Web-based interventions to improve mental health, general caregiving outcomes, and general health for informal caregivers of adults with chronic conditions living in the community: Rapid evidence review

Journal of Medical Internet Research

Volumn 19, Issue 7, 2017, Pages

  Ploeg, Jenny ^a   Markle Reid, Maureen ^a   Valaitis, Ruta ^a   McAiney, Carrie ^a   Duggleby, Wendy ^b   Bartholomew, Amy ^a   Sherifali, Diana ^a  

^a MCMASTER UNIVERSITY   (Canada)

^b UNIVERSITY OF ALBERTA   (Canada)

Author keywords

Adult; Caregivers; Chronic disease; Internet; Review

Indexed keywords

ADULT; CAREGIVER; CHRONIC DISEASE; DEMOGRAPHY; HUMAN; INTERNET; MENTAL DISEASE; MENTAL HEALTH; PSYCHOLOGY; QUALITY OF LIFE; UTILIZATION;

ADULT; CAREGIVERS; CHRONIC DISEASE; HUMANS; INTERNET; MENTAL DISORDERS; MENTAL HEALTH; QUALITY OF LIFE; RESIDENCE CHARACTERISTICS;

EID: 85026470257     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.7564     Document Type: Article

References (52)

1. World Health Organization. WHO.: World Health Organization; 2014. Global status report on noncommunicable diseases URL: Http://www.who.int/nmh/publications/ncd-status-report-2014/en/accessed 2017-02-22] [WebCite Cache ID 6oTPg6jwb
2. Centers for Disease Control and Prevention. CDC. 2016. Chronic disease overview URL: Https://www.cdc.gov/chronicdisease/ overview/ [accessed 2017-02-22] [WebCite Cache ID 6oTQB8tsJ]
3. Fisher K, Griffith L, Gruneir A, Panjwani D, Gandhi S, Sheng LL, et al. Comorbidity and its relationship with health service use and cost in community-living older adults with diabetes: A population-based study in Ontario, Canada. Diabetes Res Clin Pract 2016 Dec;122:113-123. [doi: 10.1016/j.diabres.2016.10.009] [Medline: 27833049]
4. Ontario Ministry of Health and Long-Term Care. Ontario. 2016 Sep. Developing Ontario's dementia strategy: A discussion paper URL: Https://files.ontario.ca/developing-ontarios-dementia
5. Fox S. Pew Research Center. Washington: Pew Internet & American Life Project, Pew Research Center; 2011 Feb 28. Peer-to-peer health care URL: Http://www.pewinternet.org/2011/02/28/peer-to-peer-health-care-2/ [accessed 2017-02-22] [WebCite Cache ID 6oTQhnsir]
6. Parmar J, Jette N, Brémault-Phillips S, Holroyd-Leduc J. Supporting people who care for older family members. CMAJ 2014 Apr 15;186(7):487-488 [FREE Full text] [doi: 10.1503/cmaj.131831] [Medline: 24616138]
7. Sinha M. Statcan.: Statistics Canada; 2013. Spotlight on Canadians: Results from the general social survey. Portrait of caregivers, 2012 URL: Http://www.statcan.gc.ca/pub/89-652-x/89-652-x2013001-eng.pdf [accessed 2017-02-22] [WebCite Cache ID 6oTQswYzt]
8. Hollander M, Liu G, Chappell N. Who cares and how much? the imputed economic contribution to the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly. Healthc Q 2009 Apr;12(2):42-49 [FREE Full text] [doi: 10.12927/hcq.2009.20660]
9. Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychol Aging 2003 Jun;18(2):250-267. [Medline: 12825775]
10. Schulz R, Beach SR. Caregiving as a risk factor for mortality: The caregiver health effects study. JAMA 1999 Dec 15;282(23):2215-2219. [Medline: 10605972]
11. Corry M, While A, Neenan K, Smith V. A systematic review of systematic reviews on interventions for caregivers of people with chronic conditions. J Adv Nurs 2015 Apr;71(4):718-734 [FREE Full text] [doi: 10.1111/jan.12523] [Medline: 25223528]
12. Pagán-Ortiz ME, Cortés DE, Rudloff N, Weitzman P, Levkoff S. Use of an online community to provide support to caregivers of people with dementia. J Gerontol Soc Work 2014 Oct;57(6-7):694-709 [FREE Full text] [doi: 10.1080/01634372.2014.901998] [Medline: 24689359]
13. Duong K, Adamo S. Comscore.: ComScore, Inc; 2013. Canada digital future in focus 2013: Key insights from 2012 and what they mean for the coming year URL: Http://www.comscore.com/Insights/Presentations-and-Whitepapers/2013/ 2013-Canada-Digital-Future-in-Focus?cs-edgescape-cc=CA [accessed 2017-02-22] [WebCite Cache ID 6oTRGyO56]
14. InternetLiveStats.: Internet Live Stats; 2016. Canada internet users URL: Http://www.internetlivestats.com/internet-users/ canada/ [accessed 2017-02-22] [WebCite Cache ID 6oTRRfNQZ]
15. Perrin A, Duggan M. Pew Research Center. Washington: Pew Research Center Internet & Technology; 2015 Jun 26. Americans' internet access: 2000-2015 URL: Http://www.pewinternet.org/2015/06/26/americans-internet-access-2000-2015/ [accessed 2017-02-22] [WebCite Cache ID 6oTRdWr6P]
16. Jackson D, Roberts G, Wu ML, Ford R, Doyle C. A systematic review of the effect of telephone, internet or combined support for carers of people living with Alzheimer's, vascular or mixed dementia in the community. Arch Gerontol Geriatr 2016 Sep;66:218-236. [doi: 10.1016/j.archger.2016.06.013] [Medline: 27372903]
17. Lee E. Do technology-based support groups reduce care burden among dementia caregivers? a review. J Evid Inf Soc Work 2015 Mar;12(5):474-487. [doi: 10.1080/15433714.2014.930362] [Medline: 25794367]
18. Boots L, de Vugt ME, van Knippenberg RJ, Kempen G, Verhey F. A systematic review of Internet-based supportive interventions for caregivers of patients with dementia. Int J Geriatr Psychiatry 2014 Apr;29(4):331-334 [FREE Full text] [Medline: 23963684]
19. Godwin K, Mills W, Anderson J, Kunik M. Technology-driven interventions for caregivers of persons with dementia: A systematic review. Am J Alzheimers Dis Other Demen 2013 May;28(3):216-222 [FREE Full text] [Medline: 23528881]
20. Llanque S, Enriquez M. Interventions for hispanic caregivers of patients with dementia: A review of the literature. Am J Alzheimers Dis Other Demen 2012 Feb;27(1):23-32 [FREE Full text] [Medline: 22467412]
21. Powell J, Chiu T, Eysenbach G. A systematic review of networked technologies supporting carers of people with dementia. J Telemed Telecare 2008 Mar;14(3):154-156 [FREE Full text] [Medline: 18430288]
22. McKechnie V, Barker C, Stott J. Effectiveness of computer-mediated interventions for informal carers of people with dementia-a systematic review. Int Psychogeriatr 2014 Oct;26(10):1619-1637 [FREE Full text] [doi: 10.1017/S1041610214001045] [Medline: 24989249]
23. Kaltenbaugh DJ, Klem ML, Hu L, Turi E, Haines AJ, Hagerty LJ. Using Web-based interventions to support caregivers of patients with cancer: A systematic review. Oncol Nurs Forum 2015 Mar;42(2):156-164. [doi: 10.1188/15.ONF.156-164] [Medline: 25806882]
24. Cheng HY, Chair SY, Chau JP. The effectiveness of psychosocial interventions for stroke family caregivers and stroke survivors: A systematic review and meta-analysis. Patient Educ Couns 2014 Apr;95(1):30-44. [doi: 10.1016/j.pec.2014.01.005] [Medline: 24485756]
25. Hu C, Kung S, Rummans T, Clark M, Lapid M. Reducing caregiver stress with internet-based interventions: A systematic review of open-label and randomized controlled trials. J Am Med Inform Assoc 2015 Apr;22(e1):e194-e209 [FREE Full text] [Medline: 25125686]
26. Ganann R, Ciliska D, Thomas H. Expediting systematic reviews: Methods and implications of rapid reviews. Implement Sci 2010 Jul 19;5:56 [FREE Full text] [doi: 10.1186/1748-5908-5-56] [Medline: 20642853]
27. Peterson K, Floyd N, Ferguson L, Christensen V, Helfand M. User survey finds rapid evidence reviews increased uptake of evidence by Veterans Health Administration leadership to inform fast-paced health-system decision-making. Syst Rev 2016 Aug 05;5(1):132 [FREE Full text] [doi: 10.1186/s13643-016-0306-5] [Medline: 27491354]
28. Hoffmann TC, Glasziou PP, Boutron I, Milne R, Perera R, Moher D, et al. [Better reporting of interventions: Template for intervention description and replication (TIDieR) checklist and guide]. Gesundheitswesen 2016 Mar;78(3):175-188. [doi: 10.1055/s-0041-111066] [Medline: 26824401]
29. Higgins J, Green S. Cochrane Handbook.: The Cochrane Collaboration; 2011 Mar. Cochrane handbook for systematic reviews of interventions version 5.1.0 URL: Http://handbook.cochrane.org
30. DuBenske LL, Gustafson DH, Namkoong K, Hawkins RP, Atwood AK, Brown RL, et al. CHESS improves cancer caregivers' burden and mood: Results of an eHealth RCT. Health Psychol 2014 Oct;33(10):1261-1272. [doi: 10.1037/a0034216] [Medline: 24245838]
31. Namkoong K, DuBenske L, Shaw B, Gustafson D, Hawkins R, Shah D, et al. Creating a bond between caregivers online: Effect on caregivers' coping strategies. J Health Commun 2012 Feb;17(2):125-140. [doi: 10.1080/10810730.2011.585687]
32. Gustafson D, DuBenske L, Namkoong K, Hawkins R, Chih M, Atwood A, et al. An eHealth system supporting palliative care for patients with nonsmall cell lung cancer: A randomized trial. Cancer 2013 May;119(9):1744-1751 [FREE Full text] [doi: 10.1002/cncr.27939]
33. Dew M, Goycoolea J, Harris R, Lee A, Zomak R, Dunbar-Jacob J, et al. An internet-based intervention to improve psychosocial outcomes in heart transplant recipients and family caregivers: Development and evaluation. J Heart Lung Transplant 2004 Jun;23(6):745-758. [doi: 10.1016/j.healum.2003.07.002] [Medline: 15366436]
34. Marziali E, Garcia LJ. Dementia caregivers' responses to 2 internet-based intervention programs. Am J Alzheimers Dis Other Demen 2011 Feb;26(1):36-43. [doi: 10.1177/1533317510387586] [Medline: 21282276]
35. Mahoney D, Mutschler P, Tarlow B, Liss E. Real world implementation lessons and outcomes from the worker interactive networking (WIN) project: workplace-based online caregiver support and remote monitoring of elders at home. Telemed J E Health 2008 Apr;14(3):224-234. [doi: 10.1089/tmj.2007.0046] [Medline: 18570545]
36. Klemm PR, Hayes ER, Diefenbeck CA, Milcarek B. Online support for employed informal caregivers: Psychosocial outcomes. Comput Inform Nurs 2014 Jan;32(1):10-20. [doi: 10.1097/CIN.0000000000000009] [Medline: 24284908]
37. Hattink B, Meiland F, Overmars-Marx T, de Boer M, Ebben P, van Blanken M, et al. The electronic, personalizable Rosetta system for dementia care: Exploring the user-friendliness, usefulness and impact. Disabil Rehabil Assist Technol 2016 Jul;11(1):61-71. [doi: 10.3109/17483107.2014.932022] [Medline: 24989993]
38. Beauchamp N, Irvine A, Seeley J, Johnson B. Worksite-based internet multimedia program for family caregivers of persons with dementia. Gerontologist 2005 Dec;45(6):793-801 [FREE Full text] [Medline: 16326661]
39. Kajiyama B, Thompson LW, Eto-Iwase T, Yamashita M, Di MJ, Marian TY, et al. Exploring the effectiveness of an internet-based program for reducing caregiver distress using the iCare stress management e-training program. Aging Ment Health 2013 Mar;17(5):544-554 [FREE Full text] [doi: 10.1080/13607863.2013.775641] [Medline: 23461355]
40. McLaughlin K, Glang A, Beaver S, Gau JM, Keen S. Web-based training in family advocacy. J Head Trauma Rehabil 2013 Sep;28(5):341-348 [FREE Full text] [Medline: 22688211]
41. Pierce LL, Steiner VL, Khuder SA, Govoni AL, Horn LJ. The effect of a Web-based stroke intervention on carers' well-being and survivors' use of healthcare services. Disabil Rehabil 2009 Sep;31(20):1676-1684. [doi: 10.1080/09638280902751972] [Medline: 19479528]
42. Smith G, Egbert N, Dellman-Jenkins M, Nanna K, Palmieri P. Reducing depression in stroke survivors and their informal caregivers: A randomized clinical trial of a web-based intervention. Rehabil Psychol 2012 Aug;57(3):196-206. [doi: 10.1037/a0029587] [Medline: 22946607]
43. Steiner V, Pierce L, Drahuschak S, Nofziger E, Buchman D, Szirony T. Emotional support, physical help, and health of caregivers of stroke survivors. J Neurosci Nurs 2008 Feb;40(1):48-54 [FREE Full text] [Medline: 18330410]
44. Marziali E, Donahue P. Caring for others: Internet video-conferencing group intervention for family caregivers of older adults with neurodegenerative disease. Gerontologist 2006 Jun;46(3):398-403 [FREE Full text] [Medline: 16731880]
45. Blom MM, Zarit SH, Groot Zwaaftink RBM, Cuijpers P, Pot AM. Effectiveness of an internet intervention for family caregivers of people with dementia: Results of a randomized controlled trial. PLoS One 2015 Jan;10(2):e0116622 [FREE Full text] [doi: 10.1371/journal.pone.0116622] [Medline: 25679228]
46. Cristancho-Lacroix V, Wrobel J, Cantegreil-Kallen I, Dub T, Rouquette A, Rigaud A. A web-based psychoeducational program for informal caregivers of patients with Alzheimer's disease: A pilot randomized controlled trial. J Med Internet Res 2015 May;17(5):e117. [doi: 10.2196/jmir.3717] [Medline: 25967983]
47. Hattink B, Meiland F, van der Roest H, Kevern P, Abiuso F, Bengtsson J, et al. Web-Based STAR e-learning course increases empathy and understanding in dementia caregivers: Results from a randomized controlled trial in the Netherlands and the United Kingdom. J Med Internet Res 2015 Oct 30;17(10):e241 [FREE Full text] [doi: 10.2196/jmir.4025] [Medline: 26519106]
48. Torkamani M, McDonald L, Saez AI, Kanios C, Katsanou M, Madeley L, et al. A randomized controlled pilot study to evaluate a technology platform for the assisted living of people with dementia and their carers. J Alzheimers Dis 2014;41(2):515-523. [doi: 10.3233/JAD-132156] [Medline: 24643137]
49. Public Health Agency of Canada. PHAC-ASPC. 2014 Sep 09. The Chief Public Health Officer's report on the State of Public Health in Canada, 2014: Public health in the future URL: Http://www.phac-aspc.gc.ca/cphorsphc-respcacsp/2014/ tech-eng.php [accessed 2017-02-22] [WebCite Cache ID 6oTRuYeDK]
50. Dam AE, de Vugt ME, Klinkenberg IP, Verhey FR, van Boxtel MP. A systematic review of social support interventions for caregivers of people with dementia: Are they doing what they promise? Maturitas 2016 Mar;85:117-130. [doi: 10.1016/j.maturitas.2015.12.008] [Medline: 26857890]
51. Sidani S, Braden CJ. Design, Evaluation, and Translation of Nursing Interventions. Chichester: Wiley-Blackwell; 2011.
52. Ploeg J, Matthew-Maich N, Fraser K, Dufour S, McAiney C, Kaasalainen S, et al. Managing multiple chronic conditions in the community: A Canadian qualitative study of the experiences of older adults, family caregivers and healthcare providers. BMC Geriatr 2017 Jan;17(1):40. [doi: 10.1186/s12877-017-0431-6] [Medline: 28143412]