메뉴 건너뛰기




Volumn 7, Issue 2, 2017, Pages

Advance care planning uptake among patients with severe lung disease: A randomised patient preference trial of a nurse-led, facilitated advance care planning intervention

Author keywords

Advance care planning; advance directive; medical decision making; randomised controlled trial; readiness; respiratory disease

Indexed keywords

ADVANCE CARE PLANNING; AGED; ARTICLE; CHRONIC OBSTRUCTIVE LUNG DISEASE; CONTROLLED STUDY; DYSPNEA; FEMALE; FOLLOW UP; HUMAN; INTERSTITIAL LUNG DISEASE; LIFE SUSTAINING TREATMENT; LIVING WILL; MAJOR CLINICAL STUDY; MALE; MALIGNANT PLEURA EFFUSION; MEDICAL DECISION MAKING; MESOTHELIOMA; MULTICENTER STUDY; NURSE; NURSING INTERVENTION; OPEN STUDY; PATIENT PREFERENCE; RANDOMIZED CONTROLLED TRIAL; RESPIRATORY TRACT DISEASE; RURAL HEALTH CARE; SELF REPORT; SOCIAL SUPPORT; TEACHING HOSPITAL; AUSTRALIA; CLINICAL TRIAL; DECISION MAKING; LUNG DISEASE; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; PATIENT CARE; PROCEDURES; PSYCHOLOGY; STATISTICAL MODEL; STATISTICS AND NUMERICAL DATA; TERMINAL CARE; VERY ELDERLY;

EID: 85014055383     PISSN: None     EISSN: 20446055     Source Type: Journal    
DOI: 10.1136/bmjopen-2016-013415     Document Type: Article
Times cited : (68)

References (51)
  • 1
    • 77956399734 scopus 로고    scopus 로고
    • Redefining the "planning" in advance care planning: Preparing for end-of-life decision making
    • Sudore RL, Fried TR. Redefining the "planning" in advance care planning: preparing for end-of-life decision making. Ann Intern Med 2010;153:256-61.
    • (2010) Ann Intern Med , vol.153 , pp. 256-261
    • Sudore, R.L.1    Fried, T.R.2
  • 2
    • 84883497997 scopus 로고    scopus 로고
    • Development and validation of a questionnaire to detect behavior change in multiple advance care planning behaviors
    • Sudore RL, Stewart AL, Knight SJ, et al. Development and validation of a questionnaire to detect behavior change in multiple advance care planning behaviors. PLoS ONE 2013;8:e72465.
    • (2013) PLoS ONE , vol.8 , pp. e72465
    • Sudore, R.L.1    Stewart, A.L.2    Knight, S.J.3
  • 3
    • 84873991978 scopus 로고    scopus 로고
    • Advance care planning and the quality of end-of-life care in older adults
    • Bischoff KE, Sudore R, Miao YH, et al. Advance care planning and the quality of end-of-life care in older adults. J Am Geriatr Soc 2013;61:209-14.
    • (2013) J Am Geriatr Soc , vol.61 , pp. 209-214
    • Bischoff, K.E.1    Sudore, R.2    Miao, Y.H.3
  • 4
    • 84907000974 scopus 로고    scopus 로고
    • The effects of advance care planning on end-of-life care: A systematic review
    • Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: a systematic review. Palliat Med 2014;28:1000-25.
    • (2014) Palliat Med , vol.28 , pp. 1000-1025
    • Brinkman-Stoppelenburg, A.1    Rietjens, J.A.2    Van Der Heide, A.3
  • 5
    • 84903219789 scopus 로고    scopus 로고
    • Efficacy of advance care planning: A systematic review and meta-analysis
    • Houben CHM, Spruit MA, Groenen MTJ, et al. Efficacy of advance care planning: a systematic review and meta-analysis. J Am Med Dir Assoc 2014;15:477-89.
    • (2014) J Am Med Dir Assoc , vol.15 , pp. 477-489
    • Houben, C.H.M.1    Spruit, M.A.2    Groenen, M.T.J.3
  • 6
    • 77951046282 scopus 로고    scopus 로고
    • The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial
    • Detering KM, Hancock AD, Reade MC, et al. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ 2010;340:c1345.
    • (2010) BMJ , vol.340 , pp. c1345
    • Detering, K.M.1    Hancock, A.D.2    Reade, M.C.3
  • 7
    • 84959073420 scopus 로고    scopus 로고
    • Advance care planning discussions in chronic obstructive pulmonary disease: A critical review
    • Wong J.S.-H., Gottwald M. Advance care planning discussions in chronic obstructive pulmonary disease: a critical review. J Palliat Care 2015;31:258-64.
    • (2015) J Palliat Care , vol.31 , pp. 258-264
    • Wong, J.S.-H.1    Gottwald, M.2
  • 8
    • 84883293468 scopus 로고    scopus 로고
    • Exploring the advance care planning needs of moderately to severely ill people with COPD
    • Nguyen M, Chamber-Evans J, Joubert A, et al. Exploring the advance care planning needs of moderately to severely ill people with COPD. Int J Palliat Nurs 2013;19:389-95.
    • (2013) Int J Palliat Nurs , vol.19 , pp. 389-395
    • Nguyen, M.1    Chamber-Evans, J.2    Joubert, A.3
  • 9
    • 83655193420 scopus 로고    scopus 로고
    • Advance care planning for patients with COPD: Past, present and future
    • Janssen DJA, Engelberg RA, Wouters EFM, et al. Advance care planning for patients with COPD: past, present and future. Patient Educ Couns 2012;86:19-24.
    • (2012) Patient Educ Couns , vol.86 , pp. 19-24
    • Janssen, D.J.A.1    Engelberg, R.A.2    Wouters, E.F.M.3
  • 10
    • 66349110798 scopus 로고    scopus 로고
    • Health-related quality of life in end-stage COPD and lung cancer patients
    • Habraken JM, ter Riet G, Gore JM, et al. Health-related quality of life in end-stage COPD and lung cancer patients. J Pain Symptom Manag 2009;37:973-81.
    • (2009) J Pain Symptom Manag , vol.37 , pp. 973-981
    • Habraken, J.M.1    Ter Riet, G.2    Gore, J.M.3
  • 11
    • 84908093066 scopus 로고    scopus 로고
    • Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: A cohort study
    • Weingaertner V, Scheve C, Gerdes V, et al. Breathlessness, functional status, distress, and palliative care needs over time in patients with advanced chronic obstructive pulmonary disease or lung cancer: a cohort study. J Pain Symptom Manag 2014;48:569-81.e1.
    • (2014) J Pain Symptom Manag , vol.48 , pp. 569-581e1
    • Weingaertner, V.1    Scheve, C.2    Gerdes, V.3
  • 12
    • 84945438249 scopus 로고    scopus 로고
    • Inequalities in non-small cell lung cancer treatment and mortality
    • Nur U, Quaresma M, De Stavola B, et al. Inequalities in non-small cell lung cancer treatment and mortality. J Epidemiol Community Health 2015;69:985-92.
    • (2015) J Epidemiol Community Health , vol.69 , pp. 985-992
    • Nur, U.1    Quaresma, M.2    De Stavola, B.3
  • 13
    • 0043234165 scopus 로고    scopus 로고
    • Mortality and mortality-related factors after hospitalization for acute exacerbation of COPD
    • Groenewegen KH, Schols AMWJ, Wouters EFM. Mortality and mortality-related factors after hospitalization for acute exacerbation of COPD. Chest 2003;124:459.
    • (2003) Chest , vol.124 , pp. 459
    • Groenewegen, K.H.1    Schols, A.M.W.J.2    Wouters, E.F.M.3
  • 14
    • 0034118363 scopus 로고    scopus 로고
    • Dying with lung cancer or chronic obstructive pulmonary disease: Insights from SUPPORT. Study to understand prognoses and preferences for outcomes and risks of treatments
    • Claessens MT, Lynn J, Zhong Z, et al. Dying with lung cancer or chronic obstructive pulmonary disease: Insights from SUPPORT. Study to understand prognoses and preferences for outcomes and risks of treatments. J Am Geriatr Soc 2000;48:S146-S53.
    • (2000) J Am Geriatr Soc , vol.48 , pp. S146-S153
    • Claessens, M.T.1    Lynn, J.2    Zhong, Z.3
  • 15
    • 80051521892 scopus 로고    scopus 로고
    • Patient-clinician communication about end-of-life care for Dutch and US patients with COPD
    • Janssen DJA, Curtis JR, Au DH, et al. Patient-clinician communication about end-of-life care for Dutch and US patients with COPD. Eur Respir J 2011;38:268-76.
    • (2011) Eur Respir J , vol.38 , pp. 268-276
    • Janssen, D.J.A.1    Curtis, J.R.2    Au, D.H.3
  • 16
    • 84857064435 scopus 로고    scopus 로고
    • Preferred and actual involvement of advanced lung cancer patients and their families in end-of-life decision making: A multicenter study in 13 hospitals in Flanders, Belgium
    • Pardon K, Deschepper R, Vander Stichele R, et al. Preferred and actual involvement of advanced lung cancer patients and their families in end-of-life decision making: a multicenter study in 13 hospitals in Flanders, Belgium. J Pain Symptom Manag 2012;43:515-26.
    • (2012) J Pain Symptom Manag , vol.43 , pp. 515-526
    • Pardon, K.1    Deschepper, R.2    Vander Stichele, R.3
  • 17
    • 73749087579 scopus 로고    scopus 로고
    • Exploring the care needs of patients with advanced COPD: An overview of the literature
    • Gardiner C, Gott M, Payne S, et al. Exploring the care needs of patients with advanced COPD: an overview of the literature. Respir Med 2010;104:159-65.
    • (2010) Respir Med , vol.104 , pp. 159-165
    • Gardiner, C.1    Gott, M.2    Payne, S.3
  • 18
    • 84873743802 scopus 로고    scopus 로고
    • Unmet needs of people with end-stage chronic obstructive pulmonary disease: Recommendations for change in Australia
    • Crawford GB, Brooksbank MA, Brown M, et al. Unmet needs of people with end-stage chronic obstructive pulmonary disease: recommendations for change in Australia. Intern Med J 2013;43:183-90.
    • (2013) Intern Med J , vol.43 , pp. 183-190
    • Crawford, G.B.1    Brooksbank, M.A.2    Brown, M.3
  • 20
    • 84906017525 scopus 로고    scopus 로고
    • The Impact of a tumor diagnosis on patients' attitudes toward advance directives
    • Pfirstinger J, Kattner D, Edinger M, et al. The Impact of a tumor diagnosis on patients' attitudes toward advance directives. Oncology 2014;87:246-56.
    • (2014) Oncology , vol.87 , pp. 246-256
    • Pfirstinger, J.1    Kattner, D.2    Edinger, M.3
  • 21
    • 21844468527 scopus 로고    scopus 로고
    • Barriers and facilitators to end-of-life care communication for patients with COPD
    • Knauft E, Nielsen EL, Engelberg RA, et al. Barriers and facilitators to end-of-life care communication for patients with COPD. Chest 2005;127:2188-96.
    • (2005) Chest , vol.127 , pp. 2188-2196
    • Knauft, E.1    Nielsen, E.L.2    Engelberg, R.A.3
  • 22
    • 84875613858 scopus 로고    scopus 로고
    • Advance care planning and interpersonal relationships: A two-way street
    • Rhee JJ, Zwar NA, Kemp LA. Advance care planning and interpersonal relationships: a two-way street. Fam Pr 2013;30:219-26.
    • (2013) Fam Pr , vol.30 , pp. 219-226
    • Rhee, J.J.1    Zwar, N.A.2    Kemp, L.A.3
  • 23
    • 71049155387 scopus 로고    scopus 로고
    • Barriers to advance care planning in chronic obstructive pulmonary disease
    • Gott M, Gardiner C, Small N, et al. Barriers to advance care planning in chronic obstructive pulmonary disease. Palliat Med 2009;23:642-8.
    • (2009) Palliat Med , vol.23 , pp. 642-648
    • Gott, M.1    Gardiner, C.2    Small, N.3
  • 24
    • 84992028372 scopus 로고    scopus 로고
    • Rural health professionals' experiences in implementing advance care planning: A focus group study
    • Fletcher S, Sinclair C, Rhee J, et al. Rural health professionals' experiences in implementing advance care planning: a focus group study. Aust J Prim Health 2015;22:423-7.
    • (2015) Aust J Prim Health , vol.22 , pp. 423-427
    • Fletcher, S.1    Sinclair, C.2    Rhee, J.3
  • 25
    • 69549086485 scopus 로고    scopus 로고
    • Understanding advance care planning as a process of health behavior change
    • Fried TR, Bullock K, Iannone L, et al. Understanding advance care planning as a process of health behavior change. J Am Geriatr Soc 2009;57:1547-55.
    • (2009) J Am Geriatr Soc , vol.57 , pp. 1547-1555
    • Fried, T.R.1    Bullock, K.2    Iannone, L.3
  • 26
    • 44649155738 scopus 로고    scopus 로고
    • Engagement in multiple steps of the advance care planning process: A descriptive study of diverse older adults
    • Sudore RL, Schickedanz AD, Landefeld CS, et al. Engagement in multiple steps of the advance care planning process: a descriptive study of diverse older adults. J Am Geriatr Soc 2008;56:1006-13.
    • (2008) J Am Geriatr Soc , vol.56 , pp. 1006-1013
    • Sudore, R.L.1    Schickedanz, A.D.2    Landefeld, C.S.3
  • 27
    • 78650108425 scopus 로고    scopus 로고
    • Stages of change for the component behaviors of advance care planning
    • Fried TR, Redding CA, Robbins ML, et al. Stages of change for the component behaviors of advance care planning. J Am Geriatr Soc 2010;58:2329-36.
    • (2010) J Am Geriatr Soc , vol.58 , pp. 2329-2336
    • Fried, T.R.1    Redding, C.A.2    Robbins, M.L.3
  • 28
    • 83655201461 scopus 로고    scopus 로고
    • Promoting advance care planning as health behavior change: Development of scales to assess decisional balance, medical and religious beliefs, and processes of change
    • Fried TR, Redding CA, Robbins ML, et al. Promoting advance care planning as health behavior change: development of scales to assess decisional balance, medical and religious beliefs, and processes of change. Patient Educ Couns 2012;86:25-32.
    • (2012) Patient Educ Couns , vol.86 , pp. 25-32
    • Fried, T.R.1    Redding, C.A.2    Robbins, M.L.3
  • 29
    • 84892957411 scopus 로고    scopus 로고
    • The balancing point: Understanding uptake of advance directive forms in a rural Australian community
    • Sinclair C, Auret KA, Burgess A. The balancing point: understanding uptake of advance directive forms in a rural Australian community. BMJ Support Palliat Care 2013;3:358-65.
    • (2013) BMJ Support Palliat Care , vol.3 , pp. 358-365
    • Sinclair, C.1    Auret, K.A.2    Burgess, A.3
  • 30
    • 84904503894 scopus 로고    scopus 로고
    • Association of experience with illness and end-of-life care with advance care planning in older adults
    • Amjad H, Towle V, Fried T. Association of experience with illness and end-of-life care with advance care planning in older adults. J Am Geriatr Soc 2014;62:1304-9.
    • (2014) J Am Geriatr Soc , vol.62 , pp. 1304-1309
    • Amjad, H.1    Towle, V.2    Fried, T.3
  • 31
    • 0024980660 scopus 로고
    • Patient preferences and randomized clinical-trials
    • Brewin CR, Bradley C. Patient preferences and randomized clinical-trials. BMJ 1989;299:313-15.
    • (1989) BMJ , vol.299 , pp. 313-315
    • Brewin, C.R.1    Bradley, C.2
  • 32
    • 85014049762 scopus 로고    scopus 로고
    • The Gold Standards Framework Centre in End of Life Care CIC. The GSF Prognostic Indicator Guidance (4th edn). 14 July 2014
    • The Gold Standards Framework Centre in End of Life Care CIC. The GSF Prognostic Indicator Guidance (4th edn). 2011 (14 July 2014). http://www.goldstandardsframework.org.uk/cd-content/uploads/files/ General Files/Prognostic Indicator Guidance October 2011.pdf
    • (2011)
  • 33
    • 0020396015 scopus 로고
    • Toxicity and response criteria of the Eastern Cooperative Oncology Group
    • Oken MM, Creech RH, Tormey DC, et al. Toxicity and response criteria of the Eastern Cooperative Oncology Group. Am J Clin Oncol 1982;5:649-55.
    • (1982) Am J Clin Oncol , vol.5 , pp. 649-655
    • Oken, M.M.1    Creech, R.H.2    Tormey, D.C.3
  • 34
    • 79957731776 scopus 로고    scopus 로고
    • Using the 'surprise question' can identify people with advanced heart failure and COPD who would benefit from a palliative care approach
    • Murray SA, Boyd K. Using the 'surprise question' can identify people with advanced heart failure and COPD who would benefit from a palliative care approach. Palliat Med 2011;25:382.
    • (2011) Palliat Med , vol.25 , pp. 382
    • Murray, S.A.1    Boyd, K.2
  • 35
    • 65849180257 scopus 로고    scopus 로고
    • The MRC breathlessness scale
    • Stenton C. The MRC breathlessness scale. Occup Med (Lond) 2008;58:226-7.
    • (2008) Occup Med (Lond) , vol.58 , pp. 226-227
    • Stenton, C.1
  • 36
    • 84948380168 scopus 로고    scopus 로고
    • Advance care planning and end-of-life care in a network of rural Australian hospitals
    • Auret K, Sinclair C, Averill B, et al. Advance care planning and end-of-life care in a network of rural Australian hospitals. Aust J Rural Health 2015;23:195-200.
    • (2015) Aust J Rural Health , vol.23 , pp. 195-200
    • Auret, K.1    Sinclair, C.2    Averill, B.3
  • 37
    • 84894083433 scopus 로고    scopus 로고
    • Department of Health WA. East Perth: Department of Health (WA)
    • Department of Health WA. Preparing an advance health directive. East Perth: Department of Health (WA), 2010.
    • (2010) Preparing An Advance Health Directive
  • 38
    • 85014038253 scopus 로고    scopus 로고
    • Department of Health WA. East Perth: Department of Health [31 March 2016]
    • Department of Health WA. My Advance Care Plan. East Perth: Department of Health; 2013 [31 March 2016]. http://www.health.wa.gov.au/advancecareplanning/docs/ACP-form.pdf
    • (2013) My Advance Care Plan
  • 39
    • 84894079318 scopus 로고    scopus 로고
    • Office of the Public Advocate WA. East Perth: Office of the Public Advocate (WA)
    • Office of the Public Advocate WA. A guide to enduring power of guardianship in Western Australia. East Perth: Office of the Public Advocate (WA), 2010.
    • (2010) A Guide to Enduring Power of Guardianship in Western Australia
  • 40
    • 84864607754 scopus 로고    scopus 로고
    • Interim scoring for the EQ-5D-5L: Mapping the EQ-5D-5L to EQ-5D-3L value sets
    • Van Hout B, Janssen MF, Feng YS, et al. Interim scoring for the EQ-5D-5L: mapping the EQ-5D-5L to EQ-5D-3L value sets. Value Health 2012;15:708-15.
    • (2012) Value Health , vol.15 , pp. 708-715
    • Van Hout, B.1    Janssen, M.F.2    Feng, Y.S.3
  • 41
    • 0029120105 scopus 로고
    • Measuring patient and relative satisfaction with level or aggressiveness of care and involvement in care decisions in the context of life-threatening illness
    • Guyatt GH, Mitchell A, Molloy DW, et al. Measuring patient and relative satisfaction with level or aggressiveness of care and involvement in care decisions in the context of life-threatening illness. J Clin Epidemiol 1995;48:1215-24.
    • (1995) J Clin Epidemiol , vol.48 , pp. 1215-1224
    • Guyatt, G.H.1    Mitchell, A.2    Molloy, D.W.3
  • 42
    • 4243185840 scopus 로고    scopus 로고
    • Testing the performance of the ENRICHD Social Support Instrument in cardiac patients
    • Vaglio J Jr, Conard M, Poston WS, et al. Testing the performance of the ENRICHD Social Support Instrument in cardiac patients. Health Qual Life Outcomes 2004;2:24.
    • (2004) Health Qual Life Outcomes , vol.2 , pp. 24
    • Vaglio, J.1    Conard, M.2    Poston, W.S.3
  • 43
    • 84931956635 scopus 로고    scopus 로고
    • Advance care planning does not adversely affect hope or anxiety among patients with advanced cancer
    • Green MJ, Schubart JR, Whitehead MM, et al. Advance care planning does not adversely affect hope or anxiety among patients with advanced cancer. J Pain Symptom Manag 2015;49:1088-96.
    • (2015) J Pain Symptom Manag , vol.49 , pp. 1088-1096
    • Green, M.J.1    Schubart, J.R.2    Whitehead, M.M.3
  • 44
    • 0032583868 scopus 로고    scopus 로고
    • Understanding controlled trials-what is a patient preference trial?
    • Torgerson DJ, Sibbald B. Understanding controlled trials-what is a patient preference trial? BMJ 1998;316:360.
    • (1998) BMJ , vol.316 , pp. 360
    • Torgerson, D.J.1    Sibbald, B.2
  • 45
    • 0034934726 scopus 로고    scopus 로고
    • Death at home following a targeted advance-care planning process at home: The kitchen table discussion
    • Ratner E, Norlander L, McSteen K. Death at home following a targeted advance-care planning process at home: the kitchen table discussion. J Am Geriatr Soc 2001;49:778-81.
    • (2001) J Am Geriatr Soc , vol.49 , pp. 778-781
    • Ratner, E.1    Norlander, L.2    McSteen, K.3
  • 46
    • 84907952126 scopus 로고    scopus 로고
    • How do Australian palliative care nurses address existential and spiritual concerns? Facilitators, barriers and strategies
    • Keall R, Clayton JM, Butow P. How do Australian palliative care nurses address existential and spiritual concerns? Facilitators, barriers and strategies. J Clin Nurs 2014;23:3197-205.
    • (2014) J Clin Nurs , vol.23 , pp. 3197-3205
    • Keall, R.1    Clayton, J.M.2    Butow, P.3
  • 47
    • 84943554116 scopus 로고    scopus 로고
    • Patient-nurse communication about prognosis and end-of-life care
    • Hjelmfors L, Van Der Wal MHL, Friedrichsen MJ, et al. Patient-nurse communication about prognosis and end-of-life care. J Palliat Med 2015;18:865-71.
    • (2015) J Palliat Med , vol.18 , pp. 865-871
    • Hjelmfors, L.1    Van Der Wal Mhl2    Friedrichsen, M.J.3
  • 48
    • 84869417002 scopus 로고    scopus 로고
    • "i don't want to die like that?": The impact of significant others' death quality on advance care planning
    • Carr D. "I don't want to die like that?": the impact of significant others' death quality on advance care planning. Gerontologist 2012;52:770-81. doi:10.1093/geront/gns051
    • (2012) Gerontologist , vol.52 , pp. 770-781
    • Carr, D.1
  • 49
    • 84862537546 scopus 로고    scopus 로고
    • "knowing is better": Preferences of diverse older adults for discussing prognosis
    • Ahalt C, Walter LC, Yourman L, et al. "Knowing is better": preferences of diverse older adults for discussing prognosis. J Gen Intern Med 2012;27:568-75.
    • (2012) J Gen Intern Med , vol.27 , pp. 568-575
    • Ahalt, C.1    Walter, L.C.2    Yourman, L.3
  • 50
    • 84954290347 scopus 로고    scopus 로고
    • Factors influencing Australian general practitioners' clinical decisions regarding advance care planning: A factorial survey
    • Sinclair C, Gates K, Auret K, et al. Factors influencing Australian general practitioners' clinical decisions regarding advance care planning: a factorial survey. J Pain Symptom Manag 2016;51:718-27.
    • (2016) J Pain Symptom Manag , vol.51 , pp. 718-727
    • Sinclair, C.1    Gates, K.2    Auret, K.3
  • 51
    • 84937277782 scopus 로고    scopus 로고
    • The dynamic relationship between social support and health in older adults: Assessment implications
    • Hyduk CA. The dynamic relationship between social support and health in older adults: assessment implications. J Gerontol Soc Work 1996;27:149-65.
    • (1996) J Gerontol Soc Work , vol.27 , pp. 149-165
    • Hyduk, C.A.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.