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Volumn 44, Issue 1, 2016, Pages 143-155

The European Union’s adequacy approach to privacy and international data sharing in health research

Author keywords

[No Author keywords available]

Indexed keywords

EUROPEAN UNION; HUMAN; INFORMATION DISSEMINATION; PRIVACY;

EID: 85025818165     PISSN: 10731105     EISSN: 1748720X     Source Type: Journal    
DOI: 10.1177/1073110516644205     Document Type: Article
Times cited : (21)

References (31)
  • 1
    • 85025828499 scopus 로고    scopus 로고
    • Summary of Principles Agreed at the First International Strategy Meeting on Human Genome Sequencing, Bermuda, 25-28 February 1996 (HUGO, 1996), last visited October 9
    • Summary of Principles Agreed at the First International Strategy Meeting on Human Genome Sequencing, Bermuda, 25-28 February 1996 (HUGO, 1996), available at (last visited October 9, 2015).
    • (2015)
  • 2
    • 85025838692 scopus 로고    scopus 로고
    • Sharing Data from Large-Scale Biological Research Projects: A System of Tripartite Responsibility
    • The Wellcome Trust, January
    • The Wellcome Trust, “Sharing Data from Large-Scale Biological Research Projects: A System of Tripartite Responsibility,” Fort Lauderdale, January 2003
    • (2003) Fort Lauderdale
  • 3
    • 70249116045 scopus 로고    scopus 로고
    • Prepublication data sharing
    • Toronto International Data Release Workshop Authors
    • Toronto International Data Release Workshop Authors, “Prepublication data sharing,” Nature 461, no. 7261 (2009): 168-170
    • (2009) Nature , vol.461 , Issue.7261 , pp. 168-170
  • 5
    • 85025817958 scopus 로고    scopus 로고
    • Delusions of Adequacy? Examining the Case for Finding the United States Adequate for Cross-Border EUU. S. Data Transfers
    • C. Wolf, “Delusions of Adequacy? Examining the Case for Finding the United States Adequate for Cross-Border EUU. S. Data Transfers,” Washington University Journal of Law and Policy 43 (2014): 227-257, at
    • (2014) Washington University Journal of Law and Policy , vol.43 , pp. 227-257
    • Wolf, C.1
  • 6
    • 0035998614 scopus 로고    scopus 로고
    • Personal Data Privacy Protection in an Age of Globalization: The US-EU Safe Harbor Compromise
    • W. J. Long and M. P. Quek, “Personal Data Privacy Protection in an Age of Globalization: The US-EU Safe Harbor Compromise,” Journal of European Public Policy 9, no. 3 (2002): 325-344.
    • (2002) Journal of European Public Policy , vol.9 , Issue.3 , pp. 325-344
    • Long, W.J.1    Quek, M.P.2
  • 8
    • 84924633598 scopus 로고    scopus 로고
    • Building a Data Sharing Model for Global Genomic Research
    • P. Kosseim, E. S. Dove, and C. Baggaley et al., “Building a Data Sharing Model for Global Genomic Research,” Genome Biology 15, no. 8 (2014): 430-436.
    • (2014) Genome Biology , vol.15 , Issue.8 , pp. 430-436
    • Kosseim, P.1    Dove, E.S.2    Baggaley, C.3
  • 11
    • 77954721433 scopus 로고    scopus 로고
    • Public Opinions about Participating in Health Research
    • Teschke et al, 163
    • Teschke et al, “Public Opinions about Participating in Health Research,” Canadian Journal of Public Health 101 (2010): 159-164, at 163.
    • (2010) Canadian Journal of Public Health , vol.101 , pp. 159-164
  • 12
    • 85025839888 scopus 로고    scopus 로고
    • See Asia-Pacific Economic Cooperation
    • While the Asia-Pacific Economic Cooperation has adopted its own data-sharing model, fewer jurisdictions have signed on to it, last visited February 19
    • While the Asia-Pacific Economic Cooperation has adopted its own data-sharing model, fewer jurisdictions have signed on to it. See Asia-Pacific Economic Cooperation, APEC Privacy Framework, available at (last visited February 19, 2016)
    • (2016) APEC Privacy Framework
  • 13
    • 85025834889 scopus 로고    scopus 로고
    • Global Data Privacy Laws 2015: 109 Countries, with European Laws Now a Minority
    • at 6
    • G. Greenleaf, “Global Data Privacy Laws 2015: 109 Countries, with European Laws Now a Minority,” Privacy Laws and Business International Report 133 (2015): 1-7, at 6.
    • (2015) Privacy Laws and Business International Report , vol.133 , pp. 1-7
    • Greenleaf, G.1
  • 16
    • 85025842038 scopus 로고    scopus 로고
    • Article 29 Data Protection Working Party, Opinion 2/2001 on the Adequacy of the Canadian Personal Information and Electronic Documents Act
    • Article 29 Data Protection Working Party, Opinion 2/2001 on the Adequacy of the Canadian Personal Information and Electronic Documents Act, available at
  • 19
    • 85025841218 scopus 로고    scopus 로고
    • Office of the Privacy Commissioner of Canada, last visited February 19
    • Office of the Privacy Commissioner of Canada, Privacy “Legislation in Canada,” available at (last visited February 19, 2016).
    • (2016) Privacy “Legislation in Canada,”
  • 20
    • 85025811823 scopus 로고    scopus 로고
    • Q: When Is Adequacy Never Adequate? A. When Québecs Data Protection Law Is Considered ‘Inadequate’ for Europe,”
    • July 2014, last visited May 29
    • E. Gratton, “Q: When Is Adequacy Never Adequate? A. When Québec’s Data Protection Law Is Considered ‘Inadequate’ for Europe,” Nymity, Privacy Interviews with Experts, July 2014, available at (last visited May 29, 2015).
    • (2015) Nymity, Privacy Interviews with Experts
    • Gratton, E.1
  • 21
    • 84890353893 scopus 로고    scopus 로고
    • Data Protection Regimes in Africa: Too Far from the European ‘Adequacy Standard?”
    • A. B. Makulilo, “Data Protection Regimes in Africa: Too Far from the European ‘Adequacy’ Standard?” International Data Privacy Law 3, no. 1 (2013): 42-50.
    • (2013) International Data Privacy Law , vol.3 , Issue.1 , pp. 42-50
    • Makulilo, A.B.1
  • 23
    • 85025834114 scopus 로고    scopus 로고
    • Consultation in the Context of the Review of the World Anti-Doping Code and Its International Standards,”, last visited February 19
    • Consultation in the Context of the Review of the World Anti-Doping Code and Its International Standards,” available at (last visited February 19, 2016).
    • (2016)
  • 24
    • 85018745431 scopus 로고    scopus 로고
    • EU Adequacy Decisions: The Proposed New Possibilities
    • P. Blume, “EU Adequacy Decisions: The Proposed New Possibilities,” International Data Privacy Law 5, no. 1 (2015): 34-39.
    • (2015) International Data Privacy Law , vol.5 , Issue.1 , pp. 34-39
    • Blume, P.1
  • 25
    • 84856408970 scopus 로고    scopus 로고
    • Not Entirely Adequate but Far Away: Lessons from How Europe Sees New Zealand Data Protection
    • G. Greenleaf and L. A. Bygrave, “Not Entirely Adequate but Far Away: Lessons from How Europe Sees New Zealand Data Protection,” Privacy Laws and Business International Report 111 (2011): 8-9.
    • (2011) Privacy Laws and Business International Report , vol.111 , pp. 8-9
    • Greenleaf, G.1    Bygrave, L.A.2
  • 26
    • 85025815975 scopus 로고    scopus 로고
    • Article 29 Data Protection Working Party, Opinion 6/2009 of 1 December 2009 on the Level of Protection of Personal Data in Israel, at 15, last visited February 19, [Israel Opinion]
    • Article 29 Data Protection Working Party, Opinion 6/2009 of 1 December 2009 on the Level of Protection of Personal Data in Israel, at 15, available at (last visited February 19, 2016) [Israel Opinion].
    • (2016)
  • 28
    • 79751519568 scopus 로고    scopus 로고
    • Privacy on the Books and on the Ground
    • K. Bamberger and D. K. Mulligan, “Privacy on the Books and on the Ground,” Stanford Law Review 63 (2011): 247-315.
    • (2011) Stanford Law Review , vol.63 , pp. 247-315
    • Bamberger, K.1    Mulligan, D.K.2
  • 31
    • 85025824805 scopus 로고    scopus 로고
    • European Data Protection Supervisor, Leading by Example: The EDPS Strategy 2015-2019, last visited February 19, [EDPS Plan]
    • European Data Protection Supervisor, Leading by Example: The EDPS Strategy 2015-2019, available at (last visited February 19, 2016) [EDPS Plan].
    • (2016)


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.