메뉴 건너뛰기




Volumn 42, Issue 3, 2017, Pages 472-480

Needs, Priorities, and Recommendations for Engaging Underrepresented Populations in Clinical Research: A Community Perspective

Author keywords

Community engagement; Health and healthcare disparities; Research studies; Underrepresented populations

Indexed keywords

CLINICAL RESEARCH; CONTENT ANALYSIS; CULTURAL COMPETENCE; ETHNIC GROUP; HEALTH CARE DISPARITY; HEARING IMPAIRED PERSON; HUMAN; MAJOR CLINICAL STUDY; MEDICALLY UNINSURED; PRIMARY MEDICAL CARE; QUALITY OF LIFE; RESEARCH PRIORITY; UNCERTAINTY; MEDICAL RESEARCH; MINORITY GROUP; STANDARDS;

EID: 84994324014     PISSN: 00945145     EISSN: 15733610     Source Type: Journal    
DOI: 10.1007/s10900-016-0279-2     Document Type: Article
Times cited : (119)

References (33)
  • 1
    • 1442356685 scopus 로고    scopus 로고
    • Enrollment of African Americans onto clinical treatment trials: study design barriers
    • Adams-Campbell, L. L., Ahaghotu, C., Gaskins, M., et al. (2004). Enrollment of African Americans onto clinical treatment trials: study design barriers. Journal of Clinical Oncology, 22. doi:10.1200/jco.2004.03.160.
    • (2004) Journal of Clinical Oncology , pp. 22
    • Adams-Campbell, L.L.1    Ahaghotu, C.2    Gaskins, M.3
  • 2
    • 0029730486 scopus 로고    scopus 로고
    • Scientific rigor and community participation in health promotion research: are they compatible?
    • Allison, K. R., & Rottman, I. (1996). Scientific rigor and community participation in health promotion research: are they compatible? Health Promotion International, 2(4), 333–340.
    • (1996) Health Promotion International , vol.2 , Issue.4 , pp. 333-340
    • Allison, K.R.1    Rottman, I.2
  • 3
    • 0032996699 scopus 로고    scopus 로고
    • The new NIH and FDA medical research policies: targeting gender, promoting justice
    • COI: 1:STN:280:DyaK1MzhsVWjtg%3D%3D, PID: 10386326
    • Baird, K. L. (1999). The new NIH and FDA medical research policies: targeting gender, promoting justice. Journal of Health Politics, Policy and Law, 24(3), 531–565.
    • (1999) Journal of Health Politics, Policy and Law , vol.24 , Issue.3 , pp. 531-565
    • Baird, K.L.1
  • 4
    • 1242327350 scopus 로고    scopus 로고
    • Disparities in health and health care: focusing efforts to eliminate unequal burdens
    • PID: 12729451
    • Baldwin, D. M. (2003). Disparities in health and health care: focusing efforts to eliminate unequal burdens. Online Journal of Issues in Nursing, 8(1), 2.
    • (2003) Online Journal of Issues in Nursing , vol.8 , Issue.1 , pp. 2
    • Baldwin, D.M.1
  • 5
    • 77955059315 scopus 로고    scopus 로고
    • Listening sessions with Latinas: documenting life contexts and creating connections
    • Belknap, R. A., & Vandevusse, L. (2010). Listening sessions with Latinas: documenting life contexts and creating connections. Public Health Nursing (Boston, Mass.), 27(4), 337–346. doi:10.1111/j.1525-1446.2010.00864.x.
    • (2010) Public Health Nursing (Boston, Mass.) , vol.27 , Issue.4 , pp. 337-346
    • Belknap, R.A.1    Vandevusse, L.2
  • 6
    • 84897995161 scopus 로고    scopus 로고
    • Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups
    • Bonevski, B., Randell, M., Paul, et al. (2014). Reaching the hard-to-reach: a systematic review of strategies for improving health and medical research with socially disadvantaged groups. BMC Medical Research Methodology, 14(1), 1–29. doi:10.1186/1471-2288-14-42.
    • (2014) BMC Medical Research Methodology , vol.14 , Issue.1 , pp. 1-29
    • Bonevski, B.1    Randell, M.2    Paul3
  • 7
    • 85018037937 scopus 로고    scopus 로고
    • Bridges: Serving the Deaf, Hard of Hearing, and Hearing Communities. Retrieved April 7, 2013
    • Bridges. (2016). Bridges: Serving the Deaf, Hard of Hearing, and Hearing Communities. Retrieved April 7, 2013, from http://www.bridgesfordeafandhh.org/.
    • (2016) From
  • 8
    • 85018046820 scopus 로고    scopus 로고
    • Principles of Community Engagement. Retrieved April 4, 2016
    • Clinical and Translational Science Awards Consortium Community Engagement Key Function Committee Task Force on the Principles of Community Engagement (2011). Principles of Community Engagement. Retrieved April 4, 2016, from http://www.atsdr.cdc.gov/communityengagement/pdf/PCE_Report_508_FINAL.pdf.
    • (2011) From
  • 10
    • 0031012446 scopus 로고    scopus 로고
    • Setting health priorities: community boards accurately reflect the preferences of the community’s residents
    • COI: 1:STN:280:DyaK2s7nvFegug%3D%3D, PID: 9120047
    • Conway, T., Hu, T. C., & Harrington, T. (1997). Setting health priorities: community boards accurately reflect the preferences of the community’s residents. Journal of Community Health, 22(1), 57–68.
    • (1997) Journal of Community Health , vol.22 , Issue.1 , pp. 57-68
    • Conway, T.1    Hu, T.C.2    Harrington, T.3
  • 11
    • 34547938725 scopus 로고    scopus 로고
    • Achieving Millennium Development Goals for health: building understanding, trust and capacity to respond
    • Downs, T. J., & Larson, H. J. (2007). Achieving Millennium Development Goals for health: building understanding, trust and capacity to respond. Health Policy (Amsterdam, Netherlands), 83(2–3), 144–161. doi:10.1016/j.healthpol.2007.02.008.
    • (2007) Health Policy (Amsterdam, Netherlands) , vol.83 , Issue.2-3 , pp. 144-161
    • Downs, T.J.1    Larson, H.J.2
  • 12
    • 81555196102 scopus 로고    scopus 로고
    • Challenging assumptions about minority participation in US clinical research
    • PID: 22021285
    • Fisher, J. A., & Kalbaugh, C. A. (2011). Challenging assumptions about minority participation in US clinical research. American Journal of Public Health, 101(12), 2217–2222. doi:10.2105/ajph.2011.300279.
    • (2011) American Journal of Public Health , vol.101 , Issue.12 , pp. 2217-2222
    • Fisher, J.A.1    Kalbaugh, C.A.2
  • 13
    • 84900013280 scopus 로고    scopus 로고
    • Adherence and retention in clinical trials: a community-based approach
    • PID: 24643648
    • Fouad, M. N., Johnson, R. E., Nagy, M. C., Person, S. D., & Partridge, E. E. (2014). Adherence and retention in clinical trials: a community-based approach. Cancer, 120(Suppl 7), 1106–1112. doi:10.1002/cncr.28572.
    • (2014) Cancer , vol.120 , Issue.7 , pp. 1106-1112
    • Fouad, M.N.1    Johnson, R.E.2    Nagy, M.C.3    Person, S.D.4    Partridge, E.E.5
  • 14
    • 84893379206 scopus 로고    scopus 로고
    • A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders
    • PID: 24328648
    • George, S., Duran, N., & Norris, K. (2014). A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders. American Journal of Public Health, 104, e16–e31.
    • (2014) American Journal of Public Health , vol.104 , pp. e16-e31
    • George, S.1    Duran, N.2    Norris, K.3
  • 15
    • 18044400914 scopus 로고    scopus 로고
    • Participation of minorities in cancer research: the influence of structural, cultural and linguistic factors
    • COI: 1:STN:280:DC%2BD3Mvks12mug%3D%3D, PID: 11189089
    • Giuliano, A. R., Mokuau, N., Hughes, C., et al. (2000). Participation of minorities in cancer research: the influence of structural, cultural and linguistic factors. AEP, 10, S22–S34
    • (2000) AEP , vol.10 , pp. S22-S34
    • Giuliano, A.R.1    Mokuau, N.2    Hughes, C.3
  • 17
    • 77951239791 scopus 로고    scopus 로고
    • You’ve got to understand community”: community perceptions on “breaking the disconnect” between researchers and communities
    • PID: 20208285
    • Goldberg-Freeman, C., Kass, N. E., Tracey, P., et al. (2007). “You’ve got to understand community”: community perceptions on “breaking the disconnect” between researchers and communities. Progress in Community Health Partnerships, 1(3), 231–240. doi:10.1353/cpr.2007.0021.
    • (2007) Progress in Community Health Partnerships , vol.1 , Issue.3 , pp. 231-240
    • Goldberg-Freeman, C.1    Kass, N.E.2    Tracey, P.3
  • 18
    • 27844518793 scopus 로고    scopus 로고
    • Three approaches to qualitative content analysis
    • PID: 16204405
    • Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. doi:10.1177/1049732305276687.
    • (2005) Qualitative Health Research , vol.15 , Issue.9 , pp. 1277-1288
    • Hsieh, H.F.1    Shannon, S.E.2
  • 19
    • 84940453800 scopus 로고    scopus 로고
    • Case study: Community engagement and clinical trial success: Outreach to African American women
    • PID: 25752995
    • Johnson, D. A., Joosten, Y. A., Wilkins, C. H., & Shibao, C. A. (2015). Case study: Community engagement and clinical trial success: Outreach to African American women. Clinical and Translational Science, 8(4), 388–390. doi:10.1111/cts.12264.
    • (2015) Clinical and Translational Science , vol.8 , Issue.4 , pp. 388-390
    • Johnson, D.A.1    Joosten, Y.A.2    Wilkins, C.H.3    Shibao, C.A.4
  • 21
    • 0034533854 scopus 로고    scopus 로고
    • Involving minority and underrepresented women in clinical trials: the National Centers of Excellence in Women’s Health
    • COI: 1:STN:280:DC%2BD3M%2FpsVarug%3D%3D
    • Killien, M., Bigby, J. A., Champion, V., et al. (2000). Involving minority and underrepresented women in clinical trials: the National Centers of Excellence in Women’s Health. Journal of Women’s Health & Gender-Based Medicine, 9(10), 1061–1070. doi:10.1089/152460900445974.
    • (2000) Journal of Women’s Health & Gender-Based Medicine , vol.9 , Issue.10 , pp. 1061-1070
    • Killien, M.1    Bigby, J.A.2    Champion, V.3
  • 22
    • 84919430023 scopus 로고    scopus 로고
    • A community health worker-led lifestyle behavior intervention for Latina (Hispanic) women: feasibility and outcomes of a randomized controlled trial
    • PID: 25307195
    • Koniak-Griffin, D., Brecht, M. L., Takayanagi, S., Villegas, J., Melendrez, M., & Balcazar, H. (2015). A community health worker-led lifestyle behavior intervention for Latina (Hispanic) women: feasibility and outcomes of a randomized controlled trial. International Journal of Nursing Studies, 52(1), 75–87. doi:10.1016/j.ijnurstu.2014.09.005.
    • (2015) International Journal of Nursing Studies , vol.52 , Issue.1 , pp. 75-87
    • Koniak-Griffin, D.1    Brecht, M.L.2    Takayanagi, S.3    Villegas, J.4    Melendrez, M.5    Balcazar, H.6
  • 23
    • 80051764085 scopus 로고    scopus 로고
    • Personal experiences in taking part in clinical trials: A qualitative study
    • PID: 21737226
    • Locock, L., & Smith, L. (2011a). Personal experiences in taking part in clinical trials: A qualitative study. Patient Education and Counseling, 84, 303–309.
    • (2011) Patient Education and Counseling , vol.84 , pp. 303-309
    • Locock, L.1    Smith, L.2
  • 24
    • 79951867897 scopus 로고    scopus 로고
    • Personal benefit, or benefiting others? Deciding whether to take part in clinical trials
    • Locock, L., & Smith, L. (2011b). Personal benefit, or benefiting others? Deciding whether to take part in clinical trials. Clinical Trials (London, England), 8(1), 85–93. doi:10.1177/1740774510392257.
    • (2011) Clinical Trials (London, England) , vol.8 , Issue.1 , pp. 85-93
    • Locock, L.1    Smith, L.2
  • 25
    • 85018081142 scopus 로고    scopus 로고
    • Research Highlights-Promising Medical Advances. Retrieved April 11, 2016
    • National Institute of Health. (2015). 2015 Research Highlights-Promising Medical Advances. Retrieved April 11, 2016, from http://www.nih.gov/news-events/nih-research-matters/2015-research-highlights-promising-medical-advances.
    • (2015) From
  • 26
    • 84953775562 scopus 로고    scopus 로고
    • Diversity in clinical and biomedical research: A promise yet to be fulfilled
    • PID: 26671224
    • Oh, S. S., Galanter, J., Thakur, N., et al. (2015). Diversity in clinical and biomedical research: A promise yet to be fulfilled. PLoS Medicine, 12(12), e1001918. doi:10.1371/journal.pmed.1001918.
    • (2015) PLoS Medicine , vol.12 , Issue.12
    • Oh, S.S.1    Galanter, J.2    Thakur, N.3
  • 28
    • 0037433442 scopus 로고    scopus 로고
    • Central challenges facing the national clinical research enterprise
    • PID: 12633190
    • Sung, N. S., Crowley, W. F. Jr., Genel, M., et al. (2003). Central challenges facing the national clinical research enterprise. JAMA, 289(10), 1278–1287.
    • (2003) JAMA , vol.289 , Issue.10 , pp. 1278-1287
    • Sung, N.S.1    Crowley, W.F.2    Genel, M.3
  • 29
    • 0028791332 scopus 로고
    • Recruiting minorities into clinical trials: toward a participant-friendly system
    • Swanson, G. M., & Ward, A. J. (1995). Recruiting minorities into clinical trials: toward a participant-friendly system. Journal of the National Cancer Institute, 87. doi:10.1093/jnci/87.23.1747.
    • (1995) Journal of the National Cancer Institute , pp. 87
    • Swanson, G.M.1    Ward, A.J.2
  • 30
    • 85018075895 scopus 로고    scopus 로고
    • Community Tool Box: Community Assessment. Retrieved March 13, 2016
    • University of Kansas Work Group for Community Health and Development (2015). Community Tool Box: Community Assessment. Retrieved March 13, 2016, from http://ctb.ku.edu/en/table-of-contents/assessment.
    • (2015) From
  • 31
    • 84871924285 scopus 로고    scopus 로고
    • U. S. Department of Health and Human Services (2010). Heathy People 2020. Retrieved March 13, 2016, from https://www.healthypeople.gov/.
    • (2010) Heathy People 2020
  • 32
    • 33845886722 scopus 로고    scopus 로고
    • Using community-based participatory research to address health disparities
    • PID: 16760238
    • Wallerstein, N. B., & Duran, B. (2006). Using community-based participatory research to address health disparities. Health Promotion Practice, 7(3), 312–323.
    • (2006) Health Promotion Practice , vol.7 , Issue.3 , pp. 312-323
    • Wallerstein, N.B.1    Duran, B.2
  • 33
    • 77950584885 scopus 로고    scopus 로고
    • Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity
    • PID: 20147663
    • Wallerstein, N. B., & Duran, B. (2010). Community-based participatory research contributions to intervention research: The intersection of science and practice to improve health equity. American Journal of Public Health, 100(1), S40–S46.
    • (2010) American Journal of Public Health , vol.100 , Issue.1 , pp. S40-S46
    • Wallerstein, N.B.1    Duran, B.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.