-
1
-
-
44949128064
-
Global epidemiology of haemoglobin disorders and derived service indicators
-
Modell B, Darlison M. Global epidemiology of haemoglobin disorders and derived service indicators. Bull World Health Organ 2008; 86: 480-487.
-
(2008)
Bull World Health Organ
, vol.86
, pp. 480-487
-
-
Modell, B.1
Darlison, M.2
-
2
-
-
77953952024
-
The inherited diseases of hemoglobin are an emerging global health burden
-
Weatherall DJ. The inherited diseases of hemoglobin are an emerging global health burden. Blood 2010; 115: 4331-4336.
-
(2010)
Blood
, vol.115
, pp. 4331-4336
-
-
Weatherall, D.J.1
-
3
-
-
77955486134
-
Health-related quality of life in children with sickle cell disease: A report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium
-
Dampier C, Lieff S, LeBeau P, et al. Health-related quality of life in children with sickle cell disease: A report from the Comprehensive Sickle Cell Centers Clinical Trial Consortium. Pediatr Blood Cancer 2010; 55: 485-494.
-
(2010)
Pediatr Blood Cancer
, vol.55
, pp. 485-494
-
-
Dampier, C.1
Lieff, S.2
LeBeau, P.3
-
4
-
-
24944563944
-
Health-related quality of life in children with sickle cell disease: Child and parent perception
-
Panepinto JA, O'Mahar KM, DeBaun MR, et al. Health-related quality of life in children with sickle cell disease: Child and parent perception. Br J Haematol 2005; 130: 437-444.
-
(2005)
Br J Haematol
, vol.130
, pp. 437-444
-
-
Panepinto, J.A.1
O'Mahar, K.M.2
DeBaun, M.R.3
-
5
-
-
44149126463
-
Health-related quality of life in sickle cell disease
-
Panepinto JA. Health-related quality of life in sickle cell disease. Pediatr Blood Cancer 2008; 51: 5-9.
-
(2008)
Pediatr Blood Cancer
, vol.51
, pp. 5-9
-
-
Panepinto, J.A.1
-
7
-
-
78851469729
-
Health-related quality of life in adults with sickle cell disease (SCD): A report from the comprehensive sickle cell centers clinical trial consortium
-
Dampier C, LeBeau P, Rhee S, et al. Health-related quality of life in adults with sickle cell disease (SCD): A report from the comprehensive sickle cell centers clinical trial consortium. Am J Hematol 2011; 86: 203-205.
-
(2011)
Am J Hematol
, vol.86
, pp. 203-205
-
-
Dampier, C.1
LeBeau, P.2
Rhee, S.3
-
8
-
-
0036616656
-
Parental report of health-related quality of life in children with sickle cell disease
-
Palermo TM, Schwartz L, Drotar D, et al. Parental report of health-related quality of life in children with sickle cell disease. J Behav Med 2002; 25: 269-283.
-
(2002)
J Behav Med
, vol.25
, pp. 269-283
-
-
Palermo, T.M.1
Schwartz, L.2
Drotar, D.3
-
9
-
-
51049121154
-
Quality of life among adolescents with sickle cell disease: Mediation of pain by internalizing symptoms and parenting stress
-
Barakat LP, Patterson CA, Daniel LC, et al. Quality of life among adolescents with sickle cell disease: Mediation of pain by internalizing symptoms and parenting stress. Health Qual Life Outcomes 2008; 6: 60.
-
(2008)
Health Qual Life Outcomes
, vol.6
, pp. 60
-
-
Barakat, L.P.1
Patterson, C.A.2
Daniel, L.C.3
-
10
-
-
73949129680
-
Health-related quality of life and financial impact of caring for a child with Thalassaemia Major in the UK
-
Clarke SA, Skinner R, Guest J, et al. Health-related quality of life and financial impact of caring for a child with Thalassaemia Major in the UK. Child Care Health Dev 2010; 36: 118-122.
-
(2010)
Child Care Health Dev
, vol.36
, pp. 118-122
-
-
Clarke, S.A.1
Skinner, R.2
Guest, J.3
-
11
-
-
33747156917
-
Health related quality of life in Malaysian children with thalassaemia
-
Ismail A, Campbell MJ, Ibrahim HM, et al. Health related quality of life in Malaysian children with thalassaemia. Health Qual Life Outcomes 2006; 4: 39.
-
(2006)
Health Qual Life Outcomes
, vol.4
, pp. 39
-
-
Ismail, A.1
Campbell, M.J.2
Ibrahim, H.M.3
-
12
-
-
78650317859
-
Quality of life in thalassemia: A comparison of SF-36 results from the thalassemia longitudinal cohort to reported literature and the US norms
-
Sobota A, Yamashita R, Xu Y, et al. Quality of life in thalassemia: A comparison of SF-36 results from the thalassemia longitudinal cohort to reported literature and the US norms. Am J Hematol 2011; 86: 92-95.
-
(2011)
Am J Hematol
, vol.86
, pp. 92-95
-
-
Sobota, A.1
Yamashita, R.2
Xu, Y.3
-
13
-
-
0025070260
-
Bone marrow transplantation in patients with thalassemia
-
Lucarelli G, Galimberti M, Polchi P, et al. Bone marrow transplantation in patients with thalassemia. N Engl J Med 1990; 322: 417-421.
-
(1990)
N Engl J Med
, vol.322
, pp. 417-421
-
-
Lucarelli, G.1
Galimberti, M.2
Polchi, P.3
-
14
-
-
9344231922
-
Bone marrow transplantation for sickle cell disease
-
Walters MC, Patience M, Leisenring W, et al. Bone marrow transplantation for sickle cell disease. N Engl J Med 1996; 335: 369-376.
-
(1996)
N Engl J Med
, vol.335
, pp. 369-376
-
-
Walters, M.C.1
Patience, M.2
Leisenring, W.3
-
15
-
-
0025579443
-
Bone marrow transplantation in sickle cell disease: The trade-off between early mortality and quality of life
-
Kodish E, Lantos J, Siegler M, et al. Bone marrow transplantation in sickle cell disease: The trade-off between early mortality and quality of life. Clin Res 1990; 38: 694-700.
-
(1990)
Clin Res
, vol.38
, pp. 694-700
-
-
Kodish, E.1
Lantos, J.2
Siegler, M.3
-
16
-
-
0027400696
-
Bone marrow transplant for sickle cell disease-The dilemma
-
Davies SC. Bone marrow transplant for sickle cell disease-The dilemma. Blood Rev 1993; 7: 4-9.
-
(1993)
Blood Rev
, vol.7
, pp. 4-9
-
-
Davies, S.C.1
-
17
-
-
0034779987
-
Allogeneic stem cell transplantation for sickle cell disease. A study of patients' decisions
-
van BK, Koshy M, Anderson-Shaw L, et al. Allogeneic stem cell transplantation for sickle cell disease. A study of patients' decisions. Bone Marrow Transplant 2001; 28: 545-549.
-
(2001)
Bone Marrow Transplant
, vol.28
, pp. 545-549
-
-
van, B.K.1
Koshy, M.2
Anderson-Shaw, L.3
-
18
-
-
52149111377
-
Quality of life in patients with transfusion-dependent thalassemia after hematopoietic SCT
-
Cheuk DKL, Mok ASP, Lee ACW, et al. Quality of life in patients with transfusion-dependent thalassemia after hematopoietic SCT. Bone Marrow Transplant 2008; 42: 319-327.
-
(2008)
Bone Marrow Transplant
, vol.42
, pp. 319-327
-
-
Cheuk, D.K.L.1
Mok, A.S.P.2
Lee, A.C.W.3
-
19
-
-
84855595655
-
Trajectories of HRQL following pediatric hematopoietic stem cell transplantation (HSCT)
-
Abstract# 1420.
-
Parsons S, Terrin N, Ratichek S, et al. Trajectories of HRQL following pediatric hematopoietic stem cell transplantation (HSCT). QLR J 2009; A-44:Abstract# 1420.
-
(2009)
QLR J
, vol.44 A
-
-
Parsons, S.1
Terrin, N.2
Ratichek, S.3
-
20
-
-
84855579380
-
Caring for the caregiver: EHealth interventions for parents of pediatric hematopoietic stem cell transplant recipients. Abstract from the SIOP-psychosocial oncology (SIOP-PPO) meeting, October 21, 2011 Boston, Massachusetts, USA
-
Parsons SK, Ratichek SJ, Rodday AM, et al. Caring for the caregiver: EHealth interventions for parents of pediatric hematopoietic stem cell transplant recipients. Abstract from the SIOP-psychosocial oncology (SIOP-PPO) meeting, October 21, 2011 Boston, Massachusetts, USA. Pediatr Blood Cancer 2011; 56: 1159.
-
(2011)
Pediatr Blood Cancer
, vol.56
, pp. 1159
-
-
Parsons, S.K.1
Ratichek, S.J.2
Rodday, A.M.3
-
21
-
-
20544478425
-
Preliminary psychometric evaluation of the Child Health Ratings Inventories (CHRIs) and Disease-Specific Impairment Inventory-HSCT (DSII-HSCT) in parents and children
-
Parsons SK, Shih MC, Mayer DK, et al. Preliminary psychometric evaluation of the Child Health Ratings Inventories (CHRIs) and Disease-Specific Impairment Inventory-HSCT (DSII-HSCT) in parents and children. Qual Life Res 2005; 14: 1613-1625.
-
(2005)
Qual Life Res
, vol.14
, pp. 1613-1625
-
-
Parsons, S.K.1
Shih, M.C.2
Mayer, D.K.3
-
22
-
-
33750939818
-
Maternal perspectives on children's health-related quality of life during the first year after pediatric hematopoietic stem cell transplant
-
Parsons SK, Shih MC, DuHamel KN, et al. Maternal perspectives on children's health-related quality of life during the first year after pediatric hematopoietic stem cell transplant. J Pediatr Psychol 2006; 31: 1100-1115.
-
(2006)
J Pediatr Psychol
, vol.31
, pp. 1100-1115
-
-
Parsons, S.K.1
Shih, M.C.2
DuHamel, K.N.3
-
24
-
-
0016187133
-
Clinical manifestations of graft-versus-host disease in human recipients of marrow from HL-A-matched sibling donors
-
Glucksberg H, Storb R, Fefer A, et al. Clinical manifestations of graft-versus-host disease in human recipients of marrow from HL-A-matched sibling donors. Transplantation 1974; 18: 295-304.
-
(1974)
Transplantation
, vol.18
, pp. 295-304
-
-
Glucksberg, H.1
Storb, R.2
Fefer, A.3
-
25
-
-
0018973048
-
Chronic graft-versus-host disease syndrome in man. A long-term clinicopathologic study of 20 Seattle patients
-
Shulman H, Sullivan K, Weiden P, et al. Chronic graft-versus-host disease syndrome in man. A long-term clinicopathologic study of 20 Seattle patients. Am J Med 1980; 69: 204-217.
-
(1980)
Am J Med
, vol.69
, pp. 204-217
-
-
Shulman, H.1
Sullivan, K.2
Weiden, P.3
-
26
-
-
0024240878
-
Regimen-related toxicity in patients undergoing bone marrow transplantation
-
Bearman SI, Appelbaum FR, Buckner CD, et al. Regimen-related toxicity in patients undergoing bone marrow transplantation. J Clin Oncol 1988; 6: 1562-1568.
-
(1988)
J Clin Oncol
, vol.6
, pp. 1562-1568
-
-
Bearman, S.I.1
Appelbaum, F.R.2
Buckner, C.D.3
-
27
-
-
84864943596
-
-
Common Terminology Criteria for Adverse Events v3.0 (CTCAE). In: National Cancer Institute. Accessed on July 25, 2011.
-
Common Terminology Criteria for Adverse Events v3.0 (CTCAE). In: http://ctep.cancer.gov. National Cancer Institute. Accessed on July 25, 2011.
-
-
-
-
28
-
-
33845945922
-
Coefficient alpha and the internal structure of test
-
DOI: 10.1007/BF02310555.
-
Cronbach L. Coefficient alpha and the internal structure of test. Psychometrika 1951; 16: 297-334. DOI: 10.1007/BF02310555.
-
(1951)
Psychometrika
, vol.16
, pp. 297-334
-
-
Cronbach, L.1
-
30
-
-
84863609759
-
Comparing longitudinal assessments of quality of life by patient and parent in newly diagnosed children with cancer: The value of both raters' perspectives
-
epub ahead of print.
-
Parsons SK, Fairclough DL, Wang J, et al. Comparing longitudinal assessments of quality of life by patient and parent in newly diagnosed children with cancer: The value of both raters' perspectives. Qual Life Res 2011; epub ahead of print.
-
(2011)
Qual Life Res
-
-
Parsons, S.K.1
Fairclough, D.L.2
Wang, J.3
-
31
-
-
77957095281
-
The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease
-
Panepinto JA, Hoffmann RG, Pajewski NM. The effect of parental mental health on proxy reports of health-related quality of life in children with sickle cell disease. Pediatr Blood Cancer 2010; 55: 714-721.
-
(2010)
Pediatr Blood Cancer
, vol.55
, pp. 714-721
-
-
Panepinto, J.A.1
Hoffmann, R.G.2
Pajewski, N.M.3
-
32
-
-
45149098237
-
Validity of the Pediatric Quality Of Life Inventory for youth with sickle cell disease
-
McClellan CB, Schatz J, Sanchez C, et al. Validity of the Pediatric Quality Of Life Inventory for youth with sickle cell disease. J Pediatr Psychol 2008; 33: 1153-1162.
-
(2008)
J Pediatr Psychol
, vol.33
, pp. 1153-1162
-
-
McClellan, C.B.1
Schatz, J.2
Sanchez, C.3
-
33
-
-
79955497632
-
Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea
-
Thornburg CD, Calatroni A, Panepinto JA. Differences in health-related quality of life in children with sickle cell disease receiving hydroxyurea. J Pediatr Hematol Oncol 2011; 33: 251-254.
-
(2011)
J Pediatr Hematol Oncol
, vol.33
, pp. 251-254
-
-
Thornburg, C.D.1
Calatroni, A.2
Panepinto, J.A.3
-
34
-
-
0037980149
-
Interpretation of changes in health-related quality of life: The remarkable universality of half a standard deviation
-
Norman GR, Sloan JA, Wyrwich KW. Interpretation of changes in health-related quality of life: The remarkable universality of half a standard deviation. Med Care 2003; 41: 582-592.
-
(2003)
Med Care
, vol.41
, pp. 582-592
-
-
Norman, G.R.1
Sloan, J.A.2
Wyrwich, K.W.3
-
35
-
-
80053898253
-
Health-related quality of life (HRQoL): The impact of medical and demographic variables upon pediatric recipients of hematopoietic stem cell transplantation
-
Brice L, Weiss R, Wei Y, et al. Health-related quality of life (HRQoL): The impact of medical and demographic variables upon pediatric recipients of hematopoietic stem cell transplantation. Pediatr Blood Cancer 2011; 57: 1179-1185.
-
(2011)
Pediatr Blood Cancer
, vol.57
, pp. 1179-1185
-
-
Brice, L.1
Weiss, R.2
Wei, Y.3
-
36
-
-
57349190679
-
Allogeneic stem cell transplantation for thalassemia major
-
Angelucci E, Baronciani D. Allogeneic stem cell transplantation for thalassemia major. Haematologica 2008; 93: 1780-1784.
-
(2008)
Haematologica
, vol.93
, pp. 1780-1784
-
-
Angelucci, E.1
Baronciani, D.2
-
37
-
-
0028291736
-
Mortality in sickle cell disease. Life expectancy and risk factors for early death
-
Platt OS, Brambilla DJ, Rosse WF, et al. Mortality in sickle cell disease. Life expectancy and risk factors for early death. N Engl J Med 1994; 330: 1639-1644.
-
(1994)
N Engl J Med
, vol.330
, pp. 1639-1644
-
-
Platt, O.S.1
Brambilla, D.J.2
Rosse, W.F.3
-
38
-
-
74249110516
-
Decision analysis of treatment strategies in children with severe sickle cell disease
-
O'Brien SH, Hankins JS. Decision analysis of treatment strategies in children with severe sickle cell disease. J Pediatr Hematol Oncol 2009; 31: 873-878.
-
(2009)
J Pediatr Hematol Oncol
, vol.31
, pp. 873-878
-
-
O'Brien, S.H.1
Hankins, J.S.2
|