Assessing children's quality of life in health and social services: Meeting challenges and adding value

Journal of Children's Services

Volumn 1, Issue 2, 2006, Pages 41-50

  Skevington, Suzanne ^a   Gillison, Fiona ^a  

^a UNIVERSITY OF BATH   (United Kingdom)

Author keywords

Children; Health; Health status; Measurement; Quality of life

Indexed keywords

EID: 84993083407     PISSN: 17466660     EISSN: None     Source Type: Journal    
DOI: 10.1108/17466660200600013     Document Type: Review

References (37)

1. Bibace R & Walsh ME (1979) Developmental stages in children's conceptions of illness. In: Stone G, & Adler N (Eds) Health Psychology. San Francisco, California: Jossey-Bass.
2. Bullinger M & Ravens-Sieberer U (1995) Health related quality of life assessment in children: a review of the literature. European Review of Applied Psychology 45 (4) 245-254.
3. Coen RF (1999) Individual quality of life and assessment by carers or ‘proxy’ respondents. In: Joyce, CRB, O'Boyle CA & McGee H (Eds) Individual Quality of Life: approaches to conceptualisation and assessment (p185-196). Amsterdam, The Netherlands: Harwood Academic Publishers.
4. Davidson-Arad B & Wozner Y (2001) The use of the Shye's systemic quality life model in the examination of child protection officers decision. Social Indicators Research 56 (1) 1-20.
5. DfES (Department for Education and Skills) (2003) Every Child Matters. London: HMSO.
6. DfES (2006) Common Assessment Framework for Children and Young People. London: HMSO. Available from: www.everychildmatters.gov.uk/deliveringservices/caf/ (Accessed 16 August 2006).
7. DoH (Department of Health) (2003) Getting the Right Start: National Service Framework for Children, Young People and Maternity Services. London: Department of Health.
8. Efficace F, Bottomley A, Osoba D, Gotay C, Flechtner H, D'Haese S et al (2003) Beyond the development of health-related quality-of-life (HRQOL) measures: A checklist for evaluating HRQOL outcomes in cancer clinical trials - Does HRQOL evaluation in prostate cancer research inform clinical decision making? Journal of Clinical Oncology 21 (18) 3502-3511.
9. Eiser C (1993) Growing up with a Chronic Disease: the impact on children and their families. London: Jessica Kingsley.
10. Eiser C (1997) Children's quality of life measures. Archives of Disease in Childhood 77 350-354.
11. Eiser C & Morse R (2001) Quality of life measures in chronic diseases of childhood. Health Technology Assessment 5 (4).
12. Food and Drugs Administration (2006) Guidance for Industry - Patient-reported outcome measures: use in medical product development to support labelling claims. Available from: www.fda.gov./cder/guidance/index.htm.
13. Fox-Rushby JA (2002) Disability Adjusted Life Years (DALYS) for Decision-making. An overview of the literature. London: Office of Health Economics.
14. Greenhalgh J, Long AF & Flynn R (2005) The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory? Social Science & Medicine 60 (4) 833-843.
15. Health behaviour in school-aged children. A World Health Organisation collaborative cross-national study. www.hbsc.org (accessed 31/03/06).
16. Herdman M, Rajmil L, Ravens-Sieberer U, Bullinger M, Power M & Alonso J (2002) Expert consensus in the development of a European health-related quality of life measure for children and adolescents: a Delphi study. Acta Paediatrica 91 (12) 1385-1390.
17. Jirojanakul P & Skevington SM (2000) Developing a quality of life measure for children aged 5 to 8 years. British Journal of Health Psychology 5 (3) 299-322.
18. Jirojanakul P, Skevington SM & Hudson J (2003) Predicting young children's quality of life. Social Science and Medicine 57 (7) 1277-1288.
19. Jordan B (2006) Well-being: the next revolution in children's services? Journal of Children's Services 1 (1) 41-50.
20. Juniper EF (1998) Quality of life questionnaires: does statistically significant = clinically important? Journal of Allergy and Clinical Immunology 102 (1) 16-17.
21. Juniper EF, Guyatt GH, Willan A & Griffith LE (1994) Determining a minimal important change in a disease-specific Quality of Life Questionnaire. Journal of Clinical Epidemiology 47 (1) 81-87.
22. Lyon N, Scholes S & Tait C (2005) Families and Children Study (FACS) 2003: Wave 5 technical report. London: National Centre for Social Research.
23. Morris J, Perez D & McNoe B (1998) The use of quality of life data in clinical practice. Quality of Life Research, 7 (1) 85-91.
24. Nuffield Foundation (2005) New Nuffield Foundation Funding Initiative on Trends in Adolescent Mental Health. Available from: http://www.nuffieldfoundation.org/go/news/news_1757.html (accessed 31/03/06).
25. Oliver J, Huxley P, Bridges K & Mohamad H (1996) Quality of Life and Mental Health Services. London: Routledge.
26. Patrick DL & Erikson P (1993) Health Status and Health Policy Quality of Life in Health Care Evaluation and Resource Allocation. Oxford: Oxford University Press.
27. Petersen C, Schmidt S, Power M & Bullinger M (2005) Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective. Quality of Life Research 4 (4) 1065-1077.
28. Ravens-Sieberer U, Gosch A, Rajmil L, Erhart M, Bruil J, Duer W et al (2005) KIDSCREEN-52 quality-of-life measure for children and adolescents. Expert Review of Pharmacoeconomics & Outcomes Research 5 (3) 353-364.
29. Skevington SM (2002) Advancing cross-cultural research on quality of life. Quality of Life Research 11 135-144.
30. Skevington SM, Bradshaw J, Hepplewhite A, Dawkes K & Lovell CR (2006) How does psoriasis affect quality of life? Assessing an Ingram regimen outpatient programme and validating the WHOQOL-100. British Journal of Dermatology 154 680-691.
31. Skevington SM, Sartorius N, Amir M & the WHOQOL Group (2004) Developing methods for assessing quality of life in different cultural settings. The history of the WHOQOL instruments. Social Psychiatry & Psychiatric Epidemiology 39 (1) 1-8.
32. Summers JA, Poston DJ, Turnbull AP, Marquis J, Hoffman L, Mannan H & Wang M (2005) Conceptualising and measuring family quality of life. Journal of Intellectual Disability Research 49 (10) 777-783.
33. World Health Organisation (1993) Measurement of Quality of Life in Children: Report of WHO/IACAPAP Working Party. Geneva: Division of Mental Health, World Health Organisation.
34. The WHOQOL Group (1994) The development of the World Health Organisation Quality of Life Assessment instrument (the WHOQOL). In: Orley, J & Kuyken W (Eds) Quality of Life Assessment: International Perspectives (pp41-60). Berlin: Springer-Verlag.
35. The WHOQOL Group (1994) Development of the WHOQOL: rationale and current status. International Journal of Mental Health 23 (3) 24-56.
36. The WHOQOL Group (1995) The World Health Organisation Quality of Life assessment (WHOQOL): position paper from the World Health Organisation. Social Science & Medicine 41 (10) 1403-1409.
37. Wyrwich KW, Bullinger M, Aaronson N, Hays RD, Patrick DL & Symonds T (2005) Estimating clinically significant differences in quality of life outcomes. Quality of Life Research 14 (2) 285-295.