Health-related problems in adult cancer survivors: development and validation of the Cancer Survivor Core Set

Supportive Care in Cancer

Volumn 25, Issue 2, 2017, Pages 567-574

  Geerse, O P ^a   Wynia, K ^a   Kruijer, M ^a   Schotsman, M J ^a   Hiltermann, T J N ^a   Berendsen, A J ^a  

^a UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

Author keywords

Breast neoplasms; Colorectal neoplasms; Delphi technique; Disability evaluation; International Classification of Functioning, Disability, and Health; Lung neoplasms; Qualitative research; Survivors

Indexed keywords

ADULT; ARTICLE; BREAST CANCER; CANCER SURVIVAL; CANCER SURVIVOR; CANCER SURVIVOR CORE SET; COLORECTAL CANCER; CONTENT VALIDITY; DELPHI STUDY; DISTRESS THERMOMETER AND PROBLEM LIST; HUMAN; IMPACT OF CANCER VERSION 2; INTERNATIONAL CLASSIFICATION OF FUNCTIONING, DISABILITY AND HEALTH; LUNG CANCER; PRIORITY JOURNAL; QUALITY OF LIFE ASSESSMENT; QUALITY OF LIFE IN ADULT CANCER SURVIVOR; VALIDATION STUDY; COMPLICATION; DISABILITY; FEMALE; MORTALITY; NEOPLASM; PSYCHOLOGY; QUALITY OF LIFE; QUESTIONNAIRE; SURVIVAL RATE; SURVIVOR; YOUNG ADULT;

ADULT; DISABILITY EVALUATION; FEMALE; HUMANS; NEOPLASMS; QUALITY OF LIFE; SURVEYS AND QUESTIONNAIRES; SURVIVAL RATE; SURVIVORS; YOUNG ADULT;

EID: 84991109396     PISSN: 09414355     EISSN: 14337339     Source Type: Journal    
DOI: 10.1007/s00520-016-3439-0     Document Type: Article

References (31)

1. Berrino F, Verdecchia A, Lutz JM, Lombardo C, Micheli A, Capocaccia R (2009) Comparative cancer survival information in Europe. Eur J Cancer 45:901–908. doi:10.1016/j.ejca.2009.01.018
2. Maddams J, Utley M, Møller H (2012) Projections of cancer prevalence in the United Kingdom, 2010-2040. Br J Cancer 107:1195–1202. doi:10.1038/bjc.2012.366
3. Edwards BK, Noone AM, Mariotto AB, Simard EP, Boscoe FP, Henley SJ et al (2014) Annual Report to the Nation on the status of cancer, 1975-2010, featuring prevalence of comorbidity and impact on survival among persons with lung, colorectal, breast, or prostate cancer. Cancer 120:1290–1314. doi:10.1002/cncr.28509
4. Harrington CB, Hansen JA, Moskowitz M, Todd BL, Feuerstein M (2010) It’s not over when it’s over: long-term symptoms in cancer survivors—a systematic review. Int J Psychiatry Med 40:163–181
5. Stein KD, Syrjala KL, Andrykowski MA (2008) Physical and psychological long-term and late effects of cancer. Cancer 112:2577–2592. doi:10.1002/cncr.23448
6. Stanton AL (2006) Psychosocial concerns and interventions for cancer survivors. J Clin Oncol 24:5132–5137. doi:10.1200/JCO.2006.06.8775
7. de Boer AGEM, Taskila T, Ojajärvi A, van Dijk FJH, Verbeek JHAM (2009) Cancer survivors and unemployment: a meta-analysis and meta-regression. JAMA 301:753–762. doi:10.1001/jama.2009.187
8. Ell K, Xie B, Wells A, Nedjat-Haiem F, Lee PJ, Vourlekis B (2008) Economic stress among low-income women with cancer: effects on quality of life. Cancer 112:616–625. doi:10.1002/cncr.23203
9. Howell D, Hack TF, Oliver TK, Chulak T, Mayo S, Aubin M et al (2012) Models of care for post-treatment follow-up of adult cancer survivors: a systematic review and quality appraisal of the evidence. J Cancer Surviv 6:359–371. doi:10.1007/s11764-012-0232-z
10. Avis NE, Smith KW, McGraw S, Smith RG, Petronis VM, Carver CS (2005) Assessing Quality of Life in Adult Cancer Survivors (QLACS). Qual Life Res 14:1007–1023. doi:10.1007/s11136-004-2147-2
11. Dis FW, Mols F, Vingerhoets AJJM, Ferrell B, Poll-Franse LV (2006) A validation study of the Dutch version of the Quality of Life–Cancer Survivor (QOL-CS) questionnaire in a group of prostate cancer survivors. Qual Life Res 15:1607–1612. doi:10.1007/s11136-006-0015-y
12. Brach M, Cieza A, Stucki G, Füßl M, Cole A, Ellerin BE et al (2004) ICF Core Sets for breast cancer. J Rehabil Med 36:121–127. doi:10.1080/16501960410016811
13. Yen T-H, Lin L-F, Wei T-S, Chang K-H, Wang Y-H, Liou T-H (2014) Delphi-based assessment of fall-related risk factors in acute rehabilitation settings according to the International Classification of Functioning, Disability and Health. Arch Phys Med Rehabil 95:50–57. doi:10.1016/j.apmr.2013.09.006
14. Hsu C, Sandford B (2007) The Delphi technique: making sense of consensus. Pract Assess, Res Eval 12:1–8. doi:10.1016/S0169-2070(99)00018-7
15. Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, Chatterji S et al (2002) Linking health-status measurements to the International Classification of Functioning, Disability and Health. J Rehabil Med 34:205–210. doi:10.1080/165019702760279189
16. Powell C (2003) The Delphi technique: myths and realities. Methodol Issues Nurs Res 41:376–382
17. Hasson F, Keeney S, McKenna H (2000) Research guidelines for the Delphi survey technique. J Adv Nurs 32:1008–1015. doi:10.1046/j.1365-2648.2000.t01-1-01567.x
18. Ganz PA (2011) The “three Ps” of cancer survivorship care. BMC Med 9:14. doi:10.1186/1741-7015-9-14
19. Hewitt M, Greenfield S, Stovall E (2006) From cancer patient to cancer survivor: lost in transition. Committee on cancer survivorship: improving care and quality of life national cancer policy board. Institute of Medicine and National Research Council of the National Academies Press, Washington, DC
20. DeSantis CE, Lin CC, Mariotto AB, Siegel RL, Stein KD, Kramer JL et al (2014) Cancer treatment and survivorship statistics, 2014. CA Cancer J Clin 64:252–271. doi:10.3322/caac.21235
21. World Health Organization (2002) Towards a common language for functioning, disability and health ICF. Int Classif 1149:1–22
22. Wynia K, Middel B, Van Dijk JP, De Ruiter H, Lok W, Ha De Keyser J et al (2006) Broadening the scope on health problems among the chronically neurologically ill with the International Classification of Functioning (ICF). Disabil Rehabil 28:1445–1454. doi:10.1080/09638280600638356
23. Spoorenberg SLW, Reijneveld SA, Middel B, Uittenbroek RJ, Kremer HPH, Wynia K (2015) The Geriatric ICF Core Set reflecting health-related problems in community-living older adults aged 75 years and older without dementia: development and validation. Disabil Rehabil 00:1–7. doi:10.3109/09638288.2015.1024337
24. Polit DF, Beck CT (2006) The content validity index: are you sure you know what’s being reported? Critique and recommendations. Res Nurs Health 29:489–497. doi:10.1002/nur.20147
25. Cieza A, Geyh S, Chatterji S, Kostanjsek N, Üstün B, Stucki G (2005) ICF linking rules: an update based on lessons learned. J Rehabil Med 37:212–218. doi:10.1080/16501970510040263
26. Ma X, Zhang J, Zhong W, Shu C, Wang F, Wen J et al (2014) The diagnostic role of a short screening tool—the distress thermometer: a meta-analysis. Support Care Cancer 22:1741–1755. doi:10.1007/s00520-014-2143-1
27. Holland JC, Reznik I (2005) Pathways for psychosocial care of cancer survivors. Cancer 104:2624–2637. doi:10.1002/cncr.21252
28. Crespi CM, Ganz PA, Petersen L, Castillo A, Caan B (2008) Refinement and psychometric evaluation of the impact of cancer scale. J Natl Cancer Inst 100:1530–1541. doi:10.1093/jnci/djn340
29. Weigl M, Cieza A, Andersen C, Kollerits B, Amann E, Stucki G (2004) Identification of relevant ICF categories in patients with chronic health conditions: a Delphi exercise. J Rehabil Med (44 Suppl):12–21. doi:10.1080/16501960410015443
30. Gerritsen A, Jacobs M, Henselmans I, van Hattum J, Efficace F, Creemers G-J et al (2016) Developing a core set of patient-reported outcomes in pancreatic cancer: a Delphi survey. Eur J Cancer 57:68–77. doi:10.1016/j.ejca.2016.01.001
31. Hopman SMJ, Merks JHM, De Borgie CAJM, Aalfs CM, Biesecker LG, Cole T et al (2013) The development of a clinical screening instrument for tumour predisposition syndromes in childhood cancer patients. Eur J Cancer 49:3247–3254. doi:10.1016/j.ejca.2013.06.015