People with epilepsy obtain added value from education in groups: results of a qualitative study

European Journal of Neurology

Volumn 24, Issue 4, 2017, Pages 609-616

  Ridsdale, L ^a   Philpott, S J ^a   Krooupa, A M ^a   Morgan, M ^b  

^a KING'S COLLEGE LONDON   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

epilepsy; experiential learning; patient education; self management; social stigma; social support

Indexed keywords

ANTICONVULSIVE AGENT;

ADULT; AGED; ARTICLE; BEHAVIOR CHANGE; CLINICAL ARTICLE; CONTROLLED STUDY; EMPLOYMENT STATUS; EPILEPSY; ETHNICITY; EXPERIENTIAL LEARNING; FEMALE; HEALTH BEHAVIOR; HEALTH EDUCATION; HUMAN; LEARNING; MALE; MIDDLE AGED; PERCEPTION; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL; SEIZURE; SELF CARE; SELF CONCEPT; SEMI STRUCTURED INTERVIEW; SOCIAL STIGMA; SOCIAL SUPPORT; VERY ELDERLY; EDUCATION; ENGLAND; PSYCHOLOGY; QUALITATIVE RESEARCH; YOUNG ADULT;

ADULT; AGED; AGED, 80 AND OVER; ENGLAND; EPILEPSY; FEMALE; HEALTH EDUCATION; HUMANS; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; SELF CARE; SELF-MANAGEMENT; SOCIAL SUPPORT; YOUNG ADULT;

EID: 85012924632     PISSN: 13515101     EISSN: 14681331     Source Type: Journal    
DOI: 10.1111/ene.13253     Document Type: Article

References (36)

1. Noble AJ, McCrone P, Seed PT, Goldstein LH, Ridsdale L. Clinical- and cost-effectiveness of a nurse led self-management intervention to reduce emergency visits by people with epilepsy. PLoS One 2014; 9: e90789.
2. Ridsdale L, Charlton J, Ashworth M, Richardson M, Gulliford M. Epilepsy mortality and risk factors for death in epilepsy: a population-based study. Br J Gen Pract 2011; 61: e271–e278.
3. Soedamah-Muthu SS, Fuller JH, Mulnier HE, Raleigh VS, Lawrenson RA, Colhoun HM. All-cause mortality rates in patients with type 1 diabetes mellitus compared with a non-diabetic population from the UK general practice research database, 1992–1999. Diabetologia 2006; 49: 660–666.
4. Prinjha S, Chapple A, Herxheimer A, McPherson A. Many people with epilepsy want to know more: a qualitative study. Fam Pract 2005; 22: 435–441.
5. Taylor S, Pinnock H, Epiphanou E, et al. A rapid synthesis of the evidence on interventions supporting self-management for people with long-term conditions: PRISMS - Practical systematic Review of Self-Management Support for long-term conditions. Health Serv Deliv Res 2014; 2: 53.
6. Heller S, Lawton J, Amiel S, et al. Improving management of type 1 diabetes in the UK: the Dose Adjustment For Normal Eating (DAFNE) programme as a research test-bed. A mixed-method analysis of the barriers to and facilitators of successful diabetes self-management, a health economic analysis, a cluster randomised controlled trial of different models of delivery of an educational intervention and the potential of insulin pumps and additional educator input to improve outcomes. Programme Grants Appl Res 2014; 2: 5.
7. National Institute for Health and Clinical Excellence. Diabetes in Adults. Quality standard 6, 2011. https://www.nice.org.uk/guidance/qs6/chapter/Quality-statement-3-Structured-education-programmes-for-adults-with-type-1-diabetes (accessed 10/11/2016).
8. May TW, Pfafflin M. The efficacy of an educational treatment program for patients with epilepsy (MOSES): results of a controlled, randomized study. Epilepsia 2002; 43: 539–549.
9. Ibinda F, Mbuba CK, Kariuki SM, et al. Evaluation of Kilifi epilepsy education programme: a randomized controlled trial. Epilepsia 2014; 55: 344–352.
10. Fraser RT, Johnson EK, Lashley S, et al. PACES in epilepsy: results of a self-management randomized controlled trial. Epilepsia 2015; 56: 1264–1274.
11. Ridsdale L. The social causes of inequality in epilepsy and developing a rehabilitation strategy: a U.K.-based analysis. Epilepsia 2009; 50: 2175–2179.
12. Baker GA. The psychosocial burden of epilepsy. Epilepsia 2002; 43(Suppl 6): 26–30.
13. Jacoby A, Snape D, Baker GA. Epilepsy and social identity: the stigma of a chronic neurological disorder. Lancet Neurol 2005; 4: 171–178.
14. DiIorio C, Osborne Shafer P, Letz R, et al. The association of stigma with self-management and perceptions of health care among adults with epilepsy. Epilepsy Behav 2003; 4: 259–267.
15. Livingston JD, Boyd JE. Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis. Soc Sci Med 2010; 71: 2150–2161.
16. Majeed A, Bardsley M, Morgan D, O'Sullivan C, Bindman AB. Cross sectional study of primary care groups in London: association of measures of socioeconomic and health status with hospital admission rates. Br Med J 2000; 321: 1057–1060.
17. Dixon PA, Kirkham JJ, Marson AG, Pearson MG. National Audit of Seizure management in Hospitals (NASH): results of the national audit of adult epilepsy in the UK. BMJ Open 2015; 5: e007325.
18. Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. J Am Med Assoc 2002; 288: 2469–2475.
19. NHS England. http://www.nhs.uk/NHSEngland/keogh-review/Documents/safer-faster-better-v28.pdf (accessed 10/11/2016).
20. Kralj-Hans I, Goldstein LH, Noble AJ, et al. Self-Management education for adults with poorly controlled epILEpsy (SMILE (UK)): a randomised controlled trial protocol. BMC Neurol 2014; 14: 69.
21. Magill N, Ridsdale L, Goldstein LH, et al. Self-management education for adults with poorly controlled epilepsy (SMILE (UK)): statistical, economic and qualitative analysis plan for a randomised controlled trial. Trials 2015; 16: 269.
22. Moran N, Poole K, Bell G, et al. NHS services for epilepsy from the patient's perspective: a survey of primary, secondary and tertiary care access throughout the UK. Seizure 2000; 9: 559–565.
23. Newman S, Steed L, Mulligan K. Self-management interventions for chronic illness. Lancet 2004; 364: 1523–1537.
24. Craig N, Dieppe P, Macintyre S, Michle S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. Br Med J 2008; 337: a1655.
25. Lewin S, Glenton C, Oxman AD. Use of qualitative methods alongside randomised controlled trials of complex healthcare interventions: methodological study. Br Med J 2009; 339: b3496.
26. Möhler R, Köpke S, Meyer G. Criteria for reporting the development and evaluation of complex interventions in healthcare: revised guideline (CReDECI 2). Trials 2015; 16: 204.
27. Laybourne AH, Morgan M, Watkins SH, Lawton R, Ridsdale L, Goldstein LH. Self-management for people with poorly controlled epilepsy: participants’ views of the UK Self-Management in epILEpsy (SMILE) program. Epilepsy Behav 2015; 52: 159–164, part A.
28. Ritchie J, Spencer L, O'Connor W. Carrying out qualitative analysis. In: Ritchie J, Lewis J, eds. Qualitative Research Practice. New York: Sage Publications, 2003: 219–262.
29. Green J, Thorogood N. Qualitative Methods for Health Research, 3rd edn. London: Sage Publications, 2013.
30. Mehta N, Clement S, Marcus E, et al. Evidence for effective interventions to reduce mental health-related stigma and discrimination in the medium and long term: systematic review. Br J Psychiatry 2015; 207: 377–384.
31. Stangl AL, Lloyd JK, Brady LM, Holland CE, Baral S. A systematic review of interventions to reduce HIV-related stigma and discrimination from 2002 to 2013: how far have we come? J Int AIDS Soc 2013; 16: 18734.
32. Thornicroft G, Mehta N, Clement S, et al. Evidence for effective interventions to reduce mental-health-related stigma and discrimination. Lancet 2016; 387: 1123–1132.
33. Butler CR, Zeman AZ. Recent insights into the impairment of memory in epilepsy: transient epileptic amnesia, accelerated long-term forgetting and remote memory impairment. Brain 2008; 131(Pt 9): 2243–2263.
34. Michaelis R, Tang V, Wagner JL, et al. Psychological treatments for people with epilepsy. Cochrane Database Syst Rev 2016; 2: CD012081.
35. Helde G, Bovim G, Brathen G, Brodtkorb E. A structured, nurse-led intervention program improves quality of life in patients with epilepsy: a randomized, controlled trial. Epilepsy Behav 2005; 7: 451–457.
36. Losada-Camacho M, Guerrero-Pabon MF, Garcia-Delgado P, Martinez-Martinez F. Impact of a pharmaceutical care programme on health-related quality of life among women with epilepsy: a randomised controlled trial (IPHIWWE study). Health Qual Life Outcomes 2014; 12: 162.