Gender differences in adapting to a child's chronic illness: A causal model

Journal of Pediatric Nursing

Volumn 17, Issue 4, 2002, Pages 257-269

  Katz, Shira ^a  

^a TEL AVIV UNIVERSITY   (Israel)

Author keywords

[No Author keywords available]

Indexed keywords

ADAPTATION; ADULT; ARTICLE; CHILD; CHRONIC DISEASE; COPING BEHAVIOR; DISEASE MODEL; FEMALE; HEALTH CARE; HUMAN; MALE; PATH ANALYSIS; QUESTIONNAIRE; SEX DIFFERENCE; SOCIAL PSYCHOLOGY; SOCIAL SUPPORT; ADAPTIVE BEHAVIOR; CHILD PARENT RELATION; FATHER; INFANT; MIDDLE AGED; MOTHER; PRESCHOOL CHILD; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; REGRESSION ANALYSIS;

ADAPTATION, PSYCHOLOGICAL; ADULT; CHILD; CHILD, PRESCHOOL; CHRONIC DISEASE; FATHERS; FEMALE; HUMANS; INFANT; MALE; MIDDLE AGED; MODELS, PSYCHOLOGICAL; MOTHERS; PARENTING; REGRESSION ANALYSIS; SEX FACTORS;

EID: 0036673006     PISSN: 08825963     EISSN: None     Source Type: Journal    
DOI: 10.1053/jpdn.2002.126709     Document Type: Article

References (85)

1. Anderson, J.M. (1996). Home care management in chronic illness and the self-care movement: An analysis of ideologies and economic processes influencing policy decisions. Advances in Nursing Science, 12, 71-83.
2. Bahley D.B., Jr., Blasco, P.M., & Simeonsson, R.J. (1992). Needs expressed by mothers and fathers of young children with disabilities. American Journal of Mental Retardation, 97, 1-10.
3. Banion, J.R., Miles, M.S., & Carter, M.C. (1983). Problems of mothers in management of children with diabetes. Diabetes Care, 6, 548-551.
4. Beckman, P.J. (1991). Comparison of mothers' and fathers' perceptions of the effect of young children with and without disabilities. American Journal of Mental Retardation, 95, 585-595.
5. Benson-Brooke, A., & Gross, A.M. (1989). The effect of a congenitally handicapped child upon the the marital dyad: A review of the literature. Clinical Psychology Review, 9, 747-758.
6. Brislin, R.W. (1980). Translation and content analysis of oral and written material. In H. C. Triandis & R. W. Brislin (Eds.). Handbook of cross-cultural psychology: Social psychology. Boston: Allyn & Bacon.
7. Bristol, M.M., & DeVilliers, R. (1980). The definition scale: The subjective meaning of having a handicapped child. Unpublished assessment instrument, University of N. Carolina at Chapel Hill.
8. Cadman, D., Rosenblaum, P., Boyle, M., & Oxford, D.R. (1991). Children with chronic illness: Family and parent demographic characteristics and psychological adjustment. Pediatrics, 87, 884-889.
9. Cayse, L.N. (1994). Fathers of children with cancer: A descriptive study of their stressors and coping strategies. Journal of Pediatric Oncology Nursing, 11, 102-108.
10. Clements, D.B., Copeland, L.G., & Loftus, M. (1990). Critical times for families with a chronically ill child. Pediatric Nursing, 16, 157-161.
11. Clubb, R.L. (1991). Chronic sorrow: Adaptation patterns of parents with chronically ill children. Pediatric Nursing, 17, 461-466.
12. Cohen, M.S. (1999). Families coping with childhood chronic illness: A research review. Families, Systems and Health, 17, 149-164.
13. Conger, R.D., Lorenz, F.O., Elder, G.H., Simon, R.L., & Ge, X. (1993). Husband and wife differences in response to undesirable life events. Journal of Health and Social Behavior, 34, 71-81.
14. Copeland, L.G., & Clements, D.B. (1993). Parental perceptions and support strategies in caring for a child with a chronic condition. Issues in Comprehensive Pediatric Nursing, 16, 109-121.
15. Crowe, T.K., Van Leit, B., Berghmans, K.K. (2000). Mothers' perceptions of child care assistance: The impact of a child's disability. American Journal of Occupational Therapy, 54, 52-58.
16. Daly, K. (1993). Reshaping fatherhood: Finding the models. Journal of Family Issues, 14, 510-530.
17. Darke, P.R., & Goldberg, S. (1994). Father-infant interaction and parent stress with healthy and medically compromised infants. Infant Behaviors and Development, 17, 3-14.
18. Department of Health (DoH) (1989). White paper: Caring for People. London: HMSO.
19. Dyson, L.L. (1991). Families of young children with handicaps: Parental stress and family functioning. American Journal of Mental Retardation, 95, 623-629.
20. Eddy, L.L., & Walker, A.J. (1999). The impact of children with chronic health problems on marriage. Journal of Family Nursing, 5, 10-32.
21. Eiser, C. (1990). Chronic childhood disease: An introduction to psychological theory and research. New York: Cambridge University Press.
22. Eiser, C. (1993). Growing up with a chronic disease: The impact on children and families. London: Jessica Kingsley Publishers.
23. Ferketich, S.L., & Mercer, R.T. (1995). Paternal-infant attachment of experienced fathers during infancy. Nursing Research, 44, 31-37.
24. Frey, K.S., Greenberg, M.T., & Fewell, R.R. (1989). Stress and coping among parents of handicapped children: A multidimensional approach (Special issue). American Journal of Mental Retardation, 94, 259-271.
25. Gallo, A.M. (1990). Family management style in juvenile Diabetes: A case illustration. Journal of Pediatric Nursing, 5, 23-32.
26. Gallo, A.M. (1991). Family adaptation in childhood chronic illness: A case report. Journal of Pediatric Health Care, 5, 78-85.
27. Graham, M.V. (1993). Parental sensitivity to infant cues: Similarities and differences between fathers and mothers. Journal of Pediatric Nursing, 8, 376-384.
28. Heaman, D.J. (1995). Perceived stressors and coping strategies of parents who have children with developmental disabilities: A comparison of mothers and fathers. Journal of Pediatric Nursing, 10, 311-320.
29. Hinds, P.S., Birenbaum, L.K., Clarke-Steffen, L., Quargnenti, A., Kreissman, S., Meyer, W., Mulhern, R., Pratt, C., & Williams, J. (1996). Coming to terms: Parents' response to a first cancer recurrence in their child. Nursing Research, 45, 148-153.
30. Hobbs, N., & Perrin, J.M. (Eds.). (1985). Issues in the care of children with chronic illness. San Francisco: Jossey-Bass.
31. Hobfoll, S.E., & Lerman, M. (1988). Personal relationships personal attributes and stress resistence: Mothers' reactions to their child's illness. American Journal of Community Psychology, 16, 565-589.
32. Hobfoll, S.E., & Walfisch, S. (1984). Coping with the threat to life: A longitudinal study of self-concept, social support and psychological distress. American Journal of Community Psychology, 12, 87-100.
33. Holmes, T.H., & Rahe, R.H. (1967). The Social Readjustment Rating Scale. Journal of Psychosomatic Research, 11, 213-218.
34. Hymovich, D.P., & Dillon Baker, C.D. (1985). The needs, concerns and coping of parents of children with cystic fibrosis. Family Relations, 34, 91-97.
35. Israelashvili, Y. (1985). The influence of husband/wife and father/infant relationships. Unpublished master's thesis, Bar-Ilan University, Ramat-Gan, Israel.
36. Joreskog, R.G., & Sorborn, D. (1984). LISREL: Analysis of linear structural relationships by the methods of maximum likelihood. (Version V1). Mooresville, Inc: Software.
37. Katz, S. (1984). The relationships between social support, mother's coping behaviors and perception of her chronically ill child with a congenital heart disease. Unpublished master's thesis, Bar-Ilan University, Ramat Gan, Israel.
38. Katz, S., & Krulik, T. (1999). Fathers of children with chronic illness: Do they differ from fathers of healthy children? Journal of Family Nursing, 5, 292-315.
39. Kazak, A. (1986). Families with physically handicapped children. Social ecology and family systems. Family Process, 25, 265-281.
40. Klinnert, M.D., Gavin, L.A., Wambolt, F.S., & Mrazek, D.A. (1992). Marriages with children at medical risk: The transition to parenthood. Journal of the American Academy of Child and Adolescent Psychiatry, 31, 334-342.
41. Knafl, M.L., & Deatrick, J.A. (1990). Family management style: Concept analysis and development. Journal of Pediatric Nursing, 5, 4-14.
42. Krulik, T., Hirschfeld, M.J., & Sharon, R. (1984). Family care for the severely handicapped children and aged in Israel. Tel Aviv, Israel: Tel Aviv University.
43. Krulik, T., Turner-Henson, A., Kanematsu, Y., Al-Ma'aitah, R., Swan, J., & Holaday, B. (1999). Parenting stress and mothers of young children with chronic illness: A cross-cultural study. Journal of Pediatric Nursing, 14, 130-140.
44. Lamb, M.E. (1983). Fathers of exceptional children. In M. Seligman (Ed.). The family with aa handicapped child: Understanding and treatment. New York: Grune & Stratton.
45. Lavee, Y., McCubbin, H.I., & Olsen, D.H. (1987). The effect of successful life events and transitions on family functioning and well-being. Journal of Marriage and the Family, 49, 857-873.
46. Levy-Shiff, R., & Israelashvili, R. (1988). Antecedents of fathering: Some further exploration. Developmental Psychology, 24, 434-440.
47. Lillie, T. (1993). A harder thing than triumph: Roles of fathers of children with disabilities. Mental Retardation, 31, 438-443.
48. Locke, H.J., & Wallace, K.M. (1959). Short marital adjustment and predeiction tests: Their reliability and validity. Marriage and Family Living, 21, 251-255.
49. London, P. (1988). Mothers of first-time hospitalized children: Reactions of anxiety. Unpublished master's thesis, Tel Aviv University, Israel.
50. Mastroyannopoulou, K., Stallard, P., Lewis, M., & Lenton, S. (1997). The impact of childhood non-malignant life-threatening illness on parents: Gender differences and predictors of parental adjustment. Journal of Child Psychology and Psychiatry, 38, 823-829.
51. May, J. (1991). Fathers of children with special needs: New Horizons. Bethesda, MD: Association for the Care of Children's Health.
52. May, K.A. (1992). Fathers, families and child health. In H. F. Clarke & B. Davies (Eds.). Shaping the future of child health. Challenges for nurses. Vancouver, British Columbia, Canada: Child Health 2000: Canadian Cataloging in Publication Data.
53. McCubbin, H.I., McCubbin, M., Nevin, R., & Cauble, A.E. (1979). Coping health inventory for parents (CHIP). In H. I. McCubbin & A. Thompson, (Eds.). Family assessment for research and practice. Madison: University of Wisconsin.
54. McCubbin, H.I., & Patterson, J.M. (1981). Systematic assessment of family stress, resources and coping. Tools for research, education and clinical intervention. Family stress, coping and health project. Madison. University of Wisconsin.
55. McCubbin, H.I., & Patterson, J.M. (1983). Family stress and adaptation to crisis: A Double ABCX Model of family behavior. In D. Olsen & B. Miller (Eds.). Family studies review yearbook. Beverly Hills, CA: Sage.
56. McKeever, P.T. (1981). Fathering the chronically ill child. American Journal of Maternal Child Nursing, 6, 124-128.
57. Murphy, K.M. (1990). Interactional styles of parents following the birth of a high risk infant. Journal of Pediatric Nursing, 5, 33-41.
58. Nagy, S., & Ungerer, J.A. (1990). The adaptation of mothers and fathers to children with cystic fibrosis: A comparison. Children's Health Care, 19, 147-154.
59. Nulson, A.M. (1989). An exploration of the parental and spousal experiences of fathers/husbands in families of children with chronic illness. Unpublished doctoral dissertation, University of Pennylvania, PA.
60. Parker, M. (1996). Families caring for chronically ill children with tuberous sclerosis complex. Family and Community, 19, 73-84.
61. Patterson, J.M. (1995). Promoting resilience in families experiencing stress. Pediatric Clinics of North America, 42, 47-63.
62. Petchel-Damrosch, S., & Perry, L.A. (1989). Self-reported adjustment, chronic sorrow and coping of parents of children with Down's Syndrome. Nursing Research, 38, 25-30.
63. Quittner, A., Espelage, D., Opipari, L., Carter, B., Eid, N., & Eigen, H. (1998). Role strain in couples with and without a child with chronic illness: Associations with marital satisfaction, intimacy, and daily mood. Health Psychology, 17, 112-124.
64. Roberts, M., & Wallender, J. (1992). Family issues in pediatric psychology: An overview. In M. Roberts & J. Wallender (Eds.). Family issues in pediatric psychology. Hillsdale, NJ: Erlbaum.
65. Rolland, J. (1993). Mastering family challenges in serious illness and disability. In F. Walsh (Ed.). Normal family processes (2nd ed.). New York: Basic Books.
66. Rosenberg, M. (1965). Society and the adolescent's self-image. Princeton, NJ: Princeton University Press.
67. Rustia, J.G., & Abbott, D. (1993). Father involvement in infant care: Two longitudinal studies. International Journal of Nursing Studies, 30, 467-476.
68. Schilling, R.F. II, Schinke, S. P., & Kirkham M. A. (1985). Coping with a handicapped child. Differences between mothers and fathers. Social Science and Medicine, 21, 857-863.
69. Shek, D.T.L., & Tsang, S.K.M. (1993). The Chinese version of the Kansas Marital Satisfaction Scale: Some psychometric and normative data. Social Behavior and Personality, 21, 205-214.
70. Shonkoff, J.P., Hauser-Cram, P., Krauss, M.W., & Upshur, C.C. (1992). Development of infants with disabilities and their families. Monographs of the Society for Research in Child Development, 57, 6-17. Serial No. 230.
71. Silber, E., & Tippert, L. (1965). Self-esteem: Clinical assessment and measurement validation. Psychological Reports, 16, 1017-1071.
72. Silver, E., Bauman, L., & Ireys, H. (1995). Relationships of self-esteem and efficacy to psychological distress in mothers of children with chronic physical illnesses. Health Psychology, 14, 1-8.
73. Silver, E., Westbrook, L., & Stein, R. (1998). Relationships of parental psychological distress to consequences of chronic health conditions in children. Journal of Pediatric Psychology, 23, 5-15.
74. Singer, L., & Farkus, K. (1989). The impact of the infant disability on maternal perception of stress. Family Relations, 38, 444-449.
75. Singhi, P.D., Goyal, L., Pershad, D., Singhi, S., & Walia, B.N.S. (1990). Psychosocial problems in families of disabled children. British Journal of Medical Psychology, 63, 173-182.
76. Sloper, P. (1996). Needs and responses of parents following the diagnosis of childhood cancer. Child: Care, Health and Development, 22, 187-202.
77. Sloper, P., & Turner, S. (1993). Risk and resistence factors in the adaptation of parents of children with severe physical disability. Journal of Child Psychology and Psychiatry, 34, 167-188.
78. Steinglass, P. (1998). Multiple family discussion groups for patients with chronic medical illness. Families, Systems and Health, 16, 55-70.
79. Taanila, A., Kokkonen, J., & Jarvelin, M.R. (1996). The long-term effects of children's early-onset disability on marital relationships. Developmental Medicine and Child Neurology, 38, 567-577.
80. Tiedje, L.B., & Darling-Fisher, C. (1996). Fatherhood reconsidered: A critical review. Research in Nursing and Health, 19, 471-484.
81. Turner-Henson, A., Holaday, B., & Swan, J.H. (1992). When parenting becomes caregiving: Caring for the chronically ill child. Family Community Health, 15, 19-30.
82. Vitner, R. (1978). Psychological aspects contributing to the prediction of success in an active rehabilitation program for the cardiac patient. Unpublished master's thesis, Bar-Ilan University, Ramat-Gan, Israel.
83. Wallender, J.L., Varni, J. W., Babani, L., Banis, H.T., & Wilcox, K. T. (1988). Children with chronic physical disorders: Maternal reports of their psychological adjustment. Journal of Pediatric Psychology, 13, 197-212.
84. Whyte, D.A. (1994). Family Nursing: The case of cystic fibrosis. Avebury: Aldershot.
85. Whyte, D.A., Baggaley, S., & Rutter, C. (1995). Chronic illness in childhood: A comparative study of family support across four diagnostic groups. Physiotherapy, 81, 515-520.