, Morita S, Hirahara F, et al. Web-based recruiting for a survey on knowledge and awareness of cervical cancer prevention among young women living in Kanagawa prefecture, Japan. Int J Gynecol Cancer 2014 Sep; 24(7):1347-1355 [FREE Full text] [doi: 10.1097/IGC.0000000000000220] [Medline: 25054449]
38. Musiat P, Winsall M, Orlowski S, Antezana G, Schrader G, Battersby M, et al. Paid and unpaid online recruitment for health interventions in young adults. J Adolesc Health 2016 Sep. 20;59(6):662-667. [doi: 10.1016/j.jadohealth.2016.07.020] [Medline: 27663927]
39. Parkinson S, Bromfield L. Recruiting young adults to child maltreatment research through facebook: a feasibility study. Child Abuse Negl 2013 Sep; 37(9):716-720. [doi: 10.1016/j.chiabu.2013.04.009] [Medline: 23768931]
40. Ramo DE, Rodriguez T M S, Chavez K, Sommer MJ, Prochaska JJ. Facebook recruitment of young adult smokers for a cessation trial: methods, metrics, and lessons learned. Internet Interv 2014 Apr; 1(2):58-64. [doi: 10.1016/j.invent.2014.05.001] [Medline: 25045624]
41. Ramo DE, Prochaska JJ. Broad reach and targeted recruitment using Facebook for an online survey of young adult substance use. J Med Internet Res 2012;14(1):e28 [FREE Full text] [doi: 10.2196/jmir.1878] [Medline: 22360969]
42. Remschmidt C, Walter D, Schmich P, Wetzstein M, Deleré Y, Wichmann O. Knowledge, attitude, and uptake related to human papillomavirus vaccination among young women in Germany recruited via a social media site. Hum Vaccin Immunother 2014;10(9):2527-2535 [FREE Full text] [doi: 10.4161/21645515.2014.970920] [Medline: 25483492]
43. Schwinn T, Hopkins J, Schinke SP, Liu X. Using Facebook ads with traditional paper mailings to recruit adolescent girls for a clinical trial. Addict Behav 2017 Feb; 65:207-213. [doi: 10.1016/j.addbeh.2016.10.011] [Medline: 27835860]
44. Smith C. Expandedramblings. 2015. By the numbers+ amazing facebook advertising statistics URL: http://expandedramblings. com/index.php/facebook-advertising-statistics/[accessed 2016-10-24] [WebCite Cache ID 6lVOKiatq]
45. Kim L. Searchengineland. 2015. 7 conversion rate truths that will change your landing page strategy URL: http://searchengineland.com/7-conversion-rate-truths-will-change-landing-page-optimization-strategy-191083 [accessed 2016-10-24] [WebCite Cache ID 6lVORt7Nj]
46. Wagner DA. Child development research and the third world. A future of mutual interest? Am Psychol 1986 Mar; 41(3):298-301. [Medline: 3963617]
47. Dreyer K. Comscore. Infographic: myspace vs facebook URL: https://www.comscore.com/Insights/Data-Mine/Infographic-Myspace-vs-Facebook?cs-edgescape-cc=US [accessed 2017-07-29] [WebCite Cache ID 6sJrRMoX2]
48. WHO. Global health observatory (GHO) data URL: http://www.who.int/gho/en/[accessed 2017-07-29] [WebCite Cache ID 6sJrjyMpC]
49. Elam-Evans LD, Yankey D, Jeyarajah J, Singleton JA, Curtis RC, MacNeil J, Immunization Services Division, National Center for ImmunizationRespiratory Diseases, Centers for Disease ControlPrevention (CDC). National, regional, state, and selected local area vaccination coverage among adolescents aged 13-17 years-United States, 2013. MMWR Morb Mortal Wkly Rep 2014 Jul. 25;63(29):625-633 [FREE Full text] [Medline: 25055186]
50. Comporti M. Lipid peroxidation and cellular damage in toxic liver injury. Lab Invest 1985 Dec; 53(6):599-623. [Medline: 3906270]
51. Marlow C. Cameronmarlow. ePluribus: ethnicity on social networks URL: http://cameronmarlow.com/media/chang-ethnicity-on-social-networks-0.pdf [accessed 2017-07-29] [WebCite Cache ID 6sJsTsXFa]
52. Yancey AK, Ortega AN, Kumanyika SK. Effective recruitment and retention of minority research participants. Annu Rev Public Health 2006;27:1-28. [doi: 10.1146/annurev. publhealth.27.021405.102113] [Medline: 16533107]
53. Smith W. Ed.gov. Does gender influence online survey participation? a record-linkage analysis of university faculty online survey response behavior URL: https://eric.ed.gov/?id=ED501717 [accessed 2017-07-29] [WebCite Cache ID 6sJq7IPvs]
54. Brown WJ, Bryson L, Byles JE, Dobson AJ, Lee C, Mishra G, et al. Women's health Australia: recruitment for a national longitudinal cohort study. Women Health 1998;28(1):23-40. [Medline: 10022055]
55. Gorelick PB, Harris Y, Burnett B, Bonecutter FJ. The recruitment triangle: reasons why African Americans enroll, refuse to enroll, or voluntarily withdraw from a clinical trial. An interim report from the African-American antiplatelet stroke prevention study (AAASPS). J Natl Med Assoc 1998 Mar; 90(3):141-145. [Medline: 9549977]
56. Duggan M. Pew Research Center. The demograophics of social media users URL: http://www.pewinternet.org/2015/08/19/the-demographics-of-social-media-users/[accessed 2016-10-25] [WebCite Cache ID 6lVOfDiVE]
57. Lord S, Brevard J, Budman S. Connecting to young adults: an online social network survey of beliefs and attitudes associated with prescription opioid misuse among college students. Subst Use Misuse 2011;46(1):66-76 [FREE Full text] [doi: 10.3109/10826084.2011.521371] [Medline: 21190407]
58. Young SD, Rice E. Online social networking technologies, HIV knowledge, and sexual risk and testing behaviors among homeless youth. AIDS Behav 2011 Feb; 15(2):253-260 [FREE Full text] [doi: 10.1007/s10461-010-9810-0] [Medline: 20848305]