Magnitude and causes of bias among family caregivers rating Alzheimer disease patients

American Journal of Geriatric Psychiatry

Volumn 21, Issue 1, 2013, Pages 14-25

  Schulz, Richard ^a   Cook, Thomas B ^a   Beach, Scott R ^a   Lingler, Jennifer H ^a   Martire, Lynn M ^b   Monin, Joan K ^c   Czaja, Sara J ^d  

^a UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^b PENNSYLVANIA STATE UNIVERSITY   (United States)

^c YALE UNIVERSITY   (United States)

^d UNIVERSITY OF MIAMI   (United States)

Author keywords

Alzheimer disease; Caregiver; Proxy ratings

Indexed keywords

AGED; ALZHEIMER DISEASE; ARTICLE; CAREGIVER; CLINICAL ASSESSMENT; CROSS-SECTIONAL STUDY; FEMALE; HEALTH STATUS; HUMAN; INTERVIEW; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; PREDICTOR VARIABLE; PSYCHOLOGICAL WELL BEING; QUALITY OF LIFE; SELF CONCEPT;

EID: 85028115539     PISSN: 10647481     EISSN: 15457214     Source Type: Journal    
DOI: 10.1016/j.jagp.2012.10.002     Document Type: Article

References (22)

1. Schmidt KL, Lingler JH, Schulz R: Verbal communication among Alzheimer's disease patients, their caregivers, and primary care physicians during primary care office visits. Patient Educ Couns 2009; 77:197-209
2. Hunsaker AE, Schmidt KL, Lingler JH: Discussing dementia-related behaviors during medical visits for people with Alzheimer's disease. Am J Alzheimer's Dis Other Demen 2010; 25:248-254
3. Williams LS, Bakas T, Brizendine E, et al: How valid are family proxy assessments of stroke patients' health-related quality of life? Stroke 2006; 37:2081-2085
4. Sneeuw KC, Aaronson NK, de Haan RJ, et al: Assessing quality of life after stroke. The value and limitations of proxy ratings. Stroke 1997; 28:1541-1549
5. Farrow DC, Samet JM: Comparability of information provided by elderly cancer patients and surrogates regarding health and functional status, social network, and life events. Epidemiology 1990; 1:370-376
6. Novella JL, Boyer F, Jochum C, et al: Health status in patients with Alzheimer's disease: an investigation of inter-rater agreement. Qual Life Res 2006; 15:811-819
7. Sands LP, Ferreira P, Stewart AL, et al: What explains differences between dementia patients' and their caregivers' ratings of patients' quality of life? Am J Geriatr Psychiatry 2004; 12: 272-280
8. Magaziner J, Zimmerman SI, Gruber-Baldini AL, et al: Proxy reporting in five areas of functional status: comparison with selfreports and observations of performance. Am J Epidemiol 1997; 146:418-428
9. Ready RE, Ott BR, Grace J: Patient versus informant perspectives of Quality of Life in Mild Cognitive Impairment and Alzheimer's disease. Int J Geriatr Psychiatry 2004; 19:256-265
10. Logsdon RG, Gibbons LE, McCurry SM, et al: Assessing quality of life in older adults with cognitive impairment. Psychosom Med 2002; 64:510-519
11. Novella JL, Jochum C, Jolly D, et al: Agreement between patients' and proxies' reports of quality of life in Alzheimer's disease. Qual Life Res 2001; 10:443-452
12. Adams WL, McIlvain HE, Geske JA, et al: Physicians' perspectives on caring for cognitively impaired elders. Gerontologist 2005; 45: 231-239
13. Karlawish JH, Casarett D, Klocinski J, et al: The relationship between caregivers' global ratings of Alzheimer's disease patients' quality of life, disease severity, and the caregiving experience. J Am Geriatr Soc 2001; 49:1066-1070
14. Loewenstein DA, Argüelles S, Bravo M, et al: Caregivers' judgments of the functional abilities of the Alzheimer's disease patient: a comparison of proxy reports and objective measures. J Gerontol B Psychol Sci Soc Sci 2001; 56:P78-P84
15. Smith SC, Lamping DL, Banerjee S, et al: Development of a new measure of health-related quality of life for people with dementia: DEMQOL. Psychol Med 2007; 37:737-746
16. Schulz R, Monin JK, Czaja SJ, et al: Measuring the experience and perception of suffering. Gerontologist 2010; 50:774-784
17. Folstein MF, Folstein SE, McHugh PR: "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975; 12:189-198
18. Ware J Jr, Kosinski M, Keller SD: A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care 1996; 34:220-233
19. Radloff LS: The CES-D Scale: A self-report depression scale for research in the general population. Appl Psychol Meas 1977; 1: 385-401
20. Hébert R, Bravo G, Préville M: Reliability, validity and reference values of the Zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia. Can J Aging 2000; 19:494-507
21. Burke WJ, Roccaforte WH, Wengel SP, et al: Disagreement in the reporting of depressive symptoms between patients with dementia of the Alzheimer type and their collateral sources. Am J Geriatr Psychiatry 1998; 6:308-319
22. Reisberg B, Ferris SH: CIBIC-Plus Interview Guide. East Hanover, NJ, San doz Pharmaceuticals Corporation, 1994