-
1
-
-
0242552237
-
Managing sickle cell disease
-
Claster S, Vichinsky EP. Managing sickle cell disease. BMJ. 2003;327(7424):1151-5.
-
(2003)
BMJ
, vol.327
, Issue.7424
, pp. 1151-1155
-
-
Claster, S.1
Vichinsky, E.P.2
-
2
-
-
84922250849
-
Adult sickle cell quality of life measurement information system (ASCQ-Me): conceptual model based on review of the literature and formative research
-
Treadwell MT, et al. Adult sickle cell quality of life measurement information system (ASCQ-Me): conceptual model based on review of the literature and formative research. Clin J Pain. 2013;30(10):902-14.
-
(2013)
Clin J Pain
, vol.30
, Issue.10
, pp. 902-914
-
-
Treadwell, M.T.1
-
3
-
-
84910036517
-
Patient reports of health outcome for adults living with sickle cell disease: development and testing of ASCQ-Me item banks
-
Keller SD, et al. Patient reports of health outcome for adults living with sickle cell disease: development and testing of ASCQ-Me item banks. Health Qual Life Outcomes. 2014;22:125.
-
(2014)
Health Qual Life Outcomes
, vol.22
, pp. 125
-
-
Keller, S.D.1
-
4
-
-
67649573353
-
Department of Health and Human Services, editor
-
RFA-CA-13-008: Person-centered outcomes research resource
-
N.I.H. Department of Health and Human Services, editor. RFA-CA-13-008: Person-centered outcomes research resource. 2013.
-
(2013)
-
-
-
5
-
-
84983035874
-
News from the NIH: Person-centered outcomes measurement: NIH-supported measurement systems to evaluate self-assessed health, functional performance, and symptomatic toxicity
-
Smith A, et al. News from the NIH: Person-centered outcomes measurement: NIH-supported measurement systems to evaluate self-assessed health, functional performance, and symptomatic toxicity. Transl Behav Med. 2016;6(3):470-74.
-
(2016)
Transl Behav Med.
, vol.6
, Issue.3
, pp. 470-474
-
-
Smith, A.1
-
6
-
-
33644801736
-
The promise of PROMIS: using item response theory to improve assessment of patient-reported outcomes
-
Fries JF, Bruce B, Cella D. The promise of PROMIS: using item response theory to improve assessment of patient-reported outcomes. Clin Exp Rheumatol. 2005;23(5 Suppl 39):S53-7.
-
(2005)
Clin Exp Rheumatol
, vol.23
, Issue.5
, pp. S53-S57
-
-
Fries, J.F.1
Bruce, B.2
Cella, D.3
-
7
-
-
34247363702
-
Evaluation of item candidates: the PROMIS qualitative item review
-
DeWalt DA, et al. Evaluation of item candidates: the PROMIS qualitative item review. Med Care. 2007;45(5 Suppl 1):S12-21.
-
(2007)
Med Care
, vol.45
, Issue.5
, pp. S12-21
-
-
DeWalt, D.A.1
-
8
-
-
34447123367
-
The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment
-
Cella D, et al. The future of outcomes measurement: item banking, tailored short-forms, and computerized adaptive assessment. Qual Life Res. 2007;16 Suppl 1:133-41.
-
(2007)
Qual Life Res
, vol.16
, pp. 133-141
-
-
Cella, D.1
-
9
-
-
34247360479
-
Developing the Patient-Reported Outcomes Measurement Information System (PROMIS)
-
Adler D. Developing the Patient-Reported Outcomes Measurement Information System (PROMIS). Med Care. 2007;45(5):S1-2.
-
(2007)
Med Care
, vol.45
, Issue.5
, pp. S1-S2
-
-
Adler, D.1
-
10
-
-
64549091968
-
Comparisons of high versus low emergency department utilizers in sickle cell disease
-
Aisiku IP, et al. Comparisons of high versus low emergency department utilizers in sickle cell disease. Ann Emerg Med. 2009;53(5):587-93.
-
(2009)
Ann Emerg Med
, vol.53
, Issue.5
, pp. 587-593
-
-
Aisiku, I.P.1
-
11
-
-
45549101008
-
National Institutes of Health Consensus Development Conference statement: hydroxyurea treatment for sickle cell disease
-
Brawley OW, et al. National Institutes of Health Consensus Development Conference statement: hydroxyurea treatment for sickle cell disease. Ann Intern Med. 2008;148(12):932-8. PMID: 18458271, Epub 2008 May 5.
-
(2008)
Ann Intern Med
, vol.148
, Issue.12
, pp. 932-938
-
-
Brawley, O.W.1
-
12
-
-
84959368742
-
Central nervous system complications and management in sickle cell disease
-
DeBaun MR, Kirkman FJ. Central nervous system complications and management in sickle cell disease. Blood. 2016;127(7):829-38.
-
(2016)
Blood.
, vol.127
, Issue.7
, pp. 829-838
-
-
DeBaun, M.R.1
Kirkman, F.J.2
-
13
-
-
77951712618
-
Improved survival of children and adolescents with sickle cell disease
-
Quinn CT, et al. Improved survival of children and adolescents with sickle cell disease. Blood. 2010;115(17):3447-52.
-
(2010)
Blood
, vol.115
, Issue.17
, pp. 3447-3452
-
-
Quinn, C.T.1
-
14
-
-
84868624911
-
Transition and sickle cell disease
-
DeBaun MR, Telfair J. Transition and sickle cell disease. Pediatrics. 2012;130(5):926-35.
-
(2012)
Pediatrics
, vol.130
, Issue.5
, pp. 926-935
-
-
DeBaun, M.R.1
Telfair, J.2
-
15
-
-
34249029657
-
Incidence of invasive pneumococcal disease among individuals with sickle cell disease before and after the introduction of the pneumococcal conjugate vaccine
-
Halasa NB, et al. Incidence of invasive pneumococcal disease among individuals with sickle cell disease before and after the introduction of the pneumococcal conjugate vaccine. Clin Infect Dis. 2007;44(11):1428-33.
-
(2007)
Clin Infect Dis
, vol.44
, Issue.11
, pp. 1428-1433
-
-
Halasa, N.B.1
-
16
-
-
84907016412
-
Management of sickle cell disease: summary of the 2014 evidence-based report by expert panel members
-
Yawn BP, et al. Management of sickle cell disease: summary of the 2014 evidence-based report by expert panel members. Jama. 2014;312(10):1033-48.
-
(2014)
Jama
, vol.312
, Issue.10
, pp. 1033-1048
-
-
Yawn, B.P.1
-
17
-
-
85020027144
-
Workshop on Adults with Sickle Cell Diseases: Meeting Unmet Needs
-
National Heart, Lung and Blood Institute [website]. Workshop on Adults with Sickle Cell Diseases: Meeting Unmet Needs. Executive Summary and Recommendations. Retrieved September 8, 2015, from http://www.nhlbi.nih.gov/meetings/scdmtng/execsum.htm.
-
Executive Summary and Recommendations. Retrieved September
, vol.8
, pp. 2015
-
-
-
18
-
-
85019717957
-
Health-related quality of life and adherence to hydroxyurea in adolescents and young adults with sickle cell disease
-
Nov. [Epub ahead of print]
-
Badawy SM, et al. Health-related quality of life and adherence to hydroxyurea in adolescents and young adults with sickle cell disease. Pediatr Blood Cancer. 2016 Nov.;28 [Epub ahead of print].
-
(2016)
Pediatr Blood Cancer.
, pp. 28
-
-
Badawy, S.M.1
-
19
-
-
84921418905
-
Health-related quality of life in children with sickle cell anemia: impact of blood transfusion therapy
-
Beverung LM, et al. Health-related quality of life in children with sickle cell anemia: impact of blood transfusion therapy. Am J Hematol. 2015;90(2):139-43.
-
(2015)
Am J Hematol
, vol.90
, Issue.2
, pp. 139-143
-
-
Beverung, L.M.1
-
20
-
-
84924278004
-
Health-related quality of life after allogeneic hematopoietic stem cell transplantation for sickle cell disease
-
Bhatia M, et al. Health-related quality of life after allogeneic hematopoietic stem cell transplantation for sickle cell disease. Biol Blood Marrow Transplant. 2015;21(4):666-72.
-
(2015)
Biol Blood Marrow Transplant
, vol.21
, Issue.4
, pp. 666-672
-
-
Bhatia, M.1
-
21
-
-
84864915209
-
Journeys to recovery study, HSCT-CHESS™ study. Health-related quality of life (HRQL) in children with sickle cell disease and thalassemia following hematopoietic stem cell transplant (HSCT)
-
Kelly MJ, et al. Journeys to recovery study, HSCT-CHESS™ study. Health-related quality of life (HRQL) in children with sickle cell disease and thalassemia following hematopoietic stem cell transplant (HSCT). Pediatr Blood Cancer. 2012;59(4):725-31. Epub 2011 Dec 19.
-
(2012)
Pediatr Blood Cancer
, vol.59
, Issue.4
, pp. 725-731
-
-
Kelly, M.J.1
-
22
-
-
79955497632
-
Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea
-
Thornburg CD, et al. Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea. J Pediatr Hematol Oncol. 2011;33(4):251-4.
-
(2011)
J Pediatr Hematol Oncol
, vol.33
, Issue.4
, pp. 251-254
-
-
Thornburg, C.D.1
-
23
-
-
34447115830
-
Developing tailored instruments: item banking and computerized adaptive assessment
-
Bjorner JB, et al. Developing tailored instruments: item banking and computerized adaptive assessment. Qual Life Res. 2007;16 Suppl 1:95-108.
-
(2007)
Qual Life Res
, vol.16
, pp. 95-108
-
-
Bjorner, J.B.1
-
24
-
-
34247385541
-
Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS)
-
Reeve BB, et al. Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS). Med Care. 2007;45(5 Suppl 1):S22-31.
-
(2007)
Med Care
, vol.45
, Issue.5
, pp. S22-31
-
-
Reeve, B.B.1
-
25
-
-
85019994007
-
Development of an "R"-Based Computer Adaptive Assessment of Health Based on Patient Reports of their Functioning and Wellbeing
-
Aug 4-7; Washington, D.C
-
Keller S, Yang M. Development of an "R"-Based Computer Adaptive Assessment of Health Based on Patient Reports of their Functioning and Wellbeing. Poster presented at: The 119th Annual American Psychological Association Convention; Aug 4-7 2011; Washington, D.C.
-
(2011)
Poster presented at: The 119th Annual American Psychological Association Convention
-
-
Keller, S.1
Yang, M.2
-
26
-
-
0024637480
-
Generic and disease-specific measures in assessing health status and quality of life
-
Patrick DL, Deyo RA. Generic and disease-specific measures in assessing health status and quality of life. Med Care. 1989;27(3 Suppl):S217-32.
-
(1989)
Med Care
, vol.27
, Issue.3
, pp. S217-S232
-
-
Patrick, D.L.1
Deyo, R.A.2
-
27
-
-
0026859852
-
Methods for assessing condition-specific and generic functional status outcomes after total knee replacement
-
Kantz ME, et al. Methods for assessing condition-specific and generic functional status outcomes after total knee replacement. Med Care. 1992;30(5 Suppl):Ms240-52.
-
(1992)
Med Care
, vol.30
, Issue.5
, pp. 240-252
-
-
Kantz, M.E.1
-
28
-
-
53149106655
-
Views of older persons with multiple morbidities on competing outcomes and clinical decision-making
-
Fried TR, et al. Views of older persons with multiple morbidities on competing outcomes and clinical decision-making. J Am Geriatr Soc. 2008;56(10):1839-44.
-
(2008)
J Am Geriatr Soc
, vol.56
, Issue.10
, pp. 1839-1844
-
-
Fried, T.R.1
-
29
-
-
0028953590
-
Longitudinal sensitivity of generic and specific health measures in chronic sinusitis
-
Gliklich RE, Hilinski JM. Longitudinal sensitivity of generic and specific health measures in chronic sinusitis. Qual Life Res. 1995;4(1):27-32.
-
(1995)
Qual Life Res
, vol.4
, Issue.1
, pp. 27-32
-
-
Gliklich, R.E.1
Hilinski, J.M.2
-
30
-
-
77956957760
-
Relative to the general US population, chronic diseases are associated with poorer health-related quality of life as measured by the Patient-Reported Outcomes Measurement Information System (PROMIS)
-
Rothrock NE, et al. Relative to the general US population, chronic diseases are associated with poorer health-related quality of life as measured by the Patient-Reported Outcomes Measurement Information System (PROMIS). J Clin Epidemiol. 2010;63(11):1195-204.
-
(2010)
J Clin Epidemiol
, vol.63
, Issue.11
, pp. 1195-1204
-
-
Rothrock, N.E.1
-
32
-
-
0032037521
-
Comparative responsiveness of generic versus disease-specific and weighted versus unweighted health status measures in carpal tunnel syndrome
-
Bessette L, et al. Comparative responsiveness of generic versus disease-specific and weighted versus unweighted health status measures in carpal tunnel syndrome. Med Care. 1998;36(4):491-502.
-
(1998)
Med Care
, vol.36
, Issue.4
, pp. 491-502
-
-
Bessette, L.1
-
33
-
-
84875745423
-
Condition-specific measure was more responsive than generic measure in colorectal cancer: all but social domains
-
Wong CK, et al. Condition-specific measure was more responsive than generic measure in colorectal cancer: all but social domains. J Clin Epidemiol. 2013;66(5):557-65.
-
(2013)
J Clin Epidemiol
, vol.66
, Issue.5
, pp. 557-565
-
-
Wong, C.K.1
-
34
-
-
0037444402
-
Is a condition-specific instrument for patients with low back pain/leg symptoms really necessary? The responsiveness of the Oswestry Disability Index, MODEMS, and the SF-36
-
Walsh TL, et al. Is a condition-specific instrument for patients with low back pain/leg symptoms really necessary? The responsiveness of the Oswestry Disability Index, MODEMS, and the SF-36. Spine (Phila Pa 1976). 2003;28(6):607-15.
-
(2003)
Spine (Phila Pa 1976)
, vol.28
, Issue.6
, pp. 607-615
-
-
Walsh, T.L.1
-
35
-
-
84897987169
-
Validation of GAITRite and PROMIS as high-throughput physical function outcome measures following ACL reconstruction
-
Papuga MO, et al. Validation of GAITRite and PROMIS as high-throughput physical function outcome measures following ACL reconstruction. J Orthop Res. 2014;32(6):793-801.
-
(2014)
J Orthop Res
, vol.32
, Issue.6
, pp. 793-801
-
-
Papuga, M.O.1
-
36
-
-
84879230959
-
TM sickle cell disease module: feasibility. reliability and validity
-
TM sickle cell disease module: feasibility. reliability and validity. Pediatr Blood Cancer. 2013;60(8):1338-44.
-
(2013)
Pediatr Blood Cancer
, vol.60
, Issue.8
, pp. 1338-1344
-
-
Panepinto, J.A.1
-
37
-
-
0020583112
-
A study of the natural history of back pain. Part I: development of a reliable and sensitive measure of disability in low-back pain
-
Roland M, Morris R. A study of the natural history of back pain. Part I: development of a reliable and sensitive measure of disability in low-back pain. Spine (Phila Pa 1976). 1983;8(2):141-4.
-
(1983)
Spine (Phila Pa 1976)
, vol.8
, Issue.2
, pp. 141-144
-
-
Roland, M.1
Morris, R.2
-
38
-
-
16444374605
-
The role of generic and disease-specific measures of physical and role functioning in assessing patient outcomes: a longitudinal study
-
Ren XS, et al. The role of generic and disease-specific measures of physical and role functioning in assessing patient outcomes: a longitudinal study. J Ambul Care Manage. 2005;28(2):157-66.
-
(2005)
J Ambul Care Manage
, vol.28
, Issue.2
, pp. 157-166
-
-
Ren, X.S.1
-
39
-
-
84964983521
-
Guidance for Industry: Patient-Reported Outcome Measures: Use in Medical Product Development to Support labeling Claims
-
Accessed 25 Apr
-
US Food and Drug Administration. Guidance for Industry: Patient-Reported Outcome Measures: Use in Medical Product Development to Support labeling Claims Available from: https://www.fda.gov/downloads/drugs/guidances/ucm193282.pdf. Accessed 25 Apr 2017.
-
(2017)
-
-
-
40
-
-
0023262407
-
A measure of quality of life for clinical trials in chronic lung disease
-
Guyatt GH, et al. A measure of quality of life for clinical trials in chronic lung disease. Thorax. 1987;42(10):773-8.
-
(1987)
Thorax
, vol.42
, Issue.10
, pp. 773-778
-
-
Guyatt, G.H.1
-
41
-
-
10144251746
-
The European Organization for Research and Treatment of Cancer breast cancer-specific quality-of-life questionnaire module: first results from a three-country field study
-
Sprangers MA, et al. The European Organization for Research and Treatment of Cancer breast cancer-specific quality-of-life questionnaire module: first results from a three-country field study. J Clin Oncol. 1996;14(10):2756-68.
-
(1996)
J Clin Oncol
, vol.14
, Issue.10
, pp. 2756-2768
-
-
Sprangers, M.A.1
-
42
-
-
0030036098
-
Quality of life in patients with Parkinson's disease: development of a questionnaire
-
de Boer AG, et al. Quality of life in patients with Parkinson's disease: development of a questionnaire. J Neurol Neurosurg Psychiatry. 1996;61(1):70-4.
-
(1996)
J Neurol Neurosurg Psychiatry
, vol.61
, Issue.1
, pp. 70-74
-
-
Boer, A.G.1
-
43
-
-
0026695249
-
A scale for the measurement of quality of life in adults with asthma
-
Marks GB, Dunn SM, Woolcock AJ. A scale for the measurement of quality of life in adults with asthma. J Clin Epidemiol. 1992;45(5):461-72.
-
(1992)
J Clin Epidemiol
, vol.45
, Issue.5
, pp. 461-472
-
-
Marks, G.B.1
Dunn, S.M.2
Woolcock, A.J.3
-
44
-
-
0032874860
-
The stroke impact scale version 2.0: evaluation of reliability, validity, and sensitivity to change
-
Duncan PW, et al. The stroke impact scale version 2.0: evaluation of reliability, validity, and sensitivity to change. Stroke. 1999;30(10):2131-40.
-
(1999)
Stroke
, vol.30
, Issue.10
, pp. 2131-2140
-
-
Duncan, P.W.1
-
45
-
-
84865484260
-
New paradigm for patient-reported outcomes assessment in foot & ankle research: computerized adaptive testing
-
Hung M, et al. New paradigm for patient-reported outcomes assessment in foot & ankle research: computerized adaptive testing. Foot Ankle Int. 2012;33(8):621-6.
-
(2012)
Foot Ankle Int
, vol.33
, Issue.8
, pp. 621-626
-
-
Hung, M.1
-
46
-
-
84885954232
-
Comparisons across depression assessment instruments in adolescence and young adulthood: an item response theory study using two linking methods
-
Olino TM, et al. Comparisons across depression assessment instruments in adolescence and young adulthood: an item response theory study using two linking methods. J Abnorm Child Psychol. 2013;41(8):1267-77.
-
(2013)
J Abnorm Child Psychol
, vol.41
, Issue.8
, pp. 1267-1277
-
-
Olino, T.M.1
-
47
-
-
36849085482
-
Evaluation of a preliminary physical function item bank supported the expected advantages of the Patient-Reported Outcomes Measurement Information System (PROMIS)
-
Rose M, et al. Evaluation of a preliminary physical function item bank supported the expected advantages of the Patient-Reported Outcomes Measurement Information System (PROMIS). J Clin Epidemiol. 2008;61(1):17-33.
-
(2008)
J Clin Epidemiol
, vol.61
, Issue.1
, pp. 17-33
-
-
Rose, M.1
-
48
-
-
75149138212
-
Efficiency of static and computer adaptive short forms compared to full-length measures of depressive symptoms
-
Choi SW, et al. Efficiency of static and computer adaptive short forms compared to full-length measures of depressive symptoms. Qual Life Res. 2010;19(1):125-36.
-
(2010)
Qual Life Res
, vol.19
, Issue.1
, pp. 125-136
-
-
Choi, S.W.1
-
49
-
-
84875569882
-
Sickle cell disease
-
Sep 15 [updated 2014 Oct23] In: Pagan RA, et al. editors. Seattle (WA): University of Washington, Seattle; 1993-2016
-
Bender MA, Seibel GD. Sickle cell disease. 2003, Sep 15 [updated 2014 Oct23] In: Pagan RA, et al. editors. GeneReviews® [Internet]. Seattle (WA): University of Washington, Seattle; 1993-2016.
-
(2003)
GeneReviews® [Internet]
-
-
Bender, M.A.1
Seibel, G.D.2
-
50
-
-
58449126877
-
Sickle cell anemia, the first molecular disease: overview of molecular etiology, pathophysiology, and therapeutic approaches
-
Steinberg MH. Sickle cell anemia, the first molecular disease: overview of molecular etiology, pathophysiology, and therapeutic approaches. Scientific World J. 2008;25(8):1295-324.
-
(2008)
Scientific World J
, vol.25
, Issue.8
, pp. 1295-1324
-
-
Steinberg, M.H.1
-
51
-
-
20044367676
-
Predicting clinical severity in sickle cell anaemia
-
Steinberg MH. Predicting clinical severity in sickle cell anaemia. Br J Haematol. 2005;129(4):465-81.
-
(2005)
Br J Haematol
, vol.129
, Issue.4
, pp. 465-481
-
-
Steinberg, M.H.1
-
52
-
-
34948867270
-
A network model to predict the risk of death in sickle cell disease
-
Sebastiani P, et al. A network model to predict the risk of death in sickle cell disease. Blood. 2007;110(7):2727-35.
-
(2007)
Blood
, vol.110
, Issue.7
, pp. 2727-2735
-
-
Sebastiani, P.1
-
53
-
-
69249187951
-
The import of abdominal pain in adults with sickle cell disorder
-
Akinola NO, et al. The import of abdominal pain in adults with sickle cell disorder. West Afr J Med. 2009;28(2):83-6.
-
(2009)
West Afr J Med
, vol.28
, Issue.2
, pp. 83-86
-
-
Akinola, N.O.1
-
54
-
-
0034782782
-
Sickle cell disease: current clinical management
-
Ballas SK, et al. Sickle cell disease: current clinical management. Semin Hematol. 2001;38(4):307-14.
-
(2001)
Semin Hematol
, vol.38
, Issue.4
, pp. 307-314
-
-
Ballas, S.K.1
-
55
-
-
74049109698
-
Genetic modifiers of the severity of sickle cell anemia identified through a genome-wide association study
-
Sebastiani P, et al. Genetic modifiers of the severity of sickle cell anemia identified through a genome-wide association study. Am J Hematol. 2010;85(1):29-35.
-
(2010)
Am J Hematol
, vol.85
, Issue.1
, pp. 29-35
-
-
Sebastiani, P.1
-
56
-
-
33646764967
-
Modifier genes and sickle cell anemia
-
Steinberg MH, Adewoye AH. Modifier genes and sickle cell anemia. Curr Opin Hematol. 2006;13(3):131-6.
-
(2006)
Curr Opin Hematol
, vol.13
, Issue.3
, pp. 131-136
-
-
Steinberg, M.H.1
Adewoye, A.H.2
-
57
-
-
0038540202
-
Hospital resource utilization among patients with sickle cell disease
-
Mayer ML, et al. Hospital resource utilization among patients with sickle cell disease. J Health Care Poor Underserved. 2003;14(1):122-35.
-
(2003)
J Health Care Poor Underserved
, vol.14
, Issue.1
, pp. 122-135
-
-
Mayer, M.L.1
-
58
-
-
64049113589
-
Factors associated with hospital readmission in sickle cell disease
-
Loureiro MM, et al. Factors associated with hospital readmission in sickle cell disease. BMC Blood Disord. 2009;9:2. doi: 10.1186/1471-2326-9-2.
-
(2009)
BMC Blood Disord
, vol.9
, pp. 2
-
-
Loureiro, M.M.1
-
59
-
-
84892430495
-
Severe painful vaso-occlusive crises and mortality in contemporary adult sickle cell anemia cohort study
-
Dabari S, et al. Severe painful vaso-occlusive crises and mortality in contemporary adult sickle cell anemia cohort study. PLoS One. 2013;8(11):e79923.
-
(2013)
PLoS One.
, vol.8
, Issue.11
-
-
Dabari, S.1
-
60
-
-
77954775825
-
Acute kidney injury in sickle patients with painful crisis or acute chest syndrome and its relation to pulmonary hypertension
-
Audard V, et al. Acute kidney injury in sickle patients with painful crisis or acute chest syndrome and its relation to pulmonary hypertension. Nephrol Dial Transplant. 2010;25(8):2524-9.
-
(2010)
Nephrol Dial Transplant
, vol.25
, Issue.8
, pp. 2524-2529
-
-
Audard, V.1
-
61
-
-
62449189504
-
Risk factors for hospital readmission within 30 days: a new quality measure for children with sickle cell disease
-
Frei-Jones MJ, et al. Risk factors for hospital readmission within 30 days: a new quality measure for children with sickle cell disease. Pediatr Blood Cancer. 2009;52(4):481-5.
-
(2009)
Pediatr Blood Cancer
, vol.52
, Issue.4
, pp. 481-485
-
-
Frei-Jones, M.J.1
-
62
-
-
70349492889
-
The course and correlates of high hospital utilization in sickle cell disease: evidence from a large, urban Medicaid managed care organization
-
Carroll CP, et al. The course and correlates of high hospital utilization in sickle cell disease: evidence from a large, urban Medicaid managed care organization. Am J Hematol. 2009;84(10):666-70.
-
(2009)
Am J Hematol
, vol.84
, Issue.10
, pp. 666-670
-
-
Carroll, C.P.1
-
63
-
-
38749109710
-
Daily assessment of pain in adults with sickle cell disease
-
Smith WR, et al. Daily assessment of pain in adults with sickle cell disease. Ann Intern Med. 2008;148(2):94-101.
-
(2008)
Ann Intern Med
, vol.148
, Issue.2
, pp. 94-101
-
-
Smith, W.R.1
-
64
-
-
10944233777
-
Vaso-occlusion in children with sickle cell disease: clinical characteristics and biologic correlates
-
Dampier C, et al. Vaso-occlusion in children with sickle cell disease: clinical characteristics and biologic correlates. J Pediatr Hematol Oncol. 2004;26(12):785-90.
-
(2004)
J Pediatr Hematol Oncol
, vol.26
, Issue.12
, pp. 785-790
-
-
Dampier, C.1
-
65
-
-
70450059035
-
Partial splenectomy prevents splenic sequestration crises in sickle cell disease
-
Vick LR, et al. Partial splenectomy prevents splenic sequestration crises in sickle cell disease. J Pediatr Surg. 2009;44(11):2088-91.
-
(2009)
J Pediatr Surg
, vol.44
, Issue.11
, pp. 2088-2091
-
-
Vick, L.R.1
-
66
-
-
38349124141
-
Sickle cell leg ulcers: a frequently disabling complication and a marker of severity
-
Halabi-Tawil M. Sickle cell leg ulcers: a frequently disabling complication and a marker of severity. Br J Dermatol. 2008;158(2):339-44.
-
(2008)
Br J Dermatol
, vol.158
, Issue.2
, pp. 339-344
-
-
Halabi-Tawil, M.1
-
67
-
-
33646271370
-
Sickle cell leg ulcers: associations with haemolysis and SNPs in Klotho, TEK and genes of the TGF-beta/BMP pathway
-
Nolan VG, et al. Sickle cell leg ulcers: associations with haemolysis and SNPs in Klotho, TEK and genes of the TGF-beta/BMP pathway. Br J Haematol. 2006;133(5):570-8.
-
(2006)
Br J Haematol
, vol.133
, Issue.5
, pp. 570-578
-
-
Nolan, V.G.1
-
68
-
-
33744934804
-
Abnormal pulmonary function in adults with sickle cell anemia
-
Klings ES, et al. Abnormal pulmonary function in adults with sickle cell anemia. Am J Respir Crit Care Med. 2006;173(11):1264-9.
-
(2006)
Am J Respir Crit Care Med
, vol.173
, Issue.11
, pp. 1264-1269
-
-
Klings, E.S.1
-
69
-
-
0029017748
-
Clinical events in the first decade in a cohort of infants with sickle cell disease. Cooperative Study of Sickle Cell Disease
-
Gill FM, et al. Clinical events in the first decade in a cohort of infants with sickle cell disease. Cooperative Study of Sickle Cell Disease. Blood. 1995;86(2):776-83.
-
(1995)
Blood
, vol.86
, Issue.2
, pp. 776-783
-
-
Gill, F.M.1
-
70
-
-
4243055984
-
Health related quality of life in pregeriatric patients with chronic diseases at urban, public supported clinics
-
Cheng L, et al. Health related quality of life in pregeriatric patients with chronic diseases at urban, public supported clinics. Health Qual Life Outcomes. 2003;1:63.
-
(2003)
Health Qual Life Outcomes
, vol.1
, pp. 63
-
-
Cheng, L.1
-
71
-
-
0034834389
-
Functional status, health problems, age and comorbidity in primary care patients
-
Wensing M, et al. Functional status, health problems, age and comorbidity in primary care patients. Qual Life Res. 2001;10(2):141-8.
-
(2001)
Qual Life Res
, vol.10
, Issue.2
, pp. 141-148
-
-
Wensing, M.1
-
72
-
-
0034443279
-
Multiple chronic health problems are negatively associated with health related quality of life (HRQoL) irrespective of age
-
Michelson H, et al. Multiple chronic health problems are negatively associated with health related quality of life (HRQoL) irrespective of age. Qual Life Res. 2000;9(10):1093-104.
-
(2000)
Qual Life Res
, vol.9
, Issue.10
, pp. 1093-1104
-
-
Michelson, H.1
-
73
-
-
58149404656
-
Methods for scoring a check-list type rating scale
-
Meyer HH. Methods for scoring a check-list type rating scale. J Appl Psychol. 1951;35(1):46-9.
-
(1951)
J Appl Psychol
, vol.35
, Issue.1
, pp. 46-49
-
-
Meyer, H.H.1
-
74
-
-
15944428176
-
The psychometric properties of five scoring methods applied to the script concordance test
-
Bland AC, et al. The psychometric properties of five scoring methods applied to the script concordance test. Acad Med. 2005;80(4):395-9.
-
(2005)
Acad Med
, vol.80
, Issue.4
, pp. 395-399
-
-
Bland, A.C.1
-
75
-
-
0026877917
-
The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection
-
Ware Jr JE, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care. 1992;30(6):473-83.
-
(1992)
Med Care
, vol.30
, Issue.6
, pp. 473-483
-
-
Ware, J.E.1
Sherbourne, C.D.2
-
76
-
-
0027674811
-
The RAND 36-Item Health Survey 1.0.
-
Hays RD, et al. The RAND 36-Item Health Survey 1.0. Health Econ. 1993;2(3):217-27.
-
(1993)
Health Econ
, vol.2
, Issue.3
, pp. 217-227
-
-
Hays, R.D.1
-
77
-
-
4243062699
-
The Medicare Health Outcomes Survey program: overview, context, and near-term prospects
-
Jones N, et al. The Medicare Health Outcomes Survey program: overview, context, and near-term prospects. Health Qual Life Outcomes. 2004;2:33.
-
(2004)
Health Qual Life Outcomes
, vol.2
, pp. 33
-
-
Jones, N.1
-
78
-
-
78851469729
-
Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium
-
Dampier C, et al. Health-related quality of life in adults with sickle cell disease (SCD): a report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol. 2011;86(2):203-5.
-
(2011)
Am J Hematol
, vol.86
, Issue.2
, pp. 203-205
-
-
Dampier, C.1
-
79
-
-
39149083377
-
Depression and anxiety in adults with sickle cell disease: the PiSCES project
-
Levenson JL, et al. Depression and anxiety in adults with sickle cell disease: the PiSCES project. Psychosom Med. 2008;70(2):192-6.
-
(2008)
Psychosom Med
, vol.70
, Issue.2
, pp. 192-196
-
-
Levenson, J.L.1
-
80
-
-
77956965736
-
Representativeness of the patient-reported outcomes measurement information system internet panel
-
Liu H, et al. Representativeness of the patient-reported outcomes measurement information system internet panel. J Clin Epidemiol. 2010;63(11):1169-78.
-
(2010)
J Clin Epidemiol
, vol.63
, Issue.11
, pp. 1169-1178
-
-
Liu, H.1
-
81
-
-
77956946824
-
Initial item banks and first wave testing of the Patient-Reported Outcomes Measurement Information System (PROMIS) network: 2005-2008
-
Cella D, et al. Initial item banks and first wave testing of the Patient-Reported Outcomes Measurement Information System (PROMIS) network: 2005-2008. J Clin Epidemiol. 2010;63(11):1169-94.
-
(2010)
J Clin Epidemiol
, vol.63
, Issue.11
, pp. 1169-1194
-
-
Cella, D.1
-
82
-
-
33845945922
-
Coefficient alpha and the internal structure of tests
-
Cronbach L. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16(3):297-334.
-
(1951)
Psychometrika
, vol.16
, Issue.3
, pp. 297-334
-
-
Cronbach, L.1
-
83
-
-
36348992780
-
Bonferroni and Šidák corrections for multiple comparisons, in encyclopedia of measurement and statistics
-
Thousand Oaks: Sage
-
Abdi H. Bonferroni and Šidák corrections for multiple comparisons, in encyclopedia of measurement and statistics. Thousand Oaks: Sage; 2007.
-
(2007)
-
-
Abdi, H.1
-
84
-
-
0021998049
-
Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research
-
Liang MH, et al. Comparative measurement efficiency and sensitivity of five health status instruments for arthritis research. Arthritis Rheum. 1985;28(5):542-7.
-
(1985)
Arthritis Rheum
, vol.28
, Issue.5
, pp. 542-547
-
-
Liang, M.H.1
-
85
-
-
0033127853
-
The SF-36 Arthritis-Specific Health Index (ASHI): II. Tests of validity in four clinical trials
-
Keller SD, et al. The SF-36 Arthritis-Specific Health Index (ASHI): II. Tests of validity in four clinical trials. Med Care. 1999;37(5 Suppl):MS51-60.
-
(1999)
Med Care
, vol.37
, Issue.5
, pp. 51-60
-
-
Keller, S.D.1
-
86
-
-
0003577917
-
Statistical power analysis for the behavioral sciences
-
2nd ed. Hillsdale: Routledge
-
Cohen J. Statistical power analysis for the behavioral sciences. 2nd ed. Hillsdale: Routledge; 1988.
-
(1988)
-
-
Cohen, J.1
-
87
-
-
0003528130
-
Psychometric theory
-
2nd ed. New York: McGraw-Hill Book Company
-
Nunnally JC. Psychometric theory. 2nd ed. New York: McGraw-Hill Book Company; 1967.
-
(1967)
-
-
Nunnally, J.C.1
-
88
-
-
0037297709
-
Starting at the beginning: an introduction to coefficient alpha and internal consistency
-
Streiner DL. Starting at the beginning: an introduction to coefficient alpha and internal consistency. J Pers Assess. 2003;80(1):99-103.
-
(2003)
J Pers Assess
, vol.80
, Issue.1
, pp. 99-103
-
-
Streiner, D.L.1
-
89
-
-
84952977198
-
Pscyhological testing: principles, applications and issues
-
Eighth ed. Belmont: Wasdworth, Cengage Learning
-
Kaplan RM, Saccuzzo DP. Pscyhological testing: principles, applications and issues. Eighth ed. Belmont: Wasdworth, Cengage Learning; 2013.
-
(2013)
-
-
Kaplan, R.M.1
Saccuzzo, D.P.2
-
90
-
-
0003528130
-
Psychometric theory
-
3rd ed. New York: McGraw-Hill
-
Nunnally JC, Bernstein IH. Psychometric theory. 3rd ed. New York: McGraw-Hill; 1994.
-
(1994)
-
-
Nunnally, J.C.1
Bernstein, I.H.2
-
91
-
-
77952297450
-
Neuropsychological dysfunction and neuroimaging adult sickle cell anemia study group. Neuropsychological dysfunction and neuroimaging abnormalities in neurologically intact adults with sickle cell anemia
-
Vichinsky E, et al. Neuropsychological dysfunction and neuroimaging adult sickle cell anemia study group. Neuropsychological dysfunction and neuroimaging abnormalities in neurologically intact adults with sickle cell anemia. JAMA. 2010;303(18):1823-31.
-
(2010)
JAMA
, vol.303
, Issue.18
, pp. 1823-1831
-
-
Vichinsky, E.1
-
92
-
-
84864988793
-
Beyond the definitions of the phenotypic complications of sickle cell disease: an update on management
-
Published online 2012 Aug 1
-
Ballas SK, et al. Beyond the definitions of the phenotypic complications of sickle cell disease: an update on management. The Scientific World J. 2012. Published online 2012 Aug 1.
-
(2012)
The Scientific World J.
-
-
Ballas, S.K.1
-
93
-
-
84941216188
-
Methodology for the development and calibration of the SCI-QOL item banks
-
Tulsky DS, et al. Methodology for the development and calibration of the SCI-QOL item banks. J Spinal Cord Med. 2015;38(3):270-87.
-
(2015)
J Spinal Cord Med
, vol.38
, Issue.3
, pp. 270-287
-
-
Tulsky, D.S.1
-
94
-
-
85019993452
-
Disease-specific calibrations or disease-specific content: which is responsible for the enhanced sensitivity of condition-specific measures compared to generic measures?
-
Keller S, Yang M. Disease-specific calibrations or disease-specific content: which is responsible for the enhanced sensitivity of condition-specific measures compared to generic measures? Qual Life Res. 2015;24:25.
-
(2015)
Qual Life Res
, vol.24
, pp. 25
-
-
Keller, S.1
Yang, M.2
-
95
-
-
85019989518
-
Registry and Surveillance System for Hemoglobinopathies Pilot Project (RuSH)
-
Centers for Disease Control and Prevention. Registry and Surveillance System for Hemoglobinopathies Pilot Project (RuSH). Available from: http://www.cdc.gov/ncbddd/sicklecell/freematerials.html.
-
-
-
-
96
-
-
81055144335
-
Neurocognitive testing and functioning in adults sickle cell disease
-
Feliu MH, et al. Neurocognitive testing and functioning in adults sickle cell disease. Hemoglobin. 2011;35(5-6):476-84.
-
(2011)
Hemoglobin
, vol.35
, Issue.5-6
, pp. 476-484
-
-
Feliu, M.H.1
-
97
-
-
84864054457
-
A PROMIS fatigue short form for use by individuals who have multiple sclerosis
-
Cook KF, et al. A PROMIS fatigue short form for use by individuals who have multiple sclerosis. Qual Life Res. 2012;21(6):1021-30.
-
(2012)
Qual Life Res
, vol.21
, Issue.6
, pp. 1021-1030
-
-
Cook, K.F.1
-
98
-
-
84955571307
-
The PROMIS FatigueFM Profile: a self-report measure of fatigue for use in fibromyalgia
-
Kratz AL, et al. The PROMIS FatigueFM Profile: a self-report measure of fatigue for use in fibromyalgia. Qual Life Res. 2016;25:1803.
-
(2016)
Qual Life Res
, vol.25
, pp. 1803
-
-
Kratz, A.L.1
-
99
-
-
70350540563
-
Firestar: computerized adaptive testing simulation program for polytomous item response theory models
-
Choi SW. Firestar: computerized adaptive testing simulation program for polytomous item response theory models. Appl Psychol Measur. 2009;33(8):644.
-
(2009)
Appl Psychol Measur
, vol.33
, Issue.8
, pp. 644
-
-
Choi, S.W.1
-
100
-
-
0024852022
-
Measurement of health status: ascertaining the minimally clinically important difference
-
Jaeschke R, et al. Measurement of health status: ascertaining the minimally clinically important difference. Cont Clin Trials. 1989;10:407-15.
-
(1989)
Cont Clin Trials
, vol.10
, pp. 407-415
-
-
Jaeschke, R.1
|