Health status in patients with Alzheimer's disease: An investigation of inter-rater agreement

Quality of Life Research

Volumn 15, Issue 5, 2006, Pages 811-819

  Novella, J L ^a   Boyer, F ^a   Jochum, C ^b   Jovenin, N ^c   Morrone, I ^a   Jolly, D ^c   Bakchine, S ^c   Blanchard, F ^a  

^a Hopital Sebastopol   (France)

^b GENEVA UNIVERSITY HOSPITALS   (Switzerland)

^c HÔPITAL MAISON BLANCHE   (France)

Author keywords

Agreement; Alzheimer's disease; Health status; Proxy; SF 36

Indexed keywords

ADULT; AGED; ALZHEIMER DISEASE; ARTICLE; CHRONIC PATIENT; COGNITIVE DEFECT; CORRELATION COEFFICIENT; CUSTODY; DISEASE SEVERITY; FEMALE; HEALTH STATUS; HIGH RISK PATIENT; HUMAN; INTERRATER RELIABILITY; MAJOR CLINICAL STUDY; MALE; OBSERVER VARIATION; PRIORITY JOURNAL; QUALITY OF LIFE; RELIABILITY; SHORT FORM 36;

AGED; AGED, 80 AND OVER; ALZHEIMER DISEASE; EUROPE; FEMALE; HEALTH STATUS; HUMANS; MALE; PROXY; QUESTIONNAIRES;

EID: 33744485826     PISSN: 09629343     EISSN: None     Source Type: Journal    
DOI: 10.1007/s11136-005-5434-7     Document Type: Article

References (64)

1. EM Andresen GW Gravitt ME Aydelotte CA Podgorski 1999 Limitations of the SF-36 in a sample of nursing home residents Age Ageing 28 6 562 566
2. JE Brazier SJ Walters JP Nicholl B Kohler 1996 Using the SF-36 and Euroqol on an elderly population Qual Life Res 5 2 195 204
3. V Hayes J Morris C Wolfe M Morgan 1995 The SF-36 health survey questionnaire: Is it suitable for use with older adults Age Ageing 24 2 120 125
4. JP Hobson RJ Meara 1997 Is the SF-36 health survey questionnaire suitable as a self-report measure of the health status of older adults with Parkinson's disease? Qual Life Res 6 3 213 216
5. PG O'Mahony H Rodgers RG Thomson R Dobson OF James 1998 Is the SF-36 suitable for assessing health status of older stroke patients? Age Ageing 27 1 19 22
6. SG Parker SM Peet C Jagger M Farhan CM Castleden 1998 Measuring health status in older patients. The SF-36 in practice Age Ageing 27 1 13 18
7. LM Nelson WTJ Longstreth TD Koepsell G van Belle 1990 Proxy respondents in epidemiologic research Epidemiol Rev 12 71 86
8. L Burgio J Leon 1997 Using patient and proxy reports as outcome measures in Alzheimer disease research Alzheimer Dis Assoc Disord 11 Suppl 6 179 180
9. T Ostbye S Tyas I [tmp] McDowell J Koval 1997 Reported activities of daily living: Agreement between elderly subjects with and without dementia and their caregivers Age Ageing 26 2 99 106
10. JL Novella J Ankri I Morrone 2001 Evaluation of the quality of life in dementia with a Generic quality of life Questionnaire: The duke health profile Dement Geriatr Cogn Disord 12 2 158 166
11. SI Zimmerman J Magaziner 1994 Methodological issues in measuring the functional status of cognitively impaired nursing home residents: The use of proxies and performance-based measures Alzheimer Dis Assoc Disord 8 Suppl 1 S281 S290
12. JL Novella C Jochum J Ankri I Morrone D Jolly F Blanchard 2001 Measuring general health status in dementia: Practical and methodological issues in using the SF-36 Aging 13 5 362 369
13. American PA. Diagnostic and Statistical Manual of Mental Disorders: DSM-III-R. 3rd ed. Washington, DC, 1987.
14. M Folstein S Folstein HP Mc 1975 "Mini mental state'' a practical method for grading the cognitive state of patients for the clinician J Psychiat Res 12 189 198
15. A Leplege M Mesbah P Marquis 1995 Preliminary analysis of the psychometric properties of the French version of an international questionnaire measuring the quality of life: The MOS SF-36 (version 1.1) Rev Epidemiol Sante Publique 43 4 371 379
16. CA [tmp] McHorney JEJ Ware AE Raczek 1993 The MOS 36-Item Short-Form Health Survey (SF-36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs Med Care 31 3 247 263
17. AL Stewart RD Hays JEJ Ware 1988 The MOS short-form general health survey. Reliability and validity in a patient population Med Care 26 7 724 735
18. J Ware C Sherbourne 1992 The MOS 36-Item Short-Form health survey (SF-36) Med Care 30 6 473 481
19. S Katz T Down H Cash R Grotz 1970 Progress in development of index of ADL Gerontologist 10 20 30
20. C Hughes L Berg W Danziger L Coben R Martin 1982 A new clinical scale for the staging of dementia Br J Psychiatry 14 566 572
21. G Bravo L Potvin 1991 Estimating the reliability of continuous measures with Cronbach's alpha or the intraclass correlation coefficient: Toward the integration of two traditions J Clin Epidemiol 44 4-5 381 390
22. L Cronbach 1951 Coefficient alpha and the internal structure of tests Psychometrika 16 3 297 334
23. JM Bland DG Altman 1990 A note on the use of the intraclass correlation coefficient in the evaluation of agreement between two methods of measurement Comput Biol Med 20 5 337 340
24. JM Bland DG Altman 1997 Cronbach's alpha Br Med J 314 7080 7572
25. RA Deyo P Diehr DL Patrick 1991 Reproducibility and responsiveness of health status measures. Statistics and strategies for evaluation Control Clin Trials 12 4 Suppl 142S 158S
26. P Schrout J Fleiss 1979 Intraclass correlations: Uses in assessing rater reliability Psychol Bull 86 2 420 428
27. JC Nunnally 1978 Psychometric Theory 2 McGraw-Hill New York
28. J Lee D Koh CN Ong 1989 Statistical evaluation of agreement between two methods for measuring a quantitative variable Comput Biol Med 19 1 61 70
29. J Fleiss 1986 The Design and Analysis of Clinical Experiments John Wiley and Sons New York
30. J Cohen 1988 Statistical Power Analysis for the Behaviour Sciences Hillsdale NJ
31. SS Bassett J Magaziner JR Hebel 1990 Reliability of proxy response on mental health indices for aged, community-dwelling women Psychol Aging 5 1 127 132
32. J Magaziner SS Bassett JR Hebel A Gruber-Baldini 1996 Use of proxies to measure health and functional status in epidemiologic studies of community-dwelling women aged 65 years and older Am J Epidemiol 143 3 283 292
33. J Magaziner SI Zimmerman AL Gruber-Baldini JR Hebel KM Fox 1997 Proxy reporting in five areas of functional status. Comparison with self-reports and observations of performance Am J Epidemiol 146 5 418 428
34. RF Coen CA O'Boyle D Coakley BA Lawlor 2002 Individual quality of life factors distinguishing low-burden and high-burden caregivers of dementia patients Dement Geriatr Cogn Disord 13 3 164 170
35. F Boyer JL Novella I Morrone D Jolly F Blanchard 2004 Agreement between dementia patient report and proxy reports using the Nottingham Health Profile Int J Geriatr Psychiatry 19 11 1026 1034
36. RE Ready BR Ott J Grace 2004 Patient versus informant perspectives of Quality of Life in Mild Cognitive Impairment and Alzheimer's disease Int J Geriatr Psychiatry 19 3 256 265
37. DC Farrow JM Samet 1990 Comparability of information provided by elderly cancer patients and surrogates regarding health and functional status, social network, and life events Epidemiology 1 5 370 376
38. RD Hays BG Vickrey BP Hermann 1995 Agreement between self reports and proxy reports of quality of life in epilepsy patients Qual Life Res 4 2 159 168
39. U Pierre S Wood-Dauphinee N Korner-Bitensky D Gayton J Hanley 1998 Proxy use of the Canadian SF-36 in rating health status of the disabled elderly J Clin Epidemiol 51 11 983 990
40. J Magaziner EM Simonsick TM Kashner JR Hebel 1988 Patient-proxy response comparability on measures of patient health and functional status J Clin Epidemiol 41 11 1065 1074
41. CM Moinpour B Lyons SP Schmidt K Chansky RA Patchell 2000 Substituting proxy ratings for patient ratings in cancer clinical trials: An analysis based on a Southwest Oncology Group trial in patients with brain metastases Qual Life Res 9 2 219 231
42. LP Sands P Ferreira AL Stewart M Brod K Yaffe 2004 What explains differences between dementia patients' and their caregivers' ratings of patients' quality of life? Am J Geriatr Psychiatry 12 3 272 280
43. KC Sneeuw NK Aaronson MA Sprangers SB Detmar LD Wever JH Schornagel 1997 Value of caregiver ratings in evaluating the quality of life of patients with cancer J Clin Oncol 15 3 1206 1217
44. C Brunelli M Costantini P Di Giulio 1998 Quality-of-life evaluation: When do terminal cancer patients and health-care providers agree? J Pain Symptom Manage 15 3 151 158
45. CA Jones DH Feeny 2005 Agreement between patient and proxy responses of health-related quality of life after hip fracture J Am Geriatr Soc 53 7 1227 1233
46. AM Epstein JA Hall J Tognetti LH Son LJ Conant 1989 Using proxies to evaluate quality of life. Can they provide valid information about patients' health status and satisfaction with medical care? Med Care 27 3 Suppl S91 S98
47. ML Rothman SC Hedrick KA Bulcroft DH Hickam LZ Rubenstein 1991 The validity of proxy-generated scores as measures of patient health status Med Care 29 2 115 124
48. SS Bassett J Magaziner JR Hebel 1990 Reliability of proxy response on mental health indices for aged, community-dwelling women Psychol Aging 5 1 127 132
49. J Magaziner SI Zimmerman AL Gruber-Baldini JR Hebel KM Fox 1997 Proxy reporting in five areas of functional status. Comparison with self-reports and observations of performance Am J Epidemiol 146 5 418 428
50. GH Guyatt DH Feeny DL Patrick 1993 Measuring health-related quality of life Ann Intern Med 118 8 622 629
51. DR Berlowitz W Du L Kazis S Lewis 1995 Health-related quality of life of nursing home residents: Differences in patient and provider perceptions J Am Geriatr Soc 43 7 799 802
52. JY Yip KH Wilber RC Myrtle DN Grazman 2001 Comparison of older adult subject and proxy responses on the SF-36 health-related quality of life instrument Aging Ment Health 5 2 136 142
53. AE Ball EM Russell DG Seymour WR Primrose AM Garratt 2001 Problems in using Health Survey Questionnaires in Older Patients with Physical Disabilities. Can proxies be used to complete the sf-36? Gerontology 47 6 334 340
54. Fleming A, Cook KF, Nelson ND, Lai EC. Proxy reports in Parkinson's disease: Caregiver and patient self-reports of quality of life and physical activity. Mov Disord 2005; Nov; 20(11): 1462-1468.
55. AC Justice L Rabeneck RD Hays AW Wu SA Bozzette 1999 Sensitivity, specificity, reliability, and clinical validity of provider-reported symptoms: A comparison with self-reported symptoms Outcomes Committee of the AIDS Clinical Trials Group J Acquir Immune Defic Syndr 21 2 126 133
56. KC Sneeuw NK Aaronson D Osoba 1997 The use of significant others as proxy raters of the quality of life of patients with brain cancer Med Care 35 5 490 506
57. KC Sneeuw NK Aaronson RJ de Haan M Limburg 1997 Assessing quality of life after stroke. The value and limitations of proxy ratings Stroke 28 8 1541 1549
58. MA Sprangers NK Aaronson 1992 The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: A review J Clin Epidemiol 45 7 743 760
59. O Zanetti C Geroldi GB Frisoni A Bianchetti M Trabucchi 1999 Contrasting results between caregiver's report and direct assessment of activities of daily living in patients affected by mild and very mild dementia: The contribution of the caregiver's personal characteristics J Am Geriatr Soc 47 2 196 202
60. K Long S Sudha EJ Mutran 1998 Elder-proxy agreement concerning the functional status and medical history of the older person: The impact of caregiver burden and depressive symptomatology J Am Geriatr Soc 46 9 1103 1111
61. RA Pruchno CJ Burant ND Peters 1997 Typologies of caregiving families: Family congruence and individual well-being Gerontologist 37 2 157 167
62. EC Clipp LK George 1993 Dementia and cancer: A comparison of spouse caregivers Gerontologist 33 4 534 541
63. J [tmp] McCusker AM Stoddard 1984 Use of a surrogate for the Sickness Impact Profile Med Care 22 9 789 795
64. HA Kiyak L Teri S Borson 1994 Physical and functional health assessment in normal aging and in Alzheimer's disease: Self-reports vs family reports Gerontologist 34 3 324 330