Organising for self-advocacy in mental health: Experiences from seven African countries

African Journal of Psychiatry (South Africa)

Volumn 16, Issue 3, 2013, Pages 187-195

  Kleintjes, S ^a   Lund, C ^a   Swartz, L ^b  

^a UNIVERSITY OF CAPE TOWN   (South Africa)

^b STELLENBOSCH UNIVERSITY   (South Africa)

Author keywords

Advocacy; Africa; Mental health; Recovery; Self help

Indexed keywords

AFRICA; ARTICLE; CLINICAL DECISION MAKING; EXPERIENCE; FINANCIAL MANAGEMENT; HEALTH CARE ACCESS; HEALTH CARE ORGANIZATION; HEALTH CARE PLANNING; HEALTH CARE POLICY; HEALTH PROMOTION; HUMAN; HUMAN RIGHTS; INCOME; LEADERSHIP; MENTAL DISEASE; MENTAL HEALTH SERVICE; NON PROFIT ORGANIZATION; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT; SUPPORT GROUP; SUSTAINABLE DEVELOPMENT; THEMATIC ANALYSIS; COMPARATIVE STUDY; CONSUMER ADVOCACY; CULTURAL FACTOR; DEVELOPING COUNTRY; HEALTH CARE DELIVERY; HEALTH CARE FINANCING; ORGANIZATION AND MANAGEMENT; PATIENT ADVOCACY; PSYCHOLOGICAL ASPECT; SELF HELP; SOCIAL STIGMA;

AFRICA; CONSUMER ADVOCACY; CROSS-CULTURAL COMPARISON; DEVELOPING COUNTRIES; FINANCIAL SUPPORT; HEALTH POLICY; HEALTH SERVICES ACCESSIBILITY; HEALTHCARE FINANCING; HUMANS; MENTAL DISORDERS; MENTAL HEALTH SERVICES; PATIENT ADVOCACY; SELF-HELP GROUPS; SOCIAL STIGMA;

EID: 84883126765     PISSN: 19948220     EISSN: None     Source Type: Journal    
DOI: 10.4314/ajpsy.v16i3.25     Document Type: Article

References (31)

1. World Health Organisation. The World Health Report 2001. Mental health: New understanding, new hope. Geneva: World Health Organisation; 2001.
2. Lancet Global Mental Health Group. Scale up services for mental disorders: a call for action. Lancet 2007 October; 370:1241-1247.
3. Saraceno B, van Ommeren M, Batnije R, Cohen A, Gureje O, Mahoney J, et al. Barriers to improvement of mental health services in low-income and middle-income countries. Lancet 2007;370(9593):1164-1174.
4. Beaglehole R, Epping-Jordan J, Patel V, Chopra M, Shah E, Kidd M, et al. Improving the prevention and management of chronic disease in low-income and middle-income countries: a priority for primary health care. Lancet 2008;372: 940-949.
5. Saxena S, Thornicroft G, Knapp M, Whiteford H. Resources for mental health: Scarcity, inequity and inefficiency. Lancet 2007 September;370:878-889.
6. Alem A, Jacobsson L, Hanlon C. Community-based mental health care in Africa: mental health workers' views. World Psychiatry 2008;7:54-57.
7. Barbarto A, Vallarino M. Community mental health in low income countries. A way forward. Milan, Italy: Mario Negri Institute for Pharmacological Research; 2010.
8. Katontoka S. User networks for Africans with mental disorders. Lancet 2007 September; 370(9591):919-920.
9. Kleintjes S, Lund C, Swartz L, Flisher AJ and the MhaPP Research Programme Consortium. Mental health care user participation in mental health policy development and implementation in South Africa. International Review of Psychiatry 2010;22(6):568-577.
10. World Health Organisation. Mental health systems in selected low- and middle-income countries: a WHO-AIMS cross-national analysis. Geneva: World Health Organization; 2009.
11. Lund, C., Van Heyningen, T., & Majavu, M. Evaluation of the WHO African Regional Strategy for Mental Health (2000-2010). Report for the African Regional Office of the World Health Organization (AF/09/352191). Cape Town: Department of Psychiatry and Mental Health, University of Cape Town; 2010.
12. HASCAS. Making a real difference: Strengthening Service User and Carer Involvement in the NIMHE (Final report), United Kingdom: NIMHE, National Health Services; 2005.
13. Arksey H, O'Malley L. Scoping studies: towards a methodological framework. International Journal of Social Research Methodology 2005;5(8):19-32.
14. Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In: Bryman A, Burgess RG, editors. Analysing qualitative data. London: Routledge; 1994.173-194.
15. Lacey A, LuffD. Trent focus for research and development in primary care: An introduction to qualitative analysis. Sheffield, United Kingdom: Trent Focus Group; 2001.
16. Thornicroft G, Tansella M, Law A. Steps, challenges and lessons in developing community mental health care. World Psychiatry 2008;7:87-92.
17. Anthony WA. Recovery from mental illness: The guiding vision of the mental health service system in the 1990s. Psychosocial Rehabilitation Journal 1993;16(4):11-23.
18. Salie MA. User/survivor initiatives: Non professional, peer-based, community support services in mental health; successes and challenges to date. In: Barbarto A, Vallarino M, editors. Community mental health in low income countries. A way forward. Milan, Italy: Mario Negri Institute for Pharmacological Research; 2010. P. 59-66.
19. Farkas M. The vision of recovery today: what it is and what it means for services. World Psychiatry 2007;6(2):68-74.
20. Chan KKL, Chui, YL. The politics of citizen formation: political participation of mental health service users in Hong Kong. Asian Journal of Social Sciences 2007 35:195-215.
21. McDaid S. An equality of condition framework for user involvement in mental health policy and planning: evidence from participatory action research. Disability and Society 2009 June;24(4):461-474.
22. Kelly BD. The power gap: Freedom, power and mental illness. Social Science & Medicine 2006;63:2118-2128.
23. Kakuma R, Kleintjes S, Lund C, Drew N, Green A, Flisher AJ, and the MHaPP Research Programme Consortium. Mental health stigma: what is being done to raise awareness and reduce stigma in South Africa? African Journal of Psychiatry 2011;13:116-124.
24. Faydi E, Funk M, Kleintjes S, Ofori-Atta A, Ssebunnya J, Mwanza J, et al. An assessment of mental health policy in Ghana, South Africa, Uganda and Zambia. Health Research Policy and Systems. 2011 Apr; 9:17 online April 2011 doi: 10.1186/1478-4505-9-17.
25. World Health Organisation. Mental Health and Development Report. Geneva: World Health Organisation; 2010.
26. Kayiira JL. Psychiatric users and caregivers unite to contribute to mental health and own development in Uganda: Mental Health Uganda (MHU). In Barbarto A, Vallarino M, editors. Community mental health in low income countries. A way forward. Milan, Italy: Mario Negri Institute for Pharmacological Research; 2010. P. 55-58.
27. Murithi T. A local response to the global human rights standard: the ubuntu perspective on human dignity. Globalisation, Societies and Education 2007; 5:3, 277-286.
28. Tritter JQ, McCallum A. The snakes and ladders of user involvement: Moving beyond Arnstein. Health Policy 2006;76:156-168.
29. BasicNeeds. Community mental health practice. Seven essential features for scaling up in low-and middle-income countries. Bangalore, India: BasicNeeds; 2009.
30. United Nations. Comprehensive and integral international convention on the protection and promotion of the rights and dignity of persons with disabilities [report online]; 2006. Available from: www.un.org/disabilities/convention/conventionfull.shtml
31. Topor M, Borg S, Di Girolamo S, Davidson L. Not just an individual journey: social aspects of recovery. International Journal of Social Psychiatry 2011;57(1):90-99.