Can adults with low literacy understand shared decision making questions? A qualitative investigation

Patient Education and Counseling

Volumn 99, Issue 11, 2016, Pages 1796-1802

  Muscat, Danielle M ^a   Shepherd, Heather L ^a,b   Morony, Suzanne ^a   Smith, Sian K ^c   Dhillon, Haryana M ^b,d   Trevena, Lyndal ^a   Hayen, Andrew ^c   Luxford, Karen ^e   Nutbeam, Don ^f   McCaffery, Kirsten ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

^c UNIVERSITY OF NEW SOUTH WALES   (Australia)

^d University of Sydney   (Australia)

^e Clinical Excellence Commission   (Australia)

^f UNIVERSITY OF SOUTHAMPTON   (United Kingdom)

Author keywords

Consumer; Low literacy; Patient involvement; Qualitative; Questions; Shared decision making

Indexed keywords

ADULT; ARTICLE; ASKSHAREKNOW QUESTION; CONSULTATION; EMPOWERMENT; ENGLISH (LANGUAGE); HEALTH LITERACY; HUMAN; INTERPERSONAL COMMUNICATION; INTERVIEW; LOW LITERACY; MEDICAL INFORMATION; MEDICAL PRACTICE; PARAMETERS; PATIENT EMPOWERMENT; PATIENT PARTICIPATION; PERCEIVED USEFULNESS; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUESTIONNAIRE; READING; RISK BENEFIT ANALYSIS; SHARED DECISION MAKING; SMART HEALTH CHOICES QUESTION; AGED; COMPREHENSION; DECISION MAKING; DECISION SUPPORT SYSTEM; DOCTOR PATIENT RELATION; FEMALE; LANGUAGE; MALE; MIDDLE AGED; VERY ELDERLY;

ADULT; AGED; AGED, 80 AND OVER; CHOICE BEHAVIOR; COMMUNICATION; COMPREHENSION; DECISION MAKING; DECISION SUPPORT TECHNIQUES; FEMALE; HEALTH LITERACY; HUMANS; INTERVIEWS AS TOPIC; LANGUAGE; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PHYSICIAN-PATIENT RELATIONS; QUALITATIVE RESEARCH;

EID: 84992337665     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2016.05.008     Document Type: Article

References (25)

1. [1] Elwyn, G., Scholl, I., Tietbohl, C., Mann, M., Edwards, A.G.K., Clay, C., et al. Many miles to go …: a systematic review of the implementation of patient decision support interventions into routine clinical practice. BMC Med. Inf. Decis. Mak. 13 (2013), S14–S.
2. [2] Kutner, M., Greenberg, E., Baer, J., National Assessment of Adult Literacy (NAAL): A First Look at the Literacy of America's Adults in the 21st Century. 2006, American Institutes for Research, Maryland, US.
3. [3] Tamassia, C., Lennon, M., Yamamoto, K., Kirsch, I., Adult Education in America: A First Look at Results from the Adult Education Program and Learner Surveys. 2007, Educational Testing Service, New Jersey, US.
4. [4] Adult Literacy and Life Skills Survey, Summary Results. 2006, Australian Bureau of Statistics, Australia. Canberra, ACT.
5. [5] Berkman, N.D., Sheridan, S.L., Donahue, K.E., Halpern, D.J., Crotty, K., Low health literacy and health outcomes: an updated systematic review. Ann. Intern. Med. 155 (2011), 97–107.
6. [7] McCaffery, K.J., Holmes-Rovner, M., Smith, S.K., Rovner, D., Nutbeam, D., Clayman, M.L., et al. Addressing health literacy in patient decision aids. BMC Med. Inf. Decis. Mak. 13 (2013), S10–S.
7. [8] Katz, M., Jacobson, T., Veledar, E., Kripalani, S., Patient literacy and question asking behavior during the medical encounter: a mixed-methods analysis. J. Gen. Intern. Med. 22 (2007), 782–786.
8. [9] Smith, S.K., Dixon, A., Trevena, L., Nutbeam, D., McCaffery, K.J., Exploring patient involvement in healthcare decision making across different education and functional health literacy groups. Soc. Sci. Med. 69 (2009), 1805–1812.
9. [10] McCaffery, K.J., Smith, S.K., Wolf, M., The challenge of shared decision making among patients with lower literacy: a framework for research and development. Med. Decis. Mak. 30 (2010), 35–44.
10. [11] Shepherd, H.L., Barratt, A., Trevena, L.J., McGeechan, K., Carey, K., Epstein, R.M., et al. Three questions that patients can ask to improve the quality of information physicians give about treatment options: a cross-over trial. Patient Educ. Couns. 84 (2011), 379–385.
11. [12] Irwig, L., Irwig, J., Trevena, L.J., Sweet, M., Smart Health Choices: Making Sense of Health Advice. 2008, Hammersmith, London.
12. ® intervention in a primary health-care setting. Health Expect., 2015, 10.1111/hex.12409.
13. [14] The Health Foundation, Implementing Shared Decision Making. 2013, Long Acre, London.
14. [15] Muscat, D.M., Morony, S., Shepherd, H.L., Smith, S.K., Dhillon, H.M., Trevena, L., et al. Development and field testing of a consumer shared decision-making training program for adults with low literacy. Patient Educ. Couns. 98 (2015), 1180–1188.
15. [16] McCaffery, K.J., Using qualitative methods in health research: a practical guide to qualitative interviewing. Australas. Epidemiol. 10 (2003), 18–23.
16. [17] Palinkas, L.A., Horwitz, S.M., Green, C.A., Wisdom, J.P., Duan, N., Hoagwood, K., Purposeful sampling for qualitative data collection and analysis in mixed method implementation research. Adm. Policy Ment. Health, 2013, 1–12.
17. [18] Adult Literacy Policy, Department of Industry I, Science, Research and Tertiary Education. 2012, Australian Core Skills Framework, Canberra, Australia.
18. [19] Ritchie, J., Spencer, L., O'Connor, W., Carrying out qualitative analysis. Ritchie, J., Spencer, L., (eds.) Qualitative Research Practice: a Guide for Social Science Students and Researchers, 2003, Sage Publications, London.
19. [20] Littlemore, J., Low, G., Figurative Thinking and Foreign Language Learning. 2006, Palgrave Macmillian, Basingstoke.
20. [21] Vulchanova, M., Saldaña, D., Chahboun, S., Vulchanov, V., Figurative language processing in atypical populations: the ASD perspective. Front. Hum. Neurosci., 9, 2015, 24.
21. [22] Levinson, W., Kao, A., Kuby, A., Thisted, R.A., Not all patients want to participate in decision making – a national study of public preferences. J. Gen. Intern. Med. 20 (2005), 531–535.
22. [23] Seo, J., Goodman, M.S., Politi, M., Blanchard, M., Kaphingst, K.A., Effect of health literacy on decision-making preferences among medically underserved patients. Med. Decis. Mak. 36 (2016), 550–556.
23. [24] Joseph-Williams, N., Elwyn, G., Edwards, A., Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Educ. Couns. 94 (2014), 291–309.
24. [25] Légaré, F., Politi, M.C., Drolet, R., Desroches, S., Stacey, D., Bekker, H., et al. Training health professionals in shared decision-making: an international environmental scan. Patient Educ. Couns. 88 (2012), 159–169.
25. [26] Australian Social Trends. 2006, Australian Bureau of Statistics, Canberra, Australia.