Service user involvement in mental health system strengthening in a rural African setting: Qualitative study

BMC Psychiatry

Volumn 17, Issue 1, 2017, Pages

  Abayneh, Sisay ^a   Lempp, Heidi ^b   Alem, Atalay ^a   Alemayehu, Daniel ^a   Eshetu, Tigist ^a   Lund, Crick ^b,c   Semrau, Maya ^b   Thornicroft, Graham ^b   Hanlon, Charlotte ^a,b  

^a ADDIS ABABA UNIVERSITY   (Ethiopia)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF CAPE TOWN   (South Africa)

Author keywords

Ethiopia; Mental health; Qualitative study; Service user and carer involvement

Indexed keywords

AWARENESS; CAREGIVER; CLIMATE; CLINICAL ARTICLE; DNA TRANSCRIPTION; EMPOWERMENT; ETHIOPIA; FEMALE; HEAD; HUMAN; HUMAN CELL; MALE; MENTAL HEALTH CARE; MENTAL HEALTH SERVICE; MODEL; PRIMARY MEDICAL CARE; QUALITATIVE RESEARCH; SEMI STRUCTURED INTERVIEW; STIGMA; THEMATIC ANALYSIS; BLACK PERSON; HEALTH CARE DELIVERY; MENTAL DISEASE; MENTAL HEALTH; ORGANIZATION AND MANAGEMENT; POVERTY; PRIMARY HEALTH CARE; PSYCHOLOGY; RURAL POPULATION; SOCIAL STIGMA; STANDARDS; STATISTICS AND NUMERICAL DATA;

AFRICAN CONTINENTAL ANCESTRY GROUP; CAREGIVERS; ETHIOPIA; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; MALE; MENTAL DISORDERS; MENTAL HEALTH; MENTAL HEALTH SERVICES; POVERTY; PRIMARY HEALTH CARE; QUALITATIVE RESEARCH; RURAL POPULATION; SOCIAL STIGMA;

EID: 85019854283     PISSN: None     EISSN: 1471244X     Source Type: Journal    
DOI: 10.1186/s12888-017-1352-9     Document Type: Article

References (54)

1. Tambuyzer E, Pieters G, Van Audenhove C. Patient involvement in mental health care: one size does not fit all. Health Expect. 2011;17(1):138-50.
2. Ocloo J, Matthews R. From tokenism to empowerment: progressing patient and public involvement in healthcare improvement. BMJ quality & safety. 2016:bmjqs-2015-004839.
3. Grundy A, Bee P, Meade O, Callaghan P, Beatty S, Olleveant N, et al. Bringing meaning to user involvement in mental health care planning: a qualitative exploration of service user perspectives. J Psychiatr Ment Health Nurs. 2015;23:12-21.
4. Millar SL, Chambers M, Giles M. Service user involvement in mental health care: an evolutionary concept analysis. Health Expect. 2016;19:209-21.
5. Gupta E, Roberts B. User and researcher collaborations in mental health in low and middle income countries: a case study of the EMPOWER project. BMC research notes. 2014;7(1):1-6.
6. Rise MB, Steinsbekk A. Long term effect on professionals' knowledge, practice and attitudes towards user involvement four years after implementing an Organisational development plan: a controlled study. PLoS One. 2016;11(3):e0150742.
7. Crawford MJ, Rutter D, Manley C, Weaver T, Bhui K, Fulop N, et al. Systematic review of involving patients in the planning and development of health care. BMJ. 2002;325(7375):1263.
8. Saraceno B, van Ommeren M, Batniji R, Cohen A, Gureje O, Mahoney J, et al. Barriers to improvement of mental health services in low-income and middle-income countries. Lancet. 2007;370(9593):1164-74.
9. Thornicroft G, Alem A, SANTOS RA, Barley E, Drake RE, Gregorio G, et al. WPA guidance on steps, obstacles and mistakes to avoid in the implementation of community mental health care. World Psychiatry. 2010;9(2):67-77.
10. Hanlon C, Wondimagegn D, Alem A. Lessons learned in developing community mental health care in Africa. World Psychiatry. 2010;9(3):185-9.
11. Raja S, Underhill C, Shrestha P, Sunder U, Mannarath S, Kippen Wood S, et al. Health in action-integrating mental health and development: a case study of the BasicNeeds model in Nepal. PLoS Med. 2012;9(7):839.
12. Semrau M, Lempp H, Keynejad R, Evans-Lacko S, Mugisha J, Raja S, et al. Service user and caregiver involvement in mental health system strengthening in low-and middle-income countries: systematic review. BMC Health Serv Res. 2016;16(1):1.
13. Kleintjes S, Lund C, Swartz L. Barriers to the participation of people with psychosocial disability in mental health policy development in South Africa: a qualitative study of perspectives of policy makers, professionals, religious leaders and academics. BMC International Health and Human Rights. 2013;13(1):17.
14. Alem A, Kebede D, Fekadu A, Shibre T, Fekadu D, Beyero T, et al. Clinical course and outcome of schizophrenia in a predominantly treatment-naive cohort in rural Ethiopia. Schizophr Bull. 2009;35(3):646-54.
15. Kebede D, Alem A, Shibre T, Negash A, Deyassa N, Beyero T, et al. Short-term symptomatic and functional outcomes of schizophrenia in Butajira. Ethiopia Schizophrenia research. 2005;78(2):171-85.
16. Shibre T, Medhin G, Alem A, Kebede D, Teferra S, Jacobsson L, et al. Long-term clinical course and outcome of schizophrenia in rural Ethiopia: 10-year follow-up of a population-based cohort. Schizophr Res. 2015;161(2):414-20.
17. Fekadu A, Medhin G, Kebede D, Alem A, Cleare AJ, Prince M, et al. Excess mortality in severe mental illness: 10-year population-based cohort study in rural Ethiopia. The British Journal of Psychiatry. 2015:bjp. bp. 114.149112.
18. Fekadu A, Thornicroft G. Global mental health: perspectives from Ethiopia. Glob Health Action. 2014;7
19. World Health Organization. World Health Organization. Mental Health Atlas: Ethiopia. Geneva: WHO. 2011.
20. Federal Minstry of Health. Health Sector Transformation Plan- 2015/16-2019/20,Federal Democratic Republic of Ethiopia ;Ministry of Health, Addis Ababa Ethiopia. 2015.
21. Federal Ministry of Health. Federal Democratic Republic of Ethiopia Ministry of Health. National Mental Health Strategy, 2012/13-2015/16. Addis Ababa: Ministry of Health;. 2012.
22. Semrau M, Evans-Lacko S, Alem A, Ayuso-Mateos JL, Chisholm D, Gureje O, et al. Strengthening mental health systems in low-and middle-income countries: the Emerald programme. BMC Med. 2015;13(1):79.
23. Emerald. Emerald: Emerging mental health systems in low- and middle-income countries. www.emerald-project.eu.
24. Lund C, Tomlinson M, De Silva M, Fekadu A, Shidhaye R, Jordans M, et al. PRIME: a programme to reduce the treatment gap for mental disorders in five low-and middle-income countries. PLoS Med. 2012;9(12):e1001359.
25. Fekadu A, Hanlon C, Medhin G, Alem A, Selamu M, Giorgis TW, et al. Development of a scalable mental healthcare plan for a rural district in Ethiopia. Br J Psychiatry. 2015;1:s9.
26. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77-101.
27. Umea° University. Open Code version 4.02. UMDAC and Epidemiology, Department of Public Health and Clinical Medicine at Umea° University;. 2013.
28. Seale C. Using computers to analyse qualitative data., in: Doing Qualitative Research: a Practical Handbook, D. Silverman, ed., Sage Publications, London, pp. 154-172.: D.(Ed.) Doing Qualitative Research: A Practical Handbook. London, UK, Sage Publications Ltd; 1999.
29. Seale C. Using numbers. The quality of qualitative research. London: Sage Publications;. 1999: 119-39.
30. Seale C. Accounting for contradictions. The quality of qualitative research. 1999. London: Sage Publications.
31. Mayston R, Alem A, Habtamu A, Shibre T, Fekadu A, Hanlon C. Participatory planning of a primary care service for people with severe mental disorders in rural Ethiopia. Health Policy Plan. 2016;31(3):367-76.
32. Nickels SV, Arvaiza NAF, Valle MSR. A qualitative exploration of a family self-help mental health program in El Salvador. Int J Ment Heal Syst. 2016;10(1):1.
33. Kleintjes S, Lund C, Swartz L, Flisher A, Consortium MRP. Mental health care user participation in mental health policy development and implementation in South Africa. International Review of Psychiatry. 2010;22(6):568-77.
34. Neech S. User involvement in adult mental health settings: user motivations and benefits: Staffordshire University; 2015.
35. Federal Democratic Republic of Ethiopia F. The Constitution of The Federal Democratic Republic of Ethiopia. Addis Ababa, Ethiopia. 1995.
36. Federal Democratic Republic of Ethiopia F. Ratification Proclamation to the United Nation Convention on the Rights of Persons with Disabilities, Proclamation no. 676/2010. 2010. Addis Ababa, Ethiopia 2010.
37. Federal Ministry of Health. Health policy of the Transitional government of Ethiopia., Federal Minstry of Health, Addis Ababa, Ethiopia. 1993.
38. Semrau M, Evans-Lacko S, Koschorke M, Ashenafi L, Thornicroft G. stigma And discrimination related to mental illness in low-and middle-income countries. Epidemiology and psychiatric sciences 2015:1-14.
39. Singh A, Mattoo SK, Grover S. Stigma associated with mental illness: conceptual issues and focus on stigma perceived by the patients with schizophrenia and their caregivers. Indian Journal of Social Psychiatry. 2016;32(2):134.
40. Sturgeon S. STIGMA AND MARGINALISATION: STRUCTURAL VIOLENCE AND THE IMPACT ON MENTAL HEALTH. Social Work/Maatskaplike Werk. 2014;48(1).
41. Pugh T. Hatzenbuehler M. Structural Stigma and Mental Illness: Link B; 2015.
42. Thornicroft G, Mehta N, Clement S, Evans-Lacko S, Doherty M. Rose D, et al. The Lancet: Evidence for effective interventions to reduce mental-health-related stigma and discrimination; 2015;(387):1123-1132.
43. Mestdagh A, Hansen B. Stigma in patients with schizophrenia receiving community mental health care: a review of qualitative studies. Soc Psychiatry Psychiatr Epidemiol. 2014;49(1):79-87.
44. Kakuma R, Kleintjes S, Lund C, Drew N, Green A, Flisher A. Mental Health Stigma: What is being done to raise awareness and reduce stigma in South Africa? African Journal of Psychiatry. 2010;13(2).
45. Wallcraft J, Amering M, Freidin J, Davar B, Froggatt D, Jafri H, et al. Partnerships for better mental health worldwide: WPA recommendations on best practices in working with service users and family carers. World Psychiatry. 2011;10(3):229-36.
46. Hanlon C, Luitel NP, Kathree T, Murhar V, Shrivasta S, Medhin G, et al. Challenges and opportunities for implementing integrated mental health care: a district level situation analysis from five low-and middle-income countries. PLoS One. 2014;9(2):e88437.
47. Fekadu A, Hanlon C, Medhin G, Alem A, Selamu M, Giorgis TW, et al. Development of a scalable mental healthcare plan for a rural district in Ethiopia. Br J Psychiatry. 2015;208(s56):s4-s12.
48. Raja S, Underhill C, Shrestha P, Sunder U, Mannarath S, Wood SK, et al. Integrating mental health and development: a case study of the BasicNeeds model in Nepal. PLoS Med. 2012;9(7):e1001261.
49. Lund C, Waruguru M, Kingori J, Kippen-Wood S, Breuer E, Mannarath S, et al. Outcomes of the mental health and development model in rural Kenya: a 2-year prospective cohort intervention study. International Health. 2013;5(1):43-50.
50. Gruskin S, Ahmed S, Bogecho D, Ferguson L, Hanefeld J, MacCarthy S, et al. Human rights in health systems frameworks: what is there, what is missing and why does it matter? Global public health. 2012;7(4):337-51.
51. Burns JK. Mental health and inequity: a human rights approach to inequality, discrimination, and mental disability. health and human rights. 2009:19-31.
52. Drew N, Funk M, Tang S, Lamichhane J, Chávez E, Katontoka S, et al. Human rights violations of people with mental and psychosocial disabilities: an unresolved global crisis. Lancet. 2011;378(9803):1664-75.
53. Kleintjes S, Lund C, Swartz L. Organising for self-advocacy in mental health: experiences from seven African countries. African Journal of Psychiatry. 2013;16(3):187-95.
54. Freeman M, Pathare S. WHO resource book on mental health, human rights and legislation: World Health Organization; 2005.