Comparing two sampling methods to engage hard-to-reach communities in research priority setting

BMC Medical Research Methodology

Volumn 16, Issue 1, 2016, Pages 1-11

  Valerio, Melissa A ^a   Rodriguez, Natalia ^b   Winkler, Paula ^b   Lopez, Jaime ^c   Dennison, Meagen ^d   Liang, Yuanyuan ^b   Turner, Barbara J ^b  

^a UNIVERSITY OF TEXAS SCHOOL OF PUBLIC HEALTH   (United States)

^b UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO   (United States)

^c Frio County AgriLife Extension   (United States)

^d Karnes County AgriLife Extension   (United States)

Author keywords

Chronic pain; Community based participatory research; Research methods; Sampling studies; Vulnerable populations

Indexed keywords

ADULT; AGED; CHI SQUARE DISTRIBUTION; CHRONIC PAIN; COMPARATIVE STUDY; DISABLED PERSON; FEMALE; HISPANIC; HUMAN; INFORMATION PROCESSING; MALE; MIDDLE AGED; OUTCOME ASSESSMENT; PARTICIPATORY RESEARCH; PATIENT PARTICIPATION; PATIENT SELECTION; PROCEDURES; REPRODUCIBILITY; RURAL POPULATION; SAMPLE SIZE; STATISTICS AND NUMERICAL DATA;

ADULT; AGED; CHI-SQUARE DISTRIBUTION; CHRONIC PAIN; COMMUNITY-BASED PARTICIPATORY RESEARCH; DISABLED PERSONS; FEMALE; FOCUS GROUPS; HISPANIC AMERICANS; HUMANS; MALE; MIDDLE AGED; OUTCOME ASSESSMENT (HEALTH CARE); PATIENT PARTICIPATION; PATIENT SELECTION; REPRODUCIBILITY OF RESULTS; RURAL POPULATION; SAMPLE SIZE;

EID: 84992699792     PISSN: None     EISSN: 14712288     Source Type: Journal    
DOI: 10.1186/s12874-016-0242-z     Document Type: Article

References (57)

1. Woolf SH, Zimmerman E, Haley A, Krist AH. Authentic engagement of patients and communities can transform research, practice, and policy. Health Aff (Millwood). 2016;35(4):590-4.
2. Ford JG, Howerton MW, Lai GY, et al. Barriers to recruiting underrepresented populations to cancer clinical trials: a systematic review. Cancer. 2008;112(2):228-42.
3. Institute of Medicine. Crossing the quality chasm: a new health system for the 21st century. Washington: National Academies Press; 2001.
4. Frank L, Basch E, Selby JV. The PCORI perspective on patient centered outcomes research. JAMA. 2014;312(15):1513-4.
5. George S, Duran N, Norris K. A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders. Am J Public Health. 2014;104(2):e16-31.
6. Cowan K, Oliver S. The James Lind Alliance guidebook version 6. 2016. http://www.jla.nihr.ac.uk/jla-guidebook/. Accessed 20 Sept 2016
7. Minkler M. Linking science and policy through community-based participatory research to study and address health disparities. Am J Public Health. 2010;100 Suppl 1:S81-7.
8. Kwon S, Rideout C, Tseng W, et al. Developing the community empowered research training program: building research capacity for community-initiated and community-driven research. Prog Community Health Partnersh. 2012;6(1):43-52.
9. Hefland M, Berg A, Flum, D, Gabriel, S, Normand, SL. Draft methodology report: "Our questions, our decisions: standards for patient-centered outcomes research" PCORI Methodology Committee. Available at http://www.pcori.org/assets/MethodologyReport-Comment.pdf. Accessed 26 Feb 2013.
10. O'Haire C, McPheeters M, Nakamoto E, LaBrant L, Most C, Lee K, et al. Engaging stakeholders to identify and prioritize future research needs. Rockville: Agency for Healthcare Research and Quality; 2011. AHRQ Publication No. 11-EHCo44-EF.
11. Fowler F. Applied social research methods. 5th ed. Thousand Oaks: SAGE Publications, Inc; 2014.
12. Gilmore GD, Campbell D. Needs and capacity assessment strategies for health education and health promotion. 3rd ed. Sudbury: Jones & Bartlett Publishers; 2005.
13. Heckathorn DD. Extensions of respondent-driven sampling: analyzing continuous variables and controlling for differential recruitment. Sociol Methodol. 2007;37(1):151-207.
14. Semaan S, Heckathorn DD, Des Jarlais DC, Garfein RS. Ethical considerations in surveys employing respondent-driven sampling. Am J Public Health. 2010;100(4):582-3.
15. Ryan KJ, Brady J, Cooke R, Height D, Jonsen A, King P, et al. The Belmont report: Ethical principles and guidelines for the protection of human subjects of research. Washington: National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research; 1979.
16. Magnani R, Sabin K, Saidel T, Heckathron D. Review of sampling hard-to-reach and hidden populations for HIV Surveillance. AIDS. 2005;19:S67-72.
17. Staniford LJ, Breckon JD, Copeland RJ, Hutchison A. Key stakeholders' perspectives towards childhood obesity treatment: a qualitative study. J Child Health Care. 2011;15(3):230-44.
18. Delbecq AL, Van de Ven A, Gustafson DH. Group techniques for program planning: a guide to nominal group and Delphi processes. Minneapolis: Scott Foresman Company; 1975.
19. Gallagher M, Hares T, Spencer J, Bradshaw C, Webb I. The nominal group technique: a research tool for general practice? Fam Pract. 1993;10(1):76-81.
20. US Census Bureau. QuickFacts Frio County, Texas. http://www.census.gov/quickfacts/table/PST045215/48163. Accessed June 28, 2016.
21. US Census Bureau. QuickFacts Karnes County, Texas. http://www.census.gov/quickfacts/table/PST045215/48255,48163. Accessed June 28, 2016.
22. Institute of Medicine. Relieving pain in America: a blueprint for transforming prevention, care, education and research. Washington: National Academies Press; 2011.
23. Turner BJ, Burg FD. A consumer/medical educator conference: new objectives for the medical curriculum. J Gen Intern Med. 1986;1(5):323-7.
24. Luborsky MR, Rubinstein RL. Sampling in qualitative research rationale, issues and methods. Res Aging. 1995;17(1):89-113.
25. Whitmarsh L, Swartling ÅG, Jäger J. Participation of experts and non-experts in a sustainability assessment of mobility. Environ Policy Gov. 2009;19(4):232-50.
26. Zanini C, Sarzi-Puttini P, Atzeni F, Di Franco M, Rubinelli S. Building bridges between doctors and patients: the design and pilot evaluation of a training session in argumentation for chronic pain experts. BMC Med Educ. 2015;15:89.
27. Rosas SR, Kane M. Quality and rigor of the concept mapping methodology: a pooled study analysis. Eval Program Plann. 2012;35(2):236-45.
28. Sadler GR, Lee HC, Lim RS, Fullerton J. Recruitment of hard-to-reach population subgroups via adaptations of the snowball sampling strategy. Nurs Health Sci. 2010;12(3):369-74.
29. Kendall C, Kerr LR, Gondim RC, et al. An empirical comparison of respondent-driven sampling, time location sampling, and snowball sampling for behavioral surveillance in men who have sex with men, Fortaleza, Brazil. AIDS Behav. 2008;12(4 Suppl):S97-104.
30. Carballo-Diéguez A, Balan I, Marone R, et al. Use of respondent driven sampling (RDS) generates a very diverse sample of men who have sex with men (MSM) in Buenos Aires, Argentina. PLoS One. 2011;6(11):e27447.
31. Pascoe SW, Veitch C, Crossland LJ, et al. Patients' experiences of referral for colorectal cancer. BMC Fam Pract. 2013;14:124.
32. City-Data.com. Karnes County, Texas (TX). http://www.city-data.com/county/Karnes_County-TX.html. Accessed June 28, 2016.
33. City-Data.com. Frio County, Texas (TX). http://www.city-data.com/county/Frio_County-TX.html. Accessed June 28, 2016.
34. Witkin BR, Altschuld JW. Planning and conducting needs assessments: a practical guide. Thousand Oaks: SAGE Publications, Inc; 1995. p. 167-71.
35. Ulin PR, Robinson PE, Tolley EE. Qualitative methods in public health: a field guide for applied research. San Francisco: Jossey-Bass; 2005.
36. Institute of Medicine. Unequal treatment: Confronting racial and ethnic disparities in health care. Washington: National Academies Press; 2003.
37. Coye MJ, Aubry WM, Yu W, Health Technology Center. The "tipping point" and health care innovations: Advancing the adoption of beneficial technologies. Washington: National Committee for Quality Health Care; 2003.
38. Petruney T, Harlan SV, Lanham M, Robinson ET. Increasing support for contraception as HIV prevention: stakeholder mapping to identify influential individuals and their perceptions. PLoS One. 2010;5(5):e10781.
39. Johnston LG, Sabin K. Sampling hard-to-reach populations with respondent driven sampling. Methodol Innov. 2010;5(2):38-48.
40. MacFarlane A, O'Donnell C, Mair F, et al. REsearch into implementation STrategies to support patients of different ORigins and language background in a variety of European primary care settings (RESTORE): study protocol. Implement Sci. 2012;7:111.
41. Ryan M, Scott DA, Reeves C, et al. Eliciting public preferences for healthcare: A systematic review of techniques. Health Technol Assess. 2001;5(5):1-186.
42. Firth H, Todd A, Bambra C. Benefits and barriers to the public health pharmacy: A qualitative exploration of providers' and commissioners' perceptions of the Healthy Living Pharmacy framework. Perspect Public Health. 2015;135(5):251-6.
43. Carter-Edwards L, Lowe-Wilson A, Mouw MS, et al. Community member and stakeholder perspectives on a healthy environment initiative in North Carolina. Prev Chronic Dis. 2015;12:E127.
44. Gibbs L, Waters E, de Silva A, et al. An exploratory trial implementing a community-based child oral health promotion intervention for Australian families from refugee and migrant backgrounds: a protocol paper for Teeth Tales. BMJ Open. 2014;4:e004260.
45. Teddlie C, Yu F. Mixed methods sampling: A typology with examples. J Mixed Methods Res. 2007;1(1):77-100.
46. Watters JK, Biernacki P. Targeted sampling: Options for the study of hidden populations. Soc Probl. 1989;36(1):416-30.
47. Barendregt C, van der Poel A, van de Mheen D. Tracing selection effects in three non-probability samples. Eur Addict Res. 2005;11(3):124-31.
48. Neille J, Penn C. Beyond physical access: a qualitative analysis into the barriers to policy implementation and service provision experienced by persons with disabilities living in a rural context. Rural Remote Health. 2015;15(3):3332.
49. Hadland SE, DeBeck K, Kerr T, Feng C, Montaner JS, Wood E. Prescription opioid injection and risk of hepatitis C in relation to traditional drugs of misuse in a prospective cohort of street youth. BMJ Open. 2014;4(7):e005419.
50. Cooke M, Emery H, Brimelow R, Wollin J. The impact of therapeutic massage on adult residents living with complex and high level disabilities: a brief report. Disabil Health J. 2016;9(4):730-4.
51. Simmonds MJ, Finley EP, Vale S, Pugh MJ, Turner BJ. A qualitative study of veterans on long-term opioid analgesics: barriers and facilitators to multimodality pain management. Pain Med. 2015;16(4):726-32.
52. McCrorie C, Closs SJ, House A, et al. Understanding long-term opioid prescribing for non-cancer pain in primary care: a qualitative study. BMC Fam Pract. 2015;16:121.
53. Dowell D, Haegerich TM, Chou R. CDC Guideline for prescribing opioids for chronic pain--United States, 2016. JAMA. 2016;315(15):1624-45.
54. Patton MQ. Qualitative research methods. 3rd ed. Thousand Oaks: Sage Publications, Inc; 2002.
55. United States Department of Labor. Fact sheet: general facts on women and job based health. http://www.dol.gov/ebsa/newsroom/fshlth5.html. 2013. Accessed 23 Feb 2016.
56. Parsons JA. Mamdani M, Bhattacharyya O, Fortin CM, Melo M, Salmon C, et al. Narcotic analgesic utilization amongst injured workers: using concept mapping to understand current issues from perspectives of physicians and pharmacists. BMC Health Serv Res. 2011;11:280.
57. Auerswald CL, Greene K, Minnis A, Doherty I, Ellen J, Padian N. Qualitative assessment of venues for purposive sampling of hard-to-reach youth. Sex Transm Dis. 2004;31(2):133-8.