Estimating the Global Need for Palliative Care for Children: A Cross-sectional Analysis

Journal of Pain and Symptom Management

Volumn 53, Issue 2, 2017, Pages 171-177

  Connor, Stephen R ^a   Downing, Julia ^b   Marston, Joan ^c  

^a Worldwide Hospice Palliative Care Alliance   (United States)

^b International Children's Palliative Care Network   (Uganda)

^c International Children's Palliative Care Network   (South Africa)

Author keywords

children; hospice; need for service; needs assessment; Pediatric palliative care; pediatrics

Indexed keywords

ACQUIRED IMMUNE DEFICIENCY SYNDROME; ADOLESCENT; ARGENTINA; ARMENIA; ARTICLE; AUSTRALIA; BRAZIL; CARDIOVASCULAR DISEASE; CHILD; CHINA; CONGENITAL MALFORMATION; CROSS-SECTIONAL STUDY; DRUG RESISTANT TUBERCULOSIS; EGYPT; ENDOCRINE DISEASE; ETHIOPIA; GERMANY; GLOBAL DISEASE BURDEN; HEALTH CARE NEED; HEALTH PRACTITIONER; HEMATOLOGIC DISEASE; HUMAN; IMMUNOPATHOLOGY; INCOME GROUP; INDIA; INDONESIA; INFANT; JORDAN; KENYA; KIDNEY DISEASE; KYRGYZSTAN; LIVER CIRRHOSIS; MAJOR CLINICAL STUDY; MALAWI; MALAYSIA; MALIGNANT NEOPLASM; MENINGITIS; MEXICO; MORTALITY; NEEDS ASSESSMENT; NEUROLOGIC DISEASE; NEWBORN DISEASE; PALLIATIVE THERAPY; PEDIATRICS; PREVALENCE; PROTEIN CALORIE MALNUTRITION; RUSSIAN FEDERATION; SERBIA; SOUTH AFRICA; TAJIKISTAN; UNITED KINGDOM; UNITED STATES; WORLD HEALTH ORGANIZATION; ZIMBABWE; GLOBAL HEALTH; HEALTH SERVICE; ORGANIZATION AND MANAGEMENT;

CHILD; CROSS-SECTIONAL STUDIES; GLOBAL HEALTH; HEALTH SERVICES NEEDS AND DEMAND; HUMANS; PALLIATIVE CARE; PEDIATRICS;

EID: 85007415678     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2016.08.020     Document Type: Article

References (15)

1. 1 Institute of Medicine. When Children Die: Improving palliative and end-of-life care for children and their families. 2003, National Academies Press, Washington DC Available at: http://www.nap.edu/catalog/10390/when-children-die-improving-palliative-and-end-of-life-care Accessed August 16, 2015.
2. 2 Harding, R., Brits, H., Penfold, S., Paediatric anti-retroviral therapy outcomes under HIV hospice care in South Africa. Int J Palliat Nurs 15 (2009), 142–145.
3. 3 Connor, S.R., Sisimayi, C., Downing, J., et al. Assessment of the need for palliative care for children in South Africa. Int J Palliat Nurs 20 (2014), 130–134.
4. 4 Hain, R., Heckford, E., McCulloch, R., Paediatric palliative medicine in the UK: past, present, future. Arch Dis Child 97 (2011), 381–384.
5. 5 Randall, V., Cervenka, J., Arday, D., Hooper, T., Hanson, J., Prevalence of life-threatening conditions in children. Am J Hosp Palliat Care 28 (2011), 310–315.
6. 6 Fraser, L., Miller, M., Hain, R., et al. Rising national prevalence of life-limiting conditions in children in England. Pediatrics 129 (2012), e923–e929.
7. 7 Knapp, C., Woodworth, L., Wright, M., et al. Pediatric palliative care provision around the world: a systematic review. Pediatr Blood Cancer 57 (2011), 361–368.
8. 8 Connor, S., Sepulveda, C., (eds.) Global Atlas of palliative care at the end of life, 2014, World Health Organization/Worldwide Hospice Palliative Care Alliance, Geneva, CH/London, U.K.
9. 9 World Health Organization. WHO definition of palliative care. Available at: http://www.who.int/cancer/palliative/definition/en/. Accessed August 16, 2015.
10. 10 Hain, R., Devins, M., Hastings, R.P., Noyes, J., Paediatric palliative care: development an pilot study of a ‘directory’ of life-limiting conditions. BMC Palliat Care, 12, 2013, 43.
11. 11 Together for Short Lives. A core pathway for children with life-limiting and life-threatening conditions: third edition. Available at: http://www.togetherforshortlives.org.uk/professionals/care_provision/care_pathways/core_care_pathway, 2013 Accessed July 17, 2015.
12. 12 Higginson, I.J., Palliative and terminal care: Health needs assessment. Stevens, A., Rafferty, J., (eds.) The Epidemiologically based needs assessment reviews, 1997, Radcliffe Medical Press, New York, 183–260.
13. 13 Australian Government Institute of Health and Welfare. Trends in palliative care in Australian hospitals. Cat. No. HWI 112. 2011, AIHW, Canberra.
14. 14 World Health Organization. WHO mortality data from the Global Health Estimates. Causes of death 2000-2011. Available at: www.who.int/healthinfo/global_burden_disease/en. Accessed August 14, 2015.
15. 15 United Nations Department of Economic and Social Affairs: Population Division. UN population data by country for ages 0-19 by year. Available at: http://esa.un.org/unpd/ppp/Data-Output/UN_PPP2012_Output_Pop0-19.xls. Accessed August 16, 2015.