-
1
-
-
0033753490
-
Variations in practice and outcomes in the Canadian NICU network: 1996-1997
-
Lee SK, McMillan DD, Ohlsson A, et al. Variations in practice and outcomes in the Canadian NICU network: 1996-1997. Pediatrics 2000; 106: 1070-1079.
-
(2000)
Pediatrics
, vol.106
, pp. 1070-1079
-
-
Lee, S.K.1
McMillan, D.D.2
Ohlsson, A.3
-
2
-
-
0036218511
-
Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998
-
Feudtner C, Silveira MJ, Christakis DA,. Where do children with complex chronic conditions die? Patterns in Washington State, 1980-1998. Pediatrics 2002; 109: 656-660.
-
(2002)
Pediatrics
, vol.109
, pp. 656-660
-
-
Feudtner, C.1
Silveira, M.J.2
Christakis, D.A.3
-
3
-
-
50949083783
-
Causes and circumstances of neonatal deaths in 108 consecutive cases over a 10-year period at the Children's Hospital of Lucerne, Switzerland
-
Berger TM, Hofer A,. Causes and circumstances of neonatal deaths in 108 consecutive cases over a 10-year period at the Children's Hospital of Lucerne, Switzerland. Neonatology 2009; 95: 157-163.
-
(2009)
Neonatology
, vol.95
, pp. 157-163
-
-
Berger, T.M.1
Hofer, A.2
-
4
-
-
14644407174
-
Deaths in a neonatal intensive care unit: A 10-year perspective
-
Hagen CM, Hansen TW,. Deaths in a neonatal intensive care unit: a 10-year perspective. Pediatr Crit Care Med 2004; 5: 463-468.
-
(2004)
Pediatr Crit Care Med
, vol.5
, pp. 463-468
-
-
Hagen, C.M.1
Hansen, T.W.2
-
6
-
-
72049100665
-
Categorizing neonatal deaths: A cross-cultural study in the United States, Canada, and the Netherlands
-
Verhagen AA, Janvier A, Leuthner SR, et al. Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands. J Pediatr 2010; 156: 33-37.
-
(2010)
J Pediatr
, vol.156
, pp. 33-37
-
-
Verhagen, A.A.1
Janvier, A.2
Leuthner, S.R.3
-
7
-
-
33745819555
-
Death in the neonatal intensive care unit: Changing patterns of end-of-life care over two decades
-
Wilkinson DJ, Fitzsimons JJ, Dargaville PA, et al. Death in the neonatal intensive care unit: changing patterns of end-of-life care over two decades. Arch Dis Child Fetal Neonatal Ed 2006; 91: F268-F271.
-
(2006)
Arch Dis Child Fetal Neonatal Ed
, vol.91
, pp. F268-F271
-
-
Wilkinson, D.J.1
Fitzsimons, J.J.2
Dargaville, P.A.3
-
8
-
-
28744457879
-
End-of-life decisions in delivery room and neonatal intensive care unit
-
Arlettaz R, Mieth D, Bucher HU, et al. End-of-life decisions in delivery room and neonatal intensive care unit. Acta Paediatr 2005; 94: 1626-1631.
-
(2005)
Acta Paediatr
, vol.94
, pp. 1626-1631
-
-
Arlettaz, R.1
Mieth, D.2
Bucher, H.U.3
-
9
-
-
33644664453
-
The contribution of withholding or withdrawing care to newborn mortality
-
Barton L, Hodgman JE,. The contribution of withholding or withdrawing care to newborn mortality. Pediatrics 2005; 116: 1487-1491.
-
(2005)
Pediatrics
, vol.116
, pp. 1487-1491
-
-
Barton, L.1
Hodgman, J.E.2
-
10
-
-
34548666388
-
Physician end-of-life decision-making in newborns in a less developed health care setting: Insight in considerations and implementation
-
Verhagen AA, Spijkerman J, Muskiet FD, et al. Physician end-of-life decision-making in newborns in a less developed health care setting: insight in considerations and implementation. Acta Paediatr 2007; 96: 1437-1440.
-
(2007)
Acta Paediatr
, vol.96
, pp. 1437-1440
-
-
Verhagen, A.A.1
Spijkerman, J.2
Muskiet, F.D.3
-
11
-
-
34447124389
-
Physician medical decision-making at the end-of-life in newborns: Insight into implementation at 2 Dutch centers
-
Verhagen AA, van der Hoeven MA, van Meerveld RC, et al. Physician medical decision-making at the end-of-life in newborns: insight into implementation at 2 Dutch centers. Pediatrics 2007; 120: e20-e28.
-
(2007)
Pediatrics
, vol.120
, pp. e20-e28
-
-
Verhagen, A.A.1
Van Der Hoeven, M.A.2
Van Meerveld, R.C.3
-
12
-
-
0036157109
-
Parental perspectives on end-of-life care in the pediatric intensive care unit
-
Meyer EC, Burns JP, Griffith JL, et al. Parental perspectives on end-of-life care in the pediatric intensive care unit. Crit Care Med 2002; 30: 226-231.
-
(2002)
Crit Care Med
, vol.30
, pp. 226-231
-
-
Meyer, E.C.1
Burns, J.P.2
Griffith, J.L.3
-
13
-
-
3042670471
-
End-of-life choices for African-American and White infants in a neonatal intensive-care unit: A pilot study
-
Moseley KL, Church A, Hempel B, et al. End-of-life choices for African-American and White infants in a neonatal intensive-care unit: a pilot study. J Natl Med Assoc 2004; 96: 933-937.
-
(2004)
J Natl Med Assoc
, vol.96
, pp. 933-937
-
-
Moseley, K.L.1
Church, A.2
Hempel, B.3
-
14
-
-
0035230115
-
Delivery room resuscitation decisions for extremely low birthweight infants in California
-
Partridge JC, Freeman H, Weiss E, et al. Delivery room resuscitation decisions for extremely low birthweight infants in California. J Perinatol 2001; 21: 27-33.
-
(2001)
J Perinatol
, vol.21
, pp. 27-33
-
-
Partridge, J.C.1
Freeman, H.2
Weiss, E.3
-
15
-
-
24944573171
-
What influences parents' decisions to limit or withdraw life support?
-
Sharman M, Meert KL, Sarnaik AP,. What influences parents' decisions to limit or withdraw life support? Pediatr Crit Care Med 2005; 6: 513-518.
-
(2005)
Pediatr Crit Care Med
, vol.6
, pp. 513-518
-
-
Sharman, M.1
Meert, K.L.2
Sarnaik, A.P.3
-
16
-
-
0027374328
-
No resuscitation and withdrawal of therapy in a neonatal and a pediatric intensive care unit in Canada
-
Ryan CA, Byrne P, Kuhn S, et al. No resuscitation and withdrawal of therapy in a neonatal and a pediatric intensive care unit in Canada. J Pediatr 1993; 123: 534-538.
-
(1993)
J Pediatr
, vol.123
, pp. 534-538
-
-
Ryan, C.A.1
Byrne, P.2
Kuhn, S.3
-
17
-
-
16644392541
-
End-of-life after birth: Death and dying in a neonatal intensive care unit
-
Singh J, Lantos J, Meadow W,. End-of-life after birth: death and dying in a neonatal intensive care unit. Pediatrics 2004; 114: 1620-1626.
-
(2004)
Pediatrics
, vol.114
, pp. 1620-1626
-
-
Singh, J.1
Lantos, J.2
Meadow, W.3
-
18
-
-
84883463072
-
Neonatologists' perspectives of palliative and end-of-life care in neonatal intensive care units
-
Cortezzo DE, Sanders MR, Brownell E, et al. Neonatologists' perspectives of palliative and end-of-life care in neonatal intensive care units. J Perinatol 2013; 33: 731-735.
-
(2013)
J Perinatol
, vol.33
, pp. 731-735
-
-
Cortezzo, D.E.1
Sanders, M.R.2
Brownell, E.3
-
19
-
-
84970000626
-
-
World Health Organization. (accessed 9 November 2015)
-
World Health Organization. WHO definition of palliative care., http://www.who.int/cancer/palliative/definition/en/ (2015,. accessed 9 November 2015).
-
(2015)
WHO Definition of Palliative Care
-
-
-
20
-
-
84911974064
-
-
Together for Short Lives. (accessed 9 November 2015)
-
Together for Short Lives. Definitions., http://www.togetherforshortlives.org.uk/professionals/childrens-palliative-care-essentials/definitions (2015,. accessed 9 November 2015).
-
(2015)
Definitions
-
-
-
21
-
-
84876696361
-
Ethical considerations in neonatal end-of-life care
-
Larcher V,. Ethical considerations in neonatal end-of-life care. Semin Fetal Neonatal Med 2013; 18: 105-110.
-
(2013)
Semin Fetal Neonatal Med
, vol.18
, pp. 105-110
-
-
Larcher, V.1
-
22
-
-
79960452356
-
Whom are we comforting? An analysis of comfort medications delivered to dying neonates
-
Janvier A, Meadow W, Leuthner SR, et al. Whom are we comforting? An analysis of comfort medications delivered to dying neonates. J Pediatr 2011; 159: 206-210.
-
(2011)
J Pediatr
, vol.159
, pp. 206-210
-
-
Janvier, A.1
Meadow, W.2
Leuthner, S.R.3
-
23
-
-
84921839961
-
Does diagnosis influence end-of-life decisions in the neonatal intensive care unit?
-
Weiner J, Sharma J, Lantos J, et al. Does diagnosis influence end-of-life decisions in the neonatal intensive care unit? J Perinatol 2015; 35: 151-154.
-
(2015)
J Perinatol
, vol.35
, pp. 151-154
-
-
Weiner, J.1
Sharma, J.2
Lantos, J.3
-
24
-
-
29844450925
-
The use of drugs with a life-shortening effect in end-of-life care in neonates and infants
-
Provoost V, Cools F, Bilsen J, et al. The use of drugs with a life-shortening effect in end-of-life care in neonates and infants. Intensive Care Med 2006; 32: 133-139.
-
(2006)
Intensive Care Med
, vol.32
, pp. 133-139
-
-
Provoost, V.1
Cools, F.2
Bilsen, J.3
-
26
-
-
0030964837
-
Analgesia for dying infants whose life support is withdrawn or withheld
-
Partridge JC, Wall SN,. Analgesia for dying infants whose life support is withdrawn or withheld. Pediatrics 1997; 99: 76-79.
-
(1997)
Pediatrics
, vol.99
, pp. 76-79
-
-
Partridge, J.C.1
Wall, S.N.2
-
27
-
-
84911907803
-
End-of-life care in a regional level IV neonatal intensive care unit after implementation of a palliative care initiative
-
Samsel C, Lechner BE,. End-of-life care in a regional level IV neonatal intensive care unit after implementation of a palliative care initiative. J Perinatol 2015; 35: 223-228.
-
(2015)
J Perinatol
, vol.35
, pp. 223-228
-
-
Samsel, C.1
Lechner, B.E.2
-
28
-
-
84964698718
-
Impact of a palliative care program on end-of-life care in a neonatal intensive care unit
-
Younge N, Smith PB, Goldberg RN, et al. Impact of a palliative care program on end-of-life care in a neonatal intensive care unit. J Perinatol 2015; 35: 218-222.
-
(2015)
J Perinatol
, vol.35
, pp. 218-222
-
-
Younge, N.1
Smith, P.B.2
Goldberg, R.N.3
-
29
-
-
84876742141
-
Evidence-based comfort care for neonates towards the end-of-life
-
Carter B, Jones P,. Evidence-based comfort care for neonates towards the end-of-life. Semin Fetal Neonatal Med 2013; 18: 67-116.
-
(2013)
Semin Fetal Neonatal Med
, vol.18
, pp. 67-116
-
-
Carter, B.1
Jones, P.2
-
30
-
-
62049084378
-
Research electronic data capture (REDCap): A metadata-driven methodology and workflow process for providing translational research informatics support
-
Harris PA, Taylor R, Thielke R, et al. Research electronic data capture (REDCap): a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform 2009; 42: 377-381.
-
(2009)
J Biomed Inform
, vol.42
, pp. 377-381
-
-
Harris, P.A.1
Taylor, R.2
Thielke, R.3
-
31
-
-
84880571720
-
Modes of death in pediatrics: Differences in the ethical approach in neonatal and pediatric patients
-
Fontana MS, Farrell C, Gauvin F, et al. Modes of death in pediatrics: differences in the ethical approach in neonatal and pediatric patients. J Pediatr 2013; 162: 1107-1111.
-
(2013)
J Pediatr
, vol.162
, pp. 1107-1111
-
-
Fontana, M.S.1
Farrell, C.2
Gauvin, F.3
-
32
-
-
80052346872
-
Guidelines for the determination of brain death in infants and children: An update of the 1987 task force recommendations
-
Nakagawa TA, Ashwal S, Mathur M, et al. Guidelines for the determination of brain death in infants and children: an update of the 1987 task force recommendations. Pediatrics 2011; 128: e720-e740.
-
(2011)
Pediatrics
, vol.128
, pp. e720-e740
-
-
Nakagawa, T.A.1
Ashwal, S.2
Mathur, M.3
-
33
-
-
0027326511
-
Withholding and withdrawal of life support from surgical neonates with life-threatening congenital anomalies
-
Hazebroek FW, Tibboel D, Mourik M, et al. Withholding and withdrawal of life support from surgical neonates with life-threatening congenital anomalies. J Pediatr Surg 1993; 28: 1093-1097.
-
(1993)
J Pediatr Surg
, vol.28
, pp. 1093-1097
-
-
Hazebroek, F.W.1
Tibboel, D.2
Mourik, M.3
-
34
-
-
0030938022
-
Death in the intensive care nursery: Physician practice of withdrawing and withholding life support
-
Wall SN, Partridge JC,. Death in the intensive care nursery: physician practice of withdrawing and withholding life support. Pediatrics 1997; 99: 64-70.
-
(1997)
Pediatrics
, vol.99
, pp. 64-70
-
-
Wall, S.N.1
Partridge, J.C.2
-
35
-
-
84890436039
-
Length of time from extubation to cardiorespiratory death in neonatal intensive care patients and assessment of suitability for organ donation
-
Saha S, Kent AL,. Length of time from extubation to cardiorespiratory death in neonatal intensive care patients and assessment of suitability for organ donation. Arch Dis Child Fetal Neonatal Ed 2014; 99: F59-F63.
-
(2014)
Arch Dis Child Fetal Neonatal Ed
, vol.99
, pp. F59-F63
-
-
Saha, S.1
Kent, A.L.2
-
36
-
-
84855801457
-
Carrying: Parental experience of the hospital transfer of their baby
-
Van Manen M,. Carrying: parental experience of the hospital transfer of their baby. Qual Health Res 2012; 22: 199-211.
-
(2012)
Qual Health Res
, vol.22
, pp. 199-211
-
-
Van Manen, M.1
-
37
-
-
84930535828
-
The ethics of an ordinary medical technology
-
Van Manen MA,. The ethics of an ordinary medical technology. Qual Health Res 2014; 25: 996-1004.
-
(2014)
Qual Health Res
, vol.25
, pp. 996-1004
-
-
Van Manen, M.A.1
-
38
-
-
33847067188
-
Holding a place: Parents' lives following removal of infant life support
-
Armentrout DC,. Holding a place: parents' lives following removal of infant life support. Newborn Infant Nurs Rev 2007; 7: e4-e11.
-
(2007)
Newborn Infant Nurs Rev
, vol.7
, pp. e4-e11
-
-
Armentrout, D.C.1
-
39
-
-
84880311604
-
Skin-to-skin care for dying preterm newborns and their parents - A phenomenological study from the perspective of NICU nurses
-
Kymre IG, Bondas T,. Skin-to-skin care for dying preterm newborns and their parents-a phenomenological study from the perspective of NICU nurses. Scand J Caring Sci 2013; 27: 669-676.
-
(2013)
Scand J Caring Sci
, vol.27
, pp. 669-676
-
-
Kymre, I.G.1
Bondas, T.2
-
41
-
-
84930185914
-
End-of-life care in the neonatal intensive care unit. Experiences of staff and parents
-
Cortezzo DE, Sanders MR, Brownell EA, et al. End-of-life care in the neonatal intensive care unit. experiences of staff and parents. Am J Perinatol 2015; 32: 713-724.
-
(2015)
Am J Perinatol
, vol.32
, pp. 713-724
-
-
Cortezzo, D.E.1
Sanders, M.R.2
Brownell, E.A.3
-
42
-
-
84927629473
-
Medical record documentation and symptom management at the end-of-life in the NICU
-
Fortney CA, Steward DK,. Medical record documentation and symptom management at the end-of-life in the NICU. Adv Neonatal Care 2015; 15: 48-55.
-
(2015)
Adv Neonatal Care
, vol.15
, pp. 48-55
-
-
Fortney, C.A.1
Steward, D.K.2
|