Development and testing of a medline search filter for identifying patient and public involvement in health research

Health Information and Libraries Journal

Volumn 34, Issue 2, 2017, Pages 125-133

  Rogers, Morwenna ^a   Bethel, Alison ^a   Boddy, Kate ^a  

^a UNIVERSITY OF EXETER MEDICAL SCHOOL   (United Kingdom)

Author keywords

health services research; patient participation; search filters; search methods

Indexed keywords

FACTUAL DATABASE; HUMAN; INFORMATION RETRIEVAL; MEDICAL RESEARCH; MEDLINE; PATIENT PARTICIPATION; PUBLIC SECTOR; RESEARCH; SENSITIVITY AND SPECIFICITY;

BIOMEDICAL RESEARCH; DATABASES, FACTUAL; HUMANS; INFORMATION STORAGE AND RETRIEVAL; MEDLINE; PATIENT PARTICIPATION; PUBLIC SECTOR; RESEARCH; SENSITIVITY AND SPECIFICITY;

EID: 85009193606     PISSN: 14711834     EISSN: 14711842     Source Type: Journal    
DOI: 10.1111/hir.12157     Document Type: Article

References (31)

1. Brett, J., Staniszewska, S., Mockford, C., Herron-Marx, S., Hughes, J., Tysall, C. & Suleman, R. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expectations 2014, 17, 637–650.
2. Chalmers, I. What do I want from health research and researchers when I am a patient? British Medical Journal 1995, 310, 1315–1318.
3. NICE (National Institute for Health and Care Excellence). Patient and public involvement policy. Accessible at: https://www.nice.org.uk/about/nice-communities/public-involvement/patient-and-public-involvement-policy Accessed 2nd June 2015.
4. Agency for Health care Research and Quality. Stakeholder Guide 2014. Accessible at: http://www.ahrq.gov/sites/default/files/wysiwyg/research/findings/evidence-based-reports/stakeholderguide/stakeholdr.pdf Accessed 26th April 2016.
5. Supple, D., Roberts, A., Hudson, V., Masefield, S., Fitch, N., Rahmen, M., Flood, B., De Boer, W., Powell, P. & Wagers, S. From tokenism to meaningful engagement: best practices in patient involvement in an EU project. Research Involvement and Engagement 2015, 1, 1–9.
6. National Institute for Health Research. Patient and public involvement (PPI). Accessible at: http://www.nihr.ac.uk/funding/pgfar-patient-and-public-involvement.htm Accessed 2nd June 2015.
7. Cochrane Consumer Network. Consumers making a difference. Accessible at: http://consumers.cochrane.org/ Accessed 2nd June 2015.
8. Shippee, N. D., Domecq Garces, J. P., Prutsky Lopez, G. J., Wang, Z., Elraiyah, T. A., Nabhan, M., Brito, J., Boehmer, K., Hasan, R., Firwana, B., Erwin, P., Montori, V. & Murad, M. Patient and service user engagement in research: a systematic review and synthesized framework. Health Expectations 2015, 18, 1151–1166.
9. INVOLVE. What is public involvement in research? Accessible at: http://www.invo.org.uk/find-out-more/what-is-public-involvement-in-research-2/ Accessed 16th July 2015.
10. Boote, J., Baird, W. & Beecroft, C. Public involvement at the design stage of primary health research: a narrative review of case examples. Health Policy 2010, 95, 10–23.
11. Staniszewska, S., Brett, J., Mockford, C. & Barber, R. The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. International Journal of Technology Assessment in Health Care 2011, 27, 391–399.
12. Jones, E. L., Williams-Yesson, B. A., Hackett, R. C., Staniszewska, S. H., Evans, D. & Francis, N. K. Quality of reporting on patient and public involvement within surgical research: a systematic review. Annals of Surgery 2015, 261, 243–250.
13. Tritter, J. Q. Revolution or evolution: the challenges of conceptualizing patient and public involvement in a consumerist world. Health Expectations 2009, 12, 275–287.
14. Rise, M. B., Solbjør, M., Lara, M. C., Westerlund, H., Grimstad, H. & Steinsbekk, A. Same description, different values. How service users and providers define patient and public involvement in health care. Health Expectations 2013, 16, 266–276.
15. Beale, S., Duffy, S., Glanville, J., Lefebvre, C., Wright, D., McCool, R., Varley, D., Boachie, C., Fraser, C., Harbour, J. & Smith, L. Choosing and using methodological search filters: searchers’ views. Health Information & Libraries Journal 2014, 31, 133–147.
16. Damarell, R. A., Tieman, J., Sladek, R. M. & Davidson, P. M. Development of a heart failure filter for Medline: an objective approach using evidence-based clinical practice guidelines as an alternative to hand searching. BMC Medical Research Methodology 2011, 11, 12.
17. Dickersin, K., Scherer, R. & Lefebvre, C. Identifying relevant studies for systematic reviews. British Medical Journal 1994, 309, 1286–1291.
18. McKibbon, K. A., Wilczynski, N. L. & Haynes, R. B. Retrieving randomized controlled trials from Medline: a comparison of 38 published search filters. Health Information & Libraries Journal 2009, 26, 187–202.
19. Lee, C. W. C., Iansavichus, A. V., Haynes, R. B., Shariff, S. Z., Wilczynski, N., McKibbon, A., Rehman, F. & Garg, A. Kidney transplantation search filters for PubMed, Ovid Medline, and Embase. Transplantation 2012, 93, 460–466.
20. Sladek, R. M., Tieman, J. & Currow, D. C. Improving search filter development: a study of palliative care literature. BMC Medical Informatics and Decision Making 2007, 7, 18.
21. Ugolini, D., Neri, M., Casilli, C. & Bonassi, S. Development of search filters for retrieval of literature on the molecular epidemiology of cancer. Mutation Research 2010, 701, 107–110.
22. Bachmann, L. M., Coray, R., Estermann, P. & Ter Riet, G. Identifying diagnostic studies in MEDLINE: reducing the number needed to read. Journal of the American Medical Informatics Association 2002, 9, 653–658.
23. Glanville, J., Bayliss, S., Booth, A., Dundar, Y., Fernandes, H., Fleeman, N. D., Foster, C., Fry-Smith, A., Golder, S., Lefebvre, C., Miller, C., Paisley, S., Payne, L., Price, A. & Welch, K. So many filters, so little time: the development of a search filter appraisal checklist. Journal of the Medical Library Association 2008, 96, 356–361.
24. Jenkins, M. Evaluation of methodological search filters–a review. Health Information & Libraries Journal 2004, 21, 148–163.
25. Geersing, G. J., Bouwmeester, W., Zuithoff, P., Spijker, R., Leeflang, M. & Moons, K. Search filters for finding prognostic and diagnostic prediction studies in Medline to enhance systematic reviews. PLoS One 2012, 7, e32844. doi: 10.1371/journal.pone.0032844.
26. Lokker, C., McKibbon, K. A., Wilczynski, N. L., Haynes, R. B., Ciliska, D., Dobbins, M., Davis, D. & Straus, S. Finding knowledge translation articles in CINAHL. Studies in Health Technology and Informatics 2010, 160, 1179–1183.
27. Wilczynski, N. L., Haynes, R. B. & QI Hedges Team. Optimal search filters for detecting quality improvement studies in Medline. Quality & Safety in Health Care 2010, 19, e31.
28. Wong, S. S., Wilczynski, N. L. & Haynes, R. B. Developing optimal search strategies for detecting clinically relevant qualitative studies in MEDLINE. Studies in Health Technology and Informatics 2004, 107, 311–316.
29. Bailey, S., Boddy, K., Briscoe, S. & Morris, C. Involving disabled children and young people as partners in research: a systematic review. Child: Care, Health and Development 2015, 41, 505–514.
30. Terwee, C. B., Jansma, E. P., Riphagen, I. I. & De Vet, H. C. W. Development of a methodological PubMed search filter for finding studies on measurement properties of measurement instruments. Quality of Life Research 2009, 18, 1115–1123.
31. Keogh, B. & Daly, L. The ethics of conducting research with mental health service users. British Journal of Nursing 2009, 18, 277–278, 280–281.