Child protection services and parents with intellectual and developmental disabilities

Journal of Applied Research in Intellectual Disabilities

Volumn 30, Issue 3, 2017, Pages 521-532

  LaLiberte, Traci ^a   Piescher, Kristine ^a   Mickelson, Nicole ^a   Lee, Mi Hwa ^a  

^a UNIVERSITY OF MINNESOTA   (United States)

Author keywords

child protection; disparity; intellectual and developmental disabilities; out of home care; parental disability; termination of parental rights

Indexed keywords

ADOLESCENT; ADULT; CHILD CUSTODY; CHILD PROTECTION; DEVELOPMENTAL DISORDER; FEMALE; FOLLOW UP; HUMAN; INTELLECTUAL IMPAIRMENT; LEGISLATION AND JURISPRUDENCE; MALE; MINNESOTA; PARENT; REGISTER; STATISTICS AND NUMERICAL DATA; YOUNG ADULT;

ADOLESCENT; ADULT; CHILD CUSTODY; CHILD PROTECTIVE SERVICES; DEVELOPMENTAL DISABILITIES; FEMALE; FOLLOW-UP STUDIES; HUMANS; INTELLECTUAL DISABILITY; MALE; MINNESOTA; PARENTS; REGISTRIES; YOUNG ADULT;

EID: 85007339339     PISSN: 13602322     EISSN: 14683148     Source Type: Journal    
DOI: 10.1111/jar.12323     Document Type: Conference Paper

References (90)

1. Ackerson, B. J. (2003). Parents with serious and persistent mental illness: Issues in assessment and services. Social Work, 48(2), 187–194. doi:10.1093/sw/48.2.187
2. Aunos, M., & Feldman, M. A. (2002). Attitudes towards sexuality, sterilization and parenting rights of persons with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 15, 285–296. doi:10.1046/j.1468-3148.2002.00135.x
3. Azar, S. T. (2013). Assessment of parenting capacity among parents with cognitive disabilities, 16 CW360, Fall. Retrieved from http://cascw.umn.edu/wp-content/uploads/2013/12/Fall2013_CW360_WEB.pdf
4. Azar, S. T., Maggi, M. C., & Proctor, S. N. (2013). Practices changes in the child protection system to address the needs of parents with cognitive disabilities. Journal of Public Child Welfare, 7(5), 610–632. doi:10.1080/15548732.2013.857630
5. Azar, S. T., & Read, K. N. (2009). Parental cognitive disabilities and child protection services: The need for human capacity building. Journal of Sociology & Social Welfare, 36(4), 127–151.
6. Azar, S. T., Robinson, L. R., & Proctor, S. N. (2012). Chronic neglect and services without borders: A guiding model for social service enhancement to address the needs of parents with intellectual disabilities. Journal of Mental Health Research in Intellectual Disabilities, 5(2), 130–156. doi:10.1080/19315864.2011.592238
7. Barger, E., Wacker, J., Macy, R., & Parish, S. (2009). Sexual assault prevention for women with intellectual disabilities: A critical review of the evidence. Intellectual and Developmental Disabilities, 47, 249–262. doi:10.1352/1934-9556-47.4.249
8. Berger, L. M. (2004). Income, family structure, and child maltreatment risk. Children and Youth Services Review, 26, 725–748. doi:10.1016/j.childyouth.2004.02.017
9. Booth, T. (2000). Parents with learning difficulties, child protection and the courts. Representing Children, 13(3), 175–188.
10. Booth, T., & Booth, W. (1993). Parenting with learning difficulties: Lessons for practitioners. British Journal of Social Work, 23, 459–480. doi:10.1093/bjsw/23.5.459
11. Booth, T., & Booth, W. (1999). Parents together: Action research and advocacy support for parents with learning difficulties. Health & Social Care in the Community, 7(6), 464–474. doi:10.1046/j.1365-2524.1999.00214.x
12. Booth, T., Booth, W., & McConnell, D. (2005). The prevalence and outcomes of care proceedings involving parents with learning difficulties in the family courts. Journal of Applied Research in Intellectual Disabilities, 18(1), 7–17. doi:10.1111/j.1468-3148.2004.00204.x
13. Budd, K. S., Poindexter, L. M., Felix, E. D., & Naik-Polan, A. T. (2001). Clinical assessment of parents in child protection cases: An empirical analysis. Law and Human Behavior, 25(1), 93. doi:10.1023/A:1005696026973
14. Burgen, B. (2007). Still not accepted: When women with intellectual disabilities choose to become mothers. Women Against Violence: An Australian Feminist Journal, 19, 54–61 Retrieved from http://search.informit.com.au/documentSummary;dn=729275268822194;res=IELFSC
15. Carlson, B. E. (1997). Mental retardation and domestic violence: An ecological approach to intervention. Social Work, 42, 79–89. doi:10.1093/sw/42.1.79
16. Chaplin, E., Gilvarry, C., & Tsakanikos, E. (2011). Recreational substance use patterns and co-morbid psychopathology in adults with intellectual disability. Research in Developmental Disabilities, 32(6), 2981–2986. doi:10.1016/j.ridd.2011.05.002
17. Chapman, S. L. C., & Wu, L. T. (2012). Substance abuse among individuals with intellectual disabilities. Research in Developmental Disabilities, 33(4), 1147–1156. doi:10.1016/j.ridd.2012.02.009
18. Child Abuse Prevention and Treatment Act of 1974, 42 USC §§5101–5106. Retrieved from http://www.acf.hhs.gov/sites/default/files/cb/capta2003.pdf
19. Collentine, A. C. (2005). Respecting intellectually disabled parents: A call for change in state termination of parental rights statutes. Hofstra Law Review, 34, 535–564.
20. Cuskelly, M., & Bryde, R. (2004). Attitudes toward the sexuality of adults with an intellectual disability: Parents, support staff, and a community sample. Journal of Intellectual & Developmental Disability, 29(3), 225–264. doi:10.1080/13668250412331285136
21. Diekema, D. (2003). Involuntary sterilization of persons with mental retardation: An ethical analysis. Mental Retardation and Developmental Disabilities Research Reviews, 9, 21–26. doi:10.1002/mrdd.10053
22. van Duijvenbode, N., VanDerNagel, J. E., Didden, R., Engels, R. C., Buitelaar, J. K., Kiewik, M., & de Jong, C. A. (2015). Substance use disorders in individuals with mild to borderline intellectual disability: Current status and future directions. Research in Developmental Disabilities, 38, 319–328. doi:10.1016/j.ridd.2014.12.029
23. Feldman, M. (1998). Parents with intellectual disabilities: Implications and interventions. In J. Lutzker (Ed.), Handbook of child abuse research and treatment (pp. 401–420). New York: Plenum Press.
24. Feldman, M. A. (2002). Parents with intellectual disabilities and their children: Impediments and supports. In D. Griffiths & P. Federoff (Eds.), Ethical issues in sexuality of people with developmental disabilities (pp. 255–292). Kingston, NY: NADD Press.
25. Feldman, M. (2010). Parenting education programs. In G. Llewellyn, R. Traustadóttir, D. McConnell & H. Björg Sigurjónsdóttir (Eds.), Parents with intellectual disabilities: Past, present and futures (pp. 121–136). Chichester, UK: Wiley-Blackwell.
26. Feldman, M. A., & Aunos, M. (2010). Comprehensive, competence-based parenting assessment for parents with learning difficulties and their children. Kingston, NY: NADD Press.
27. Freeborn, D., & Curry, M. A. (2009). Experiences of mistreatment among women with cerebral palsy. Women and Health, 49, 555–572. doi:10.1080/03630240903424004
28. Glaun, D. E., & Brown, P. F. (1999). Motherhood, intellectual disability and child protection: Characteristics of a court sample. Journal of Intellectual and Developmental Disability, 24(1), 95–105. doi:10.1080/13668259900033901
29. Granqvist, P., Forslund, T., Fransson, M., Springer, L., & Lindberg, L. (2014). Mothers with intellectual disability, their experiences of maltreatment, and their children's attachment representations: A small-group matched comparison study. Attachment & Human Development, 16(5), 417–436. doi:10.1080/14616734.2014.926946
30. Guterman, N. B., & Lee, Y. (2005). The role of fathers in risk for physical child abuse and neglect: Possible pathways and unanswered questions. Child Maltreatment, 10, 136–149.
31. Hammink, A. B., VanDerNagel, J., & van de Mheen, D. (2015). Dual disorders: Mild intellectual disability and substance abuse. In G. Dom & F. Moggi (Eds.), Co-occurring addictive and psychiatric disorders: A practice-based handbook from a European perspective (pp. 205–220). Berlin Heidelberg, Germany: Springer-Verlag.
32. Hayman, R. (1990). Presumptions of justice: Law, politics, and the mentally retarded parent. Harvard Law Review, 103(6), 1201–1271. doi:10.2307/1341412
33. Hertz, R. (1979). Retarded parents in neglect proceedings: The erroneous assumption of parental inadequacy. Stanford Law Review, 31, 785–805. doi:10.2307/1228426
34. IBM Corp. (2013). IBM SPSS statistics for windows, Version 22.0. Armonk, NY: IBM Corp.
35. Institute for Human Services (2003). The OCWTP Universe of Competencies. Retrieved from http://www.ocwtp.com/About%20CCBIT/competencies.htm
36. James, H. (2004). Promoting effective working with parents with learning disabilities. Child Abuse Review, 13(1), 31–41. doi:10.1002/car.823
37. Kay, J. B. (2009). Representing parents with disabilities in child protection proceedings. The Michigan Child Welfare Law Journal, 13(1), 27–36. Retrieved from http://chanceatchildhood.msu.edu/pdf/CWLJ_fa09.pdf#page=29
38. LaLiberte, T. L. (2013). Are we prepared? Child welfare work with parents with intellectual and/or developmental disabilities. Journal of Public Child Welfare, 7(5), 633–657. doi:10.1080/15548732.2013.861382
39. LaLiberte, T. L., & Lightfoot, E. (2013). Breaking down the silos: Examining the intersection between child welfare and disability. Journal of Public Child Welfare, 7(5), 471–479. doi:10.1080/15548732.2013.865962
40. LaLiberte, T., Lightfoot, E., Mishra, S., & Piescher, K. (2015). Parental disability and termination of parental rights in child protection. Minn-LInK Brief No. 12 (2012 rev.). St. Paul, MN: Center for Advanced Studies in Child Welfare, University of Minnesota Retrieved from http://cascw.umn.edu/portfolio-items/parental-disability-and-termination-of-parental-rights-in-child-protection-ml-12revised/
41. Leslie, L. K., Gordon, J. N., Lambros, K., Premji, K., Peoples, J., & Gist, K. (2005). Addressing the developmental and mental health needs of young children in foster care. Journal of Developmental and Behavioral Pediatrics, 26(2), 140–151.
42. Levesque, R. (1996). Maintaining children's relationship with mentally disabled parents: Recognizing difference and the difference it makes. Children's Legal Rights Journal, 16, 14–22.
43. Lewis, C., Stenfert-Kroese, B., & O'Brien, A. (2015). Child and family social workers’ experiences of working with parents with intellectual disabilities. Advances in Mental Health and Intellectual Disabilities, 9(6), 327–337. doi:10.1108/AMHID-03-2015-0013
44. Lightfoot, E., Hill, K., & LaLiberte, T. (2011). Prevalence of children with disabilities in the child welfare system and out of home placement: An examination of administrative records. Children and Youth Services Review, 33(11), 2069–2075. doi:10.1016/j.childyouth.2011.02.019
45. Lightfoot, E. B., & LaLiberte, T. L. (2006). Approaches to child protection case management for cases involving people with disabilities. Child Abuse & Neglect, 30(4), 381–391. doi:10.1016/j.chiabu.2005.10.013
46. Lightfoot, E., LaLiberte, T., & Hill, K. (2010). Disability in the termination of parental rights and other child custody statutes. Child Abuse and Neglect, 34, 927–934. doi:10.1016/j.chiabu.2010.07.001
47. Llewellyn, G., & Hindmarsh, G. (2015). Parents with intellectual disability in a population context. Current Developmental Disorders Reports, 2(2), 119–126. doi:10.1007/s40474-015-0042-x
48. Llewellyn, G., & McConnell, D. (2002). Mothers with learning difficulties and their support networks. Journal of Intellectual Disability Research, 46(1), 17–34. doi:10.1046/j.1365-2788.2002.00347.x
49. Llewellyn, G., McConnell, D., & Ferronato, L. (2003). Prevalence and outcomes for parents with disabilities and their children in an Australian court sample. Child Abuse & Neglect, 27(3), 235–251. doi:10.1016/S0145-2134(03)00004-8
50. Macklin, R., & Gaylin, W. (1981). Mental retardation and sterilization: A problem of competency and paternalism. New York: Plenum Press.
51. Marafino, K. (1990). Parental rights of persons with mental retardation. In B. Whitman & P. Accardo (Eds.), When a parent is mentally retarded. Baltimore, MD: Brookes.
52. McConnell, D., Feldman, M., Aunos, M., & Prasad, N. (2011a). Parental cognitive impairment and child maltreatment in Canada. Child Abuse & Neglect, 35(8), 621–632. doi:10.1016/j.chiabu.2011.04.005
53. McConnell, D., Feldman, M., Aunos, M., & Prasad, N. (2011b). Child maltreatment investigations involving parents with cognitive impairments in Canada. Child Maltreatment, 16, 21–32. doi:10.1177/1077559510388843
54. McConnell, D., & Llewellyn, G. (2000). Disability and discrimination in statutory child protection proceedings. Disability & Society, 15(6), 883–895. doi:10.1080/713662015
55. McConnell, D., & Llewellyn, G. (2002). Stereotypes, parents with intellectual disability and child protection. Journal of Social Welfare and Family Law, 24(3), 297–317. doi:10.1080/09649060210161294
56. McConnell, D., Llewellyn, G., & Ferronato, L. (2000). Parents with a disability and the NSW children's court. Lidcombe, NSW: University of Sydney Family Support and Services Project.
57. McGaha, C. (2002). Development of parenting skills in individuals with an intellectual impairment: An epigenetic explanation. Disability & Society, 17(1), 81–91. doi:10.1080/09687590120100147
58. McGaw, S., Shaw, T., & Beckley, K. (2007). Prevalence of psychopathology across a service population of parents with intellectual disabilities and their children. Journal of Policy and Practice in Intellectual Disabilities, 4, 11–22. doi:10.1111/j.1741-1130.2006.00093.x
59. Minnesota Department of Education (2011). Minnesota automated reporting student system (MARSS) manual. Retrieved from http://education.state.mn.us/MDE/dse/schfin/MARSS/inst/index.htm
60. Minnesota Department of Education (2016). Minnesota report card. Retrieved from http://rc.education.state.mn.us/
61. Mitchell, A., Clegg, J., & Furniss, F. (2006). Exploring the meaning of trauma with adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 19, 131–142. doi:10.1111/j.1468-3148.2005.00235.x
62. National Center for Chronic Disease Prevention and Health Promotion (2010). Registry Plus. [Software]. Retrieved from http://www.cdc.gov/cancer/npcr/
63. National Council on Disability (2012). Rocking the cradle: Ensuring the rights of parents with disabilities and their children. Retrieved from http://www.ncd.gov/rawmedia_repository/89591c1f_384e_4003_a7ee_0a14ed3e11aa.pdf
64. Proctor, S. N., & Azar, S. T. (2013). The effect of parental intellectual disability status on child protection service worker decision making. Journal of Intellectual Disability Research, 57(12), 1104–1116. doi:10.1111/j.1365-2788.2012.01623.x
65. Prouty, R. W., Smith, G., & Lakin, C. K. (2005). Residential services for persons with developmental disabilities: Status and trends through 2004. Minneapolis, MN: University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration.
66. Putnam-Hornstein, E., & Needell, B. (2011). Predictors of child welfare contact between birth and age five: An examination of California's 2002 birth cohort. Children and Youth Services Review, 33(11), 2400–2407.
67. Putnam-Hornstein, E., Needell, B., King, B., & Johnson-Motoyama, M. (2013). Racial and ethnic disparities: A population-based examination of risk factors for involvement with child protective services. Child Abuse Neglect, 37(1), 33–46.
68. Reporting of Maltreatment of Minors, M.S. 626.556, subd. 1. Retrieved from https://www.revisor.mn.gov/statutes/?id=626.556
69. Ricks, J., & Dziegielewski, S. (2000). Involuntary sterilization and the mentally retarded, revisited. Human Rights Review, 2, 125–133.
70. Rycus, J., & Hughes, R. (1994). A condensed history of the comprehensive, competency-based inservice training (CCBIT) system for child welfare. Columbus, OH: Institute for Human Services.
71. Schalock, R. L., Borthwick-Duffy, S. A., Bradley, V. J., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., … Yeager, M. H. (2011). Intellectual disability: Definition, classification, and systems of supports, 11th ed. Washington, DC: American Association on Intellectual and Developmental Disabilities.
72. Scheepers, M., Kerr, M., O'Hara, D., Bainbridge, D., Cooper, S. A., Davis, R., … Lennox, N. (2005). Reducing health disparity in people with intellectual disabilities: A report from health issues special interest research group of the international association for the scientific study of intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 2(3–4), 249–255. doi:10.1111/j.1741-1130.2005.00037.x
73. Shaw, T., Putnam-Hornstein, E., Magruder, J., & Needel, B. (2008). Measuring racial disparity in child welfare. Child Welfare, 87(2), 23–36.
74. Sheerin, F. (1998). Marginalisation in learning disability services: An exploration of the issues. Nursing Review, 16(3/4), 70–73. Retrieved from http://edepositireland.ie/bitstream/handle/2262/70405/Marginalisation_in_Irish_Intellectual_Disability_Services-libre%281%29.pdf?sequence=1&isAllowed=y
75. Sobsey, D., & Doe, T. (1991). Patterns of sexual abuse and assault. Sexuality and Disability, 9, 243–259. doi:10.1007/BF01102395
76. Swain, P. A., & Cameron, N. (2003). ‘Good enough parenting’: Parental disability and child protection. Disability & Society, 18(2), 165–177. doi:10.1080/0968759032000052815
77. Tarleton, B., & Ward, L. (2007). “Parenting with support”: The views and experiences of parents with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 4(3), 194–202. doi:10.1111/j.1741-1130.2007.00118.x
78. To, W. T., Neirynck, S., Vanderplasschen, W., Vanheule, S., & Vandevelde, S. (2014). Substance use and misuse in persons with intellectual disabilities (ID): Results of a survey in ID and addiction services in Flanders. Research in Developmental Disabilities, 35(1), 1–9. doi:10.1016/j.ridd.2013.10.015
79. Tymchuk, A. (1999). Moving toward integration of services for parents with intellectual disabilities. Journal of Intellectual & Developmental Disability, 24(1), 59–74. doi:10.1080/13668259900033881
80. Tymchuk, A. (2001). Family life: Experience of people with mild cognitive limitations. In A. Tymchuk, C. K. Lakin & R. Luckasson (Eds.), The Forgotten generation; the status and challenges of adults with mild cognitive limitations. Baltimore: Brookes Publishing Co.
81. Tymchuk, A. J., & Andron, L. (1990). Mothers with mental retardation who do or do not abuse or neglect their children. Child Abuse & Neglect, 14(3), 313–323. doi:10.1016/0145-2134(90)90003-C
82. Tymchuk, A., Lakin, K. C., & Luckasson, R. (2001). The forgotten generation. Baltimore: Brookes Publishing.
83. U.S. Department of Agriculture, Food and Nutrition Service, Office of Research and Analysis, Direct Certification in the National School Lunch Program: State Implementation Progress (2008). Report CN-08-DC. Alexandria, VA: Author.
84. Wade, C., Llewellyn, G., & Matthews, J. (2008). Review of parent training interventions for parents with intellectual disability. Journal of Applied Research in Intellectual Disabilities, 21(4), 351–366. doi:10.1111/j.1468-3148.2008.00449.x
85. Watkins, C. (1995). Beyond status: The Americans with Disabilities Act and the parental rights of people labelled developmentally disabled or mentally retarded. California Law Review, 83(6), 1415–1475. doi:10.2307/3480873
86. Weiber, I., Eklund, M., & Tengland, P. A. (2015). The characteristics of local support systems, and the roles of professionals, in supporting families where a mother has an intellectual disability. Journal of Applied Research in Intellectual Disabilities, doi:10.1111/jar.12169
87. Whitman, B., & Accardo, P. (1990). When a parent is mentally retarded. Baltimore: Brookes.
88. Wigham, S., Hatton, C., & Taylor, J. L. (2011). The effects of traumatizing life events on people with intellectual disabilities: A systematic review. Journal of Mental Health Research in Intellectual Disabilities, 4, 19–39. doi:10.1080/19315864.2010.534576
89. Willems, D. L., De Vries, J. N., Isarin, J., & Reinders, J. S. (2007). Parenting by persons with intellectual disability: An explorative study in the Netherlands. Journal of Intellectual Disability Research, 51(7), 537–544. doi:10.1111/j.1365-2788.2006.00924.x
90. Wilson, S., McKenzie, K., Quayle, E., & Murray, G. C. (2013). The postnatal support needs of mothers with an intellectual disability. Midwifery, 29(6), 592–598. doi:10.1016/j.midw.2012.05.002