Patient-perceived treatment burden of chronic obstructive pulmonary disease

International Journal of COPD

Volumn 12, Issue , 2017, Pages 1641-1652

  Harb, Nathan ^a,b   Foster, Juliet M ^c   Dobler, Claudia C ^a,b,c  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b LIVERPOOL HOSPITAL   (Australia)

^c UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Burden; Chronic obstructive pulmonary disease; COPD; Patient experience; Patient perspective; Treatment burden

Indexed keywords

EUCALYPTUS OIL; PREDNISONE;

AGE; AGED; AIRWAY OBSTRUCTION; ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CLINICAL ARTICLE; COMORBIDITY; CONCEPTUAL FRAMEWORK; DISEASE SEVERITY; FEMALE; FORCED EXPIRATORY VOLUME; HOME CARE; HUMAN; KINESIOTHERAPY; MALE; PATIENT ATTITUDE; PREDICTION; PULMONARY REHABILITATION; SEMI STRUCTURED INTERVIEW; SEX; SMOKING CESSATION; ATTITUDE TO HEALTH; COPING BEHAVIOR; COST OF ILLNESS; EXERCISE; HEALTH BEHAVIOR; HOSPITAL MANAGEMENT; INTERVIEW; LUNG; MIDDLE AGED; PATHOPHYSIOLOGY; PATIENT; PATIENT COMPLIANCE; PERCEPTION; PSYCHOLOGY; SEVERITY OF ILLNESS INDEX; VERY ELDERLY;

ADAPTATION, PSYCHOLOGICAL; AGED; AGED, 80 AND OVER; APPOINTMENTS AND SCHEDULES; COMORBIDITY; COST OF ILLNESS; EXERCISE; FEMALE; FORCED EXPIRATORY VOLUME; HEALTH BEHAVIOR; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INTERVIEWS AS TOPIC; LUNG; MALE; MIDDLE AGED; PATIENT COMPLIANCE; PATIENTS; PERCEPTION; PULMONARY DISEASE, CHRONIC OBSTRUCTIVE; SEVERITY OF ILLNESS INDEX; SMOKING CESSATION;

EID: 85020457703     PISSN: 11769106     EISSN: 11782005     Source Type: Journal    
DOI: 10.2147/COPD.S130353     Document Type: Article

References (33)

1. Demain S, Gonçalves AC, Areia C, et al. Living with, managing and minimising treatment burden in long term conditions: a systematic review of qualitative research. PloS One. 2015;10(5):e0125457.
2. Chambers JA, O’Carroll RE, Hamilton B, et al. Adherence to medication in stroke survivors: a qualitative comparison of low and high adherers. Br J Health Psychol. 2011;16(3):592–609.
3. Tran VT, Montori VM, Eton DT, Baruch D, Falissard B, Ravaud P. Development and description of measurement properties of an instrument to assess treatment burden among patients with multiple chronic conditions. BMC Med. 2012;10:68.
4. O’Carroll R, Whittaker J, Hamilton B, Johnston M, Sudlow C, Dennis M. Predictors of adherence to secondary preventive medication in stroke patients. Ann Behav Med. 2011;41(3):383–390.
5. Gallacher K, Bhautesh J, Deborah M, et al. Qualitative systematic reviews of treatment burden in stroke, heart failure and diabetes: methodological challenges and solutions. BMC Med Res Methodol. 2013;13:10.
6. Punekar YS, Landis SH, Wurst K, Le H. Characteristics, disease burden and costs of COPD patients in the two years following initiation of long-acting bronchodilators in UK primary care. Respir Res. 2015; 16:141.
7. World Health Organization. World Health Statistics 2008. Geneva: WHO; 2008.
8. Loddenkemper R, Gibson G, Sibille Y, Lundbäck B, Fletcher M. Lung Health in Europe: Facts and Figures. Sheffield: European Lung Foundation; 2013.
9. Vermeire P. The burden of chronic obstructive pulmonary disease. Respir Med. 2002;96 (Suppl C):S3–S10.
10. Jones PW, Watz H, Wouters EF, Cazzola M. COPD: the patient perspective. Int J Chron Obstruct Pulmon Dis. 2016;11:13–20.
11. Izquierdo J, Barcina C, Jiménez J, Muñoz M, Leal M. Study of the burden on patients with chronic obstructive pulmonary disease. Int J Clin Pract. 2009;63(1):87–97.
12. Haughney J, Partridge M, Vogelmeier C, et al. Exacerbations of COPD: quantifying the patient’s perspective using discrete choice modelling. Eur Respir J. 2005;26(4):623–629.
13. Gallacher K, Morrison D, Jani B, et al. Uncovering treatment burden as a key concept for stroke care: a systematic review of qualitative research. PLoS Med. 2013;10(6):e1001473.
14. Vijan S, Hayward RA, Ronis DL, Hofer TP. Brief report: the burden of diabetes therapy. J Gen Intern Med. 2005;20(5):479–482.
15. Bohlen K, Scoville E, Shippee ND, May CR, Montori VM. Overwhelmed patients a videographic analysis of how patients with type 2 diabetes and clinicians articulate and address treatment burden during clinical encounters. Diabetes Care. 2012;35(1):47–49.
16. Hyland ME, Whalley B, Jones RC, Masoli M. A qualitative study of the impact of severe asthma and its treatment showing that treatment burden is neglected in existing asthma assessment scales. Qual Life Res. 2015;24(3):631–639.
17. Lang JE, Hossain J, Smith K, Lima JJ. Asthma severity, exacerbation risk, and controller treatment burden in underweight and obese children. J Asthma. 2012;49(5):456–463.
18. Sawicki GS, Sellers DE, Robinson WM. High treatment burden in adults with cystic fibrosis: challenges to disease self-management. J Cyst Fibros. 2009;8(2):91–96.
19. Sawicki GS, Tiddens H. Managing treatment complexity in cystic fibrosis: challenges and opportunities. Pediatr Pulmonol. 2012;47(6): 523–533.
20. Patton MQ. Qualitative Evaluation and Research Methods. 2nd ed. Thousand Oaks, CA: Sage; 1990.
21. Jones P, Harding G, Berry P, Wiklund I, Chen W, Leidy NK. Development and first validation of the COPD Assessment Test. Eur Respir J. 2009;34(3):648–654.
22. Eton DT, Ramalho de Oliveira D, Egginton JS, et al. Building a measurement framework of burden of treatment in complex patients with chronic conditions: a qualitative study. Patient Relat Outcome Meas. 2012;3:39–49.
23. Ritchie J, Lewis J, Nicholls CM, Ormston R. Qualitative Research Practice: A Guide for Social Science Students and Researchers. Thousand Oaks, CA: Sage; 2013.
24. Eton DT, Ridgeway JL, Egginton JS, et al. Finalizing a measurement framework for the burden of treatment in complex patients with chronic conditions. Patient Relat Outcome Meas. 2015;6:117–126.
25. Miles MB, Huberman AM. Qualitative Data Analysis: A Sourcebook of New Methods. Thousand Oaks, CA: Sage; 1984.
26. Lee H, Kim J, Tagmazyan K. Treatment of stable chronic obstructive pulmonary disease: the GOLD guidelines. Am Fam Physician. 2013; 88(10):655–663.
27. Meis JJ, Bosma CB, Spruit MA, et al. A qualitative assessment of COPD patients’ experiences of pulmonary rehabilitation and guidance by healthcare professionals. Respir Med. 2014;108(3):500–510.
28. Summers R, Ballinger C, Bruton A, Garrod R, Leontowitsch M. Goal setting in rehabilitation for people with COPD: respiratory physiotherapists’ perspectives. Eur Respir J. 2015;46 (Suppl 59):PA4209.
29. Arnold E, Bruton A, Ellis-Hill C. Adherence to pulmonary rehabilitation: a qualitative study. Respir Med. 2006;100(10):1716–1723.
30. Vuong K, Hermiz O, Razee H, Richmond R, Zwar N. The experiences of smoking cessation among patients with chronic obstructive pulmonary disease in Australian general practice: a qualitative descriptive study. Fam Pract. 2016;33(6):715–720.
31. Kemp EC, Floyd MR, McCord-Duncan E, Lang F. Patients prefer the method of “tell back-collaborative inquiry” to assess understanding of medical information. J Am Board Fam Med. 2008;21(1):24–30.
32. Donovan JL, Blake DR. Patient non-compliance: deviance or reasoned decision-making? Soc Sci Med. 1992;34(5):507–513.
33. Abu Dabrh AM, Gallacher K, Boehmer K, Hargraves I, Mair F. Minimally disruptive medicine: the evidence and conceptual progress supporting a new era of healthcare. J R Coll Physicians Edinb. 2014; 45(2):114–117.