Patient activation in Europe: an international comparison of psychometric properties and patients' scores on the short form Patient Activation Measure (PAM-13)

BMC Health Services Research

Volumn 16, Issue 1, 2016, Pages 1-7

  Rademakers, Jany ^a,b   Maindal, Helle Terkildsen ^c   Steinsbekk, Aslak ^d   Gensichen, Jochen ^e,f   Brenk Franz, Katja ^e   Hendriks, Michelle ^a  

^a NETHERLANDS INSTITUTE FOR HEALTH SERVICES RESEARCH   (Netherlands)

^b MAASTRICHT UNIVERSITY   (Netherlands)

^c AARHUS UNIVERSITY   (Denmark)

^d NORWEGIAN UNIVERSITY OF SCIENCE AND TECHNOLOGY   (Norway)

^e JENA UNIVERSITY HOSPITAL   (Germany)

^f UNIVERSITY OF MUNICH   (Germany)

Author keywords

Empowerment; International comparison; Patient activation; Self management

Indexed keywords

ANALYSIS OF VARIANCE; CLEANING; CRONBACH ALPHA COEFFICIENT; EMPOWERMENT; FACTOR ANALYSIS; HUMAN; NORWAY; PUBLICATION; REST; SELF CARE; ADULT; AGED; CHRONIC DISEASE; COMPARATIVE STUDY; DEVICES; EUROPE; FEMALE; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PSYCHOLOGY; PSYCHOMETRY; QUESTIONNAIRE;

ADULT; AGED; CHRONIC DISEASE; EUROPE; FACTOR ANALYSIS, STATISTICAL; FEMALE; HUMANS; MALE; MIDDLE AGED; PATIENT PARTICIPATION; PSYCHOMETRICS; SELF CARE; SURVEYS AND QUESTIONNAIRES; TRANSLATIONS;

EID: 84991666698     PISSN: None     EISSN: 14726963     Source Type: Journal    
DOI: 10.1186/s12913-016-1828-1     Document Type: Article

References (24)

1. Eurostat website. http://ec.europa.eu/eurostat/. Accessed 10 Oct 2016.
2. Lorig K. Self-management of chronic illness: a model for the future. Generations. 1993;17(3):11-4.
3. Lorig K, Holman H. Self-management education: history, definition, outcomes, and mechanisms. Ann Behav Med. 2003;26(1):1-7.
4. Von Korff M, Moore JE, Lorig K, Cherkin DC, Saunders K, et al. A randomized trial of a lay person-led self-management group intervention for back pain patients in primary care. Spine. 1998;23:2608-15.
5. Bodenheimer T, Lorig K, Holman H, Grumbach K. Patient self-management of chronic disease in primary care. JAMA. 2002;288:2469-75.
6. Evidence based Health Aging Program. Review of Findings on Chronic Disease Self Management Program (CDSMP) Outcomes: Physical, Emotional and Health-Related Quality of Life, Healthcare Utilization and Costs. http://patienteducation.stanford.edu/research/Review_Findings_CDSMP_Outcomes1%208%2008.pdf. Accessed 20 Jan 2015
7. Glasgow RE, Funnell MM, Bonomi AE, Davis C, Beckham V, et al. Self-management aspects of the improving chronic illness care breakthrough series: implementation with diabetes and heart failure teams. Ann Behav Med. 2002;24:80-7.
8. Vallis M. Barriers to self-management in people affected by chronic disease. Diabetes Voice. 2009;54:5-8.
9. Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004;39(4):1005-26.
10. Hibbard JH, Mahoney ER, Stockard J, Tusler M. Development and testing of a short form of the Patient Activation Measure. Health Serv Res. 2005;40(6):1918.
11. Hibbard J, Gilburt H. Supporting people to manage their health. An introduction to patient activation. London: Kings Fund; 2014. http://www.kingsfund.org.uk/sites/files/kf/field/field_publication_file/supporting-people-manage-health-patient-activation-may14.pdf. Accessed 20 Jan 2015.
12. Hibbard JH, Greene J, Overton V. Patients with lower activation associated with higher costs; delivery systems should know their patients' 'scores'. Health Aff. 2013;30(2):216-22.
13. Greene J, Hibbard JH. Why does patient activation matter? An examination of the relationships between patient activation and health-related outcomes. J Gen Intern Med. 2012;27:520-6.
14. Hibbard JH, Greene J, Tusler M. Improving the outcomes of disease management by tailoring care to the patient's level of activation. Am J Manag Care. 2009;15:353-60.
15. Hibbard JH, Mahoney ER, Stock R, Tusler M. Do increases in patient activation result in improved self-management behaviors? Health Serv Res. 2007;42:1443-63.
16. Terkildsen Maindal H, Sokolowski I, Versted P. Translation, adaptation and validation of the American short form Patient Activation Measure (PAM 13) in a Danish version. BMC Public Health. 2009;9:209.
17. Rademakers J, Nijman J, van der Hoek L, Heijmans M, Rijken M. Measuring patient activation in the Netherlands: translation and validation of the American short form Patient Activation Measure (PAM13). BMC Public Health. 2012;12:577.
18. Brenk-Franz K, Hibbard J, Wolfram J, Freund T, Szecsenyi J, Djalali S, Steurer-Stey C, Sönnichsen A, Tiesler F, Storch M, Schneider N, Gensichen J. Validation of the German version of the Patient Activation Measure 13 (PAM13-D) in an International Multicentre Study of Primary Care Patients. PLoS One. 2013;8(9):e74786.
19. Steinsbekk A. Måling av effect av pasientoplœring [Norwegian version of Patient Activation Measure (PAM)]. Tidsskr Nor Legeforen. 2008;128:2316-8.
20. Pelikan J, Röthlin F, Ganahl K, on behalf of the HLS-EU consortium. Comparative report on health literacy in eight EU member states. Wien: The European Health literacy Project HLS-EU 2009-2012; 2012.
21. Greene J, Hibbard JH, Tusler M. How much do health literacy and patient activation contribute to older adults' ability to manage their health? Washington: AARP Public Policy Institute Report; 2005.
22. Lubetkin EI, Lu W, Gold MR. Levels and correlates of patient activation in health center settings: building strategies for improving health outcomes. J Health Care Poor Underserved. 2010;21(3):796-808.
23. Hibbard JH, Peters E, Dixon A, Tusler M. Consumer competencies and the use of comparative quality information: it isn't just about literacy. Med Care Res Rev. 2007;64:379.
24. Osborne RH, Batterham RW, Elsworth GR, Hawkins M, Buchbinder R. The grounded psychometric development and initial validation of the Health Literacy Questionnaire (HLQ). BMC Public Health. 2013;13:658.