Gender-specific differences in the psychosocial adjustment of parents of a child with duchenne muscular dystrophy (DMD) - Two points of view for a shared experience

Qualitative Research Journal

Volumn 7, Issue 2, 2007, Pages 2-21

  Tomiak, Eva M ^a   Samson, Andre ^b   Miles, Sarah A ^a   Choquette, Mireille C ^a   Chakraborty, Pranesh K ^b   Jacob, Pierre J ^b  

^a CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^b UNIVERSITY OF OTTAWA   (Canada)

Author keywords

Childhood chronic illness; Gender differences; Muscular dystrophy (DMD); Parental adaptation; Psychosocial adaptation

Indexed keywords

EID: 84993054014     PISSN: 14439883     EISSN: 14480980     Source Type: Journal    
DOI: 10.3316/QRJ0702002     Document Type: Review

References (34)

1. Abi Daoud, M. S., Dooley, J. M., & Gordon, K. E. (2004). Depression in parents of children with Duchenne muscular dystrophy. Pediatric Neurology, 31(1), 16-19.
2. Bachelor, A., & Joshi, P. (1986). La methode phenomenologique de recherche en psychologie. Quebec: Presses de l'Universite Laval.
3. Bothwell, J. E., Dooley, J. M., Gordon, K. E., MacAuley, A., Camfield, P. R., & MacSween, J. (2002). Duchenne muscular dystrophy: Parental perceptions. Clinical Pediatrics, 41, 105-109.
4. Bregmann, A. (1979). Living with progressive childhood illness. Unpublished doctoral dissertation, Columbia University, New York.
5. Brown, K. A. E., & Barbarin, O. A. (1996). Gender differences in parenting a child with cancer. Social Work in Health Care, 22(4), 53-71.
6. Buchanan, D. C., LaBarbera, C. J., Boelofs, R., & Olson, W. (1979). Reactions of families to children with Duchenne muscular dystrophy. General Hospital Psychiatry, 1, 262-269.
7. Firth, M., Gardner-Medwin, D., Hosking, G., & Wilkinson, E. (1983). Interviews with parents of boys suffering from Duchenne muscular dystrophy. Developmental Medicine and Child Neurology, 25, 466-471.
8. Fitzpatrick, C., & Barry, C. (1990). Cultural differences in family communication about Duchenne muscular dystrophy. Developmental Medicine and Child Neurology, 32, 967-973.
9. Gagliardi, B. D. (1991a). The impact of Duchenne muscular dystrophy on families. Orthopedic Nursing 10(5), 41-49.
10. Gagliardi, B. D. (1991b). The family's experience of living with a child with Duchenne muscular dystrophy. Applied Nursing Research, 4(4), 159-164.
11. Giliberto, F., Ferreiro, V., Dalamon, V., & Szijan, I. (2004). Dystrophin deletions and cognitive impairment in Duchenne/Becker muscular dystrophy. Neurological Research, 26(1), 83-87.
12. Giorgi, A. (1997). De la methode phenomenologique utilisee comme mode de recherche qualitative en sciences humaines: theorie, pratique et evaluation. In J. Poupart, J. P. Deslauries, L. H. Groulx, A. Laperriere, R. Mayer, & A. Pires, (Eds.j. La recherche qualitative (pp. 341363), Montreal: Gaetan Morin editeur.
13. Gray, D. E. (2003). Gender and coping: The parents of children with high functioning autism. Social Science and Autism, 56(3), 631-642.
14. Guba, E., & Lincoln, Y. S. (1994). Competing paradigms in qualitative research. In N. K. Denzin & Y. S. Lincoln (Eds.), Handbook of Qualitative Research (pp. 205-118). Thousand Oaks, California: Sage.
15. Holroyd, J., & Guthrie, D. (1986). Family stress with chronic childhood illness: Cystic fibrosis, neuro-muscular disease, and renal disease. Journal of Clinical Psychology, 42, 552-561.
16. Husserl, E. (1950). Idees directrices pour une phenomenologie. Paris: Gallimard.
17. Jacob, E. (1988). Clarifying qualitative research: A focus on traditions. Educational Researcher, 17, 16-24.
18. Jacob, P. J. (1989). Current approach to Duchenne muscular dystrophy. Medicine North America, 34, 6301-6303.
19. Karlsson, G. (1993). Psychological qualitative research from a phenomenological perspective. Stockholm: Almgvist & Wiksell International.
20. Katz, S. (2002). Gender differences in adapting to a child's chronic illness: A causal model. Journal of Pediatric Nursing, 17(4), 257-269.
21. Knafl, K., & Zoeller, L. (2000). Childhood chronic illness: A comparison of mothers’ and fathers’ experiences. Journal of Family Nursing, 6(3), 287-302.
22. Korf, B. R., Darras, B. T., & Urion, D. K. (2003). Dystrophinopathies. Retrieved 27 July 2007, from http://www.genetests.org.
23. Leonard, B. J., Kratz, B. J., Skay, C. L., & Rheinberger, M. M. (1997). Comparison of mother-father perceptions of their child's self-management of diabetes. Issues in Comprehensive PediatricNursing, 20(2), 69-87.
24. Nereo, N. E., Fee, R. J., & Hinton, V.J. (2003). Parental stress in mothers of boys with Duchenne muscular dystrophy. Journal of Pediatric Psychology, 28(7), 473-484.
25. Pelchat, D., Lefebvre, H., & Levert, M. J. (2007). Gender differences and similarities in the experience of parenting a child with a health problem: Current state of knowledge. Journal of Child Health Care, 11(2), 112-131.
26. Pelchat, D., Lefebvre, H., & Perreault, M. (2003). Differences and similarities between mothers’ and fathers’ experiences of parenting a child with a disability. Journal of Child Health Care, 7(4), 231-247.
27. Polakoff, R. J., Morton, A. A., Koch, K. D., & Rios, C. M. (1998). The psychosocial and cognitive impact of Duchenne's muscular dystrophy. Seminars in Pediatric Neurology, 5(2), 116-123.
28. Reid, D. T., & Renwick, R. M. (2001). Relating familial stress to the psychosocial adjustment of adolescents with Duchenne muscular dystrophy. International Journal of Rehabilitation Research, 24, 83-93.
29. Samson, A. (2000). L'apport de la spiritualite dans le processus d'adaptation psychosociale chez les homosexuels infectes au VIH. Sciences Pastorales, 19, 33-50.
30. Samson, A., & Zerter, B. (2003). The experience of spirituality in the psychosocial adaptation of cancer survivors. The Journal of Pastoral Care and Counselling, 57(3), 329-343.
31. Smith, J. (1993). Quantitative versus qualitative research: An attempt to clarify the issue. Educational Researcher, 12, 6-13.
32. Thompson, R. J., Zeman, J. L., Fanurik, D., & Sirotkin-Roses, M. (1992). The role of parent stress and coping and family functioning in parent and child adjustment to Duchenne muscular dystrophy. Journal of Clinical Psychology, 48, 11-19.
33. Webb, C. L. (2005). Parents’ perspectives on coping with Duchenne muscular dystrophy. Child: Care, Health and Development 31(4), 385-396.
34. Witte, R. A. (1985). The psychosocial impact of a progressive physical handicap and terminal illness (Duchenne muscular dystrophy) on adolescents and their families. British Journal of Medical Psychology, 58, 179-187.