Lived experiences and illness representation of Taiwanese patients with late-stage chronic kidney disease

Journal of Health Psychology

Volumn 21, Issue 12, 2016, Pages 2788-2798

  Wu, Chia Chen ^a,b   Lin, Chiu Chu ^a   Hsieh, Hsiu Fang ^b   Chang, Shu Chen ^c  

^a KAOHSIUNG MEDICAL UNIVERSITY   (Taiwan)

^b FOOYIN UNIVERSITY   (Taiwan)

^c CHANGHUA CHRISTIAN HOSPITAL   (Taiwan)

Author keywords

chronic kidney disease; illness representation; lived experiences; nursing; qualitative methods

Indexed keywords

ADULT; AGED; ATTITUDE TO HEALTH; CHRONIC KIDNEY FAILURE; COPING BEHAVIOR; FEMALE; HUMAN; MALE; MIDDLE AGED; PERCEPTION; PSYCHOLOGY; QUALITATIVE RESEARCH; TAIWAN; VERY ELDERLY;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; AGED, 80 AND OVER; ATTITUDE TO HEALTH; FEMALE; HUMANS; MALE; MIDDLE AGED; PERCEPTION; QUALITATIVE RESEARCH; RENAL INSUFFICIENCY, CHRONIC; TAIWAN;

EID: 85001029972     PISSN: 13591053     EISSN: 14617277     Source Type: Journal    
DOI: 10.1177/1359105315587134     Document Type: Article

References (38)

1. Bayhakki, Hatthakit U, (2012) Lived experiences of patients on hemodialysis: A meta-synthesis. Nephrology Nursing Journal 39 (4): 295-304.
2. Brown SA, Garcia AA, Kouzekanani K, et al. (2002) Culturally competent diabetes self-management education for Mexican Americans: The Starr County border health initiative. Diabetes Care 25: 259-268.
3. Chen J, Wildman RP, Gu D, et al. (2005) Prevalence of decreased kidney function in Chinese adults aged 35 to 74 years. Kidney International 68: 2837-2845.
4. Chen SH, Tsai YF, Sun CY, et al. (2011) The impact of self-management support on the progression of chronic kidney disease-A prospective randomized controlled trial. Nephrology Dialysis Transplantation 26 (1): 3560-3566.
5. Chilcot J, (2012) The importance of illness perception in end-stage renal disease: Associations with psychosocial and clinical outcomes. Seminars in Dialysis 25 (1): 59-64.
6. Chilcot J, Wellsted D, Davenport A, et al. (2011) Illness representations and concurrent depression symptoms in haemodialysis patients. Journal of Health Psychology 16 (7): 1127-1137.
7. Coresh J, Selvin E, Stevens LA, et al. (2007) Prevalence of chronic kidney disease in the United States. Journal of the American Medical Association 298 (17): 2038-2047.
8. Costantini L, Beanlands H, McCay E, et al. (2008) The self-management experience of people with mild to moderate chronic kidney disease. Nephrology Nursing Journal 35 (2): 147-155.
9. Covic A, Seica A, Gusbeth-Tatomir P, et al. (2004) Illness representations and quality of life scores in haemodialysis patients. Nephrology Dialysis Transplantation 19: 2078-2083.
10. Diefenbach MA, Leventhal H, (1996) The common-sense model of illness representation: Theoretical and practical considerations. Journal of Social Distress and the Homeless 5 (1): 11-38.
11. Fowler C, Baas LS, (2006) Illness representations in patients with chronic kidney disease on maintenance hemodialysis. Nephrology Nursing Journal 33: 173-187.
12. Gaston AM, Cottrell DJ, Fullen T, (2012) An examination of how adolescent-caregiver dyad illness representations relate to adolescents' reported diabetes self-management. Child: Care, Health and Development 38 (4): 513-519.
13. Griva K, Jayasena D, Davenport A, et al. (2009) Illness and treatment cognitions and health related quality of life in end stage renal disease. British Journal of Health Psychology 14 (1): 17-34.
14. Haroun MK, Jaar BG, Hoffman SC, et al. (2003) Risk factors for chronic kidney disease: A prospective study of 23,534 men and women in Washington County, Maryland. Journal of the American Social Nephrology 14 (1): 2934-2941.
15. Harwood L, Locking-Cusolito H, Spittal J, et al. (2005) Preparing for hemodialysis: Patient stressors and responses. Nephrology Nursing Journal 32 (3): 295-302.
16. Hsieh HF, Shannon SE, (2005) Three approaches to qualitative content analysis. Qualitative Health Research 15 (9): 1277-1288.
17. Kaptein AA, Klok T, Moss-Moris R, et al. (2010) Illness perceptions: Impact on self-management and control in asthma. Current Opinion in Allergy and Clinical Immunology 10: 194-199.
18. Karamanidou C, Clatworthy J, Weinman J, et al. (2008) A systematic review of the prevalence and determinants of nonadherence to phosphate binding medication in patients with end-stage renal disease. BMC Nephrology 9 (2): 1-10.
19. Karamanidou C, Weinman J, Horne R, (2014) A qualitative study of treatment burden among haemodialysis recipients. Journal of Health Psychology 19 (4): 556-569.
20. Lee BO, Lin CC, Wu SL, et al. (2004) Living with a hemodialysis machine: Living experience of an end-stage renal disease. Chang Gung Nursing 15: 121-130. (in Chinese).
21. Leventhal H, Nerenz DR, Steele DJ, (1984) Illness representations and coping with health threats. In: Baum A, Taylor SE, Singer JE, (eds) Handbook of Psychology and Health. Hillsdale, NJ: Lawrence Erlbaum Associates, pp. 219-252.
22. Levey AS, Schoolwerth AC, Burrows NR, et al. (2009) Comprehensive public health strategies for preventing the development, progression, and complications of CKD: Report of an expert panel convened by the Centers for Disease Control and Prevention. American Journal of Kidney Diseases 53: 522-535.
23. Lin CC, Chang SH, (1985) Stress identification and coping patterns in patients on hemodialysis. Formosa Journal of Public Health 12 (3): 398-414.
24. Lin CC, Chen MC, Hsieh HF, et al. (2013) Illness representations and coping processes of Taiwanese patients with early stage chronic kidney disease. The Journal of Nursing Research 21 (2): 121-128. (in Chinese).
25. Lin CC, Chin CC, Liang CC, et al. (2000) Developing and testing of informational needs scale in uremic patients. The Journal of Nursing Research 8 (6): 641-651. (in Chinese).
26. Lin CC, Lee BO, Hicks FD, (2005) The phenomenology of deciding about hemodialysis among Taiwanese. Western Journal of Nursing Research 27 (1): 915-929.
27. Lin YC, Yen MF, (2003) The coping process of end stage renal disease patient with dialysis treatment. Journal of Taiwan Nephrology Association 2: 186-192.
28. Lincoln YS, Guba EG, (1985) Naturalistic Inquiry. Thousand Oaks, CA: SAGE.
29. Makaroff KL, (2012) Experiences of kidney failure: A qualitative meta-synthesis. Nephrology Nursing Journal 39 (1): 21-29.
30. Meyer D, Leventhal H, Gutmann M, (1985) Common-sense models of illness: The example of hypertension. Health Psychology 4 (2): 115-135.
31. O'Connor SM, Jardine AG, Millar K, (2008) The prediction of self-care behaviors in end-stage renal disease patients using Leventhal's self-regulatory model. Journal of Psychosomatic Research 65 (2): 191-200.
32. Shankarp A, Klein R, Klein BE, (2006) The association among smoking, heavy drinking, and chronic kidney disease. American Journal of Epidemiology 164 (3): 263-271.
33. Timmers L, Thong M, Dekker FW, et al. (2008) Illness perceptions in dialysis patients and their association with quality of life. Psychology & Health 23 (6): 679-690.
34. Tong A, Sainsbury P, Chadban S, et al. (2009) Patients' experiences and perspectives of living with CKD. American Journal of Kidney Diseases 53 (4): 689-700.
35. US Renal Data System (2009) Annual data report. Available at: http://www.usrds.org/2009/pdf/v1-09-09.pdf
36. Van Dijk S, Scharloo M, Kaptein AA, et al. (2009) Patients' representations of their end-stage renal disease: Relation with mortality. Nephrology Dialysis Transplantation 24 (10): 3183-3185.
37. Yang SC, Kuo PW, Wang JD, et al. (2005) Quality of life and its determinants of hemodialysis patients in Taiwan measured with WHOQOL-BREF(TW). American Journal of Kidney Diseases 46 (4): 635-641.
38. Zhang QL, Rothenbacher D, (2008) Prevalence of chronic kidney disease in population-based studies: Systematic review. BMC Public Health 8: 117.