The content of available practice literature in dementia and intellectual disability

Dementia

Volumn 4, Issue 3, 2005, Pages 327-339

  Jokinen, Nancy ^a  

^a UNIVERSITY OF CALGARY   (Canada)

Author keywords

dementia; developmental disability; guidelines; practice; services

Indexed keywords

EID: 84993820029     PISSN: 14713012     EISSN: None     Source Type: Journal    
DOI: 10.1177/1471301205055026     Document Type: Article

References (51)

1. Antonangeli, J.M. (1995). Alzheimer project: Formulating a model of care for persons withAlzheimer’s disease and mental retardation. American Journal of Alzheimer’s Disease, 10(4), 13-16.
2. Belleth, J. (1995). Music therapy for adults with Down’s syndrome and dementia of theAlzheimer-type: A study of active and passive task sequencing. Canadian Journal of Music Therapy, 3(1), 35-51.
3. Bigby, C. (2002). Ageing people with a lifelong disability: Challenges for the aged care anddisability sectors. Journal of Intellectual & Developmental Disability, 27(4), 231-241.
4. Bigby, C. (2004). Ageing with a lifelong disability: A guide topractice, program and policy issues for human services professionals. London: Jessica Kingsley Publishers.
5. Braddock, D., Emerson, E., Felce, D., & Stancliffe, R.J. (2001). Living circumstances of children and adults with mental retardation ordevelopmental disabilities in the United States, Canada, England and Wales,and Australia. Mental Retardation and Developmental Disabilities ResearchReviews, 7, 115-121.
6. Cayton, H. (2004). Telling stories: Choices and challenges on the journey of dementia. Dementia: The International Journal of Social Research andPractice, 3(1), 9-17.
7. Chaput, J.L. (2002). Adults with Down syndrome and Alzheimer’s disease: Comparison ofservices received in group homes and in special care units. Journal of Gerontological Social Work, 38(1/2), 197-211.
8. Davidson, P., Prasher, V.P., & Janicki, M.P. (2003). Future directions and challenges. In P. Davidson, V.P. Prasher, & M.P. Janicki (Eds.), Mental health, intellectual disabilities and the agingprocess (pp. 238-242). Oxford: Blackwell.
9. Davis, D.R. (1999). A parent’s experience. In M.P. Janicki & A.J. Dalton (Eds.), Dementia, aging, and intellectual disabilities: A handbook(pp. 42-50). Philadelphia, PA: Brunner/Mazel.
10. Dilworth-Anderson, P., & Gibson, B.E. (2002). The cultural influence of values, norms, meanings, and perceptions inunderstanding dementia in ethnic minorities. Alzheimer Disease & Associated Disorders, 16(Suppl.2), S56-S63.
11. Downs, M. (2000). Dementia in a socio-cultural context: An idea whose time has come. Ageing & Society, 20, 369-375.
12. Evenhuis, H., Henderson, C., Beange, H., Lennox, N., & Chicoine, B. (2000). Healthy ageing - adults with intellectualdisabilities: Physical health issues. Geneva: World Health Organization.
13. Hammond, B., & Benedetti, P. (1999). Perspectives of a care provider. In M.P. Janicki & A.J. Dalton (Eds.), Dementia, aging, and intellectual disabilities: A handbook(pp. 32-41). Philadelphia, PA: Brunner/Mazel.
14. Henderson, C.M. (2004). Genetically-linked syndromes in intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 1(1), 31-41.
15. Hertogh, C., The, B., Miesen, B., & Eefsting, J. (2004). Truth telling and truthfulness in the care for patients withadvanceddementia: An ethnographic study in Dutch nursing homes. Social Science & Medicine, 59(8), 1685-1693.
16. Holland, A.J. (1999). Down’s syndrome. In M.P. Janicki & A.J. Dalton (Eds.), Dementia, aging, and intellectual disabilities: A handbook(pp. 183-197). Philadelphia, PA: Brunner/Mazel.
17. Holland, A.J., Hon, J., Huppert, F.A., & Stevens, F. (2000). Incidence and course of dementia in people with Down’s syndrome:Findings from a population-based study. Journal of Intellectual Disability Research, 44(2), 138-146.
18. Hulgin, K. (2004). Person-centered services and organizational context: Taking stock ofworking conditions and their impact. Mental Retardation, 42, 169-180.
19. International Association for the Scientific Study of Intellectual Disabilities. (2000). New millennium research to practice - conference abstracts: 11th worldcongress of the International Association for the Scientific Study ofIntellectual Disabilities (IASSID), 1-6 August 2000 Seattle, Washington, USA. Journal of Intellectual Disability Research, 44(3/4).
20. International Association for the Scientific Study of Intellectual Disability. (2004). Congress abstracts, 12th world congress. Journal of Intellectual Disability Research, 48(4/5).
21. Janicki, M.P., & Dalton, A.J. (Eds.). (1999). Dementia, aging, and intellectualdisabilities: A handbook. Philadelphia, PA: Brunner/Mazel.
22. Janicki, M.P., & Dalton, A.J. (2000). Prevalence of dementia and impact on intellectual disability services. Mental Retardation, 38, 276-288.
23. Janicki, M.P., Dalton, A.J., Henderson, C., & Davidson, P. (1999). Mortality and morbidity among older adults with intellectual disability:Health services considerations. Disability and Rehabilitation, 21(5/6), 284-294.
24. Janicki, M.P., Heller, T., Seltzer, G., & Hogg, J. (1995). Practice guidelines for the clinical assessment andcare management of Alzheimer and other dementias among adults with mentalretardation. Washington DC: American Association on Mental Retardation.
25. Janicki, M.P., McCallion, P., & Dalton, A.J. (2000). Supporting people with dementia in communitysettings. In M.P. Janicki & A.F. Ansello (Eds.), Community supports for aging adults with lifelongdisabilities (pp. 387-413). Baltimore, MD: Paul H. Brookes Publishing.
26. Janicki, M.P., McCallion, P., & Dalton, A.J. (2002). Dementia-related care decision-making in group homes for persons withintellectual disabilities. Journal of Gerontological Social Work, 38(1/2), 179-195.
27. Kane, M.N. (2000). Ethnoculturally-sensitive practice and Alzheimer’s disease. American Journal of Alzheimer’s Disease, 15(2), 80-86.
28. Kontos, P.C. (2004). Ethnographic reflections on selfhood, embodiment and Alzheimer’s disease. Ageing & Society, 24(6), 829-849.
29. Lynggaard, H., & Alexander, N. (2004). ‘Why are my friends changing?’ Explaining dementia topeople with learning disabilities. British Journal of Learning Disabilities, 32(1), 30-34.
30. Macdonald, A., Philpot, M., & Briggs, C. (2004). An attempt to determine the benefits of a‘home-for-life’ principle in residential care for peoplewith dementia and behavioural problems: A comparative cohort study. Dementia & Geriatric Cognitive Disorders, 18(1), 6-14.
31. McCallion, P. (1999). Maintaining communication. In M.P. Janicki & A.J. Dalton (Eds.), Dementia, aging, and intellectual disabilities: A handbook(pp. 261-277). Philadelphia, PA: Brunner/Mazel.
32. McCarron, M., & Lawlor, B.A. (2003). Responding to the challenges of ageing and dementia in intellectualdisability in Ireland. Aging and Mental Health, 7(6), 413-417.
33. Mitchell, S.L., Kiely, D.K., & Hamel, M.B. (2004). Dying with advanced dementia in the nursing home. Archives of Internal Medicine, 164(3), 321-326.
34. Nirje, B. (1985). The basis and logic of the normalization principle. Australia & New Zealand Journal of DevelopmentalDisabilities, 11(2), 65-68.
35. Parker, J. (2001). Interrogating person-centred dementia care in social work and social care practice. Journal of Social Work, 1(3), 329-345.
36. Parmenter, T. (2004). Contributions of IASSID to the scientific study of intellectual disability:The past, the present, and the future. Journal of Policy and Practice in Intellectual Disabilities, 1(2), 71-78.
37. Post, S.G. (2002). Down syndrome and Alzheimer disease: Defining a new ethical horizon in dual diagnosis. Alzheimer’s Care Quarterly, 3(3), 215-224.
38. Prasher, V.P. (2004). Review of donepezil, rivastigmine, galantamine and memantine for thetreatment of dementia in Alzheimer’s disease in adults with Downsyndrome: Implications for the intellectual disability population. International Journal of Geriatric Psychiatry, 19(6), 509-515.
39. Saperstein, A.R., Calkins, M., Haitsma, K., & Curyto, K. (2004). Missed opportunities. Alzheimer’s Care Quarterly, 5, 324-331.
40. Schalock, R., Brown, I., Brown, R.I., Cummins, R., Felce, D., Matikka, L., et al. (2002). Conceptualization, measurement, and application of quality of life forpersons with intellectual disabilities: Report of an international panel of experts. Mental Retardation, 40, 457-470.
41. Service, K. (2002). Considerations in care for individuals with intellectual disability withadvanced dementia. Journal of Gerontological Social Work, 38(1-2), 213-224.
42. Service, K., Lavoie, D., & Herlihy, J. (1999). Coping with losses, death, and grieving.In M.P. Janicki & A.J. Dalton (Eds.), Dementia, aging, and intellectual disabilities: A handbook(pp. 330-351). Philadelphia, PA: Brunner/Mazel.
43. Sloane, P., Hoeffer, B., Mitchell, C., McKenzie, D., Barrick, A., Rader, J., et al. (2004). Effect of person-centered showering and the towel bath onbathing-associated aggression, agitation, and discomfort in nursing homeresidents with dementia: A randomized, controlled trial. Journal of the American Geriatrics Society, 52, 1795-1804.
44. Udell, L. (1999). Support in small group home settings. In M.P. Janicki & A.J. Dalton (Eds.), Dementia, aging and intellectual disabilities: A handbook(pp. 316-329). Philadelphia, PA: Brunner/Mazel.
45. Watchman, K. (2003). Critical issues for service planners and providers of care for people withDown’s syndrome and dementia. British Journal of Learning Disabilities, 31(2), 81-84.
46. Weaverdyck, S., Wittle, A., & Delaski-Smith, D. (1998). In-place progression: Lessons learned from the Huron Wood’s staff. Journal of Gerontological Nursing, 24(1), 31-39.
47. Wilkinson, H., & Janicki, M.P. (2002). The Edinburgh Principles with accompanying guidelines and recommendations. Journal of Intellectual Disability Research, 46(3), 279-284.
48. Wolfensberger, W. (1969). The origin and nature of our institutionalmodels. In R.B. Kugel & W. Wolfensburger (Eds.), Changing patterns in residential services for the mentallyretarded (pp. 35-82). Washington, DC: President’s Committeeon Mental Retardation.
49. World Health Organization. (2000). Ageing and intellectual disabilities - improvinglongevtiy and promoting helathy ageing: summative report. Geneva: World Health Organization.
50. Zigman, W., Silverman, W., & Wisniewski, H.M. (1996). Aging and Alzheimer’s disease in Down syndrome: Clinical andpathological changes. Mental Retardation & Developmental Disabilities ResearchReviews, 2, 73-79.
51. Zigman, W.B., Schupf, N., Devenny, D.A., Miezejeski, C., Ryan, R., Urv, T.K., et al. (2004). Incidence and prevalence of Dementia in elderly adults with mentalretardation without Down syndrome. American Journal on Mental Retardation, 109, 126-141.