Paediatric palliative medicine in the UK: Past, present, future

Archives of Disease in Childhood

Volumn 97, Issue 4, 2012, Pages 381-384

  Hain, Richard ^a   Heckford, Emma ^a   McCulloch, Renée ^b,c  

^a CHILDREN S HOSPITAL FOR WALES   (United Kingdom)

^b MINISTRY OF HEALTH   (Kuwait)

^c GREAT ORMOND STREET HOSPITAL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

GENERAL PRACTITIONER; HEALTH CARE; HISTORY OF MEDICINE; HUMAN; MEDICAL RESEARCH; PALLIATIVE THERAPY; PEDIATRICS; PRIORITY JOURNAL; PUBLIC-PRIVATE PARTNERSHIP; REVIEW; UNITED KINGDOM;

CHILD; CHILD HEALTH SERVICES; CLINICAL COMPETENCE; COOPERATIVE BEHAVIOR; DELIVERY OF HEALTH CARE, INTEGRATED; GREAT BRITAIN; HOSPICES; HUMANS; PALLIATIVE CARE;

EID: 84859161511     PISSN: 00039888     EISSN: 14682044     Source Type: Journal    
DOI: 10.1136/archdischild-2011-300432     Document Type: Review

References (20)

1. ACT/RCPCH. A Guide to the Development of Children's Palliative Care Services. First edition. Bristol and London: ACT/RCPCH 1997.
2. Chapman JA, Goodall J. Symptom control in ill and dying children. Matern Child Health 1980;5:144-54.
3. Chapman JA, Goodall J. Dying children need help too. Br Med J 1979;1:593-4.
4. Chapman JA, Goodall J. Helping a child to live whilst dying. Lancet 1980;1:753-6.
5. Cotton M, Cotton G, Goodall J. A brother dies at home. Matern Child Health 1981;6:288-92.
6. Dominica MF. Helen House - a hospice for children. Matern Child Health 1982;7:355-9.
7. ACT, McNamara-Goodger K. Right People, Right Place, Right Time: Planning and developing an effective and responsive workforce for children's and young people's palliative care. Bristol: ACT, 2009.
8. Craft PSA, Killen S. Palliative Care Services for Children and Young People in England. London: Department of Health, 2007.
9. BSPPM, ACHDox. Curriculum in Paediatric Palliative Medicine (inc GP version), 2008. Published electronically by ACT, Bristol, UK.
10. Hain R, Devins M, Hastings R, et al. Development and Utility of a 'Dictionary'to Establish Definition, Incidence and Prevalence of Life-limiting Conditions in Children. First Edition. 2010.
11. Cochrane H, Liyanage S, Nantambi R. Palliative Care Statistics for Children and Young Adults. Health and Care Partnerships Analysis. London: Department of Health, 2007.
12. Ezergalis S, Brook L. Making Life-limited Children and Young People Count: A Framework and Guide for Local Implementation. Bristol: ACT/CHUK, 2009.
13. Wood F, Simpson S, Barnes E, et al. Disease trajectories and ACT/RCPCH categories in paediatric palliative care. Palliat Med 2010;24:796-806.
14. Fraser J, Harris N, Berringer AJ, et al. Advanced care planning in children with life-limiting conditions - the Wishes Document. Arch Dis Child 2010;95:79-82.
15. Vickers JL, Carlisle C. Choices and control: parental experiences in pediatric terminal home care. J Pediatr Oncol Nurs 2000;17:12-21.
16. Wolff A, Browne J, Whitehouse WP. Personal resuscitation plans and end of life planning for children with disability and life-limiting/life-threatening conditions. Arch Dis Child Educ Pract Ed 2011;96:42-8.
17. Cawley D, Waterman D, Roberts D, et al. A qualitative study exploring perceptions and experiences of patients and clinicians of palliative medicine outpatient clinics in different settings. Palliat Med 2011;25:52-61.
18. Bruera E, Billings JA, Lupu D, et al. AAHPM position paper: requirements for the successful development of academic palliative care programs. J Pain Symptom Manage 2010;39:743-55.
19. Devader TE, Albrecht R, Reiter M. Initiating Palliative Care in the Emergency Department. J Emerg Med 2011;(In Press).
20. Papadatou D. Merimna: The society for the care of children and families facing illness and death. Bereave Care 2010;29:30-3.