What do haematological cancer survivors want help with? A cross-sectional investigation of unmet supportive care needs

BMC Research Notes

Volumn 8, Issue 1, 2015, Pages

  Hall, Alix E ^a   Sanson Fisher, Rob W ^a   Lynagh, Marita C ^a   Tzelepis, Flora ^a   D'Este, Catherine ^b  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b The Australian National University   (Australia)

Author keywords

Haematological cancer survivors; Oncology; Psychosocial; Supportive care needs; Unmet needs

Indexed keywords

ADAPTIVE BEHAVIOR; ADOLESCENT; ADULT; AGED; AUSTRALIA; COST OF ILLNESS; CROSS-SECTIONAL STUDY; ECONOMICS; EMOTION; FATIGUE; FEMALE; HEALTH CARE COST; HEALTH CARE SURVEY; HEALTH SERVICE; HEALTH STATUS; HEMATOLOGIC NEOPLASMS; HUMAN; MALE; MENTAL HEALTH; MENTAL STRESS; MIDDLE AGED; NEEDS ASSESSMENT; PATHOPHYSIOLOGY; PREVALENCE; PSYCHOLOGY; QUESTIONNAIRE; REGISTER; RISK FACTOR; SURVIVOR; VERY ELDERLY; YOUNG ADULT;

ADAPTATION, PSYCHOLOGICAL; ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; AUSTRALIA; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; EMOTIONS; FATIGUE; FEMALE; HEALTH CARE COSTS; HEALTH CARE SURVEYS; HEALTH EXPENDITURES; HEALTH SERVICES NEEDS AND DEMAND; HEALTH STATUS; HEMATOLOGIC NEOPLASMS; HUMANS; MALE; MENTAL HEALTH; MIDDLE AGED; NEEDS ASSESSMENT; PREVALENCE; REGISTRIES; RISK FACTORS; STRESS, PSYCHOLOGICAL; SURVEYS AND QUESTIONNAIRES; SURVIVORS; YOUNG ADULT;

EID: 85018151391     PISSN: None     EISSN: 17560500     Source Type: Journal    
DOI: 10.1186/s13104-015-1188-7     Document Type: Article

References (23)

1. National Institute for Clincial Excellence (NICE) (2003) Guidance on cancer services. Improving outcomes in haematological cancers: the manual. National Health Service, London
2. Verdecchia A, Francisci S, Brenner H, Gatta G, Micheli A, Mangone L et al (2007) Recent cancer survival in Europe: a 2000-02 period analysis of EUROCARE-4 data. Lancet Oncol 8(9):784-796
3. Australian Institute of Health and Welfare (2012) Cancer survival and prevalence in Australia: period estimate from 1982 to 2010. In: AIHW (ed) Cancer Series no. 69, Cat. no. CAN 65, Canberra
4. American Cancer Society (2012) Cancer facts and figures 2012. In: American Cancer Society (ed) Atlanta, Georgia
5. National Institute for Clinical Excellence (NICE) (2004) Guidance on cancer services. Improving supportive and palliative care for adults with cancer: the manual. National Health Service, London
6. Centre for Disease Control and Prevention; Lance Armstrong Foundation; Department of Health and Human Services USA (2004) A national action plan for cancer survivorship: advancing public health strategies. Atlanta
7. Twombly R (2004) What's in a name: who is a cancer survivor? J Natl Cancer Inst 96(19):1414-1415
8. Fitch MI (2008) Supportive care framework. Can Oncol Nurs J (Revue Canadienne de Nursing Oncologique) 18(1):6-14
9. Cancer and Palliative Care; Department of Human Services (2009) Providing optimal cancer care: supportive care policy for Victoria In: Metropolitan Health and Aged Carer Services Division (ed) Victorian Government Department of Human Services, Melbourne
10. Hall A, Lynagh M, Bryant J, Sanson-Fisher R (2013) Supportive care needs of hematological cancer survivors: a critical review of the literature. Crit Rev Oncol/Hematol 88:102-116
11. Hall A, Campbell HS, Sanson-Fisher R, Lynagh M, D'Este C, Burkhalter R et al (2013) Unmet needs of Australian and Canadian haematological cancer survivors: a cross-sectional international comparative study. Psycho-oncology 22:2032-2038
12. Hall AE, Sanson-Fisher RW, Lynagh MC, Threlfall T, D'Este CA (2013) Format and readability of an enhanced invitation letter did not affect participation rates in a cancer registry-based study: a randomized control trial. J Clin Epidemiol 66(1):85-94
13. Beskow LM, Sandler RS, Weinberger M (2006) Research recruitment through US central cancer registries: balancing privacy and scientific issues. Am J Publ Health 96(11):1920-1926
14. Campbell HS, Sanson-Fisher R, Turner D, Hayward L, Wang XS, Taylor-Brown J (2010) Psychometric properties of cancer survivors' unmet needs survey. Support Care Cancer 19:221-230
15. Hall A, D'Este C, Tzelepis F, Sanson-Fisher R, Lynagh M (2014) The Survivor Unmet Needs Survey (SUNS) for haematological cancer survivors: a cross-sectional study assessing the relevance and psychometric properties. BMC Health Serv Res 14(211). doi: 10.1186/1472-6963-14-211
16. Hall A, D'Este C, Tzelepis F, Lynagh M, Sanson-Fisher R (2014) Factors associated with haematological cancer survivors experiencing a high level of unmet needs across multiple items of supportive care: a cross-sectional survey study. Support Care Cancer 22(11):2899-2909
17. Molassiotis A, Wilson B, Blair S, Howe T, Cavet J (2011) Unmet supportive care needs, psychological well-being and quality of life in patients living with multiple myeloma and their partners. Psycho-Oncology 20(1):88-97
18. Boyes AW, Girgis A, D'Este CA, Zucca A (2012) Prevalence and correlates of cancer survivors' supportive care needs 6 months after diagnosis: a population-based cross-sectional study. BMC Cancer 12(150). doi: 10.1186/1471-2407-12-150
19. Wang SX, Giralt SA, Mendoza TR, Engstrom MC, Johnson BA, Peterson N et al (2002) Clinical factors associated with cancer-related fatigue in patients being treated for leukemia and non-Hodgkin's lymphoma. J Clin Oncol 20:1319-1328
20. Johnsen AT, Tholstrup D, Petersen MA, Pedersen L, Groenvold M (2009) Health related quality of life in a nationally representative sample of haematological patients. Eur J Haematol 83:139-148
21. Manitta V, Zordan R, Cole-Sinclair M, Nandurkar H, Philip J (2011) The symptom burden of patients with hematological malignancy: a cross-sectional observational study. J Pain Symptom Manag 42(3):432-442
22. National Comprehensive Cancer Network (2013) NCCN clinical practice guidelines in oncology (NCCN Guidelines): cancer-related fatigue, version 1.2013
23. Carey M, Lambert S, Smits R, Paul CL, Sanson-Fisher R, Clinton-McHarg T (2012) The unfulfilled promise: a systematic review of interventions to reduce the unmet supportive care needs of cancer patients. Support Care Cancer 20:207-219