Researching the margins: Strategies for ethical and rigorous research with marginalised communities

Researching the Margins: Strategies for Ethical and Rigorous Research With Marginalised Communities

Volumn , Issue , 2007, Pages 1-208

  Pitts, Marian ^a   Smith, Anthony ^a  

^a ARCSHS ^*  (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84997235108     PISSN: None     EISSN: None     Source Type: Book    
DOI: 10.1057/9780230224476     Document Type: Book

References (253)

1. Adorno, T. The Positivist Dispute in German Sociology. Trans. Glyn Adey and David Frisby (London: Heinemann, 1976).
2. ANCARD. The National Indigenous Australians' Sexual Health Strategy 1996-97 to 1998-99. A Report of the ANCARD Working Party on Indigenous Australians' Sexual Health (Canberra: ANCARD, 1997).
3. Andron, L. and Tymchuk, A. 'Parents who are mentally retarded'. In A. Craft, (ed.), Mental Handicap and Sexuality: Issues and Perspectives (Tunbridge Wells: DJ Costello, 1987) 238-262.
4. Atkinson, D. 'Research and empowerment: Involving people with learning difficulties in oral and life history research', Disability and Society, 19: 7 (2004) 691-702.
5. Australian Federation of AIDS Organisations (AFAO). HIV/AIDS Resource Manual (Sydney: AFAO, 1998).
6. Australian Injecting and Illicit Drug Users League (AIVL). National Statement on Ethical Issues for Research Involving Injecting/Illicit Drug Users (Canberra: AIVL, 2003).
7. Australian Institute of Health and Welfare (AIHW). Older Australians at a Glance. AIHW Catalogue no. AGE 25 (Canberra: AIHW, 2002).
8. Australian Institute of Health and Welfare (AIHW). The 2004 National Drug Strategy Household Survey (Canberra: AIHW, 2005) 141.
9. Baker D., Williamson M., Kendig H., and Quine S. 'The 1999 NSW older persons' health survey: An opportunity to monitor the health and well-being of older people in the community', NSW Public Health Bulletin, 10: 9 (1999) 113.
10. Bailey, S. L., Camlin, C. S. and Ennett, S. T. 'Substance use and risky sexual behavior among homeless and runaway youths', Journal of Adolescent Health, 23: 6 (1998) 378-388.
11. Baltes P. and Smith J. 'New frontiers in the future of aging: From successful aging of the young old to the dilemmas of the fourth age', Gerontology, 49 (2003) 123-135.
12. Barnes, C. 'The social model of disability: A sociological phenomenon ignored by sociologists'. In T. Shakespeare (eds), The Disability Reader: Social Science Perspective (London: Cassell, 1998) 56-78.
13. Barnes, C., Oliver, M. and Barton, L. (eds) Disability Studies Today (Cambridge: Polity Press, 2002).
14. Baron, S. W. 'Street youths and substance use', Youth and Society, 31: 1 (1999) 3-26.
15. Bartos M. 'Community v. population: The case of MSM'. In P. Aggleton, P. Davies and G. Hart, (eds), AIDS: Foundations for the Future (London: Taylor and Francis, 1994).
16. Bernstein, B. Class, Codes and Control (London, Routledge Kegan Paul, 1971).
17. Biklen, S. K. and Moseley, C. '"Are you retarded?" "No I'm Catholic": Qualitative methods in the study of people with severe handicaps', Journal of the Association for Persons with Severe Handicaps, 13: 8 (1988) 155-162.
18. Bird, S. M. and Brown, A. J. L. 'Criminalisation of HIV transmission: Implications for public health in Scotland', British Medical Journal, 323: 7322 (2001) 1174-1177.
19. Bishop, R. Whakawanaungatanga: Collaborative Research Stories (Palmerston North, Dunmore Press, 1996).
20. Blanchard, M., McKnight, A., Lui-Chivizhe, L., Wray, D., French, K., Sherwood, J., Galleguillos, S., and Smith, A. Creating an Optimistic Future for Indigenous Research in Education: Re-Visioning Both Outcome and Process. Australian Association for Research in Education (2000). http://www.aare.edu.au/00pap/bla00530.htm, 29 September 2005.
21. Booth, R. E. and Zhang, Y. 'Conduct disorder and HIV risk behaviors among runaway and homeless adolescents', Drug and Alcohol Dependence, 48 (1997) 69-76.
22. Booth, T. and Booth, W. Growing Up with Parents Who Have Learning Difficulties (London: Routledge, 1998).
23. Booth, T. and Booth, W. Parenting Under Pressure: Mothers and Fathers With Learning Difficulties (Buckingham: Open University Press, 1994).
24. Bottomley, G., de Lepervanche, M. and Martin, J. (eds) Intersexions: Gender, Class, Culture, Ethnicity (North Sydney: Allen & Unwin, 1991).
25. Bourdier, F. 'Shadowing the facts: the rise and collapse of a controversial trial in Cambodia', HIV Australia, 5: 1 (2005) 23-24.
26. Bourdieu, P. Outline of a Theory of Practice (Cambridge: Cambridge University Press, 1999).
27. Bowsher J., Bramlett M., Burnside I. M. and Gueldner S. H. 'Methodological considerations in the study of frail elderly people', Journal of Advanced Nursing, 18 (1993) 873-879.
28. Bradford, J., Ryan, C. and Rothblum, E. D. 'National lesbian health care survey 1984-85', Journal of Consulting and Clinical Psychology, 62: 2 (1994) 228-242.
29. Brown, H. and Turk, V. 'Defining sexual abuse as it affects adults with learning disabilities', Mental Handicap, 20 (1992) 44-55.
30. Browning C., Minichiello, V. and Kendig, H. 'Research methods in gerontology'. In V. Minichiello, L. Alexander and D. Jones, Gerontology: A Multidisciplinary Approach (Sydney: Prentice-Hall, 1992).
31. Butler, J. Bodies that Matter: On the Discursive Limits of 'Sex' (New York and London: Routledge, 1993).
32. Ca'ceres, C., Konda, K., Pecheny, M., Chatterjee, A., and Lyerla, R. 'Estimating the number of men who have sex with men in low and middle income countries', Sexually Transmitted Infections, 82 (2006) 3-9.
33. Cambridge, P. 'How far to gay? The politics of HIV in learning disability', Disability and Society, 12: 3 (1997) 427-453.
34. Cameron I. D. 'Recruiting older people for clinical trials and health promotion programs', MJA, 167 (1997) 441.
35. Cameron I.D. and Quine S. 'External hip protectors: likely non-compliance among high risk elderly people living in the community', Archives of Gerontology and Geriatrics, 19 (1994) 273-281.
36. Chalmers, A. What is This Thing Called Science? (Brisbane: University of Queensland Press, 1999).
37. Chamberlain, C. and Mackenzie, D. Youth Homelessness: Early Intervention and Prevention (Sydney: Australian Centre for Equity through Education, 1998).
38. Chandler, J., Davidson, A. and Harootunian, H. (eds) Questions of Evidence: Proof, Practice, and Persuasion Across the Disciplines (Chicago and London: University of Chicago, 1994).
39. Cohen-Mansfield J. 'Recruitment rates in gerontological research: the situation for drug trials in dementia may be worse than previously reported', Alzheimer Disease and Associated Disorders, 16: 4 (2002) 283-284.
40. Coleman, A. Sister, it Happens to Me Every Day: An Exploration of the Needs of, and Responses to, Indigenous Women in Brisbane's Inner City Public Spaces. Brisbane, Brisbane City Council, Department of Families, Department of Aboriginal and Torres Strait Islander Policy. (Department of Premier and Cabinet, Office of Women, 2000).
41. Coomber, R. 'Protecting out research subjects, our data and ourselves from respective prosecution, seizure and summons/subponea', Addiction Theory and Research, 10: 1 (2002) 1-5.
42. Corbett, J. 'A proud label: Exploring the relationship between disability politics and gay pride', Disability and Society, 9: 3 (1994) 343-357.
43. Couch, M. and Pitts, M. 'The positioning of bisexuals' and 'Men who have sex with men'. In Sex, Sexuality and Sexual Health Research, 1990-2004. Health Sociology Review, 15: 3 (2006) 269-276.
44. Coultan, M. 'Uncle Sam looks for all the world like the bad guy', The Age, 28: June (2005) 9.
45. Crewe, M. 'How marginal is a "Marginalised Group"?', Social Science and Medicine, 45: 6 (1997) 967-970.
46. Crossmaker, M. 'Behind locked doors: Institutional sexual abuse', Sexuality and Disability, 9: 13 (1991) 210-219.
47. Crow, L. 'Including all of us: Renewing the social model of disability'. In C. Barnes and G. Mercer (eds) Exploring the Divide: Illness and Disability (Leeds: The Disability Press, 1996).
48. Day, C., Degenhardt, L., Gilmour, S. and Hall, W. 'Effects of reduction in heroin supply on injecting drug use: Analysis of data from needle and syringe programmes', British Medical Journal, 329: 7463 (2004) 428-429.
49. de Certeau, M. The Practice of Everyday Life (Berkeley: University of California Press, 1988).
50. de Kock, Leon. 'Interview with Gayatri Chakravorty Spivak', New Nation Writers Conference in South Africa. A Review of International English Literature, 23: 3 (1992) 29-47.
51. de Lepervanche, M. and Bottomley, G. (eds) The Cultural Construction of Race (Annandale, N.S.W. Sydney Association for Studies in Society and Culture, 1988).
52. Dennis, R. Marginality, Power and Social Structure: Issues in Race, Class, and Gender Analysis (Amsterdam and London: Elsevier Science, 2005).
53. Denzin, N. and Lincoln, Y. S. (ed.) Handbook of Qualitative Research: Second Edition (London: Sage, 2000).
54. deVisser, R., Hillier, L., Horsley, P., Kavanagh, A., Pitts, M., Tong, B., et al. Young Lesbian and Bisexual Women in the Women's Health Australia Study (Melbourne: Paper presented at the Lesbian Health Day, 2003).
55. Dodson, M. The end in the beginning: re(de)finding Aboriginality. In M. Grossman, Blacklines: Contemporary Critical Writing by Indigenous Australians (Carlton, Victoria: Melbourne University Press, 2003) 25-42.
56. Dollimore, J. Sexual Dissidence. Augustine to Wilde, Freud to Foucault (Oxford: Clarendon Press 1991).
57. Dowsett, G. 'Some Considerations on Sexuality and Gender in the Context of AIDS', Reproductive Health Matters, 11: 22 (2003) 2-29.
58. Dowsett, G. W., Turney, L., Woolcock, G., Rance, A. and Thomson, N. Hepatitis C Prevention Education for Injecting Drug Users in Australia: A Research Report (Canberra: Commonwealth Department of Health and Aged Care, 1999).
59. Dura J. R. and Kiecolt-Glaser. 'Sample bias in care-giving research', Journal of Gerontology, 45: 5 (1990) 200-204.
60. Dyson, S. Gender and Diversity: A Workbook for an Equity Approach to Practice (Melbourne: Women's Health in the South East, 2001).
61. Ensign, J. 'Health issues of homeless youth', Journal of Social Distress and the Homeless, 7: 3 (1998) 159-174.
62. Fanon, F. 'Racism and Culture'. In Fanon, F. Toward the African Revolution: Political Essays (1956), trans. Haakon Chevalier (New York: Grove, 1967).
63. Feldman, M. A. 'Parenting education for parents with intellectual disabilities: A review of outcome studies', Research in Developmental Disabilities, 15 (1994) 299-332.
64. Ferguson, R., Gever, M., Minh-Ha, T. and West, C. (eds) Out There. Marginalization and Contemporary Culture (New York: The New Museum of Contemporary Art and MIT Press, 1990).
65. Fethers, K., Marks, C., Mindel, A. and Estcourt, C. S. 'Sexually transmitted infections and risk behaviours in women who have sex with women', Sexually Transmitted Infections, 76 (2000) 345-349.
66. Fitzgerald J. L. and Hamilton M. A. 'The consequences of knowing: Ethical and legal liabilities in illicit drug research', Social Science and Medicine, 43: 11 (1996) 1591-1600.
67. Foucault, M. 'Two Lectures', (1976). In C. Gordon (ed.) Michel Foucault. Power/Knowledge. Selected Interviews and Other Writings 1972-1977 (Brighton, UK: Harvester Press, 1980) 78-108.
68. Foucault, M. The History of Sexuality, Vol. 1 (New York: Vintage Books, 1978).
69. Frawley, P., Johnson, K., Hillier, L. and Harrision, L. Livings Safer Sexual Lives: A Workshop Manual (Brighton: Pavilion Publishing, 2003).
70. Fry, C. and Dwyer, R. 'For love or money?: an exploratory study of why injecting drug users participate in research', Addiction, 96: 9 (2001) 1219-1225.
71. Gallagher, S. 'One Size Doesn't Fit All', National AIDS Bulletin, 12: 15 (1999) 14-15.
72. Gandhi, L. Postcolonial Theory: A Critical Introduction (St Leonards, NSW: Allen and Unwin, 1998).
73. Gane, N. The Future of Social Theory (London and New York: Continuum, 2004).
74. Gibson, D. Aged Care: Old Policies, New Problems (Cambridge: Cambridge University Press, 1998).
75. Gifford, S. and O'Brien, M. 'Bad blood, bad livers, bad women? Women's experiences of living with hepatitis C', Australian Hepatitis Chronicle, Issue 8: (2001) 9-13.
76. Gifford, S. M., O'Brien, M. L., Bammer. G, Banwell C. and Stoové. M,. 'Australian women's experiences of living with hepatitis C virus: Results from a crosssectional survey', J Gastroenterol Hepatol., 18 (2003) 841-850.
77. Gifford, S. M., O'Brien, M. L., Smith, A. M. A., Temple-Smith, M., Stoové, M., Mitchell, D., et al. 'Australian men's experiences of living with hepatitis C virus: Results from a cross-sectional survey', J Gastroenterol Hepatol., 20 (2005) 79-86.
78. Goodley, D. 'Tales of hidden lives: A critical examination of life history research with people who have learning difficulties', Disability and Society, 11: 3 (1996) 333-348.
79. Greene, J. M. and Ringwalt, C. L. 'Youth and familial substance use's association with suicide attempts among runaway and homeless youth', Substance Use and Misuse 31: 8 (1996) 1041-1058.
80. Grierson, J., Thorpe, R., Saunders, M. and Pitts, M. HIV Futures 4: State of the [Positive] Nation (Melbourne: Australian Research Centre in Sex, Health and Society, La Trobe University, 2004).
81. Grulich, A. E., de Visser, R. O., Smith A. M. A., Rissel, C. and Richters, J. 'Injecting and sexual risk behaviour in a representative sample of adults', ANZJPH, 27: 2 (2003) 242-250.
82. Gubrium J. F. and Sankar A. Qualitative methods in aging research (Thousand Oaks: Sage, 1994).
83. Guillemin, M. and Gillam, L. 'Ethics, reflexivity and "ethically important moments" in research', Qualitative Inquiry, 10 (2004) 261-280.
84. Gunew, S. Framing Marginality: Multicultural Literary Studies (Melbourne: Melbourne University Press, 1994). Accessed at http://faculty.arts.ubc.ca/sgunew/FRAMARG/TWO.HTM, accessed 27/04/2007.
85. Gwandz, M. Antecedents and Consequences of Pregnancy and Parenthood among Adolescent Runaways in Shelters (Unpublished dissertation, New York University, 1998).
86. Hall, S. 'The Meaning of New Times'. In D. Morley and K-H, Chen (eds) Stuart Hall: Critical Dialogues in Cultural Studies (London and New York: Routledge, 1996) 223-237.
87. Halperin, D. How to Do the History of Homosexuality (Chicago: University of Chicago Press, 2002).
88. Haraway, D. Simian, Cyborgs, and Women (New York: Routledge, 1991).
89. Harrison, L., Johnson, K., Hillier, L. and Strong, R. 'Nothing about us without us: The ideals and realities of participatory action research with people with an intellectual disability', Scandinavian Journal of Intellectual Disability Research, 5: 2 (2002) 56-70.
90. Harwood, V. 'Telling truths: Wounded Truths and the activity of truth telling', Discourse: Studies in the Cultural Politics of Education, 25: 4 (2004) 467-476.
91. Health Canada. 'Achieving health for all: A framework for health promotion, 2003' (from http://www.hc-sc.gc.ca/english/care/achieving_health.html2003), accessed 12/02/2003.
92. Henderson, L., Reid, D., Hickson, F., McLean, S., Cross, J. and Weatherburn, P. First, Service: Relationships, Sex and Health among Lesbian Women (London: Sigma research, 2002).
93. Higgs, P., Hellard, M., Walsh, N. and Maher, L. 'Careful data analysis required' (Rapid Response for Day et al. 329: 7463): BMJ, 7 (2004) 428-429. Accessed 8/12/2004.
94. Hillier, L. Johnson, K. and Harrison, L. 'Sex secrets and desire; people with an intellectual disability living safer sexual lives', Network: Journal of the APS College of Community Psychologists, 14: 1 (2003) 45-52.
95. Hillier, L. Turner, A. and Mitchell, A. Writing Themselves In Again - Six years on: The Second National Report on the Sexuality, Health and Well-Being of Same Sex Attracted Young People in Australia. Monograph Series Number 50 (Melbourne: Australian Research Centre in Sex, Health and Society, La Trobe University, 2005).
96. Hillier, L., Dempsey, D., Harrison, L., Beale, L., Matthews, L. and Rosenthal, D. Writing Themselves In: A National Report on the Sexuality, Health and Well-Being of Same Sex Attracted Young People (Carlton: National Centre in HIV Social Research, La Trobe University, 1998).
97. Hillier, L., Harrison. D. and Dempsey, D. 'Whatever happened to duty of care?: Same sex attracted young people's experiences of discrimination and abuse at school', Melbourne Studies in Education, 40: 2 (1999) 59-74.
98. Hillier, L., Matthews, L. and Dempsey, D. A Low Priority in a Hierarchy of Need: A Profile of the Sexual Health of Young Homeless People in Australia. Monograph Series Number 1 (Melbourne: Australian Research Centre in Sex, Health and Society, La Trobe University, 1997).
99. Hillier, L., Warr, D. and Haste, B. The Rural Mural: Sexuality and Diversity in Rural Youth (Carlton: National Centre in HIV Social Research, La Trobe University, 1996).
100. Hirtle, P. Broadsides vs. Grey Literature. Available: http://www-cpa.stanford.edu/byform/mailing-lists/exlibris/1991/1I/msgOO02O.htm1991(June 15, 1997).
101. Hooks, B. 'Talking Back'. In R. Ferguson, M. Gever, T. Minh-ha and C. West (eds) Out There: Marginalisation and contemporary cultures (Massachusetts and London: The New Museum of Contemporary Art and MIT Press, 1990) 337-340.
102. Horsley, P. 'Lesbians and cancer'. In M. Q. Heffernan (ed.) The Gynaecological Cancer Guide - Sex, Sanity and Survival (South Yarra: Michelle Anderson Publishing, 2003).
103. Horsley, P. Cancer - An Incredible Journey. Stories of lesbians living with cancer (Melbourne: Lesbian Cancer Support Group, 2002).
104. Horsley, P., McNair, R. and Pitts, M. Women's Health and Well-Being Strategy, Population Group - Lesbians (Paper prepared for Department of Human Services, Victoria, February 2001).
105. Hough, M. 'Balancing public health and criminal justice interventions', International Journal of Drug Policy, 12 (2001) 429-433. http: /www.nhmrc.gov.au/publications/_files/ethicsbro.pdf
106. Huggins, J. 'Always was always will be'. In M. Grossman, M. Blacklines: Contemporary Critical Writing by Indigenous Australians (Carlton, Victoria, Melbourne University Press, 2003) 60-65.
107. Hurley, M. 'Contemporary gay cultures in Australia'. In G. Hawkes and J. Scott (eds) Perspectives In Human Sexuality (Melbourne: Oxford University Press, 2005).
108. Inciardi, J. A. and Surratt, H. L. 'Children in the streets of Brazil: Drug use, crime, violence, and HIV risks', Substance Use and Misuse, 33: 7 (1998) 1641-1480.
109. Israel, M. '"Strictly confidential?" Integrity and the disclosure of Criminological and Socio-legal research', British Journal of Criminology, 44 (2004) 715-740.
110. Johnson, C. 'Visiting the margins: Revenge, transgression or incorporation - An Australian engagement with theories of identity', e-journal, Theory and Event, 1: 3 (1997). Accessed at http://www.press.jhu.edu/journals/theory_and_event/, accessed 10/08/2004.
111. Johnson, K. Hillier, L., Harrison, L. and Frawley, P. People with Intellectual Disabilities: Living Safer Sexual Lives (Melbourne: Australian Research Centre in Sex, Health and Society, Latrobe University, 2001).
112. Johnson-Eilola, J. 'Just Information: The politics of decontextualization in technical communication', Presentation CCCC (Phoenix, Arizona, March 13, 1997). Accessed at http://people.clarkson.edu/~johndan/read/just/welcome.html, accessed 27/04/2007.
113. Julien, I. and Mercer, K. 'Introduction - De Margin and De Centre', Screen, 29: 4 (1988) 2-10.
114. Kaldor, J. and Millwood, I. 'Consent and approval in medical research: The place of communities', HIV Australia, 4: 2 (2005) 23-24.
115. Kapoor, I. 'Hyper-self-reflexive development?' Spivak on representing the Third World "other", Third World Quarterly, 25: 4 (2004) 627-647.
116. Katz, J. The Invention of Heterosexuality (New York: Plume, 1996).
117. Kelly, J. Zest for Life: Lesbians' Experiences of Menopause (Melbourne: Spinnifex, 2005).
118. Kendig, H., Helme, R., Teshuva, K., Osborne, D., Flicker, L. and Browning, C. 'Health status of older people project: Preliminary findings of a survey of the health and lifestyles of older Australians', Occasional Papers. Victorian Health Promotion Foundation (La Trobe University and the University of Melbourne, 1996).
119. Kennedy, E., Davis, M. D. Boots of Leather, Slippers of Gold: The History of a Lesbian Community (New York: Penguin, 1994).
120. Kim S. Applebaum P., Jeste D. and Olin J. 'Proxy and surrogate consent in neuropsychiatric research: Update and recommendations', The American Journal of Psychiatry, 161 (2004) 797-806.
121. Kipke, M. D., Montgomery, S. and MacKenzie, R. G. 'Substance use among youth seen at a community-based health clinic', Journal of Adolescent Health, 14 (1993) 289-294.
122. Kipke, M. D., Montgomery, S., Simon, T. R. and Iverson, E. F. '"Substance abuse" disorders among runaway and homeless youth', Substance Use and Misuse, 32: 7-8 (1997) 969-986.
123. Kirkman, M. 'I didn't interview myself: The researcher as participant in narrative research', Annual Review of Health Social Science, 9 (1999) 32-41.
124. Klausner, J., Wolf, W., Fischer-Ponce, L., Zolt, I. and Katz, M. 'Tracing a Syphilis Outbreak through Cyberspace', JAMA, 284: 4 (2000) 447-449.
125. Kral, A. H., Molnar, B. E., Booth, R. E. and Watters, J. K. 'Prevalence of sexual risk behaviour and substance use among runaway and homeless adolescents in San Francisco, Denver and New York City', International Journal of STD & AIDS, 8 (1997) 109-117.
126. Kureishi, H. My Beautiful Laundrette (London: Faber & Faber, 1986).
127. Labov, W. The Social Stratification of English in New York City (Washington, DC, Center for Applied Linguistics, 1972).
128. Lakatos, I. and Musgrave, A. Criticism and the Growth of Knowledge (Cambridge: Cambridge University Press, 1970).
129. Langton, M. 'Well, I heard it on the radio and I saw it on the television': An Essay for The Australian Film Commission on the Politics and Aesthetics of Filmmaking by and about Aboriginal People and Things (North Sydney, NSW: Australian Film Commission, 1993).
130. Latour, B. and Woolgar, S. Laboratory Life: The Social Construction of Scientific Facts (Los Angeles, USA: Sage, 1979).
131. Laumann, E. O., Gagnon, J. H., Michael, R. T. and Michaels, S. The Social Organization of Sexuality (Chicago: University of Chicago Press, 1994).
132. Lawrence, C., Prestage, G., Leishman, B., Ross, C., Muwadda, W., Costello, M., et al. Queensland Survey of Aboriginal and Torres Strait Islander Men who have Sex with Men: 2004 (Sydney: National Centre in HIV Epidemiology and Clinical Research, 2006).
133. Lenton, S. and Tan-Quigley, A. The Fitpack Study: A Survey of 'Hidden' Drug Injectors with Minimal Drug Treatment Experience (Perth, Western Australia: National Centre for Research into the Prevention of Drug abuse, Curtin University of Technology, 1997).
134. Lewin, E., Leap, W. (eds) Out in the Field: Reflections of Lesbian and Gay Anthropologists (Urbana and Chicago: University of Illinois Press, 1996).
135. Lindsay, J, Smith, A. and Rosenthal, D. National Survey of Australian Secondary Students HIV/AIDS and Sexual Health 1997 (Melbourne: National Centre in HIV Social Research: Program in Youth/General Population, Centre for the Study of Sexually Transmissible Diseases, 1998).
136. Lindsay, J., Smith A. M. A. and Rosenthal, D. A. Secondary Students, HIV/AIDs and Sexual Health, Monograph Series 3 (Melbourne: Centre for the Study of STDs, 1997).
137. Llewellyn, G. 'People with intellectual disabilities as parents: Perspectives from the professional literature', Australian and New Zealand Journal of Developmental Disability, 16: 4 (1990) 369-380.
138. Llewellyn, G. 'Relationships and social support: Views of parents with mental retardation/intellectual disability', Mental Retardation, 33: 6 (1995) 349-363.
139. Lo, B. and Bayer, R. 'Establishing ethical trials for treatment and prevention of AIDS in Developing Countries', BMJ, 327: 7410 (2003) 337-339.
140. Lorde, A. Sister Outsider (New York: The Crossing Press, 1984).
141. Machon, K. 'Preparing the facts', HIV Australia, 4: 3 (2005) 6-8.
142. Madden, A. Peer Education among Illicit Drug User (Canberra: Australian Injecting & Illicit Drug Users League (AIVL), 2005).
143. Maher, L. and Dixon. D. 'Policing and Public Health', British Journal of Criminology, 39: 4 (1999) 488-512.
144. Mallett, S., Edwards, J., Keys, D., Myers, P. and Rosenthal, D. Disrupting Stereotypes: Young People, Drug Use and Homelessness (Melbourne: The University of Melbourne, 2003).
145. McCarthy, M. Sexuality and Women with Learning Disabilities (London: Jessica Kingsley, 1999)
146. McCarthy, M. 'Consent and choices: Women with intellectual disabilities and sexuality'. In R. Traustadóttir and K. Johnson (eds) Women with Intellectual Disabilities: Finding a Place in the World (London: Jessica Kingsley, 2000) 135-168.
147. McCarthy, M. and Thompson, D. 'Sexual abuse by design', Disability and Society, 11: 2 (1996) 205-217.
148. McCarthy, M. and Thompson, D. 'No more double standards: Sexuality and people with learning difficulties'. In T. Philpot and L. Ward (eds) Values and Visions: Changing Ideas in Services for People with Learning Difficulties (Oxford: Butterworth-Heinemann, 1995) 278-289.
149. McKeganey, N. 'To pay or not to pay: respondents' motivation for participating in research', Addiction, 96 (2001) 1237-1238.
150. Mercer, K. 'Skin Head Sex Thing. Racial difference and the homoerotic imaginary'. In Bad Object-Choices (eds) How Do I look? Queer Film and Video (Seattle: Bay Press, 1991).
151. Michaels, E. 'A model of teleported texts (with reference to Aboriginal Television)', Continuum, 3: 2 (1990) 8-31.
152. Moore, H. A. Passion for difference: essays in anthropology and gender (Cambridge: Polity Press, 1994).
153. Moreton-Robinson, A. Talkin' Up to the White Woman: Indigenous Women and Feminism (St Lucia, Queensland: University of Queensland Press, 2000).
154. Motzafi-Haller, P. 'Writing birthright: on native anthropologists and the politics of representation'. In D. Reed-Danahay (ed) Auto/Ethnography - Rewriting the Self and the Social (New York: Berg, 1997) 195-222.
155. Muecke, S. 'Aboriginal literature and the repressive hypothesis', Southerly 48: 4 (1988) 405-418.
156. Murnane, A., Smith, A., Crompton, L., Snow, P. and Munro, G. Beyond Perceptions: A Report on Alcohol and Other Drug Use Among Gay, Lesbian, Bisexual and Queer Communities in Victoria (Melbourne: Australian Drug Foundation, ALSO Foundation, 2000).
157. New South Wales Health Department NSW Older People's Health Survey (OPHS)(Sydney: NSW Health Department, 2000).
158. NHMRC. Human Research Ethics Handbook - Commentary on the National Statement on Ethical Conduct in Research Involving Humans (Canberra: Commonwealth of Australia, 2001a).
159. NHMRC. National Statement on Ethical Conduct in Research Involving Humans, 2005, from http://www7.health.gov.au/nhmrc/publications/humans/contents.htm (Canberra: Commonwealth of Australia, 1999).
160. NHMRC. Statement on Consumer and Community Participation in Health and Medical Research (Canberra: Commonwealth of Australia, 2001b).
161. Nilles, B., Tripathi, R., Meienberg, F. and Sharma, S. TRIPS on Trial: The Impact of WTO's Patent Regime On the World's Farmers, the Poor and Developing Countries (J. Lewis. London, Action Aid, 2001).
162. O'Brien M. 'Governing risk and drug use in juvenile justice settings', Contemporary Drug Problems, 28: Winter (2001) 625-649.
163. O'Brien M. L. and Greenwood Z. 'Managing blood borne viruses and other health risks for juvenile offenders', Youth Studies Australia, 22: 3 (2003) 25-31.
164. O'Brien, M. and Gifford, S. 'A survey of women's experiences of living with hepatitis C', Australian Hepatitis Chronicle, Issue 9: (2001) 20-25.
165. Official Committee Hansard Official Committee Hansard. Select Committee on the Administration of Indigenous Affairs, 7899: Friday, 27 August 2004. Senate, Canberra, Commonwealth of Australia. http://wopared.aph.gov.au/hansard/senate/commttee/S7899.pdf, accessed 04/05/2007.
166. Ohnuki-Tierney, E. 'Native anthropologists', American Ethnologist, 11: 3 (1984) 584-586.
167. Ory M. G., Lipman P. D., Karlen P. L., Gerety, M. B., Stevens, V. J., Singh, M. A. F., Buchner, D. M., Schechtman, K. B. and the FICSIT Group. 'Recruitment of older participants in the Frailty/Injury Prevention Studies', Prevention Science, 3: 1 (2002) 1-22.
168. Owen, D. 'Equality, Democracy, and Self-Respect: Reflections on Nietzsche's Agonal Perfectionism', Journal of Nietzsche Studies, 24: Fall (2002) 113-131.
169. Park D., Cherry K. E. 'Human subjects and cognitive ageing research: a unique solution to a perennial problem', Special issue: cognitive ageing - issues in research and application, Educational Gerontology, 15: 6 (1989) 563-571.
170. Pitts, M. K., Couch, M. A. and Smith, A. M. A. 'Men who have sex with men (MSM): how much to assume and what to ask?', Medical Journal of Australia, 185: 8 (2006) 450-452.
171. Pitts, M., Smith, A., Mitchell, A., and Patel, S. Private Lives. A Report on the Health and Wellbeing of GLBTI Australians, Monograph Series Number 57 (Melbourne: Australian Research Centre in Sex, Health and Society, La Trobe University, 2006).
172. Platzer, H. and James, T. 'Methodological issues conducting sensitive research on lesbian and gay men's experience of nursing car', Journal of Advanced Nursing, 25 (1997) 626-633.
173. Plunkett A. and Quine S. 'Difficulties experienced by carers from non-English speaking backgrounds in using health and other support services', Australian and New Zealand Journal of Public Health, 20: 1 (1996) 27-32.
174. Poole M. and Feldman S. (eds) A Certain Age: Women Growing Older (Sydney: Allen & Unwin, 1999).
175. Quine S. 'Practical aspects of organising and conducting focus groups with older people', Generations Review: Journal of the British Society of Gerontology, 8: 4 (1998a) 4-6.
176. Quine S. 'Focus groups: the role of the scribe and procedures for transcription', Australian Journal of Health Promotion, 8: 3 (1998b) 214-216.
177. Quine S. 'Health concerns and expectations of Anglo and ethnic older Australians', Journal of Cross-Cultural Gerontology, 14 (1999a) 97-111.
178. Quine S. 'How do older immigrants view volunteer work, and do they have different training and support needs?' Chapter 13. In P. Rice (ed.) Living in a New Country: Understanding Migrants' Health (Melbourne: Victoria, Ausmed Publications, 1999b) 228-242.
179. Quine S. and Cameron I. D. 'The use of focus groups with the disabled elderly', Qualitative Health Research, 5: 4 (1995) 454-462.
180. Quine S. and Chan Y. 'A role for older volunteers in the health care system: Views of health professionals', Education and Ageing, 13: 3 (1998) 229-240.
181. Radicalesbians. 'The woman-identified woman'. In Linda Nicholson (ed.) The Second Wave: A Reader in Feminist Theory (New York: Routledge, 1997) 153-157.
182. Reinharz, S. and Rowles, G. D. (eds) Qualitative Gerontology (New York: Springer Publishing Company, 1988).
183. Reinharz, S. and Davidman, L. Feminist Methods in Social Research (New York: Oxford University Press, 1992).
184. Resnick, B., Concha, B., Burgess, J. G., Fine, M. L., West, L., Baylor, K., et al. 'Recruitment of older women: lessons learned from the Baltimore Hip Studies', Nursing Research, 52: 4 (2003) 270-273.
185. Rice, D. and Ezzy, D. Qualitative Research Methods - A Health Focus (South Melbourne: Oxford University Press, 1999).
186. Rissel, C., Richters, J., Grulich, A., de Visser, R. and Smith, A. 'Sex in Australia: First experiences of vaginal intercourse and oral sex amongst a representative sample of adults', Australian and New Zealand Journal of Public Health, 27: 2 (2003) 131-137.
187. Rissel, C., Richters, J., Grulich, A., De Visser, R. and Smith, A. 'Attitudes towards sex in a representative sample of adult', Australian and New Zealand Journal of Public Health, 27: 2 (2003) 118-123.
188. Ristock, J. No More Secrets: Violence in Lesbian Relationships (New York, London: Routledge, 2002).
189. Ristock, J., and Pennell, J. Community Research as Empowerment: Feminist Links, Postmodern Interruptions (Toronto: Oxford University Press, 1996).
190. Ritter, A. J., Fry, C. L. and Swan, A. 'The ethics of reimbursing injecting drug users for public health research interviews: what price are we prepared to pay?', International Journal of Drug Policy, 14 (2002) 1-3.
191. Rosaldo, R. Culture and Truth: The Remaking of Cultural Analysis (Boston: Beacon Press, 1989).
192. Rosier, P. 'Lesbians in front, up front and out front'. In S. Kedgeley (ed.) Heading Nowhere in a Navy Blue Suit: And Other Tales from the Feminist Revolution (Wellington NZ: Daphne Brasell Associates Press, 1993).
193. Rossiter, B., Mallett, S., Myers, P. and Rosenthal, D. 'Living well? Homeless young people in Melbourne', Parity, 16: 2 (2003) 13-14.
194. Rossiter, B., Mallett, S., Myers, P. and Rosenthal, D. Living Well? Homeless Young People in Melbourne (Melbourne: Australian Research Centre in Sex, Health & Society, La Trobe University, 2003).
195. Rowles, G. D. and Schoenberg N. E. Qualitative Gerontology: A Contemporary Perspective (New York: Springer Publishing Company, 2002).
196. Roy, E., Haley, N., Leclerc, P., Boivin, J.-F., Cedras, L. and Vincelette, J. 'Risk factors for hepatitis C virus infection among street youth', Canadian Medical Association Journal, 165: 5 (2001) 557-560.
197. Roy, M. and Roy, A. 'Sterilisation for girls and women with mental handicaps: Some ethical and moral considerations', Mental Handicap, 16 (1988) 97-100.
198. Russell, S. 'Beyond Risk: Resilience in the Lives of Sexual Minority Youth', Journal of Gay & Lesbian Issues in Education, 2: 3 (2005) 5-18.
199. Scott, J. W. 'The evidence of experience'. In H. Abelove, M. Aina Barle, and D. M. Halperin (eds) The Lesbian and Gay Studies Reader (New York: Routledge, 1993) 397-415.
200. Sedgwick, E. Epistemology of the Closet (Berkeley and Los Angeles: University of California Press, 1990).
201. Sell, R. L. and Petrulio, C. 'Sampling homosexuals, bisexuals, gays and lesbians for public health research: a review of the literature 1990-92', Journal of Homosexuality, 30: 4 (1996) 31-47.
202. Shields, R. Places on the Margin: Alternate Geographies of Modernity (London: Routledge, 1991).
203. Sigurjónsdóttir, H. B. and Traustadóttir, R. 'Motherhood, family and community life'. In R. Traustadóttir and K. Johnson (eds) Women with Intellectual Disabilities: Finding a Place in the World (London: Jessica Kingsley, 2000) 253-270.
204. Sigurjónsdóttir, H. B. and Traustadóttir, R. Ósynilegar fjölskyldur: Seinfoerar/throskaheftar moedur og börn 1eirra (Invisible families: Mothers with intellectual limitations and their children) (Reykjavík: University of Iceland Press, 2001).
205. Sleegers, J., Spijker, J., van Limbeek, J. and van Engeland, H. 'Mental health problems among homeless adolescents', Acta Psychiatrica Scandinavica, 97 (1998) 253-259.
206. Smallacombe, S. 'What is ethical indigenous research?' In M. Langfield (ed.) A Question of Ethics (Carlton, The History Institute, Victoria, Inc, 1999) 13-24.
207. Smith, K. 'Pushing the boundaries: the exclusion of disability rights groups from political influence in Victoria', Australian Geographer, 34: 3 (2003) 345-354.
208. Smith, A., Agius, P., Dyson, S., Mitchell, A. and Pitts, M. Secondary Students and Sexual Health 2002: Results of the Third National Survey of Australian Secondary Students, HIV/AIDS and Sexual Health (Melbourne: Australian Research Centre in Sex Health and Society, La Trobe University, 2003).
209. Smith, A., Rissell, C., Richters, J., Grulich, A., and de Visser, R. 'Sexual identity, sexual attraction and sexual experience among a representative sample of adults', Australian and New Zealand Journal of Public Health, 27: 2 (2003) 138-145.
210. Smith R., Quine S., Anderson J., Black K. 'Assistive devices: Self-reported use by older Victorians', Australian Health Review, 25: 4 (2002) 169-177.
211. Smith, D. The Everyday World of the Problematic: A Feminist Sociology (Milton Keynes: Open University Press, 1987).
212. Solarez, A. L. Lesbian Health: Current Assessment and Directions for the Future (Executive Summary) (Washington: Committee on Lesbian Health Priorities, Neuroscience and behavioural health program, health sciences policy program, health sciences section, Institute of Medicine, 1999).
213. Spivak, G. 'Can the subaltern speak?' In C. Nelson and L. Grossberg (eds) Marxist Interpretations of Culture (Basingstoke, Macmillan Education, 1988) 271-313.
214. Spivak, G. 'Post-structuralism, marginality, post-coloniality, and value', Sociocriticism, 5: 2 (1989) 43-81.
215. Stevens, P. 'Lesbian health care research: A review of the literature from 1970 to 1990', Health Care for Women International, 13: 2 (1992) 291-307.
216. Stevens, P. and Hall, J. M. 'A critical historical analysis of the medical construction of lesbianism', International Journal of Health Services, 21: 2 (1991) 291-307.
217. Tapper, M. 'Ressentiment and Power: Some reflections on feminist practices'. In P. Patton (ed.) Nietzsche, Feminism and Political Theory (Sydney: Allen and Unwin, 1993).
218. Taylor, S. and Bogdan, R. Introduction to Qualitative Research Method: A Guidebook and Resource. Third Edition (New York: John Wiley & Sons, 1998).
219. Thompson P. G., Somers R. L. and Wilson R. 'Recruiting older people to a home safety program', MJA, 167 (1997) 439-440.
220. Thomson, N. and Morgan, K. The Victorian Community Methadone Program, An Investigation into Consumer Complaints and Grievances (Victoria: VIVAIDS, 1999).
221. Tiefer, L. 'The emerging global discourse of sexual rights', Journal of Sex and Marital Therapy, 28: 5 (2002) 439-444.
222. Tjamiwa, T. and Willis, J. 'Tjunguringkula waakaripai: Joint management of Uluru National Park'. In J. Birkhead, T. deLacy and L. Smith. Aboriginal Involvement in Parks and Protected Areas (Canberra, Aboriginal Studies Press, 1992).
223. Tomsen, S. Hatred, Murder and Male Honour. Anti-homosexual Homicides in New South Wales, 1980-2000 (Canberra: Australian Institute of Criminology Research and Public Policy Series No.43, 2002).
224. Traustadóttir, R. 'Research with others: Reflections on representation, difference and Othering', Scandinavian Journal of Disability Research, 3: 2 (2001) 7-26.
225. Traustadóttir, R. and Sigurjónsdóttir, H. B. 'Adult children of mothers with intellectual disabilities: Three life histories'. In A. Gustavsson, J. T. Sandvin, R. Traustadóttir and J. Tøssebro. Resistance, Reflection and Change: Nordic Disability Research (Lund: Studentlitterature. 2005).
226. Traustadóttir, R. and Sigurjónsdóttir, H. B. 'Tre generasjoner utvecklingstörda mödrar og deras familjenätverk' (Three generations of mothers with intellectual disabilities and their family support networks). In K. Barron (ed) Genus och funksjonshinder (Gender and disability) (Lund: Studentlitterature, 2004) 83-101.
227. Tremellen, S. 'What do we need to quit? Lesbians and smoking', Healthsharing Women, Issue 12-14 (1996-1997).
228. Trent, J. Inventing the Feeble Mind. A History of Mental Retardation in the United States (Berkeley: University of California Press, 1994).
229. Tribal Contract Support Cost Technical Amendments of 2000. Oversight Hearing: H. R. 946, H. R. 2671, and H. R. 4148 (Young, R-AK) To make Technical Amendments to the Provisions of the Indian Self-Determination and Education Assistance Act Relating to Contract Support Costs, and for Other Purposes (Committee on Resources, Second Session: 16 May 2000). House of Representatives, Washington, US Government Printing Office. http://commdocs.house.gov/committees/resources/hii68434.000/hii68434_0.HTM
230. Tuhiwai Smith, L. Decolonising Methodologies: Research and Indigenous People (London: Zed Books, 1999).
231. VicHealth Koori Health and Community Development Unit. We Don't Like Research ... but in Koori Hands it Could Make a Difference. (Melbourne: VicHealth Koori Health and Community Development Unit, University of Melbourne, 2001).
232. VicHealth Koori Health and Community Development Unit. Research -Understanding Ethics. (Melbourne: VicHealth Koori Health and Community Development Unit, University of Melbourne, 2001).
233. Waite, H. 'Researching Lesbian Health'. Paper presented at the Health in DIfference 1 (Melbourne 1996).
234. Wallis, J. and Dollery, B. 'Social Capital and Local Government Capacity', Australian Journal of Public Administration, 61: 3 (2002) 76-85.
235. Walmsley J. and Johnson, K. Inclusive Research with People with Learning Disabilities: Past, Present and Futures (London: Jessica Kingsley Publishing, 2003).
236. Walsh-Bowers, R. and Parlour, S. 'Researcher-participant relationships in journal reports on gay men and lesbian women', Journal of Homosexuality, 23: 4 (1992) 477-499.
237. Waples-Crow, P. and Pyett, P. The Making of a Great Relationship: A Review of a Healthy Partnership between Mainstream and Indigenous Organisations (Melbourne: Victorian Aboriginal Community Controlled Health Organisation, 2005).
238. Ward, L. Seen and Heard: Involving Disabled Children and Young People in Research and Development Projects (New York: Joseph Rowntree Foundation, 1997).
239. Weeks, J. Coming out. Homosexual Politics in Britain from the Nineteenth Century to the Present (London: Quartet Books, 1977).
240. Weeks, W. and Gilmore, K. 'How violence against women became an issue on the national policy agenda'. In T. Dalton, M. Draper, W. Weeks and J. Wiseman (eds) Making Social Policy in Australia (Sydney: Allen and Unwin, 1996).
241. Wells Y., Petralia W., De Vaus D., Kendig H. 'Recruitment for a panel study of Australian retirees', Research on Aging, 25 (2003) 36-64.
242. Weston, K. 'Requiem for a street fighter'. In E. Lewin and W. Leap (ed.), Out In the Field: Reflections of Lesbian and Gay Anthropologists (Chicago: University of Illinois Press, 1996) 274-285.
243. Wihongi, H. The Process of Whakawhanaungatanga in Kaupapa Maori Research. Sixth Biennial Conference: Doing Well, Auckland (Australia and New Zealand Third Sector Research, 2002). http://www.anztsr.org.au/02conf/anztsrpapers/Wihongi,%20Helen.pdf, accessed 24/01/2006.
244. Willett, G. 'Man of History', B News, 106 (2005) 4.
245. Willett, G. Living Out Loud. A History of Gay and Lesbian Activism in Australia (Sydney: Allen and Unwin, 2000).
246. Willis, J. Romance, Ritual and Risk: Pitjantjatjara Masculinity in the Era of AIDS. Australian Centre for International and Tropical Health and Nutrition (Brisbane: University of Queensland, 1997).
247. Willis, J., McDonald, K., Saunders, M. and Grierson, J. HIV Futures 11: Aboriginal and Torres Strait Islander People Living with HIV, Monograph Series Number 30 (Melbourne: Australian Research Centre in Sex, Health and Society, La Trobe University, 2002).
248. Wilton, T. 'Lesbian and Gay Health: power, paradigms and bodies'. In D. Richardson, and S. Seidmann (ed.) Handbook of Lesbian and Gay Studies (London: Sage, 2002). 253-270.
249. Wood, L. A. and Ryan E. B. 'Talk to the elders: social structure, attitudes and forms of address', Ageing and Society, 11 (1991) 167-187.
250. Woodruff-Pak, D. Psychology and Aging (Englewood Cliffs, NJ: Prentice Hall, 1988).
251. World Health Organisation (WHO). Declaration of Alma-ATA, 2003, from http://www.who.int/hpr/NPH/docs/declaration_almaata.pdf (1978).
252. Worth, A. and Tierney, A. J. 'Conducting research interviews with elderly people by telephone', Journal of Advanced Nursing, 18 (1993) 1077-1084.
253. Worth, S. and Adair, J. Through Navajo Eyes (Bloomington: Indiana University Press, 1972).